Glad I am feeling a bit better now. Still a rash on my body but I don't think that is anything much to bother about. Sort of lost two days but that's OK.

Took Summer for her walk with Paul, not on the common as we have had a lot of rain so the common is all puddles. We went down Sincil Bank, the river is very high and flowing fast. The ducks and moorhens are keeping close to the side.

Tired when I got back and week too. Now I need to have a clear month from any sort of illness to build myself and my immunity back up.

I can remember when I first got RSD and was ill a lot more, Doctor Metha said you need a good few weeks to build yourself up again. Then and only then, will you stop picking up infections and improve.

Wayne phoned up and said he had got the job- he was so pleased everyone said to him he was definitely the right choice and will be an asset to the team. He will still see his friends and other team workers, as just going round the corner in the office. Well done Wayne the only way is up now. All the hard work you have put in- now pays you back..


Rash does not seem to be going away- getting redder and more raised. Paul got me an appointment to see the Nurse Practitioner later today.

Took Summer on my own, legs felt like jelly but a nice Autumn walk quite a cold north wind, snow  may be on the way- Hope so.

Saw the Nurse she thinks the infection I had last week was a bad one and affected more than my bladder and water works. The collapse I had being part of it, also the rash. She said Paul should have taken me to the hospital, or at least rung the Doctor. I said I am often in pain, and have bad days. So just a more worse day than usual. She said I might even need more ANTIBIOTICS. Given cream for the rash- XEMACORT 20mg a STEROID cream- to be used twice a day. If no improvement in two days I must go back to see her, making sure I am not put off by the receptionist.


Cold on the common still on light weight summer jacket, so will add the fleece (3 in 1 jacket) then will be a lot warmer. Did not seem to bother Summer though. She always has a good coat, and is getting her Winter one now. With her being a white dog she soon gets mucky but it's good on the common for both of us. A lot of people have said to me they find the common peaceful and almost magical. I feel the same, very soothing if you are a bit down or just fed up with your life.

I have felt cold a lot of today but at times very hot. Think the infection is still trying to get more hold. BACK OFF--- I have had enough of you.

I don't usually watch this type of program but just most out of curiosity, I did and was hooked. "The Circle"--- a group of people are in separate rooms not able to see each other or talk to each other. Can text though the Circles communication system. (Very much like true life.) Some are Cat fishing-- not saying who they really are, some are truthful. Everyone has a profile they add to the circle, plus pictures and a bit of information with more added as the game goes on.
The game is to suss out the fakers by voting them out and get them blocked leading to leaving the game. There is a prize of £7,000 for the winner. After ten minutes I was hooked. Zowie Ball's and Fat boy Slim's son, is playing a good game. He is the youngest at eighteen. Tim being the oldest at 58. Not like big Brother as only on around an hour a night.
Wayne said it was on last year too but I did not know. I think as with a lot of reality programs it depends on the people taking part. 


Awake early, so hot- up at 7-45am. Not raining and does not feel too cold.
Very wet on the common, Summer and I play ball in a different part of the common, as where we usually go is big puddles from the underground spring and rain. No difference to her so long as she gets to play she is happy.

Started off with just my knee hurting a lot more than yesterday. By the end of the day everywhere hurt a lot more than usual. Extra tablets again so IBS playing up.

Ben is 12 today Happy birthday Ben (2 doors away) took him his present-  Lynx shower gel and deodorant spray. More grown up present I told him. He was very pleased as he likes Lynx. His Dad says he always borrows his, now he said he can use Ben's. I said no- he can use yours but, not the other way round. Ben agreed with me.


Lindsay and Jamie-Lee came round. Lindsay has not bean too well so it was good to see her. She has a lot of falls like I do, well more than me. She has a black eye where she passed out in the bathroom.


A wet cold start- bit chilly on the common. Summer was fun running around with her ball.

Head and face pain shooting from neck to my cheek. I think the cold air has got to my face making it worse. RSD is never far away just waiting to jump in and make things hell.

Started doing another puzzle, this one is not the picture on the box what happens next type. Very bright and colourful.

Later started watching a good series about a girl that has died but is still here just as she was before she died. Only a few people can see and speak to her. These are people that were there on the night she died and some how involved. "Hotel Beau Sejour" in French with subtitles. I don't usually like these but there is not a lot of conversation so I can follow OK. Looks like being very good.


Chilly bright start so bedding changed, washed and on the line.

I am still waiting on a dissension from PIPS, its bean over a year since it started proceeding to go to the court. Nearly 2 years since it all started. If I win the case the money is back dated if not I have bean advised to try again. The paper work is often baffling and hard to fill in. I have NO specialist Doctors as there are none here. They say they need evidence that I am as bad as I say. I only have my Doctor and recently my NEUROLOGIST for the SEIZURES. I can not send them what I don't have.
If the case come up not in my favour. I am not sure if I can go through this all this again. Just a waiting game.

Hair cut in the afternoon looks nice as usual.


Walked into town first time since April, Paul walked with me as he was going into town. Got all I wanted plus some tops for Winter and a zip up hoodie. Enjoyed the walk nice to be able to do things a lot easier now. Later on I did hurt a lot, but it was worth it.

