Febuary (1)

February 1st

Not a good night a lot of spasms and the dreaded pain. Nerve pain and muscle pain plus the hot/cold thing. Trying not to take too many extra tablets as they affect my IBS.

Had Jamie-Lee later while Lindsay went to football training. I asked Jamie-Lee if Tommy-Lee had gone to train and she was not sure, was he in the car I asked-- again not sure. Surely you would have seen him. He could have bean in the boot came back the reply from her.

Andrew mostly played with her again running around and shooting each other with arrows. Very noisy but I think they both enjoyed the night. When Lindsay came to pick her up she was not keen on going home. Lindsay said she slept well that night.

Later on some of my pain settled and I was able to sit and relax more comfortably.


Woke to extreme pain in left leg calf, I managed to stop them going up my leg.The best way is to stop them is to stand up but I could not do that as leg was so tight.

Age UK-- not as busy today but steady all the same. A bit of excitement too, a man had a large blade. This went on just under the windows of Age UK. We were told to lock the place down no one in or out. After around half an hour all finished and the man carted off. One of the girls saw the blade and said it was a big one around eight to ten inches in length. Some of the old folk said they had not had as much excitement since they watched NCIS a TV program.

Left there to go to physio. I told him about the pain and spasms I have bean getting and this restricted the amount I could do. Some of them not at all. He thinks they are not helping and suggested a HYDRO POOL. This will be at my own cost. He will keep me on the records for the next month giving me time to try again if things alter. I have an appointment with my Doctor on the 27th Feb so can discuss things with him. The physio suggested a place quite close for HYDRO work. I will ring them and see what they have to offer me.

I am a little bothered about starting up the SEIZURES again as PAIN is a main factor. My poor body has taken a lot of extra pain over the last few weeks.


Legs very tight and quite sore today.

Going to Curry's to see about a new vacuum cleaner. The one I use has got very noisy and the pole is short so makes my back ache. Noise can make RSD pain a lot worse. This new one is very quite and the poles a lot longer. Hopefully it will be a lot better.

Little bit of snow, not settled though, phoned Wayne he has snow as well his has settled a lot more. Very cold here too, but colder in Halifax.


Legs a bit better but sore and tight to begin with. Very cold on the common today. When Sumner and I got back and after a rest for both of us, I brushed her. Afterwards she gets a chew for being good.  Summer started crying and seemed to have trouble breathing. Her stomach swelled up. I massaged her chest and stomach. After a long time she gave a borking sound and a vary large piece of chew came up. Summer instantly felt better had a drink and a cuddle and went to sleep. I was so worried about her.  What a day I thought she was going to die in front of me..

Made my friend John a cake. Did not turn out too good. I think I might try again to see if I can better it. 


No Pilate's today I do not think my body would cope with it all. Violent spasms and pain in my calves. At one point I had to hold my feet to stop the spasms from going up my leg. So strong are the bad muscles.
Made another cake this one turned out a lot better, took it to John but he was away for a few days so had to leave it with someone else. He will get it though as I have left things before so no problem there.

Watched TV with Andrew a weird thing about a hundred people in a ring can not move or touch their partner, have to say who dies and keep going till only one left. This was called the Circle, quite good is was. This was something to do with an Alien experiment.


Age UK again we were told a new coffee machine would be here today. Less to do on it as all automatic, saves a lot of time or it would have bean if Wendy had seen to it. No new machine we were told it was too expensive, so on with the old one. Steady again so good for me as tired.

My Daughters washing machine and boiler has broken down. No new boiler till 17th and no hot water or central heating. Poor Lindsay and the weather is not that warm either.


My friend Lyn is here today to bring me my Birthday card and presents, and she has brought a large dolls house for Jamie-Lee.

Lindsay and Jamie called round with a lot of washing to be done. Jamie loved the dolls house.

Not quite as much pain today joints feel a bit less tender and looser.


Happy Birthday to me. Paul, Andrew and I are going to Skegness for the day. We walked on the beach top very cold and windy like ice as the picture shows. the sand was whipping up and blowing along, only two people on the beach.


We on to the Natureland Seal Sanctuary saw the babies and the bigger seals. Also crocodiles and other things like the tropical house. A good day looked at the shops that were open and had fish and chips well stuffed now.


The last four pictures are the seals that get rescued from the beach around Skegness they recover and get moved on to the next stage..
These are the seals that have recovered and are doing well. Soon they will be in the main pool then back to the sea.
 All pictures taken by Paul in the Natureland Seal Sanctuary.

 Fish and chips so good Andrew had Curry and Chips.


Paul dropped Andrew and I off and went on to get Lindsay, Tommy-Lee and Jamie-Lee to have tea with us. Chinese. I was still full from dinner but managed some. My Birthday cheese cake which was very good. Lindsay brought some more washing as well. 

Cards and presents I received.

A good day even the pain relented a bit.

