July 1st

Age Uk-- very busy selling out of things, tempers flaring in and out the kitchen. Makes the day that bit different. Not too bad day for me, more pain than normal, popping pills like smarties Sheila said.
Andrew headed off to Brighton, then on to London this is all to do with his work.


Not too good today my neck is playing up. This has bean a major problem for years. I have arthritis (not sure if this is anything to do with it)  there and only have to turn it wrong or lift my head up and the pain is horrible Shooting up and down my back and arm in fact any where it chooses.  Can last for days, weeks, months or just a few minutes.  Goes a way for a while then comes back again. What happens is, I think is, my neck swells up then the nerves get pinched or squashed. Weitse said- that what he thinks, is happening too. I had Physio with him From  February 2005 to November 2011, so I very much trust his judgement.  When put together with the RSD and FIBOMYALGIA it makes me a lot of pain and trouble. Lucky its only one side of my neck.

Andrew is now in London having left Brighton. Every thing is going well for him.  

We picked Jamie up from morning Nursery, she will be here till about five when Tracy will pick her up.

Summer has moulted a lot and now her usual thick white coat is quite thin. I know this will thicken up later in the year. She is still very white though as she was bathed while Jamie-Lee was here. Jamie was not that bothered, preferred to watch Jungle Book instead.

Lindsay is not too good severe head ache again and sick. I do wish they would get her sorted as the worry is not doing any one any good least of all her. Poor Lindsay I think she is scared to go to A and E in case they keep her in. I think they would- she is a ticking time bomb. If she bleeds again, well !!!.

Jamie-Lee  was good and enjoyed her time here. I have told Lindsay when her time comes to go in to Hospital, the children can stay here and NOT their Dads. None of them want to go there.


In town today to get Lindsay's Birthday presents. My knees are on fire and so swollen. Sit down and rest I hear some of you say,---- makes it worse the joints hurt more. Walking is the best for me, my neck is still not good and a rash has come on my right shoulder. All this has happened be for so just put up with it. Still not nice though and too many pills popped.


Pilates today was not good pain in knees shoulders too. During one move my right shoulder totally messed up going into a tight spasm.  Very painful as it locked up, I managed to free it after about ten minutes or more. This made me very cold for some reason to the point of shaking. Feels very sore now but the worst is over for now any way.

Andrew is here again for a few more days, Paul picked him up from Newark.


Body and pain much the same. On a better note I have bean wearing a eye sleep mask to block out the light. Wayne my Son, suggested it. I think this helps a bit as my brain still thinks its dark. When I go to bed the birds are singing and the sun up. Getting back to sleep seems to be easier, sometimes.


Jay-Jay here for the day, if the rain stops we are going into town to get him a few things I took Tommy-Lee a few weeks back and treated him to clothes and shoes. Andrew came too and got shoes and summer vests.

Head is still bad and walking back home was a big effort for me. The air is very stormy here so that does not help me a lot either. Not sure if any of you out there suffer with storm pains or not but I think its quite common in RSD.


Head a bit improved so I hope it stops that way.

Washing, ironing and gardening tidying up the green house as well.

 Nice poppy self set.

 Sat in the dining room when Andrew and I heard a crash, Little Ben had put the football though the greenhouse roof. Two panes broke, he was very sorry but he has to be more careful. I have got more glass so that's good.


Picking Jamie-Lee up from Nursery today and having her till tea time. Lindsay is having a day out with Tracy as its her Birthday tomorrow. Raining at the moment so I hope its stops.

I picked Jamie-Lee and she wanted to walk home, its quite a long way for little legs. on the way she decided she wanted to get on the bus. We were nearly home so I said we would go into town by bus. She wanted to get her Mum (Lindsay) a present for her Birthday. A heart she said, and we did manage to get one too-- a T light holder plus a smiley face balloon, this Jamie said was to share. I got the few things I wanted too.

A long day today but very nice to have Jamie-Lee here. Tracy picked her up and took her home.

I have had the children quite a lot the last few weeks while Lindsay is not well. I do wish the Hospital would sort her out.


Happy Birthday Lindsay.

Cleaning up down stairs today. Phone call from Lindsay could I get Jamie-Lee from nursery. She is having her hair done and did not realise how long it would take. This is a present from Ben.

