May 1st

Realised I had left my tablet tin at Age UK when I sorted out my bag last week. I rang them first thing and told reception to look out for it.  I had a very irate call from one of the  managers there. She seems to think it was my fault I had left it there in the so called staff room. Any way I am to have a meeting with her on Friday before my shift. I told her I am only a volunteer not a paid worker. We have only had lockers for the last three weeks so I think my tablets are safer with me than in a shared locker that is not always locked after people have bean in it..

Pictures from the 29th of April when I did the car park over grown bit.

 Big pile of rubbish I made.
 All tidy now.
 Summer watching through the fence.


Rain pouring down so the common walk was a bit later, cold as well. Summer did not mind one bit. The common that was just about dry in most places, is now wet with big puddles all over. With the horses running around, the paths have bean churned up again. I have bean told the West Common horses are going back home very soon. Our horses should go with them then our common would have chance to dry out too. After all around thirty odd horses came here, so I think its only fair they should go for a holiday too. Not my decision, up to the owners and the council.

No Pilate's today I just feel so drained.. I hurt everywhere, spasms some extremely painful. Temperature changes are all over the place waking up wet through with sweat, then shaking with cold, less sleep than normal (what ever that is) I feel very down as well, big cold sore come up on my lip feels like a marble very painful. My hands are loosing grip and hurt when just touched. But as many of you know its no use resting too much, as it makes things worse, for me any way. I think I could have accepted this RSD more if I had bean involved in a bad accident or such like. All I did was trip while running--- that's RSD,  cruel or what . Most RSD  have started with a minor fall or operation. Having no specialist does not help either. Only seeing my Neurologist when SEIZURES are on going. You are pretty much on your own. well I am. My Doctor does his best and is a big help to me. He really does not know too much about RSD though.


My friend Miriam is not well she has a bad chest infection and is really struggling. I spoke to her on the phone and she sounded quite bad. She is pleased to be home though after spending a few months in a care home and hospital when she had a fall last December. At great cost too she said, she did not like it there at all. The home she was in was only a few hundred yards from her own house, so that did not help at all, she could all most see it from the lounge. 

Well Age UK  two people interviewed me or that's how it started out.I think I was treated more like a criminal than a person as one of them got very mad and started shouting at me. I said many times why are you so angry after all its me that has lost a tin and a few tablets. (2 GABAPENTIN, 4 ish IBRUES, 4 DIHYDCODEINE and some MINTEC (and maybe a MORPHINE one.) I carry one in case I forget to take them in the morning as I go into withdrawal. She said I don't think you realise how serious this is. Anyone could have taken them. I said well you have a thief then! If we had a proper staff room this would not have happened, as it would have bean locked up until Monday and still bean where I left them or handed in, not taken by a thief. She did not like it one bit, I told her why I need the tablets and the quicker I get them taken the easier is to control the pain. After all the big locker I mentioned earlier was not safe to leave them so I carry them with me. Once, no twice Nills had to break in when the padlock got stuck. Up to now there has never bean a problem. I do my work very well and the other staff say I put in a good shift and are a big help to any one. My work was in question as the side affects of the tablets I take can do strange things to the taker. (She read about the side affects on the web.) I said I have bean on the same ones for years and the affects are not a problem only if  I take extra, extra like when when I am ill of course, but  then I would not be at Age UK. I think she was making more of the incident than was necessary.
After another meeting with them both after my shifft I asked if Jenny could come in but  NO with quite a nasty air to it. She said why are you making it more difficult and worse for yourself????  I am not on trail here I thought. I had to sign at a risk document and not use the coffee machine this I was pleased about that as I have never liked it.  If I did not sign I was out the door. I said I thought you needed volunteers!!!!.

This is not the first time she has bean sharp with Jenny and I. After a while this hit me and I got quite upset. Gary had a few words with me. Jenny was very angry as she was there when I left the tin of tablets last week, and could not believe at what had bean said to me.
I could have walked out, but that would be letting a lot of people down so I will be going back but she has not heard the last from me.


Phone call from Wayne, he is on his way here and staying till Monday. The computer has bean playing up so he will have a go at it with  Andrew. Both are good with with computers. They think there was a Windows 10 up date, that has got stuck in a loop and can not finish the task. 
Will be good to see him. The weather is meant to be very warm/hot this weekend.