Very bad accident nearby, close to 2 schools. A girl was killed and a boy fighting for his life.
Makes you feel very bad, I lost a brother who was 17. So I know how the family must feel. I could not get it out of my head and it made me feel very sick. Tommy-Lee knew them both so he was very upset.


Power cut- so when this happens my TV will go off, and does not come back on. You have to put in certain codes by pressing the buttons. Last time I could do it but not this time. Andrew will help me at a later date and am not too bothered as I have music. I put a CD on, "REM"  and did some more of the puzzle, got a lot done too.


Lindsay and Jamie-Lee came round and brought a lot of washing. Her machine has gone wrong. While it was washing Jamie-Lee and I played with the little dolls. She said the horses needed dresses too. So the Barbie dolls came out and we used their clothes. Strange to see horses dressed up but she was happy.

Finished off the puzzle not too hard this one- looks good, all the bits there too (charity shop buy) Summer was peering round the corner watching me.


Summer peaking round the corner.

Had a small SEIZURE in the early morning. Maybe not a big one but it affects me with a very strange head ache- sort of not here feeling. I had no more SEIZURES for the rest of the day.

Had a Chinese for tea very nice it was too I was quite hungry as I had not had too much to eat all day. As I felt a bit off it after the SEIZURE this affects me everytime the more SEIZURES have, the worst it is. 


Still a bit of a weird head.
The river is so high with all the rain we have had. The ducks are sitting on the side as the flow is very fast.

The circus is on the Fairground common, but with it being so wet the big trucks that carry the tent and equipment have made big grooves and channels in the grass. Not good- as they now have filled up with water. Everywhere is muddy and wet on the main common, the horses have churned it up more.
With Summer only having little legs she gets very wet. She is also ready for a hair cut.

I have started another puzzle- A South Park one, this is a bit bigger and will not fit on the usual board. Lucky I have a bigger one, this puzzle looks quite hard as its edged in blue bits that all look all the same.
We will see how it goes- not had one yet that has beat me.


I went into Age UK to see them all and told them I was starting back on October 25th.
They were happy I was coming back. Polly said you will take it easy and have a rest when you need one. I know it will be hard to start with but I will enjoy it and I have missed them all. This means I am just about back to where I was before the knee opp. Taken long enough but the RSD had a lot to do with it, its EVIL. Walked there and back so I was in a bit of pain later.  Hopefully the RSD will  back off a bit now.

Tommy-Lee and Jamie-Lee here with us for tea, Tommy has not bean well so Lindsay brought him with Jamie so I could keep an eye on him. He went upstairs after tea and laid on the bed. He seems to be coping fairly well with the accident of his friends. 


Watered the green house- still getting tomatoes. The outdoor ones have not bean too good as the rain
rotted a lot of them. But like Paul says we have had a lot from them both.

Watched the final of the Circle and the one I wanted to win won. His name is Paddy and he has
CEREBRAL PALSY. This helped him win but I think it was his personality that did it more. He was so lovely. A good program and like I said- not the usual sort I watch.


Got Jamie-Lee for a few hours around two I think!!! So play time all the way. We played with the dolls, Sylvainians and puzzles. She was on her DS game as well. She ended up staying eight hours in the end, some of the time Lindsay was here though.

Posing with Summer who looks ready for Winter.


Bit of a rest day as quite draining looking after Jamie-Lee. She never stops. I still did the washing, ironing and cooked tea.

Going through the park I noticed someone had put a sofa there- why not sit in comfort, not good though when it gets wet.

  Also these fungi growing.
  Flying tonight.!!!!!


 My knee is not as painful now, but looks a bit strange on the left side like it has collapsed.

Taken from the left side of knee.
 Right knee and left strange one..

I am going back to see him soon, probably around December. The knee is still very numb all down the shin and side of the calf.

I am making 4 Christmas cakes this year, one for us and the rest for presents, started the first one today, put brandy in so should taste good. The kitchen smelt very nice.


Cold on the common had my hat on, actually it was Andrews, as mine was upstairs and I already had my boots on. Summer gets a bit inpatient. Now its colder, I have a lot more to put on so it takes longer. I tell her I am not shake and go like her.

At last finished the South Park puzzle I know it's not taken as long as some but its bean a hard one
all the blue edging looked the same. I would say just the edge in total took around 5-6 hours. I nearly gave up at one point. This is something I have never done before, I was so pleased to have got there in the end. I think this was one of the hardest ones to date, You never know what the next one will be.

I know I did take that long. Most nights I was doing a bit as not watching TV as much as mine still not working. Looks like its going to be a new one. Over two weeks now.

Lindsay plus Tommy-Lee and Jamie Lee here today. Lindsay had bean to the Doctors as she was quite badly bitten by her friends dog. Her fault she said, she went in her friends garden to see him, her friend went inside. The dog came out and knew she should not be there and bite her back. Her friend called him off she was OK- a bit shaken and sore. She has bean given ANTIBIOTICS by the Doctor and needs to have a TETANUS INJECTION tomorrow, it looks quite sore too.

Lindsay cooked us all dinner, chips and chicken nuggets plus curry, gravy for Jamie-Lee. Very nice filled me right up no cooking tea tonight. Paul has his dinner out on a Wednesday so he has had a cooked meal. I would usually cook for us again but not after my dinner. The river is back to its normal level now- so the ducks and moorhens are pleased to be swimming in the middle again.