Jamie was going to her house to day so I could then see Suey their dog. Jamie would have preferred to could to my house instead. She was tired today, bean at School all day on a trip.

Lindsay came home about an hour later, her hair looked very nice and suited her. After a while I left.
We are all going out tonight for a meal with Lindsay and family.

The meal was at a near by pub, The Plough.  Every one had a good meal, Lindsay liked all the things we got her. Mostly clothes and money, the children were tired as it had bean a warm day at School they still enjoyed it though.


Not a god day hardly any sleep. PAIN every where. During Pilates my whole body was shaking.

Today is the day I fell back in 2004  starting all this RSD off  and every thing else that followed it.
 I take the tablets to  help the pain-- No tablets no life. These do not help my IBS. A vicious circle of pain, tiredness and just HELL a lot of times. I am lucky ( I did work hard through the pain so I did keep mobile) I can still get about quite well. A lot who have had it this long are in wheelchairs now.


Angela called in yesterday after having her hair done it looks very nice.

Age Uk  no accidents today quite busy but not rushed off our feet a new lady was on the till, called Joy, as Shelia was ill.

Pain has calmed down a bit so I am pleased. Right hip is quite sore though. There is always pain some where. The chef here, has a daughter who has FIBROMYALGIA, who suffers a lot  so she knows what I am going through.  

The Air is very heavy and I had a bad head later in the day, this feels like a storm inside there. I have mentioned this in past Blogs.

Bit of shopping then home. there are a lot of good sales on, so shopping is very temping, a specially for the children.


Got all three children today and the night too. Andrew is still here, so sleeping will be a little different this time. The boys usually sleep in the top room but as Andrew is in there they are in the the front room down stairs. With Jamie-Lee in her usual bed. Tom fell asleep on the dinning room floor as Paul was still watching his TV.


Up about eight, none of the children were awake. Every one awake soon after, Summer jumped up to see Jay-Jay on the settee and Tommy  on recline chair. They said they had a comfortable night sleep.

Tommy Jamie and I took Summer on the common for her walk.
In the afternoon we all went on the park to play. The boys played football and Jamie just did her own thing. All picked up about six. I enjoyed the weekend and they did too.


Lindsay and Jamie-Lee came round in the afternoon she was not feeling too good its time the Hospital sorted her out. Bean too long now and things are not getting much better.

Andrew is going back home tomorrow to Amsterdam. I think this is the longest he has bean here, (three weeks on and off) since he left five and half years ago. Wayne is coming with us on Holiday this year too. So that will be good for every one. Looking forward to a few days away. Lindsay and family will be there too.

Andrew and I took Summer for a walk about nine pm the last one for him for a while. Still quite hot as well, a nice cool breeze as well.


Andrew all ready for the off for his fight at one thirty. Good byes said, Paul and him were off to the Airport. We will not see him now till Christmas. A message later from him he is back in his beloved DAM.


Another hot day Summer at last. Pilates went well this week. A lot of the time I felt far away and light headed. Spasms down right shoulder with pins and needles now my arm.

Cleaning up downstairs its hot but it needs doing.


A small seizure in the early morning I just got into bed and my body was started shaking I felt sick and had an instant head ache. This only lasted a few minutes  thankfully. I did my deep breathing, now weather this stopped it going into a bigger seizure I am not too sure.
I felt Ok later.

Physio today-- I have said be for I am not sure if the ACUPUNCTURE is as effective any more. The students suggested CUPPING or to give it the full name GLIDE CUPPING.
These  were placed on my shoulder and move across and down my back. two more were used on my knees. This at times was painful it will be worth it if it helps me. After the CUPS were remove I had a nice massage.  Today the Students were Briney and  Brett. Tutor was Fanyi.
This helps explain it all. 



Fair night for me, a few hours sleep.
Age Uk not too busy today, I was pleased as my shoulder is quite painful, bruising has come out on the right side (worst RSD side) Weird as my body feels a more constant temperature to day.
Tired but feeling good apart from the pain that is. Still taking a lot of extra tablets.


We are having a BBQ today with Lindsay and family. Hot in our garden got burnt a bit on my shoulders. A good day and every one ate well. I think Tommy-Lee had the most. I don't know where he puts it all.


Legs and knees are really bad pain like I have ran (If only) or walked a long way. My neck and shoulders are definitely better than they were. Still a bit tender in places.