Well what a hot day, the hottest so far this year.  Lindsay is here with Jay-Jay and Jamie-Lee, Tommy-Lee is out with a friend swimming. We spent most of the day in the garden very hot, I got suntanned on my shoulders and face. Lindsay and I used to have a competition to see you could get the brownest. She goes mid brown and I go dark brown. There are lots of days when I can not sit in the sun as I get very itchy and sore.

Jamie-Lee spent most of the time in a paddling pool and using her bubble gun machine (makes soap bubbles) this is very good and makes lots of small bubbles which floated off in to the sky. Must be nice to do that, just float off.
A good day after the problems on Friday I have another meeting on Friday 18th.

Wayne worked very hard on the computer but did not solve all the problems.With Andrew being here all the time now, he now gets asked to help Paul and I solve the things that crop up from time to time that come with the web and other things you get going on a computer. so I say a big thank you to you both. Wayne had to leave to go back to Halifax or he might have finished the job. Does seems to work faster and not crashing as much.


Pilate's today, first time in four weeks. I struggled quite a bit but I did it most, my way as usual. Nice to be back and good to be back on my bike again. Quite windy but a warmish day. Very tired later and the pain and spasms were not kind to me. My skin feels very sore and hot to the point of not being able to settle and try to relax. Not sure what its all about, could it be the sun I had on Monday but still it would not be full body would it.?. Maybe my body's in shock with all this sun stuff ! Any way joking apart its not nice


Not good news Miriam has passed away. She was found by her carer in her chair collapsed. She went to hospital but did not make it.


Age UK again lets hope it going to be nothing like last week. Gary said he was proud of me and gave me a hug. He said its a big step to return to a place after last week episode. The other two asked me how I was. Not everyone knew what went on last week. Jenny was very supportive even going to see the Volunteer's Coordinator earlier in the week. This I did not know till a lot later as we got busy and Jenny did not have time to talk with me.

Any way today's another day. Had a good talk with Poly that helped me. (Polly is the chef/cook)  We were not busy for a while, then like a bus load came. We managed to help every one. One man asked for a ham and tomato sandwich, when I asked him on what? he said a plate-- he was being very serious too. I meant brown or white bread. He laughed and said he felt stupid.
A good day with no problems. Not going on the Espresso machine seemed funny, but my wrist did not hurt as much.

The lady that interviewed me came through kitchen twice,  but did not say anything to me or Jenny.


Angela came round and we talked about Miriam, we both got upset. She had only bean home two weeks. That's all she wanted, to go home and be herself, something she could not be at the care home she said. Angela and I will go to the funeral.

I have bean making a few toys not really for any one, mostly just to do them.
  There was another one but it went to a little baby in the end.

The little doll and cradle are for Emmie 's Birthday in a few weeks time.


Awoke very groggy and a bad head, NO, not bean drinking but I think its how I would have felt if I had.I will try to keep going and see if I can shake it off.

My friend John came round and we had a good talk. I had made some cakes and he smelt them and was pleased. He ate two and took two home. Even more pleased now. They were very tasty too. I do not have many cake as they upset my IBS but these were worth it and I did not suffer too much. 

Not a bad day but very tired, well more than tired, exhausted. Lack of sleep and pain plus everything playing up does not make a very settled mind and body.


Well Summer must be here as I have put on the thinner bed quilts. 

Angela popped by and updated me on Merriam's funeral arrangements. No date yet but we now know who will be doing the service.

Lindsay phoned up and asked if I would have Jamie-Lee for a few hours after School, while Tommy-Lee and her go into town  Jay-Jay also called in earlier, he left his Mum and Dad in town. He had bean to the Hospital for an ear appointment. For a long time he has had trouble with his ears and lack of hearing. They told him he has reduced hearing in both ears and glue ear in one. Nice to see him, not bean here for a while.

Lindsay, Tommy-Lee and Jamie-Lee, arrived stopped a while then Lindsay and Tommy-Lee headed off into town. 

Jamie-Lee and I played with the Barbie dolls and then did some colouring. 

A few hours later Lindsay and Tommy-Lee returned they managed to get what they needed.He has a Football Presentation on Saturday so wanted to get jeans and some other look his best.
Lindsay was not too good I think she had over done it with going to the Hospital and town, plus town again with Tommy-Lee.and I think she had done too much, after a rest they all went home.