Angela came round for me to put some CD's on to a memory stick. To start with I was not sure what to do. Andrew had gone over some of it the night before but we did not have the stick so not all the stages were covered. In the end I managed to put four CD's on for her. I now know what to do.

My friend Jenny is not well so will not be at Age UK tomorrow I will miss her. My first time back in six months. All the best Jenny get better soon. Will not be the same without you


Well here goes, back at Age UK so how will this go? everyone was pleased to see me, staff and customers. A good day, Joss was on the counter and Polly on the till so it was an easy day for me, just what I needed. I did managed to cut my finger on a glass, and gave someone a one cup tea pot instead of two cup. I sorted it out and everything was fine everyone happy, just gave them another pot of tea. Apart from that the day went well. Nice to be back involved in something. Very tired later but I thought I would be.


More rain most of the day river up again higher this time.. Highest it has bean this year.


This is just down from our house. On the bridge I cross to go to the common every day..

Joy was coming today but she is not too well. I said I would see her next weak instead. All the best Joy get well soon.

Made Christmas cake number three so only one more to go.


Lindsay here with Jamie-Lee, she played in the morning and later we went for a walk. She wanted to see how high the river was further down. We walked up the river and saw it was very high as well, the highest it has bean for a long time. Some places it has come over.

               These are the sluice gates or flood gates that are opened and shut to alter the flow.
 The bridge arch is hardly in view.

On the way back I showed her where her Mum (Lindsay) went to school (now flats).
The play ground is still there and a nice man who lived there let us have a look. The hop scotch and the snake are both still plain to see.

Bit further along, we saw this strange fruit/seed on a wall. I showed Andrew and he said it was a passion fruit. It got a bit squashed in my pocket so not as good as when first picked.


We came back a different way so she could see the part of the river from the bridge near us..

Jamie-Lee on the bridge.
She decided to run up the cobbles, quite steep. On your marks get set GO.

Later Paul and I went round to Lindsay's as it was Tracy's Birthday, and she was there after work.
Gave her presents and card. We did not stay long as a stew was cooking in the slow cooker and before we went it smelt so good. Got back and had tea and the stew was very tasty.


First frost of the winter so quite cold but not raining so that's good.

The river has gone down a bit, so long as we do not get any more rain like we have just had, it will soon be back to its normal level.
 You can now see the wall.
 The duck are now in the water not as fast flowing.

Summer had her hair cut today- when I told her it was Maxine (her groomer) at the door she got very excited.
Before- quite scruffy but still adorable.
After- so sweet -but so very tired.
How cute can she get

Did a bit in the garden moving some of the plants into the green house and some nearer to the house. Just in case there are more frosts. Another few weeks and the tomatoes will be finished. Not the best crop but they were in very late.


Went to see Joy she is feeling a little better so that's good. We had a good chat so I think I cheered her up a bit. I hope she will soon be back to her normal self.

Did a bit of shopping then headed home. Later I did some more knitting, making Andrew a pair of fingerless gloves now as the baby things are just about done. Pictures next month.

Well that's this months Blog quite a varied one. Health wise not too bad so a fair one I think.
Hope you are all coping and not having too bad a time. Getting very near to the end of 2019.

All the very best to everyone of you. See you next Blog. Love Gill


September 1st

Wow in September. Leaves are beginning to fall getting dark a lot earlier and its getting colder at night and early morning. In between weather has bean quite nice.

ANTIBIOTICS are doing their job, and the redness and swelling is calming down. So is the pain.
As with most ANTIBIOTICS they have affected my stomach. Taking MINTEC- I find that for me it's better than stomach remedies.


Went to see Lindsay after her pain block treatment. She is not doing too bad spent the last few days in bed mostly asleep. The children have bean good and Tracy has bean coming in to help where she can. The children's Dad has also bean a big help.

Hip is a pain at the moment I think with being on crutch's a lot longer than I thought my body has got used to them. Now complaining one has gone. Hopefully by the middle of this month I will be free of them for good. Still the thought of them and a wheel chair, still scares me. I know the crutch's were after my knee operation but your mind and body can get very used to them. When I was on them at the very beginning of RSD (2004) for over three years. I got so used to them, when Wietse told me they had to go --- my legs could hardly take the weight, and I struggled to start with. I was taken off them because the RSD had spread to my shoulders causing me great pain. I can still remember the day when Wietse took them away. I said how will I walk without them????? He said you will learn, and learn I did--but very painfully. He explained at a later session that the RSD would have gone on to spread its evil so bitter sweet. Worked out in the end though-- I  am still here. Thanks to you Wieste.  

Chinese for tea very good this time I think Chinese can be a bit hit and miss- even from the same place. This is just across the road so very handy. "The New Taste."


Scraped my face on the shed wall yesterday, sort of walked into it-- my face is a bit sore and red not too much pain. Funny as one thing gets better I start on another problem.

Was hoping to go into town today but rain is meant to be here all day so another day I think. I would have gone on my scooter. Not able to walk that far yet, soon though. Hoping to be back at Age UK next month. I have missed it. I know quite a lot of people there and they are mostly all friendly. Apart from Summer walk and in side the house stuff there is little else I can do.