Cleaning up the bedrooms today starting at the top and working down. 

Quite a bit of extra pain today in my legs today, fine when I am walking but when I sit down for more than a few minutes they really hurt.  My right hip is playing up as well. The air is very heavy today this is causing me a lot of pain too.

Cleaning up the bedrooms Wayne is here for a few days at the weekend. We have sent Andrews box to him. These are things that he left here plus other things.

Angela came round yesterday, I have not seen her for a while. She is well and working now.

His parents came round later. I am altering two skirts for her when I can.

These I started later in the evening, they are quite difficult as the material is very silk like. I got them both the right length and all ready for machining now.


Finished off the bed rooms, this can take a while as there are four, Well three, plus a computer room.
Quite a good day so far. I feel very tired, but most of the time I do any way.

Sent Andrew a parcel of things he could not take with him when he went back to Amsterdam.  Weight soon adds up when filling a case.

Night altering two skirts for Paul's Mum, went quite good a bit tricky as they are like a silky material.
Any way managed to get them tacked ready for machining to morrow.


Poor Summer had a bad time last, well more early morning. I went to bed 5.30am Paul was up at 7.30. The smoke alarm in very top room up two flights of stairs, beeping to say low battery. This for some reason terrifies Summer to the point of shaking panting and scratching doors and curtains. She is very bad.  Paul came down to find she had pooed on the floor and wee'd and clawed the cupboard door. She was in a bad way. Paul calmed her down and she had a sleep. When I got up she was feeling better. She slept a lot though.

Machined the skirts and made a bag for the umbrella. Quite a busy day I think.


Pilates, a friend from Age UK came today as well. She enjoyed it and going on a regular thing. I am pleased she did.

Got the children again today well two of them for now Tommy-Lee and Jamie-Lee Jay-jay will come later. He has a hospital appointment. Tommy went to the park with Ben to play foot ball. Jamie and I played with all different things.

His parents picked up the skirts and was pleased with them. Me being able to do them saves her money. In the local market they charge £10-£12 per skirt. I get sweets or chocolate so suits me fine.

Jay-Jay arrived and headed off to join his Brother and Ben at the park. Be for he went I said zip your pocket up or you will loose your phone. He said you know me Nan, I said yes I do that's why I said it.
We all sat together and had a lovely Chinese for tea very good. Later Jay-Jay wanted to show me something on his phone. He could not find it. Oh no he thinks he lost it at the park. Lindsay is not feeling her best today in fact CRAP. He just woke up from a sleep and heard Jay-Jay say he had lost his phone. All hell broke loose every one up set. Jamie was not helping, saying things like may be the phone will magic back or its in another pocket.

They all went home I felt sick Jay-Jay and Lindsay very mad. His phone is an Iphone 5. I know it cost Lindsay a lot of money for his Birthday in March.

She is not too good today a very bad head and tired too. The children are off School now for about six weeks.

We got a call from Lindsay later that some one had found the phone, Lindsay had bean calling it continually, then some one answer it. The man lived close by so it was picked up straight away.
I told Jay-Jay he was very lucky. A very happy group again. Me too.


All children here again while Lindsay packs for holiday. She is not too good. They are going to Hopton near Great Yarmouth. We will join them next Monday for 4 days. I am looking forward to it.

Bean a very busy few months with Lindsay being ill.  Jay-Jay was talking about when he lost his phone he said he was feeling sick wanted to scream because he had bean so stupid. I said be more careful with it now as he would not get a second chance.

I feel quite good today body seems to be more of a constant temperature, pain is not too bad either.


Age Uk quite busy there at times, dinners start at 11.30 and a lot of people have their meal between 11.30 and 12.00. After that steady till about 2.00pm.  More pain today so a few more pain killers taken.

Bit of shopping in town then home for a rest.


Happy Birthday Wayne.

Up a bit later today not a good night awake a lot on off, not good when I got to bed about 4.30am.

Summer has had a bath ready for her Holiday on Monday. Wayne is on his way here, he's coming with us on Monday. He said he is looking forward to spending longer with the children, he thinks so any way.  Hope it not too much for him.

Cleaning up and bits in the garden today. Still a nice day here, not as warm as past few days but still good. Lindsay said it nice in Hopton and they are at the pool. She said she is getting head aches but is doing alright.