Still not feeling too good but I am going to Pilate's at least it will get me out the house. A cold windy day the wind was very gusty going too.
The session was quite a good one with a full house today. I did what I could, but felt very week and extremely tired. Had a word with Jo (Pilate's teacher) and she said I think, its your CHRONIC FATIGUE playing up, I agreed with her. Still very windy/cold coming home. Maybe I should not have put the Summer quilts on.

That's May's first half, not the best start to spring/Summer for me. Hopefully things will improve when the sun gets stronger and we have some continued hot days. Hope things are as good as they can be with you all love Gill.
Picture of Summer and her very best friend Suey, .Lindsay's dog

April (2)


I think spring is here, a very warm day. The Fair has arrived so Summer and I have to go back to the main common for now, its only here for the week but takes around a week to set up. I know there is a lot of water on there so might be a bit tricky to put up the rides and stalls..

The main common is still very sticky, but I think if this warmer windy weather keeps up it will soon dry. Summer found a lot of mud so had to be washed down in the bath. She loves the water and mud and will charge through it if not watched.

Not too bad a day pain built up towards the end of the day. I had Jamie-Lee for a few hours while Lindsay went to a football meeting. I had made her some clothes for her tiny dolls from her dolls house. I did not tell her and the look on her face was lovely when she saw them.

As you can see tiny, the blue and tartan dress I bought.

She had a good time playing with the house and dolls. Lindsay picked her up quite late around ten. Jamie-Lee said I usually go to bed around eight, not tonight I said. She did not even seem tired. I know I was and the pain had reached tablet level. Had a nice BADEDAS bath hopefully that will ease it a bit.


Pain is at a high again today, taken too many tablets with not a lot of relief. I said yesterday I thought the common was drying, it is. Hopefully there will be no rain for a while or it will be back to a mud bath again. Summer was OK today because I put her on her lead when there was any mud around. She did not like it much but she kept cleaner and did not have to have a wash down.


I decided not to go to Pilate's today as still in a lot of pain just about every joint and muscle I have hurts in some way.
No use sitting down for long though making it worse, so I sorted out the seeds in the greenhouse and sowed them. Flowers and cucumbers no tomatoes as I did not have any, will get some on Friday.


Very warm, even hot today very nice. Lovely on thee common and I was able to wear my walking shoes instead of my welly boots.

Nes came round and asked me to look after Tabby Cat while they were away a few days.

Cleaning up today and washing. Sat outside when Nes was here and it was good and so warm. Our garden is south facing so gets the sun most of the day.


Sunshine is still here so no jacket to go to Age UK. Busy but not over the top and no incidents either.
Still hurting but not quite as bad. Not too many coffee drinks  on the cappuccino machine either, so that helped my pain. Still taking far too many tablets still, but what else can I do?
Bit of shopping then home.


Up later today but felt worse for it, bad head the sort that feels like my head is dropping off when I lean forward. Taken IBRUES hopefully this will help. My overall pain has gone down a bit but still not good.

The walk on the common was nice, Andrew came as well, Pup was so pleased and showed it as well by running around like someone crazy. A good walk and she did not get mucky either.

Tabby is doing well and eating his food and giving me lots of purrs and head rubbing. I sit with him for a while and stroke and cuddle him. His family are back today so he will be happy. I think he has missed them especially Ben (10) who usually sorts out his needs.

Headache good now and other pain not too bad either, so a better day in the end. I even made some small sponge cakes, they tasted very good. Paul put in some sausage rolls as well.


Take away for tea tonight, so no more cooking. I think for the rest of the day I will  just take it easy, then a bath later.


Summer's hair cut Maxine cut loads off, cutting for over an hour. She looks so small now and so white too. She had her nails clipped as well. Summer had a long sleep as she was very tired she did not get her morning sleep after her walk. Trouble is now she is moulting a bit so everywhere is covered in cotton wool like fluff.

 Before she was cut.

All the fur off her.

Just finished cutting.


No Pilate's today I just don't feel I could cope with it.

A very windy walk on the common the over night rain has made it very wet again. Summer was mostly good and did her best to keep out the mud.

 A few pictures of the horses as promised.

These are a bit far away as the horses were in the wet muddy bit. Not too sure when the west common horses are going back there. I know our common is a lot worse for them being here.
Maybe they will all go back there for a while so ours dries out.
A few days ago someone had taken a whole section of fence away so the horses could get out. Today it looks like they have had another go. This was only replaced two days ago. Why do they do this it does not help anyone.