Coming back from mine and Summers walk we saw "Eight swans a swimming" . There are not usually that many so I think they must have come from the Brayford. Building work or something going on there. Lovely to see them so graceful and bright white.


Walked around with a friend and her dog called Milo. Summer and him had great fun running around.

In to town at last on my scooter. Quite a few changes as well, a lot of the town is being renovated big time. This is the first time since 26th of April I have seen it all.. Got most of what I wanted did not look in the new shops but there is always another time. I did enjoy my trip- very tired after. A lot of people asked me what happened to my face. Usual story, walked into a wall I said-- a few funny looks as well but it's the the truth.


Well today- did the whole of the walk without any crutch's at all this time. I did not even take one like I have bean doing. Knee not too bad, hip not liking it or shoulders. You would think they would be pleased. I was happy at last walking as I was before the knee operation, bit better or it would have not bean worth it. Felt quite strange without it, I have got both hands free now.

Leg has improved very well and hardly any redness left as you can see, last ANTIBIOTICS to day.

Healed very well as it was a bit of a mess.


Paul is at Wayne's for a week looking after his cat Timmy. This will be like a holiday as I'm not intending to do much cooking. Andrew mostly gets his own food so just me to think about and Summer of course- she will not let you forget her. Andrew and I had a small Chinese for tea/supper.


Happy Birthday to Tommy-Lee 13 today and Jamie-Lee 7 today hope you both have a great day.
Jamie-Lee has a party tomorrow at Play Zone I said I would go, if only for a little while. Not bean to that one but others have bean too noisy for me.

Lindsay and Jamie-Lee came round and she had her presents here. I got her Sylvians house plus furniture and little people. We sat and played for at least two hours. She loved them. Got Tommy-Lee shower stuff sweets and money.

OUCH!! as Wayne said.

Got a bit worse but I do not think it's infected. Just the RSD not helping it. Knee quite sore today probably not liking no crutch to lean on.


Well Wayne and a friend from his office are off to Florida for two weeks. Paul took them to the Airport they got stuck in traffic, but still got there in plenty of time. A long flight around 12 hours, no vapping either Wayne

Cleaned all down stairs. In the afternoon went to Play zone. Not too bad the tables away from the play area, so a lot quieter and not too hot either. Tommy-Lee came after he had bean shopping with his Birthday money. He got some very nice Nike trainers. Well they are the best. Stayed for a while then, Tracy brought me home when they were going to have their tea. Pleased you had good time Jamie-Lee.


Face not quite as raw today I think the swelling is going down now.

My friend Jenny came to see me. Always nice to see her. Good chat and catch up from Age UK Jenny goes there as well, she volunteers the same as me, or will be soon again I hope. Missed it a lot, can be a lot of fun. A lot of things go wrong, or that might be just while I am there.

Jenny bought me some Celebrations chocolates for doing some sewing for her. Thank you Jenny- a good day, and now some treats to eat.


Nice walk but my right knee is giving me some pain, not the operation one.

Bean watching Wentworth, a Lady's prison-- on series six. Bean very good, edge of seat stuff, recorded it ages ago and saved it to watch in one go. Well three nights for me as have to move after so long or pain and discomfort gets too bad.


Looking after Ben and Emmie tonight. Squidge came round yesterday and asked me. I thought it was that day. Some how between us I got it wrong- its tonight.
The children were very good as aways Emmie was dancing and singing. Watched young girls doing dancing on TV. She likes movement and does gymnastics and is very bendy like most children, also very skinny.


Paul's at football, first game since their Managers Danny and Nicky Cowley left so will this dishearten the players and watchers?

Normal day for me doing this Blog, washing out blowing well. Warmed up a bit, as chilly this morning on the common.

Finished off the Doctor Who puzzle I started and there was no fires this time.

Went into the garden and saw this lovely scene for the end of the day.

Beautiful sunset.


Up a bit later than normal. I have bean so tired just lately. Even if I am in bed for more than four hours its still broken sleep. I can not even remember the last time I slept a whole night. Probably when sedated in hospital. I think this is my CHRONIC FATIGUE/ME causing this. Makes you feel like you have FLU the whole time, a dull ache for days at a time. I also think because I have not bean to Pilate's since last November my muscles are slacker and weaker.


Fair lot of pain today back and hips plus right side, Knee locking up too operation side.

Angela called round for a chat and coffee, tea for me.

My friend John also came round and brought me a present a Crystal Angel.

This is for doing all the mending/sewing for him. I must have saved him a lot of money, as where he used to take his mending to the market they charged quite a bit. Probably a bit neater and better job but I do my best. If I do not think I can do anything he brings or anyone elses mending. I just say that is beyond me. I don't do zips either.

I asked John if he wanted to stay for tea and he said yes. Beef in buns, fried potatoes rings and onion rings. John had sausage as well as not much beef. Very nice it was too I enjoyed it very much.

I suppose a lot of you readers of this blog are the same as me loose their appetite when in more pain than usual. Mine goes down hill very quickly, but up again when feeling less pain.