Paul picked up Wayne from Newark train station. He lives at Halifax so a fair way to come.

Chinese tea   I enjoyed this as it was getting on eight o'clock when we ate, so I was getting very hungry.
Gave Wayne his presents every thing he liked so that's good.


Cooking a late dinner/tea today roast chicken with all the extra bits. Doing this blog too so I can publish it be for Monday. Dinner was delicious.

We are out tonight at the pictures with Angela to see BFG  (Big Friendly Giant) so looking forward to that.

Pictures was very good and funny-- Angela,Wayne and Paul thought it was good too. An enjoyable night all round.

Tomorrow we set off for Hopton village for a few days Holiday.  Hope the weather is kind to us.

Summer- packed, and ready for her Holiday.

Well bean a very mixed month hope the new cupping treatment helps me a bit more with pain.
Also I truly hope Lindsay gets sorted out too.

Well that's all folks, hope you are all as well as you can be and had some of this Summer we are having.


June. 1st

Pilate's was painful everytime I put my arms up, pain and spasms shot across my shoulders. Legs not too bad apart from my knees. I did what I could.

I went to see Angela in the afternoon. She is better now and waiting to start a new job hopefully very soon.

I am feeling very tired, well exhausted, Pain spasms lack of sleep all lead to a poor life.
I think I need my B12 more frequent  than I do now, three months apart. I need to see the Doctor about it. Also may be upping some of my tables or adding some to help this pain thing I am going through.


Age UK again, Not too busy today. Nills said it has bean dead all week. I know the work is sometimes a bit much for me but I do enjoy it. I would not go if I did not. Angela is not going there anymore but I will see her at other times.


My Daughter Lindsay is doing as well as she can be. Still bad heads and being sick a lot of the time.
She is having another scan on the 17th of this month. Hopefully by then they should know what to do. I hope so, as its very worrying. She is like me, feels caged if held down by illness or accidents.

A day for me of cleaning upstairs and washing, nothing exciting. Knitting later, a hoodie for Jamie-Lee As I have finished the cardigan I was making her.

All finished.


A warm sunny day, I think Summer has arrived. Sorted out the greenhouse and the herb garden. A general tidy up as well. I still feel very drained and I am taking way more tablets than I should.


Not a good day. I feel very bloated no doubt because of the extra tablets I have bean taking or IBS. Out in the garden a bit, also cleaning up downstairs. A lot of pain and bad spasms and burning. Usually the pain gets a bit better in the Summer or it has in previous years. See if I can get in the Doctors tomorrow after Pilate's.


Pilate's painful again. At least I have less pain today or at least not as sharp. I called in at the Doctors and I can not get in till  Monday, then its some one I have not seen before. How are they going to know about my RSD, they are not. They have taken on too many new patients mostly foreign ones. So there are never any appointments. The receptionists say ring up knowing full well there are no appointments to have. Very frustrating, then there is the chemists as well, not able to get tablets that day, I have bean on for a long time, years..... Sometimes I think it might be worth changing Doctors and chemists, or are they all the same?


Physio I saw the Tutor- Jason , Nassen and Brinny (students), Three needles in left shoulder and six in right shoulder.  After a massage by Nassen. this was quite gentle. Very cold going home even though it was a warm day. My finger next to the little one went very white and painful. Not sure if this was from the massage or RAYNARDS. Fair bit of pain later in my shoulders.


Age UK lots of people here today very busy. Rained coming home and I bought an umbrella from pound shop, kept me dry, I think if it had bean windy it would have broke.

Tonight it's Elton John, I am really looking forward to seeing him. I have never bean to a concert before. I just hope my body will cope with the noise and vibrations. I hope the rain will stop too, as the concert is outside.

The night is great yes I did suffer but it was so worth it seeing Elton after liking him for so many years. He is sixty eight and still sounds great.

I have put the concert is on a separate blog already published.


Early hours of the morning I had a seizure, while in bed this woke me up and after a while Paul woke up. This lasted about two to three minutes. After I had severe muscles spasms in my legs and arms. These were worse on the RSD side. I took two BECLOFEN this seemed to help a bit. About an hour later I went to sleep. A seizure for me is exhausting. This I think was caused by the concert, But I would still do it again.

