March 1st

Woke up with a headache so not the best start, I had this a few days ago but it went, now back with vengeance.

Age UK today as well, Very busy as soon as I walked in. While serving I got bad TINNITUS in my left ear this is something I have had for a long time now, even be for RSD (15 years nearly) - I asked Jenny if she would take over which she did. After a few minutes on the window sill, I was fine again apart from a buzz in my ear, I can cope with this and after a while it also went.

Age UK after the first hour or so it calmed down, and was steady till 2pm then trailed off. We always have a few late diners.

My friend who I spent a few weeks in Hospital, came in to say hello, she is doing well.
Also Joy paid me a visit she is not so good, back problems again.

Bit of shopping then home, still headache lasted for the rest of the day.


Washing and ironing also doing a bit of sewing, Paul's new trousers need taking up a hem. Got them done and all went well.

Started a new puzzle- Dr Who this time not going to be so hard I think-- but I have bean wrong in the past.


Very windy and cold on the common, bit of a shock after the summer like weather we had last week.

Cleaned up downstairs took most of the day then did some more puzzle. Some how the candle that I had on the table set the puzzle piece board alight. I just looked up and saw flames. Split second thinking I picked it up and quickly took it into the kitchen and put it out under the tap. I did not panic either, but did think whether the window was the right thing to do, but that could have set fire to the curtains. What I did not realise that the puzzle board had dripped and set fire to the carpet in 4 places.
Summer also got a blob on her head, she was smoking but it did not burn her owing to her thick fur.

 Candle and the puzzle board.
Burn marks on the carpet.
My little Summer oblivious to anything that just happen than goodness she was not burnt.

After I sat down the the reality set in and I was a bit shocked. The puzzle board was damaged but was able to cut it off so still usable. The carpet not so good Paul said he would have a word with the house hold insurance. This carpet has bean down 6 years I was surprised but when I thought about it we put it down the year Jamie-Lee was born 2012. Also more important Summer was fine. A lot of black bits had settled on top of things and a smell of burning too. I had just cleaned up as well.

The house insurance have agreed to look at the carpet an if all was good they would pay out for a new one. We have to pay the first £100. Yes we are getting a new carpet but this room is so full of cabinets and glass wear, its going to take a long time to clear it. I feel quite bad that it happened and foolish as well. I think the candle got pushed nearer me when Paul came home, but never mind it could have bean very worse.


Happy Birthday Jay-Jay 15 today where has the years gone. He is out today so seeing him tomorrow.

Angela popped in to see me she is well. Later my friend John came round he wanted a bit of sewing done and a Teddy mending, a dog got hold of it a while ago

The insurance men came to see the damage (quick work) he took a lot of details and said the carpet would be replaced. He had some samples and we chose one very similar to this one we have now.
He was a very pleasant men and said not to feel guilty as these things happen. The carpet fitter will help us move the heavy stuff if needed.


Haircut a lot shorter this time as the hair was annoying me and just looked a mess a lot of time. I have had it long for a while so time for a change. Still have a few curls and my hair always looks better in a few days.

All the hair that was cut off all my curls too. The hairdresser took a long length too.

Went to see Lindsay and family and to give Jay-Jay his present. We have given him money and 2 bags of lollies and Munchies sweets. He is going to buy some speakers. 
Chinese for tea tonight I had lemon chicken for a change good it was. Enough left for another day so tomorrows tea maybe.

Age UK A steady day no real problems either. Jenny not here as she had a previous appointment, Polly was helping me. I did manage to put milk in the tea pot instead of the jug, the customer laughed.

Everyone really liked my hair and said it made me look a lot younger. I said next a toy boy, Polly said what here, meaning Age UK. I said probably not then.

While having my dinner I sat with a customer and she was telling me about her husband having NON EPILEPTIC SEIZURES like me but not so violent like mine. His was caused by a virus and high temperature. She also said the Hospital did not treat him very good either. Some nurses were quite rude to him and told him he was putting it on like I was. I said to her who would want to put it on. We both feel like we know each other but neither of us are sure from where or when.


Very windy walk with Summer on the common. Good for the washing got all dried.

Emptying the display cupboards in the dining room ready for the new carpet. I hate moving my crystals they are so delicate and the way my hands are I am pleased when they are safe in  boxes.