Checked my emails and I had nearly 3000 yes-- three thousand plus 300 junk emails. I usually get about 30 over 2-3 days. Looks like someone had hacked into my account. Also my Pay-pal account had bean got at. Sorted that out and no money had bean spent or taken out.
The emails Andrew is sorting out later today. Nothing is safe these days.

Had a nice bath later that helped with my pain, spent the rest of the night knitting and TV. A lot of the time I can't do my knitting or sewing because my hands loose their grip. Also this BRAIN FOG that most of us get. Very annoying counting my stitches and I get say 30 not right as only 20 on the needle try again get another number. Same when doing cooking or anything that needs my brain it just goes to mush.Not able to hold my knife or fork like I used too or cut things the same. Hitting the wrong keys while doing this blog. But I struggle on-- and I am still walking so that really good but a lot of time it hard.
People look at you and see a very different view to the real struggle that's really going on.


Paul is cleaning the carpets downstairs today, as they are a bit grubby. We bought a carpet cleaner last year and its really good, a BISSELL one- cleans very well. I think they will dry too as warm and windy today.
All carpets were about dry at night time. I will vacuum over them tomorrow and put the stuff back in place.


Upstairs carpets turn today, I am like I said vacuuming downstairs. They all look a lot better upstairs too. They will be vacuumed tomorrow if dry.

Tidied up the greenhouse and watered it. Sorted out the flower boxes by removing the dead flowers  and any weeds. Picked quite a few red tomatoes, cucumbers are ready too so everything is looking good outside.

I did not go to bed till 3.30am as I did not feel tired at all, but my body hurts so much. I have an almost lay flat recliner chair so if I do fall asleep I am in a better position than an upright chair.


Awake at 6.30am no sleep after that, so I got up just before 8-00am.

Quite a busy day, vacuumed all the upstairs carpets and put thing back as downstairs. Just Andrews room to do another day as it was only cleaned today. He will do that-- maybe.

Watered the greenhouse with Summer almost attached to the hosepipe. She loves water and I let her play with the hose after. She gets very wet as she gets hold of the hose and sprays herself. Must be nice on a warm day.

Bean looking after Tabby cat for the weekend- so went and fed him. He has bean left some cat treat sticks and he loves them. I go round a least 3 times a day. They will be back on Sunday (22nd) so not long Tabby. He sat on my knee for a while purring away and did not want to get off. I will come back later to see you Tabby.


A lot of people out on the common today a heavy almost stormy day.

Pain has eased quite a bit so that's good. I am able to type this blog without so many mistakes, apart from spelling that is. Spell checker takes care of that later. Other wise you probably wont be able to understand it- not too good at spelling. I can tell if it is spelt wrong and a lot of time put it right myself.


My son Wayne just came back from his holiday in Florida. On the very LAST Thomas Cook flight. He said it was awful as the staff found out mid flight that the company had gone bust. Wayne said they were very brave but you could see that the pressure was getting to them. Some were in tears the rest very close. When they landed the passengers gave them a round of applause. Wayne said there were loads of Thomas Cook planes on the tarmac-- something you never see.

A very tired Wayne headed home to see Timmy his cat who fussed round him.

Paul put a bit on facebook and it was seen by the Lincolnshire Echo group. They contacted Wayne the next day. He was asked to give his view. He said he was very tired (12 hour flight.) but he would do his best. The write up got in the local paper complete with a picture of him not looking his best. What a journey for all the staff a big Airline like that, who would expect it?

I thought the article was very well written--Very well done under a lot of pressure and less brain power too from jet lag. Another note he was on page 3 !!- never thought he would ever be on page 3.

        Wayne's story.


Last night I was in bed around four hours, not asleep all the time though.

My friend Joy came round for a visit, she is not bad. We had a good chat so that's always nice I think plus tea of course. I have not seen her for a while.

 Face a lot better now just very dry skin hopefully I won't do that again- (Scraped on the Wall)

 Loads better.


Happy 65th Birthday Paul. He was out all morning so had his presents and cards later.
We are out for a meal later at MaCh Indian Restaurant not far away. Six are going Andrew, Lindsay, Ben, Tracy, and of course Paul and I. A good meal it was too. Not too noisy, so a lot better for me very relaxed atmosphere.

 All looking good.


B12 today also I hope I can get some ANTIBIOTICS I have CYSTITIS/ WATER INFECTION so the earlier the better. 
The Nurse sorted out a prescription- MacroBID 100MG  NITROFURANTOIN 2 a day for a week,   for me via the Nurse Practitioner so I was pleased. I thanked them both. My arm after the injection did not hurt too much either.


Went to bed earlier than usual, felt a bit off it. CYSTITIS always hits me bad, back and over bladder area. So not unusual at all. Very unsettled night, awake most of it hot- cold- pain just very uncomfortable.

I got up, felt a bit wobbly still nothing unusual. Half way down the stairs I felt very sick wrenched but was not sick, shouted Paul and he got a bowl I think, in case I was. Helped to my chair and just sort of collapsed. Violent head pain, back, in fact pain everywhere- head was the worst. Light hurt my eyes I had trouble walking. I laid on my recliner all day in the dark and quiet, barely with it at all. Was it a virus or reaction to the ANTIBIOTICS. I had these before though. Time will tell.