Not feeling too bad pain around the eyes, not sure whats that's all about. I feel very drained but that's normal for me.

Tommy-Lee is staying here tonight so that will be nice for me. Tommy-Lee is a great talker and will go on for a long time.


Saturday Nights Alright for Fighting". Awoke to a Black eye.

Paul said I had a black eye I thought he was joking till I looked in the mirror. My left eye is black and sore right eye is swollen but not as black.

 Paul thought I had had another fall or another seizure. I had neither. When I go to the Doctors tomorrow I will ask if this black eye is a result of the seizure as I think it is.

 Black eye from last nights seizure. I googled this, as I did not know this could happen after a seizure, it can.

 Tommy spent most of the day here and he said had a good time.


Fair night but I was awake a lot with spasms in my legs. My eye is quite black and hurts when touched.

We have got Jamie-Lee today after her Nursery School. We played all the time, outside and in. She enjoyed her time here and so did I.
 Having fun with the playdoe.

While I was at the Doctors-- She checked  my eyes and said the left pupil is a lot bigger than the right, apart from that the eyes look good, about a week for the swelling to go down. I know they are quite sore today. She said she thinks this because of the seizure as well..

 We discussed tablets and B12 injections the tablets are to stay the same. I wanted the OXYCONTIN to raised a bit, because of the extra tablets I seem to be taking. She said if after another month, and things are still as bad she will alter them. I don't really like taking any of them but without them I would not have a life. My B12 is to be every two months starting Wednesday. Hopefully this will help me to not feel as tired. I know a lot of it is lack of sleep, but about two months after the B12 injection I start to feel very weak and tired.


Pilates, this was good apart from the usual pain, quite a lot of spasms in my arms.

Just as I was getting ready to go for my B12 injection, the rain poured down. Sincil Bank, the way I go was flooded in places. the drains could not take the extra water. I did not get too wet though, sensibly I had an umbrella.
My injection really hurt this time, made my eyes water. Still raining hard on the way back. The B12   pain lasted the rest of the day. Hopefully it will be worth the pain.


Age UK was quite busy. Everyone asked about my black eye. A few funny comments as well, one man said did I get drunk and fall over, another said whats the other person look like. They were concerned too, or I think they were.

Bit of shopping then home. Tommy-Lee and Jamie-Lee are here for tea and stopping over night. Lindsay is having her big scan tonight.

Chinese for tea too they both enjoyed the meal. Jamie- Lee was good and settled to sleep quickly. I was able then to play a game with Tommy-Lee called Smaths this is like scrabble but with numbers. We enjoyed the game even Paul played a bit helping Tommy and me out. Like I said a good game. Tommy-Lee did not go to bed till about 11.30 hopefully he will sleep in tomorrow.


Jamie-Lee had a good sleep but seemed a bit moody. Tommy-Lee slept in till about 10am. He said he felt good and rested.

We are all going on the common with Summer, I asked Jamie to get her trainers on but said she wanted her canvas shoes on, the common is very wet and these would have bean ruined. She had a melt down and said I am not putting on my trainers. I said, not going then-- Tommy and I waited to see if she would change her mind but NO, No No she said. So Tommy and I went without her. Paul said she kicked up big time after we went getting her trainers on now. Too late Miss.

We came back and she still was mad with me but it was her choice. We walked down to the bridge which seemed to help.

Soon Lindsay and Ben were here for dinner. Sausage and chips all round home cooked of course, good too. Lindsay said the scan was awful and made her sick and a very bad head ache, it lasted about an hour.  After dinner Lindsay took Jamie-Lee home and Tommy and I went into town. We had a good couple of hours and he got some high top boots, a t shirt and shorts plus a hat and water bottle.
The hat is like Ben's so it made him laugh. Got Jamie-Lee 2 dresses as well.
I will go with Jay-Jay at a later date. A good day but not without the dreaded pain and extreme tiredness. A long day but at least we had a good time in town.


At Paul's parents today then on to my brother and family. Gary's birthday is tomorrow so we took him a card and present. They are all well and David is working hard, he is a Landscape Gardner. The weather has not bean the best for him though. Nice to see them all.