I phoned up the Hydro place and asked about cost, £45.00 for half an hour. I don't think I will be going there. The college has a spar pool and I will try that £7.00 for as long as you like. Discount for disabled too and I can bring a friend to help me or keep an eye on me, as the last time I was in a pool I had a lot of SEIZURES on holiday in 2016. So they will be happier if someone is with me. I go there for physio so they know me quite well.


Pilate's today first time this month, It looked like even this was not to be, as the main road was closed. Luckily the work men let me through as I was classed as a pedestrian. Peddled along till I got to Heighington then that road was closed as well. I managed to get past on the path, but this was covered with a lot of mud and tar from the road laying.

Pilates at last-- a lot was painful and sore for my body. Anyway as usual I did my best. Had a word with Jo and she showed me a way avoiding the road closure. She went slow in the car and I followed her. Homeward bound, the road worker let me though the main road again. I was pleased when I got there as it was very cold and icy rain.
All the work should be done by next week so hopefully no problems for me.


Sorting out the dolls house for Jamie-Lee, it just needs a tidy up and vacuum. Some of the furniture needed mending as well. As you can see its double sided so more play area.

According to Jamie-Lee these are the family pets living in the attic.

Lindsay rang up and asked if I would have Jamie while she went football training with Tommy-Lee. So she was able to play with it and was pleased I had sorted it out.  We stuck some pink fur on the kitchen seats and she was happy. In fact when Lindsay came back she did not want to go home. She said I have only bean here ten minutes more like two hours. Lindsay's was not feeling well either. Home to bed I think for both of them.


Woke to sweating and not able to move, SLEEP PARALYSES again. I am going to have a lot of thing to sort out with my Doctor on the 27th February. Most days I am going through either very hot or very cold or both together. No wonder my body is so confused.  All the extra tablets I have taken have upset my IBS as well so bloated with it. Feeling so fat as well not nice.

On mine and Summer's walk we saw two Robins, two Blue Tits, two Wrens, loads of Magpies and to top it off the Red Arrows. Where can you get all that in one walk. Lincoln's South Common that's where.

Age UK, so busy you would think we were giving the food away. Short staffed in the kitchen as well. One on holiday, one off sick. We coped though as we always do, a long day. We sold out of just about all the food even the bread.

Looking after Ben and Emmie later so that will be good.Jay-jay called round and said his friend had cut his hand very badly and was at the hospital. I hope things go well for him. according to Jay-Jay there was glass involved.

Well that's the first part of February's Blog. Not the best again a lot of pain and spasms. Also hot and cold, things can only get better. All the best to everyone. Love  Gill.

January (2)


Very cold today on the common, this did not seem to affect Pup as she ran around like a loonie.

My shoulder is tight and very painful, hands going numb. So far (1pm) I have not taken any extra tablets.
Later I had a bath with the oil that I got as a present from Bev for Christmas. This warmed up my body and helped to numb the pain if only temporary.

Spoke to Wayne in Halifax, he said they have got a lot snow. His journey home from work was a nightmare for him and a lot of others on the bus. He left work around six, he phoned us around eleven and still was not home. People were abandoning their cars and getting on the bus, most likely thinking it would be safer. Wayne said the bus was sliding all over the road. What a journey he said. Over night rain got rid of most of the snow.
We had a bit of snow but nothing like that. Halifax has way more weather problems than we do. Lincoln is very lucky or unlucky which ever way you look at it and get hardly any snow.


Pilates journey was good, a quite easy ride, one lady asked me how I got on with all the wind. OK I said no problems. I thought I must have had back wind most of the way, hard ride going back I think.
Pilates session was good but so painful at times pain in both shoulders and arm and fingers went completely dead no feeling at all. The feeling returned after around half an hour but not before causing more hot ache type pain. Even going home my hand was not back to normal. As I thought head wind most of the way. Thank goodness for electric pedal power.

Later while sat down my right heal was hypersensitive and so painful all I did was just brush my hand against it. this set pain off everywhere and again took a long time to settle down again. This time I took extra tablets IBRUES. Quite swollen as well.


Age UK-- a bit late getting there as zip stuck on my coat. A busy day, I dropped a cup and it bounced, my fingers are not good, dropping spoons and many other things as well. Over rung in the till twice as fingers not feeling the buttons well. Polly sacked me not once but twice, even though I don't get paid work there.

Bit of shopping, two pairs of pj's and a dressing gown. My others are irritating my skin as a bit rough on the inside. A normal person would not feel this but someone with RSD it can be very bad. I have a nerve rash at the moment so my shoulders are quite sore. Right foot hurting as I walked back home.
I was quite pleased when I got there today, as very tired. Bean a tough week with pain.


Lindsay around today with Jamie-Lee and Tracy. I have not seen them since New Year as Jamie-Lee has had chicken pox. Now all better, still Tommy-Lee did not get it or Jay-Jay so far.
Lindsay has not had a good week either still bad heads. Doctors are still unsure what is the plan.