I feel a bit more with it today still weak as I've not eaten a lot over the last few days. Paul took Summer for her walk. When he came back I had a bath. I thought I smelt as I had bean very hot and sweating. This was nice but tired me out for quite a while.

A nice day, so washing out and hopefully drying too.

I have a rash on most of my body now. I think it must be reaction to the ANTIBIOTICS so not worried, would have bean if a few days ago.

Well not a good end to the Month- If fact not really a good one at all, hope you are doing better.
All the best Love Gill.


August 2nd

Happy Birthday Summer nine today.
Andrew took these pictures of her in the garden, well chilled as only Summer can be.

HappyBirthday Summer.

In the greenhouse tieing up the toms and cues they are doing very well even the two little ones that went in later. Took a few leaves off the toms as quite a lot of tomatoes are forming. Dead headed the plants in the garden too. Looking very colourful out there.

Cooked tea, chicken tonight. Summer had some for her tea as a treat. Plenty left for another day for her, she is a lucky girl.

Went round to see Tabby cat he is well and as I said last month not too good on his feet. I brushed him and he fell over, poor Tabby. He sat on my knee at night time for over an hour purring away then went to sleep. I thought I was here for the night, but he did wake up and go outside. Time to go home and cuddle Summer.

Knees and legs are burning  left knee and foot are swollen and funny colour and shiny. I think the RSD has spread to my knee after the operation. This would explain why I am still in pain after all this time. I am hoping I am wrong but you just know after fifteen years.


I got bitten a few days ago by mosquitoes and they hurt a lot, some are very red.

Paul and I are going to Wayne's today and stopping over night. I have not bean there for a long time because of a lot of pain while travelling. Today I hope things will be good and the RSD will be kind.
The journey was not too bad- but I took a lot of extra tablets.  Good to see Wayne, took his Birthday presents from us and Andrew. Timmy I think was pleased to see us too.
Indian for tea/supper, good too. Wayne stayed up with me and watched a bit of TV. That was nice just us having a Mum to Son time.

Cooked dinner for us all pie (in small oven) and veg, but the oven went off, so the pie was not ready when veg was. Soon sorted put in big oven, Wayne remembered why he did not use the small oven--- because it goes off. Anyway it was very good.

Wayne needs to take Timmy to the vets as he has to have regular checks on his blood as he is diabetic. Trouble is he does not like/hates going in his carrier. Wayne usually has a job to get him in and gets scratched a lot, some are bad ones as he is a big cat and strong. Well after a fight he was in, not happy at all. Swearing at him and looking like he was going to get him when he was released.  Blood taken and Timmy back home still not happy, but soon be tea time Tim. He is like Summer he enjoys his tea.

We all had a sandwich then soon headed back home. In a lot of more pain, and am very tired but pleased I went. We did not do much but that was the idea. A nice restful weekend-- watched a weeks worth of TV I think.
Home again- Summer was very pleased to see me, Andrew had looked after her while we were away. Thank you for looking after my little girl. Nice surprise Ness and family had brought me some shortbread as a thank you for looking after Tabby. That was nice of them thank you.


Washing and general things not too much though as tired and a bit more pain than usual, spending time with Pup.
Popped round to see Ness to say thank you for shortbread but only squidge there. Ben was out with Nes, getting school uniform. Emmie wanted a chocolate bar, but they had none, so I went and got her one from home. she was very happy. Stopped a few minutes then home again. I think Tabby thought I was going to let him sit on my knee again as he was looking.

My friend Bev phoned up and is coming on Thursday, I have not seen her since we went up in their plane. So something to look forward to.


Burning whole body and very itchy again, this had calmed a bit but back again. Taking ANTIHISTAMINES these help a bit. Trying hard not to scratch or I would have no skin left. Body feels so hot but cold to touch. Typical RSD .

Bev here mid morning so good to see her. Talked and caught up with each other news. Its a pity we do not live closer as we both like a lot of the same things. A good day nice to have some one to talk to.


A lot of rain over night coming down very fast early morning before I went to bed, very humid as well.
Big puddles on the common, I think Summer went through most of them. She loved it whatever the weather she is happy on her walks.

Went round to see Ness she was in this time. Thanked her for the shortbread. Tabby was there we sat outside. He cries a lot even when sat next to you- as I said before he is an old cat. Ness is a bit worried as she found a swelling on his hip. Poor Tabby- she does not think he is in pain though as no reaction when she pressed it.

Angela came to see me too, she is doing good. Lindsay called in with Tommy-Lee and Jamie-Lee. Tommy had treated Lindsay to dinner for her birthday. Jamie-Lee too, Lindsay paid for drinks as he did not have enough money. Good lad Tommy.

Went to see my youngest brother after tea. His Birthday is tomorrow so took him a card and presents. Gary his son my Nephew, has got a new little dog a chihuahua called Roxy she is so tiny only a few weeks old, so will grow a bit more yet. There other dog Laddie likes him as well and looks after him. The cat is not so keen.


A very windy walk on the common showers too.

Brushed Summer she is molting a lot, soft and fluffy like cotton wool. Cleaned her teeth also she is not keen but lets me do it. Same when brushing her, does not like her face brushed. More interested in the treats she will get.