Finished off the "Dr Who" puzzle one bit missing I think it might have got burnt a shame really. The last few bits were quite hard, as all black with bits of stars on for the night sky. Never done a puzzle that caught fire before.
All done.


To fly or not to fly-- Today is the changed date to go up in the plane, but there is snow at the Airport so its a no go. There will be another day and better weather too.

Wayne has snow too, we are expecting some so the weather man says. All we got later was a short shower of hail stones with another one later.


My brother David is having his Hernia operation today all the best to you.

I wish my operation would come up too. My knee is locking up a lot and I am getting more over all pain more night/bed time spasms and very cold from the knee down and swelling up..
Last night when sat it locked up completely and I could not move it at all. I had to massage it then stand up. This took a few minutes and was very painful.


Spoke to my brother David's wife Bev, she said he is doing well, not too much pain and is home. He is a bit like me does not like to sit down for too long doing nothing.

Cleaning up most of the day.


My friend John here for a chat and a bit more sewing to be done. He said I have a complaint laughing. The  popper I mended last time on his jacket, does not keep fastened so a rethink is needed. He said his Teddy I did for him is very good and he was pleased with it. I will do his jacket at a later date.

Phone call from carpet man he is coming tomorrow. So we need to get most of the furniture out. Also we have decided to have new underlay as most had gone a bit thin. Paul got some and we spent the afternoon putting it down. The carpet man will only do the carpet. We put the carpet back down ready for him coming tomorrow. We needed to do this so the underlay did not get damaged, or Summer hurt her paws on the gripper rods. Hopefully doing the underlay will make the carpet last longer-- so long as I have no more accidents.


Took the rest of stuff out of the dining room ready for the carpet to be laid. The man arrived and got on with the job. I went upstairs on the commuter.. Summer said her very many hellos he has two dogs himself so thought Summer was lovely. He got on with the job and soon was finished and it looks very nice, a bit lighter and more shaded, a very good job pleased

Now to get the stuff back in the room. Andrew helped with some when he came home, by tea time we had got it all back in now just the cupboards to fill back up. We can take our time with them so no rush.


Age UK steady day early finish as some new floor lay going down.

I have a DEXTA scan at the hospital so I set off to walk up the hill. My knee was not too bad, going up, down, I think will be the worst. Had scan no problems. I have one regularly to check up on the OSTEOPOROSIS as I came off the tablets 2 years ago as I had bean on them longer than I should. I still take CALCIUM 2 a day.  As I came out the Hospital a bus was waiting so I got on it, hoping it would not shake up my RSD too much and cause pain. The bus ride was smooth and no more pain  than usual, this must have helped my knee not having the pressure going down the hill. I walked back from town with no extra pain so was pleased.


Sorting out the cupboards in the dining room got a lot done so we were pleased.

Spoke to Wayne- there is a lot of flooding around him in Halifax and surrounding areas. They are on high alert. The town got very bad flooding a few years ago. He said it had bean raining non stop for 3 days and nights. So long as the rain/snow stops they will be OK and the threat will be lessened.


A cold sunny day, changed the bed which got washed and ironed. A few showers but nothing major the wind is too strong for that.

My knee is very painful as I had a lot of spasms in bed despite taking my QUININE.


A nice walk on the common not as cold as yesterday. Sumner played with her ball as usual and met a few of her friends. She always has a good time and loves her walks getting very excited when her lead goes on. She can hardly wait for me to get ready. Trouble is the common is very wet and mucky and she comes back not very clean, In fact some day she has to be washed.

Early hours of the morning I think I passed out, I found myself on the floor. I don't think this was a SEIZURE but can never be too sure but if it was it was mild as no damage done. I think I just passed out, I had not bean feeling that good all day. Very light headed and balance off.  Very unsteady when I got up to go to bed after sitting for a while.


Feeling a bit off it today. just finished cleaning up and Joy turned up unexpectedly. Good to see her, she has not bean well herself. She said I did not look too good. I told her what happened last night.

The rest of day I had a rest and later did my lion rug, going quite well too. Getting the shape now so able to see what it is.


Lindsay and Jay-Jay came round, it was nice good to see them both. The house next door is about sold so the household things are going bit by bit.