   Well the trees think its Spring and are coming into flower and leaves forming. 

Pictures taken from the park. 


Cold wet and windy, gloves on again for our walk could had done with my hat on as well.

Age UK steady today- not over busy enough to keep me busy though. More new rules only one person on the till. I am quite happy to do the rest and Jenny is happy to be on the till. She said but you will have more to do. She did help me out and and it worked quite well. Everytime I come here something has changed.

Very tired and hurting, when I got home wet too as the rain did not really stop all day.


Today I decided to do the car park bit at the back of our garden, WHY--? this is over grown with ivy and small sycamore trees  Left they will grow big and block out the light. This took a lot of doing but I got there in the end. The problem was the roots of the trees, when done before Paul only cut them
so they had grown more deeper roots. Summer stayed with me the whole time looking down on me.The car park is a big drop down from our garden. I also had two Robins watching me and eating the bugs and worms.


A cold windy day more like winter than spring. Summer had a good walk and got muddy on the last bit. I took her to the spring water and she washed her legs and feet. I bet it was cold.

My friend John is here later so that will be nice to catch up on his news.

Well here we are heading for May hope the weather improves and we can get rid of the coats for more than a week. Hope you are all well and doing the best you can. All the best love Gill.

A picture of the cathedral taken from the common.


April 1st

Wayne here till mid afternoon. We had a roast chicken dinner, very good too. Fed Andy's cats and gave them a cuddle. I think he is back later today, the cats Cowley and Smudge will be pleased to see him.

Wayne left around 3-45pm, Paul took him to Newark train station. He said he had enjoyed the weekend.

Went back round to feed cats later and realised Andy was home (but having a sleep upstairs he told me later) so I left after leaving him a note. He had given the cats their food.

Phone call from Wayne he had got home and his cat Timmy was pleased to see him.
Wayne said there was a snow warning for Halifax also maybe for us as well.


Wayne got snow over night we got rain and cold..

I looked out the dinning room window and saw this----


He/she was just strutting around eating the dropped bird seed and was in no hurry to leave. Pheasants  are a very pretty birds and big too. I would say its from the common as they breed there and at times you can hear them calling to each other.


Sincil Bank river water level is very high.


I have bean told some of the houses further down the river are in danger of flooding. There are flood gates there, so they will have bean opened to level the river off.  The river has not gone over for quite a while so maybe this is the year for it. We will not be bother by the raising water as we are higher up, hopefully no one will.

Gave Summer a bath-- she looks very sweet now and so white again.

I also cleaned my bike, looks good like new but its nearly ten years old, but the road I go on are next to a road building site so it will not stop clean long, a bit like Summer.

My bike--nearly ten years old (in September.)


The common is very wet and not nice at all. I think we will go on the Fairground one tomorrow hopefully a bit dryer. The Fair is not here till the 20th of this month, but will set up be for then.

Pilate's taken by Jeff today Jo having a few days away. Jeff is very funny and tells us things that has happen to him. The session was good but a bit faster than Jo's normal classes. Most of the class were fine with this. A few sat down a bit more than usual, but overall everyone enjoyed it. When I left there it was sunny, so I decided to go the long way back home. This adds on around a mile or so.
Bad move, the heavens opened and I got soaked, very cold when I got home. I could have stopped and put on my waterproofs, but the rain came so fast it was really  not much point any way I was going home.


Andy came across to thank me for looking after the cats. Angela came round also, her car was near by for a MOT so she came here and waited till it was ready. The car passed so she was pleased.

Joy also phoned up all these people in one day is a novelty.


Age UK very busy all the time non stop. Jenny was back so that was good so nice to see her. Every one was glad she was back. Bit of shopping then home.


Jamie-Lee here tonight as Lindsay is going to football tomorrow  with Paul and Tommy-Lee early in the morning. This is no ordinary match. Wembley no less. The Checkatrade Trophy Lincoln v  Shrewsbury. They are all going with Paul in the car. Tommy-Lee does not even know he is going yet. What a day for them, how much chance of winning they have I am not sure, but they have bean playing very well just lately.

Jamie got here mid afternoon, excited that she is staying overnight. We played with the dolls house she got last month from my friend Lyn.


Paul set off around six thirty and dropped Jay-Jay off here then on to the match with Lindsay and Tommy-Lee, who is very pleased, he thought he was dreaming and still thinks he is. Have a good time there Tommy. Jay-Jay had a few friends round then went out.