While there I got a high pitched sound in my ears, this lasted the rest of the day.
Steak for tea very tasty too. Knitting and reading rest of night.  Late phone call from Andrew he is here for a few days hopefully starting Thursday. This will be great as I miss him, with him being in Amsterdam, I know its not a million miles away, but its far enough. Saying that Wayne is nearly 2 hours away. This would not be too bad if the RSD did not play up when travelling. Lindsay is the only one near to me.

Still black eye, this is going down slowly though. Not as much pain around and in my eye.

                                                                  Black eye almost gone now


Happy Birthday to Andrew my youngest son.

Dentist today everything checked out OK. He took an X-ray of my teeth to see how they are doing deep inside the roots. Not really any concern there either, just a bit of white showing where it should not be. General wear and tear, he will check them again in six months.

Knees hurt today and shoulders as well along with the usual constant pain. Had a bit of a bad stomach with a lot of bloating too. Extra tablets don't help either.


Pilates went OK, quite a lot of shoulder pain. Made a cake for Andrews birthday as he is coming over for a few days taking in a few events here in the UK. This was not too bad but I have made better in the past this is by looks as not taste, we will soon see.


PHYSIO and ACCUE today I always look forward to this as it usually helps for a while.
Today same people as last time. Jason, Brinney, and Nassen.
I had 7 needles in right shoulder and 4 in my left. 2 in my back this is for INSOMNIA (well they can try.)  1 in each leg . These hopefully will help a bit with pain.. A massage by Nassen on my back and shoulders. Also a head one I have never had anything like this before. At times it felt like he was pulling my whole scalp off. Not really painful, but not pleasant, quite soothing in a weird way.


Sleep is not good at the moment, I know it never has bean for a long time. Just lately my body seems to think it can exist on about 3 hours a night, less sometimes, last night an hour and half. (So much for the needles for sleep) .I can get to sleep but not stay asleep for more than a few hours. People say I look tired and should get to bed earlier !!! If only it was that simple, unless you have had any trouble with INSOMNIA who have not got a clue what we go through. I have a friend who I have mentioned before, who gets ten hours a night and some nights twelve hours sleep. They say how do you cope, I DON'T KNOW.

Anyway its not going to go away I don't think so put up with it. On to Age UK. A steady day not with out it mishaps though. Calum was in charge as Nills was off for the day.

Things were pretty good till I filled up the filter coffee machine again. People asking for drinks and more people behind the centre than usual. I did the drinks and heard sizzling, I looked round and I had not put the jug under the brewing coffee. OH NO--- coffee everywhere. Lucky not much went on the electric plugs close by (too close by).  Everywhere else though, in between serving I was cleaning up the split coffee.  BUT it did- I soon learned, the over flowing coffee shut down all the electrics, the till, all the ovens, everything. Not the lights though. Not off long as they have a back up system in place.

Calum said he is pleased I only come in on a Friday, only joking he was, I think. We get on well. He said I am a walking danger. I got the sack twice and no wages this week?? Two minutes later he asked me for two teas, I said I thought I was sacked. The look on the customers face was a picture.   Apart from that---- the rest of the day went quite well. The usual accidents but nothing major. Quite a steady day.

Very tired and shaky at times. Lack of sleep can play tricks with your mind.


Andrew arrived in UK today, but not here till mid week as he has  an event in Peterborough. Paul picked him up from east Midlands Airport and took him there.

I have Tommy-Lee and Jamie-Lee for the day from 8-00am. Tommy is not well and Jamie is not right either both have bean off School. Tommy-Lee spent most of the day on the settee but picked up a bit in the afternoon.
We all watched Dumbo and Toy story after dinner, well me and Tommy-Lee did, Jamie went to sleep. She missed all Toy Story and half of Dumbo, Summer jumped up on the chair with her.

When Jamie woke she watched Dumbo, Tommy had a another sleep with Summer. Later Lindsay arrived to pick them up about 8-00pm I think, so a long day. My stomach is playing up as well. Could be IBS.


Spoke to Andrew the event is going well and he is being recognized by a lot of people.

I have got the three young ones again today but not for long. I have not seen Jay-Jay for a while so that will be nice for me and I am sure Summer will be pleased to see him.

Angela is also popping in for a while so a catch up on her week too.

I had the children again for a few hours. Tom is still not well neither is Jamie she was quite mardy today. At least I can pass them back to Lindsay, one of the joys of being a Nan.