Found out my friend Sally has got into the Olympics 2020 for Triathlon. Well done Sally. I think back to when we were both in hospital together, very ill and we used to talk about things like getting back to normal. Well Sally-- you came through it all, I did not. Good Luck in everything you do Sally you have worked hard for this.


Knee tight and pain full today more I think its more to do with the RSD  (I am certain that's it has spread now) than the operation. Someone asked me how I knew I said because fifteen years of it that's how. I am still using one crutch tried without but hurts too much. Hopefully it will ease a bit, I hope so. When I had the operation there was a chance that the RSD would have a go. I had no choice but to go ahead as my knee was getting so bad I found it painful to walk and it gave way a lot. This pain was telling me something was wrong now and needed putting tight. But that's RSD  just doing what it does best making lives hell. I had to give up Pilate's for now as well. I don't  regret having the operation done but RSD you could have bean a bit kinder. I can see Mr Joby John earlier than December, but I don't think there is any point because I think he will agree with me about the RSD. I have bean fighting it fifteen years so it will not stop now.


Not a good day, legs swollen and very hot, even feels hot to touch today like severe sun burn, I have not even bean sitting in the sun since 25th July when Lindsay and Jamie-Lee came round and we had a day in the garden. At least the mosquito bites are less trouble, but I have got a few new ones. Shoulders are complaining about the use of the crutch too. As soon as I can it will be gone I did not expect to be on them so long---- Operation May 1st.


Shorter night than usual - skin very itchy and uncomfortable again. I could almost rip it all off. Whole body/mind not doing too well at all. RSD is having a great time, I am not, would it hurt you too much just to back off a bit???


Skin a bit better today and not as hot so that's one thing less. On own all day as Paul's at football.

Washing and cleaning up. Spent a long time in the green house watering and taking leaves off and side shooting them all doing well. Every thing now takes so much longer.

Finally got the little cardigan right I am knitting, bean struggling with pattern and counting. Not even a hard pattern four rows but I kept going wrong. I worked it out in the end. RSD is not just pain and spasms, it affects the brain too, making simple things that I used to do very easy, now hard


Sunny windy day so Summer gets a bath after her walk. I think she knew as she went in all the muddy puddles she could find. Did a lot of the walk on one crutch, hurt when I got back. I need to walk with out them, because I am getting a lot of shoulder pain.

Summer got her bath and looks very white and clean but not for long with going on the common.

Very pretty.

Suffered later with a lot of knee pain, by not using the crutch. I will just have to use it a bit longer.


 Tired- well more exhausted.

Summer walk was good, lovely on the common. I managed to keep her clean at least for today. 
As we got nearer the gate coming back I saw the horses around it. Summer did not see them till a lot later as the grass is long and we were in a dip. They were across the gate and across the path to the other gate so there was no way to avoid them unless I doubled back, but that was a long way round. I walked slowly hoping they would more at least from this gate. Summer saw them, panicked, and started to go the other way, then she saw the others there are only twelve I think, but it looked like a lot more, specially to her. I put her on the lead I hoped they would soon move or it meant a lot more walking. Anyway they did move a bit so we took our chance. As we got nearer to the gate I slipped Summer off her lead and said run. She did not need telling twice. I just walked slowly and they just looked at me. Summer was wagging her tail on the other side. I was pleased she did not get upset.


Lindsay was around yesterday with Jamie-Lee. Jamie was dressing up in some dress up clothes that are kept here, she did look pretty. At the moment she does not like her picture taken so I could not get one of her.
Not the best today a lot of pain in my face and neck OPTICAL NEURALGIA I take tablets but the pain still breaks through a lot. Makes me feel very unsteady and sick feeling. Most of the time I am able to cope, able but not today.


Feeling about the same in the morning, by afternoon a bit better, pain backed off a bit from face and neck, but hip pain now. As one gives up another takes its place.

Lindsay and Jamie-Lee came round, Jamie was in the paddling pool a lot of the time. Lindsay not too good so while she rested Jamie and I played. You can have a good conversation with her very grown up ones better than some adults. She sat with Andrew in the shed and was talking about taking the shower gels and bits from a hotel. Jamie-Lee said but not the mirrors though, Andrew did laugh.


BBQ in the garden with family, very hot too. Lindsay doing the cooking. Everything went well and the food was very tasty. Everyone I think had a good afternoon. Temperature was 31-32C so a hot one and that was away from the BBQ so Lindsay was cooking burgers and almost herself.
The beach tent was up so a bit cooler in there. Later cloud came over and it cooler down.

Would have bean my Mums Birthday if she had bean here too. Remembering you- not just today but every day.


Not feeling too good shaky not good on my feet dropping things. I get these sort of black out where I just pass out for a few seconds or minutes. Looks like I am a sleep then I come round not aware of blacking out.

I have some nasty bites on my arm and leg and behind my knee.


 Behind the knee.

Leg is the operation one as well so not good for it. Very hot and swollen. These were not too bad in the morning but by mid afternoon they had got worse. No chance of seeing a Doctor today though unless I am just about dieing.