Jamie-Lee had a good sleep and went on the common with me and Summer.

We had the radio on in the afternoon and listened to the big match.


Tommy-Lee and Lindsay.
Tommy-Lee. Lindsay, and Paul.
Tommy-Lee very excited

 Paul's Hero Bobby More.
 The stadium.
 All lit up from above.
  Tommy-Lee and Lindsay waiting for the match to begin.
 They got there very early so still a lot of seats to be filled. 
 Now its fuller.
Lincoln scores.
Elliot Whitehouse the goal scorer.

Lincoln scored the first goal a roar went up from the stadium. Lincoln being the under dogs were not expected to do as well, and here they are with the first goal. Will they be able to hold on to the lead though.

Not really looking worried are they.

We had the radio on for the whole match I am not a football fan but this is big. Lincoln went on to win the Trophy against all odds.

 Look at that they went and WON.
  We did it.
 Well done Lincoln.
    Even Summer did her bit.

They got back late after dropping Lindsay and Tommy-Lee off, so Jamie-Lee stayed another night.. Paul told us all about the match and the massive roar that went up after the goal and at the end of the game with  them winning 1-0. Paul said Tommy-Lee slept a lot of the way home, Lindsay dozed a bit she had very bad head pain. I think the day got to her very noisy in the stadium she said. She could now have a lay in and pick Jamie-Lee up tomorrow.


Jamie-Lee awake 7-30am early for me, short night, (bed around four thirty am)

A sunny day and quite warm too. Jamie-Lee had her trampoline out and was jumping up and down and having fun. Of course it rained later.

Lindsay came around dinner time and stayed till 4pm. Jamie-Lee showed her what she could do on the trampoline. Lindsay told her about the match and her and Tommy-Lee's day. Jamie told her about her  day too.


At Doctors today trying to sort out my nose. Just lately I have had so many big nose bleeds. the sort that I have to kneel next to the toilet and just let it pour out. After I get a lot of blood clots at the back of my throat that burn. The blood vessel that I have trouble with inside my nose has got inflamed again. I think I have got about six cold sores in my nose and  back of throat.
Dr Mehta examined my nose and throat and said its bad  inflammation and a lot of soreness at the back of my throat. I have bean given the same cream that I had last time its an ANTIBIOTIC CREAM called NASEPTIN if that has no affect he will give me oral ANTIBIOTIC tablets.


Paul took his car for a MOT and it passed, so that was good as he has spent a lot of money on the car this year. 

A cold windy day, cold going to Pilate's. Jo was back today but not a good session for me a lot of pain and discomfort. On the way home I saw the horses that have come from the West Common around 30 odd of them. I think there is more to come. All sorts of sizes too and colours too. I will try to get pictures of the horses at a later date as we are not going on that common at the moment because its too wet. Waiting for it to dry out but the rain keeps falling.


Age UK a quieter day --the lift has broken down and will not be fixed for a while. So all the ones that can not do stairs have stayed away.

A man got a bit worked up today and started shouting and spat his cake on the counter. He was escorted out. I think drugs had a lot to to with his behaviour. A few said they could smell drink. Any way the police came and told Wendy (head of kitchen) that he was well know to them,
Made a change, anyway I have dealt with people like him before when I used to work at Jackson's and Shipley's a builders firm. Dealing with builders that could get quite rude and suggestive. I was not bothered by him at all. I did not think it was necessary for the police to come, but that's my opinion.


A sunny Spring like day, did quite a bit of washing got it dried and ironed. Out tonight looking after Ben and Emmie. They are very good and there were no problems. Emmie is a typical five year old wants everything to be around her and can be very funny with out knowing it. Ness and Squidge got back around midnight. Came home had a bath then watched a bit of TV then bed.

The cream the Doctor gave me is helping a lot, no where near as sore or swollen.

Paul has bean away for the weekend so just Andrew and me plus Pup of course.

 To finish with tubs of daffodils from my garden .

As usual I hope you are all well as can be, and things are not too bad for you all. 
All the best love Gill.

Leaving comments...

Some people I am told are having trouble leaving a comment.This should help.

Click on to comment next to envelope, at bottom of each posting, write comment, copy Text in box the same as shown, choose ID, click on anonymous, see preview, publish.

You can always leave your name in the comment if you wish.