Fair night got about three hours sleep. Andrew is here now for a few days and his belated birthday.  We were not sure what to get him, so I am taking him shopping while he is here.

Andrew with Summer before her haircut-- Scruff Pup


Summers hair cut-- she had got quite a heavy coat on her so must feel a lot better now. As usual she looks like a little lamb. She is so white, she has got a name from a few people on the common---
The Persil Dog.
She has not bean bathed yet so a bit mucky.

Jay-Jay had a bit of an accident on his bike and has a very swollen knee.  They are all here for tea a big Chinese. Very good it was too.

A lot of pain today mostly joints, with RSD being what it is, the pain can come and go all the time. Also the pain a lot of time is referred. Nerves are jumping  and burning like I am on a BBQ. I hate it with all my heart, its especially hard for me when I see younger people have it and how they suffer as well. The pain from HELL that's RSD.


Pilates, not too bad a session a lot of shoulder pain though.

Wayne has arrived here as well so all the family are together again. Good or bad ??

I know we had Chinese yesterday but guess what we are having another one today. Wayne's fault, he could not get yesterday.
 Andrew's cake I made was good too despite me thinking it wouldn't be....It soon got eaten be-for I got a picture .

Another enjoyable meal too. I did not have as much this time. My stomach is still a bit weird. Jay-Jays knee is very swollen but he said it does not hurt as much. he said he hit a big pot hole in the road which caused him to fall off his bike. Tom and Jamie are still not right. I think they have both had a nasty virus.


Not a good night, awake a lot, less than two hours sleep, I feel very drained and so tired

Andrew and I are going into town to get him his birthday presents. We did well and managed to get a lot of nice clothes and a few non clothes things. He was happy.

Wayne is heading back to Halifax as he was only able to stay one night.

Well June here and gone and the weather is not good a lot of rain and cold days. Come on Summer find your way here.

A mixed month for me. I am not sure if the ACUPUNCTURE is as effective as when I first started. Or it it just not enough of it, the massage is good most times. I know this pain is here to stay, but if I can make it just a little bearable I will be pleased.

The very best to you all Love Gill.   

Elton John.

The day I have bean looking forward to is here. The Elton John Concert-" Wonderful Crazy Night"  at the Lincolnshire Showground. Paul and I, plus Andy a friend from the street set off early, good job too as there was a lot of traffic build up throughout the City.

We arrived and took our seats after the usual toilet visit. The stage looked so big and bright. Elton was going to be on very soon. We did not see much of the support act but it sounded pretty good.

 Sitting waiting for Elton to arrive.
 One of the screens Elton's new Album.
View from our seats. We were quite near the front.

One thing that bothered me was would I be able to cope with this, the noise and the lights also the vibration.

The stage went dark then lit up into a bright loud spectacular sight. There sat on stage not very far away was the one and only Elton John. Amazing, I felt tears in my eyes and a lump in my throat.
The roar was deafening, I have liked Elton John even before he was famous, very early seventy's.
Songs like "Your Song" and "Tiny Dancer". Of course you can not forget Bernie Taupin. He came from Lincolnshire too,  Owmby by Spital- meeting with Elton 1967.


The rest of the night just got better. We were on our feet with the rest singing and moving with the music. The music was very loud, the vibrations were bad too.. I just hoped my body could cope. A few times I felt dizzy and in a lot of pain. I remember thinking to myself if I got ill here would Elton notice?  The night went on getting better all the time apart from the steady rain, but that was hardly a issue here, we had Elton---what more could anyone want.                                                                                                                                                                    
John Mahon joined the band in 1979
 Davey Johnstone with Elton more or less from the start.

Other Band members are Kim Bullard, Keyboard, Matt Bissonette,  Bass guitar- Ray Cooper on percussion. He was with Elton in the early days.

 The Drummer Nigel Olsson. Since 1970s then left, rejoined 2000.

The night was fantastic, Elton played old and new songs. My first ever concert at 61 well worth waiting for. Elton John practically on my door step, what Elton fan would not want to miss this?
Yes the noise did get to me and the vibrations and lights. (Got through with the help of medication) Would I do it again. YES.

The show lasted about two hours, it took us over two hours to get out the car park. A brilliant night.
Not bad for someone that's 69 years old, yes 69 born March 26th 1947.

Hope you are all well and enjoyed this extra blog Love Gill.


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