Lindsay came back later with Ben and picked up a fridge-freezer from next door she bought, so more things gone. A skip is coming next week for all the rubbish that is left from the loft and various room Cilla was a bit of a hoarder. (Ben's late Wife)


Age UK a steady day and even Vera was good not getting in the way as much. Closing at 2pm today as kitchen is getting a Spring clean. Everything had to come out in to the cafe. I said it looked a bit like a car boot sale.


Hopefully today we are up up and away, the sun is shinning here and at Tollerton so we think it's a go--- today a morning flight instead of afternoon one this time.
We met Dave and Bev at the Airport he had done his pr-flight checks so we would soon be off. We went to Banbury near Oxford. Miles go very quick in a plane, the clouds made shadows on the ground something I think you only see from above the clouds. Paul even flew the plane he was well pleased and proud of himself, not often you get to do that. A very good flight and the views were great.Very windy though. You could feel it tipping the plane at times.

 The plane.
 Dave the pilot.
 Bev and I in the back.
Going up.
Dave concentrating.
 The controls co-pilot side.
 The clouds making shadows.
 The plane grave yard.
 This was the ceiling in the cafe at Banbury.
  Out side the cafe.
 Looking very serious he was flying the plane.
 Bit more relaxed now.
Coming back to Tollerton ready to land.

Dave and Bev had a another flight later with two more friends.

Later on I did not feel too good, whether it was the flight or just a coincident or something else not sure.


I feel about right now headache and tingly feeling gone apart from hands.

I got a letter from Kingsmill Hospital with a date for my knee operation "1st May". Well pleased about that so will soon be all done. Nor worried about the operation just the after bit when I will be restricted at what I can do. I have my scooter but if on my own, will I be able to get it out the house as a bit awkward. Any way I will find a way for Summers walks. I will not stop in the house any longer than I have to.


Got cleaned upstairs today.
I feel very bloated and fat, legs and ankles swollen too.
I did some more of my Lion rug, coming along nicely more than half done now.

Sold some more of the things from next door, a bed and a wheel chair as Julia could not get down to do it herself. Both were pleased with their purchases.


Angela called in, she is on her way to York for a few days.

Pain in stomach low down, and very bloated feels like cystitis hope not. Not good, late night and early morning, hot cold dizzy. I know now I was right thinking it was cystitis.


Tried to get an appointment at the doctors could not even get through to them. When I first called they were not even open then 30 seconds later 15 people on the line and I was cut off. I tried 8 times each the same. Not good enough, by the time you can get through all the appointments have gone. Try ringing up at 1pm they say, to go through it all again. Went to the chemists and got some thing from them, hope it helps
My friend Bev is here she brought flowers and cakes. I told her about my cystitis. She is one of the ones who kindly took us up in the plane. Thank you very much Bev and of course Dave as we would not get far with out him being the Pilot.


Paul away for the weekend not back till Sunday, so just me and Andrew and of course Pup.

Angela called in on her way back from work. She came back yesterday from York.


Mothers Day

Andrew wished me Happy Mothers day. Summer gave me a high five well more than one. Lindsay and family came round later with a card. Wayne sent me a Baby Shark CD---- At Christmas he kept annoying me by singing it or playing it on his phone. I am going to play it non stop when he next comes here. No joking aside it was very nice of him. Thank you Wayne. I will play it but perhaps not all the time. He did send us another Cd for Paul and I as its our 44th wedding Anniversary. The CD is from the year Wayne was born 1979. This will have a lot of songs that I will remember well.
 From from 1979 to today, I have listened to Radio 1 most days, even when in hospital.

Hope things are going well for you all- if not as well as can be. I am just glad I am having my knee operation next month. Hopefully things will go right and I will be soon be back to my normal state of mind, which is far from most peoples normal mind state. I know the recovery will take more than a few days, more like weeks. That is going to be the hard bit for me.

All the best to you all Love Gill.


February 1st

Cold start to the day.There has bean a bit of snow, a very bright fresh start. Summer loved running around chasing her ball. Quite clean today as well as ground hard so no mucky Pup.

Age UK not busy to start with, then it's like they had all decided to come in all at the same time.
A few moany ones today saying the soup bowls should be fuller-- its a standard ladle used for years. The soup is only £1-50 including bread and they still moan. At least most of them appreciate us.