Andrew played with Jamie while I finished her jacket off and she took it with her. I will have to get a picture at a later date.


A easy day just sorting out paper work and cooking tea, roast beef for Paul and I, pepper tart for Andrew, plus usual other bits. Not as much pain today but fingers are still not right.

Lindsay phoned and said Jay-Jay had got chicken pox, he was here last week so I could still get them off him. Hope you don't suffer too much Jay-Jay and get better soon.

Later Lindsay got in touch and said now Tommy-Lee has got it as well. Get better soon Tommy-Lee. Jay-Jay is covered in spots and does not feel to bad. Tommy-Lee has hardly any spots and feels bad and is in bed.

My body feels like it is on fire and very HYPERSENSITIVE back being the worst.


First pictures of the snow drops in my garden.  I have two lots, these ones about a month before the main lot.


My friend here today. He asked me if I would mend his pockets on his coat. He usually goes to the market, I know they can charge a lot. I said give me it here and I will do it now. He was very pleased as bean loosing his pens and money in the lining.

Summer was a bit naughty today she got the lid off her treat tin and ate a bag and half of mixed treats. Andrew said she was clever a few days earlier I got her a new toy-- guess where the treat is.


She did very well at the game and thought she would help herself. When I told her off she wagged her tail and put her head on one side as if to say what happened.


B12 today, this hurt quite a bit this time. I asked the Nurse about all the joint pain I have bean getting and if it could be the OSTEOPOROSIS, I stopped taking the tablets last year. She said I would have to see the Doctor about it. I will try to get an appointment if I can, not easy now since we have merged with another practice. Bad head today pressure around the eyes dizzy sore neck, when I bend forward. When I do the exercises from physio my shoulders and back are going into spasms. So not doing too many at the moment.


Not too good today no Pilates head pounding and quite dizzy. Joints are very bad hurts to walk if fact, it hurts to even breath. Very tired as well but as usual no sleep. Andrew and I were watching TV when it started playing up so he turned it off. Problem was it did not turn on again. Wayne bought me it less than two years ago. So I will get in touch with them to see what can be done if any thing. Two years is not long for a TV. The warranty was for eighteen months.


Suppose to be meeting friends in town today for a chat and cuppa. Not really feeling up to it but this has bean arranged a while. I did end up going and quite enjoyed the time with them, nice to meet up.

Later I did some more of a puzzle I started a while ago  very difficult one. I finished, with help from Andrew and a little bit from Paul, around midnight. 

I agree this was one of the hardest puzzles I have ever done. When I told people what I was doing, most said I could never do that, no patience.


 I rang up the television warranty place and spoke to a very informative man who said he will see what he can do. He agreed it had not lasted very long. He needs to speak to Wayne as he has the receipt and did buy it. Wayne thinks they will try to sell an extended warranty then mend it.

Age UK was very busy, straight in with the lattes and cappuccinos this was the trend for the rest of the day. Jenny does not use the machine so it was all down to me. I know my wrists hurt a lot. Setting off the CARPEL TUNNEL.
Got a new zip for my coat decided it was worth the effort of putting it in. I don't like doing zips, find them hard to get straight, then my fingers are not the best with spasms and pain. I never know when they are going to jump or give way. Not too good when using a sewing machine.

I got the old zip removed and the new tacked in ready for machining tomorrow.


I managed to get my zip done, after not a good start. Cotton got all taffled up in the bobbin, then the needle broke. After that things went better and I was able to make quite a good job of it. Hopefully it  will last a few more years now, as its a long parka type coat, warm and fits well.


Afternoon watching Robot Wars with Andrew. Some good battles today, even the big house robots got taken out by one of the battlers. Very good and exciting viewing. I used to watch this quite a lot years ago, seems it has come back again. Afterwards I felt quite stiff and in pain so took Summer out for another walk, she was very pleased and could hardly wait to get out the door. Later I did the ironing.


Cleaning up today downstairs, Paul is helping me.

I have now started my Lion rug this will take a long time to do. I like to have a mixture of things on the go so I can have a change. This is a big rug and will look very good WHEN finished. The grid is quite hard to follow but I will get used to it. Done eight rows so far only one hundred and thirty two to go!!.


Sorted out my crystal glass cupboard, this I hate doing as my hands are very unpredictable so I could drop them. Today my hands seemed quite good or so I hoped. Anyway it was a good day and I got it all done. Shines now and looks a lot better.

Started knitting a small toy called Charlie this will keep me occupied with the rug as well. Nice to have a change I think.


Not at Pilates today again I hurt too much, body very hypersensitive too, headache and tired so I will rest a bit if I can..

Well here we are at the end of January not going too good for me but it could be worse. I wish I could get up in the morning and feel like I have actually bean to sleep and may be without pain. Is that too much to ask for?                        All the best to you all Love Gill.

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