January (2) Up Date.

January 10th

My friend Jenny came yesterday and brought me some lovely flowers. Thank you Jenny..


Good to see her had a good chat. She said there are going to be a lot of changes at Age UK. Obviously I am not going to be there for a while now. Jenny and I were not able to work together much as over the past year we have both have bean off for various things. Hopefully soon we will be able to.

My arm is still very painful and I'm taking a lot of extra tablets. Trying to find things I can do with one hand, as I have not got much feeling in the fingers they will not grasp things YET. No knitting or sewing, hardly able to dress or wash myself. So life is a little slower than a few weeks ago. Doing a few crosswords and word searches, reading too.

My grandson Tommy-Lee has hurt his hand too. He has a broken knuckle and a displaced little finger. He needs to wear a  splint and strapping for a few weeks, then go back to the hospital to see if there is any improvement.


Over night I had seizure, not a big one I don't think, but still not good. This is due to all the extra pain from my arm I would say. I have a bad headache and feel very tired and drained, all the signs I usually get after a seizure. I usually take it easy but I can not do much less than I am doing now. Tomorrow I will be fine so long as there are no more.


I am doing a puzzle, a picture of 3 kittens in a garden urn. Lindsay and her family got me it for Christmas, Jamie-Lee chose it and was very excited when I opened it Christmas day. Bit harder with only one usable hand but I am getting some done.

I can feel the bone moving when I move my arm. Lindsay said it will be the wires moving. I know it hurts. One bad move on New Years day has a lot to answer for. Hopefully the nerves are recovering. I know it will take time and I am not good at recovering from any thing. I miss going out with Summer and I know she misses me taking her for a walk as well. She is still going out but you can tell she is wanting me to go with her, soon Pup soon. I did go with Andrew a few days ago but was very cold and my arm really hurt a lot. With having the plaster on restricts me to what I can wear. Bean mostly in my PJS. A lot easier than every day clothes.


Hospital today to see how my arm is doing. X Ray first then the Doctor. He looked at the X Ray, and said things are improving, the damaged nerves look better than they did. I saw the X Ray and how the wires looked. I was hoping for a picture but not aloud. I am to go back in 3 weeks, and if things look good the wires will be removed. Next the plaster room for a full plaster over the back slab one. I could chose the colour, I went for a red one. The first plaster was not removed as this would has disturbed the wires too much as they were already in a good position. The pain was not too bad either. I was given a different sling too, but this rubbed my neck so using the first one I was given.

A cup of tea in the cafe then home. A lot of pain later shooting down to my fingers, and they swelled up too,  just as they were improving. Hopefully they will go down very soon.



Spoke to Helen, she said Poppy her baby is doing well. Some of the clothes I made will probably not fit her now as she is 3 months old. With her being ill and in hospital a long time, Andrews attack, Paul's back operation, my fall, we have not bean able to see her yet. Only talking on the phone, but I so want to see Poppy.

Well that's the update- quite boring for me. Hopefully the next update will have a bit different read.
All the best and I hope your New Year was a bit better. Would be nice to get a few comments or just a few words from some of you and how you cope with your RSD. Just click on the letter at the bottom of the posts. This will take you to an email, then just write and I will get back to you.
 All the very best love Gill.

After Christmas and New Year. (1)

After Christmas and New Year.


Kayleigh arrived at Newark station, Paul and an excited Wayne went to pick her up. Good to see her again.

I feel very drained today, hot and cold probably overdone things a bit so my body is complaining  loudly.


Not feeling any better after a hot night for me and pain. Later I went to bed for a while so I hopefully would feel better. We have family coming for tea. After a rest I did not feel any better, worse I think. Hopefully things will be better tomorrow. Chatted to Wayne and Kayleigh but felt very strange.


Not a good start passed out on the stairs and bashed my head. Not any better than yesterday as I hoped. WORSE.

Wayne and Kayleigh had decided to go home on the train not to be taken by Paul. He then can stay with me. I was mad, that I was not feeling good. Wayne could not take many of his presents, so that made it worse.
He phoned us up later and said he had somehow slipped between the platform and the rails and hurt his knee. Poor Wayne hope it's not too bad.