I went across to the chemist and the pharmacist had a look and said I need to see a Doctor. No way today I said. Well then take your Temperature and if it rises above 39C go to A and E. I did ring the Doctors, but unless I was having EMERGENCY they would not see me, ring up tomorrow. This I can not do as Hospital appointment middle of morning. When I get back it will be too late. Oh well it will be alright I have had similar bites like this be for. 

I kept taking my temp and the highest it got to was 37.7C so it was up a bit. If it does not improve I will get in touch with the Doctors again. This will not be till Friday as I have Jamie-Lee on Thursday. Lindsay has an appointment for very painful pain blocks to the bottom of her head/neck. These will leave her in a lot of pain for quite a few days. If they fully work this will help with her extreme head pain. Last time one side worked the other did not.


Today is the day I hopefully see one of my favourite Doctors at Lincoln hospital. I saw him a lot when I was very ill with the SEIZURES. They told me at both the Kingmills and Lincoln that I had EPILEPSY plus the non EPILEPSY SEIZURES so see what he thinks. I had loads of tests some not too nice, when I was in before. So I think it has bean covered. Unless they can come on at a later stage.

I did see Doctor Solines and he talked about the SEIZURES also the black outs I have. He thinks one thing it could be is- a very low heart beat at times, too low for my brain to keep going hence the black outs. Maybe but I have not had problems like this before. I might have to wear a monitor to record my heart beat for 24 hours. Like the one I had for testing my blood pressure. He will also contact Kingmill and Lincoln hospital to see what they have to add. 

Paul is to record any events if he can but that will not happen much as we are rarely in the same room.
Had a sandwich and cup of tea in the cafe at the hospital.

On to my Brother and Sister in laws-- Its Pam's Birthday and I aways if I can I like to go. She was very ill a few years ago and given 5% chance of surviving so she is a special person to me.
A very Happy day to you Pam.

Tonight Paul, Lindsay, and the children are going to see Lincoln City play so excitement all round.
They are all here for tea first then going from here to the match, about 5-10 minutes away.

Pup and I will have a nice sit down and cuddle as I am about done in, leg bites are very sore and redness has spread.


Jamie-Lee and Lindsay arrived soon after 8am, Paul picked them up. Lindsay going for her pain injection. After Paul took her home so she can rest. Jamie-Lee is going to Tracy's for two nights from here.

Arm and behind the knee bites, swelling has gone down, but leg one is more swollen and redness has spread down the leg to the ankle.

 As you can see a lot worse now and more painful..

What a busy day Jamie-Lee and I had. Washing and putting out the clothes. We had to sort out the beach tent we used on Monday as it had got wet as rain over night.. Soon dried in the sun and wind.
put that away for another time.

Hide and seek bear with Jamie-Lee night time teddy - I spy- getting the cobwebs from the ceiling down stairs- playing ball with Summer- made 23 cup cakes and iced decorated them mini eggs and loads of sprinkles, plus Christmas serviettes-

 I think they look very good too tasted better.

Jamie-Lee then wanted to look in all my display cabinets, pictures have bean on here before. This took awhile as talking about the  crystals, glass and trinkets where they came from and who got me them. Some are the Children's Christening things and Nat West money boxes.

A go on the laptop then Tracy was here to pick her up to go shopping and for the next two days. Hopefully I have tired her out and she will sleep for you.

Took Summer for her walk as Jamie-Lee did not want a walk while she was here. Summer was pleased as it was soon tea time after. Just let her treat biscuits settle first. (she aways has two small bone biscuits after her walk.)


Phoned Jay-Jay to see how Lindsay was? He said she had bean sleeping and had some food.

Paul got me some flowers when he went shopping. Thank you Paul. 

The Nurse Practitioner looked at my leg and straight away said infection. Not too sure if it was a mosquito bite, could have bean a tic she said. Took my temperature which was slightly raised she said but OK. I was given DOXYCYCLINE 100mg 2 a day quite strong to get on top of the infection. Hopefully this will kill it, and not me- and all will be well. If not I go back Monday if any problems. If major problems like temp up- feeling strange- leg getting worse- I have to go to A and E. She is not too worried but concerned.

On the way back I had my Ipod on listening to Radio 1, one of my ear buds fell out and two ducks on the river started dancing moving there heads up and down in sync very funny. As soon as I put the bud back in they stopped.

Along the river they are rebuilding the banks as they are collapsing. The machine they are using goes in the water and crawls up the bank very unique.

My leg is very tight as the calf muscle is affected. My shoulders hurt a lot as soon as this leg is better I will try again without my crutch.

Sat down for a bit then started tea, for Paul anyway. I felt a bit sick as I had taken my first tablet so was going to wait a bit. Took a MINTEC these work very well to settle the stomach. After around an hour, all was well again. Paul had a fry up, I settled for fish pie that Lindsay got us last week from Aldi very nice. Not really a fan of fish pie but it was good and settled well.

Update of flower planters and greenhouse plus out door tomatoes. All doing very well.

 Planters very colourful now.
 Cucumber have done very as they had a late start.
 Tomatoes getting ripe.
 Last 3 pictures in greenhouse.
Outdoor tomatoes.

Right you can see quite a lot going on this month. Took me ages to type out.
Hope every one is doing as well as they can-- All the very best to you all love Gill.



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