Well last day of this year- what will next year bring? I am feeling a bit better but still not right.
I will not be sorry to see this year go as not the best. My knee opp, Paul back opp, Tommy-Lee's accident, plus Andrews's attack has not bean the best year. So next year hopefully will be better. 

1st January 2020

Around 3am I decided to go to bed. Did what I usually do--- then tripped over the flex from my recliner chair and went flying falling face down in AGONY. I think I hit my right wrist on the table leg, or fell on my wrist. My hand was hanging down, like it was not connected. Summer was licking my face. I screamed and screamed, the pain within a few minutes was full body.

Paul heard my cries and came down. He could see something was very wrong, Andrew also came down and tried to calm me. Paul rang for an Ambulance but there was a wait of around 3-4 hours. An hour or two for a paramedic..Paul decided to take me in the car. I was still on the floor and had to get up. The pain was the worst I have had for a while. I screamed every time I moved. After about 20 mls of OXYNORM, Somehow I got into the back of the car half laid half sat. Paul had put a pillow around my arm. This did little to help and the pain was just getting worse. I felt very sick and was pleased when we got there. 46 people waiting most of them with bashed heads or limbs. An awful lot were drunk- the waiting time was 3-4 hours. An argument was going on between some of them so security had to step in to calm things down.

I felt very small and vulnerable thinking I had to sit there for that long. Paul went to the desk and told them how bad it was. I think they could see how much pain I was in. I was seen soon after.

The Doctor looked at my arm and just turned it and I screamed. He decided to inject it with LIDOCAINE to numb it. Waited a while and tried again but the same, he said there must be 2 breaks. Some more LIDOCAINE and GAS AND AIR, my hand and lower arm was dead to pain and any feeling. Off to X RAY. This made me feel very sick and light headed.

Back  to the Doctor-- 2 very bad breaks and nerve damage he thinks because I could not feel him touching my fingers. I would need an operation, today hopefully. Next a plaster on with the GAS and AIR. The LIDOCAINE was wearing off. The Doctor had to reduce it, (pulling it hard to get the bone in line again.) Very painful even with the GAS and AIR.

Waited for a bed on a ward, surgery I  found out would not be today first off tomorrow.
My fingers were black and very swollen, it hurt a lot now as the LIDOCAINE had worn off. Now in a very quiet ward with 3 other ladies.

The plaster was too tight now with all swelling. They had to cut the plaster halfway or I was in danger of losing my fingers. My daughter Lindsay helped them by holding my arm. More screams from me. By now my arm was in a sling type thing on a stand with my arm up right. This was to reduce swelling not much protection for the breaks though. A Doctor came to check my arm and said its still swollen. We need to cut it all the way down. Now I had no protection to my arm and it hurt like hell.

Soon after a Doctor (I use the term loosely DICK is more of a word I would use) came and twisted it round while in the sling. I told him if he touched it again I would hurt him, he said he was sorry. This hurt like hell for a long time. The rest of the night was not good I could hardly wait for the operation time to come.


Time has come to be taken down to theatre. Usual questions then in. The next thing I knew I was in the recovery and in pain. The gave me it through the drip and said it would work almost instant. This did not so I had to have the maximum amount. Soon I went back to the ward and was told what the Surgeon had done. My arm was manipulated and the 2 broken bones wired, to hold them together. I knew that they would use some sort metal like plates screws or both, so this was no surprise. Hopefully the pain and swelling will be less now and a better night.


Going home to day later after dinner so pleased, I have bean given a cuff like sling to wear and instructions on what to do and look for if things are going wrong. The car journey was not too good but hell of a lot better than when I came in. Summer was so pleased to see me. Poor thing she has seen me go so many times to hospital, and she never knows when I am coming home.


A lot of pain most of the day, fingers are like very fat sausages. At least I have strong pain stuff, one thing where having RSD has sort of helped. I am having to go to bed when Paul goes so lay awake for a long time. I can listen to music but it's still a long time from my usual bedtime. PAIN-PAIN-PAIN all night it would not go despite taking a lot more MORPHINE than I should have. I think the RSD has a lot to do with it.


Pain and swelling is up and down but still a lot more pain than I thought it would be after surgery.
I am typing all this with my left hand, this is a lot slower, but its either this or nothing. I have used this hand for quite a while now for carrying things as it's safer than the right which lets me a lot.

Andrew is improving but still off work a bit longer. Police are still investigating. Hopefully soon they will have something to tell us

I Will update this Blog every few days so you know how things are going.
All the best love Gill.


December 2nd.

A very cold frosty morning, white over on the common so everywhere frozen. Summer came back quite clean for a change.

Full body pain today- spasms everywhere- cold again so that always makes my RSD and FIBRO worse.


Not a good night a lot of pain and spasms. I have taken more tablets but still the pain wins.

I rung up PIPS again and they said it should have been sorted my now and will be sent to the higher office. I should hear with in a few days. I said that's what the last person said. What I don't understand is why other people have been heard, and they put their claims in a long time after me. I think it's the RSD as they know nothing about it. Look it up-- before I got it, I had never heard of it either. Any way I can't do anymore so just wait. I will be surprised if I hear this year.


Went to Asda Living, to get a few Christmas presents with Paul. We did quite well too.

Lindsay kicked a chair as she walked past and has broke her little toe very painful. I broke mine years ago.

Paul is at the Nurse to check his back, everything OK.

Cleaned up down stairs. Not as much pain today and spasms are less, so that's good.


Age UK- this is the first time Jenny and I have worked together since November 15th.
There was a Craft Fair on so it was very busy with all the stall holders having food, or at least a drink.
At 2pm Polly said NO more meals, only cakes and Christmas bits that were on the counter.

Poor Tommy-Lee had an accident today, he got off the bus and was hit by a car. He was not badly hurt just shock, scrapes and bruised. He phoned Lindsay and she rushed down there getting a lift with a neighbour, as she still has a very swollen toe. He was in the back of an Ambulance for an hour. They checked him over and said he was alright to go home without going to Hospital. If he feels strange or any thing not right he is to go to A and E straight away. He was so lucky not to have bean badly hurt or worse. I think someone was watching over him.


Would have bean my Dad's Birthday today 93 years old.

Rung Lindsay up, she said Tommy-Lee was very sore and was a bit tearful last night, but he had gone out to his friends today. He said he will ring her if things are not right.

Lindsay came round for the day with Jamie-Lee. She was very quiet and watched some things on YouTube for quite a while.


Walked to the Crematorium to put some flowers on the memory headstone for Mum, Dad and Phillip my Brother. Also my past next door neighbours, Mr and Mrs Lambert. Very cold today and bitter wind. I was going on my bike, but too much wind. I have not been on it since May.


Christmas shopping with Paul in town. Got quite a lot more done. Had dinner in town so no cooking tonight. Not been back long when Angela called round. She also had been out for dinner.
Another windy, sunny day so all the washing dried makes a change so just the ironing to do tomorrow.

Went to Joy's later as its her Birthday tomorrow. Walked there and Paul picked me up later, nice to see her.


Lindsay said Tommy-Lee was a bit upset as his shoes had been damaged by the bus accident on Friday. I bought them for him, and they were expensive, as men's price Clarks shoes not boys.
I told Lindsay to tell him not to worry and we will sort it out. He is a very thoughtful boy and very caring.


Jenny came round after having her hair cut, looks very nice (a new place for her)

I am not at Age UK on Friday as the oldies party is on, the last of three. Last year I found it hard to cope with the noise and music being very loud and the speakers being set up wrong. A lot of vibration from them and just so many people in one place. So this year I told Polly I would not be there to help. She said she was not responsible for it, this years organising is by the staff, but as far as she knew they were plenty of helpers. Anyway Jenny will tell me how it all went after.


My haircut today, as usual it looks good.


Well what a night-- Andrew was attacked coming home early hours of the morning. Police came to the door around 4AM. When Paul and I got to A and E we were told that Andrew had a fractured skull, 2 fractured bones in his neck a bleed on the brain and a very large gash to his forehead. He had head blocks on and a collar. The police were there too. They said that this could be a murder enquiry. I dropped to the floor and started shaking. Paul and the people around thought I was going to have a seizure. An Ambulance lady sat with me outside. Andrew was very restless and would not believe he had been attacked. Paul showed him his head gash on his phone and he just about passed out.

As time went on and another scan showed it was not as bad as they thought. Still the same injuries but not as life threatening. The gash in his head was bleeding a lot when he moved, something he had been told not to do. He thought he was in prison and bean held down. His mind was all over the place. He calmed down after having pain relief and fluid plus something to calm him a bit. His clothes were taken for any evidence. His head was stitched up- this took ages around twenty minutes or more. While he was being treated, the news came on and he was mentioned. A man had been attacked and was receiving treatment at the Hospital. Stitches out in 7 days.

The hospital wanted to keep Andrew in, but he would have gone crazy. He came home with us with instructions for any signs to look for regarding his head injury. Andrew went to rest and we kept checking up on him. We just was so pleased the injuries were not as bad as first thought.

The police are following this up and will be in touch. There are witnesses, we could not have the names as the enquiry is still ongoing. At a later date if we can we all would like to thank them also the person who phoned the Ambulance.


Andrew has now got black eyes and does not feel as good as the 12th. A lot of pain in his head and neck- where the head fractures are he said it's very numb. I think if he had stayed in hospital he would still be there. We have kept a very close eye on him.

I am still quite shook up as well but slowly getting over it, a big shock, after all it's only bean a few days since Tommy-Lee was hit by a car.


In town today to get a few things not really in the mood though. Not feeling the Christmas Spirit,
 far from it.

The common is like a mud bath, so we have stopped going on it even the clean bit is no longer.
We now play ball in the area just near the park. She still just gets mucky and wet, but a lot better than the common. She still enjoys it so we are both happy.

The police came to see Andrew and took a statement. He could not remember hardly anything. The police have got a lot of of coverage on camera and are putting it all together. Hopefully this will turn into something and someone will be prosecuted for it. Andrew is very up much up and down with a lot of pain and discomfort. His mood is up and down which is normal for head injuries. Me well-- just so pleased he is still here.


Marzipanned all the cakes, I know its a bit later than usual but the icing will get done over the next few days.

Jenny came round after having her hair highlighted looks very nice, better than her usual hairdresser.  Angela also came round both of them exchanged presents with me.

I hurt a lot today in most places. I think after the last few days I am more noticing the pain. Never mind it will settle hopefully or at least lessen a bit.

Went to Argos late as I put an item on reserve thinking it was three day holding and not two. I could have chanced it or reorder, but decided to fetch it today, I got very wet as it chucked it down. Any way at least I've got it now.

A lot of places are flooded again, not so much around here. Hopefully there will not be much more rain so the people can get on with their normal life.

Age UK not too busy but steady so that was good for me as my mind was still not focusing on things right. Paul is in with Andrew so he will be fine. Joy came in to see me and I gave her Christmas presents. She is not doing too bad. 

Bit of shopping then home. Tired but Happy.


Andrew had out his stitches ten in all, lots more that dissolved underneath- He was brave.


Iced all the cakes so caught up again.
Pain wise today is not good- more pain when I am sat, than doing things. Getting a jacket or coat on is bad. Really gets to me at times, but there is very little I can do about it other than send myself in to ZOMBIE MODE with extra tablets is there? 


Windy and dry, a good wash day. Washed Andrew's backpack after all the blood that was on it. All came off after two washes so I was pleased. I was not sure how well it would wash- so I said if the worst happens it will have to be a new one.

My friend John came to pick up his cake so that's them all gone apart from my friends who are still on Holiday. Plus ours of course hopefully they will be good but you never know. Over cooked, under cooked, or just right.


Baking mince pies and small sponge cakes plus a fruit loaf all turned out good= not tasted yet though.
Paul's cleaning up. He is going to pick Wayne up from the station later as he is here over Christmas.
Kayleigh is here on Friday. Later we all had the usual Christmas Eve Chinese tea very nice too.


Happy Christmas to you all. Hope you have a good day. We did, quite noisy at times and the turkey took longer to cook, but all OK in the end. A long day but good. Summer was excited but so tired all day.
A merry Christmas from me PUP (Summer).

Well another year nearly over what will next year bring, better worse whatever it is we will all just have to except it. Hope all's good with you all and you are getting some good days.
Next Blog will be January 2020 so see you there. All the best Gill.



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