Wayne said his cat Timmy has DIABETES-- as mentioned in the last blog and he has to give him injections twice a day. Poor Timmy hope he responses to his treatment. Wayne has changed his biscuits and thinks they are more suited to his condition. He thought it would be hard work to inject him after the first injection not going too well, but the next day he even jumped up on the table ready for his treatment. I think he felt better after the first one so he wanted more. I hope this sorts him out and he will back to his usual Timmy self.


More snow has fallen- Summer had a great time rolling around it snowed for around half an hour so quite a covering.

 On the common Summer paying with her ball.
 Started snowing fast.
 The road had bean cover on the way back.
Pleased I am not a duck.

 By dinner all the snow had gone after the lovely sunshine

Paul has taken Andrew to Wayne's for the weekend I think they both will enjoy this.


On the common, there were runners doing circuits this always makes me feel very sad, and  I want to join them. Every time I get close to going back to running, something happens like my knee. Hopefully after its sorted I will be able to run again if the RSD behaves..

Ben's family have given me his DAB radio- this was very personal to him so I am very pleased to have it. I can remember Ben every time its on.


Hospital today to do the preoperative tests and questions. Early start as appointment is 8.30am. Up at 4.30am not bean in bed long probably two hours max. Around a two hour trip to get there.
All went well I am fit and well apart from the RSD really. Now just wait for the date to come in the post, hopefully this will not be long.

Took Summer out when I got back as it was too early, dark and raining fast to take her before we went this morning. She found a very muddy puddle and took great delight running through it. One white dog going on to the common, one very muddy brown dog coming back.

Paul picked Andrew up from Wayne's both had a good time. Paul was tired when they got back, he had done a few miles today.

An appointment at the Doctors I need to see them about my OSTEOPOROSIS check. My  appointment was for the Doctors near us then changed to the other Doctors further way- then  a phone call early this morning said it had bean changed back again.

Going to see my friend Joy today not bean to her house in ages. A nice chat and catch up with her.
Left there to make my way to the Doctors. She said (not my usual Doctor) I need a DEXTER SCAN as its bean two years since I stopped taking the ALENDRONIC ACID, so a check up is needed I will get an appointment in the post soon.

Weird pain behind my eyes and in my ears but not really earache. Did not go off at all still there when I went to bed,

All three of Lindsay's young uns are ill and off school, sickness bug she thinks, get better soon all of you.


Not a good night still head pain also now in my face and  neck I think its the NEURALGIA playing up.

Andrew has some job news at last he has bean taken on a vape/cannabis oil shop. He went two weeks ago and did a few hours. He did not think he had got a job there as they did not contact him. His mobile number was written down wrong some how. He contacted them and got the job. Well done Andrew hope this will be a start of better things.


Head and face pain just about gone now.

Andrew started work today only a few hours but hopefully more to come.

Lindsay is at City Hospital Nottingham today having pain blocks, last time was not a great success so hopefully this time will  be better.

Made my friend John a cake I did not think it turned out as good as some others I have made. I'm sure John will like it though. Took his card and present after tea- Andrew and Summer came too for a walk. Summer was very tired later as its a good walk for her to John's and she had bean out earlier this morning.

We had a lovely Indian take away for tea. Indian is not the best choice for me but this time it was very tasty and I enjoyed it. No IBS problems either.


Quite windy today and cold too.

Age UK, not run off our feet but very steady all morning. Jenny not feeling the best today.

Called into Andrew's work place on the way past we walked back home together. He had a good day again.

Feeling quite tired later bean quite a busy week. A few extra miles walking and car travelling.


Phoned Lindsay up she is in not as much pain this time. Over the next few day time will tell if the pain blocks have worked better.

Finished off the dog puzzle  I started ages ago, this one has bean very hard even harder I think than the double sided ones and sweet ones, I did last year.


Good walk on the common. Summer had her new scarf on and my friend said she looked cute. The scarf was not a success as dropped down and got wet and muddy.

My friend Lyn came to see me and brought me a present and card as its my Birthday on the 13th.We do not see as much of each other as we used to, so it was nice to catch up.

When she had gone I gave Summer a bath as she was very mucky-- afterwards she gleamed and was very white. She quite likes having a bath so its quite easy. The hard bit is lifting her out as ours bath is a deep one.
Summer after her bath, with new scarf-- so cute as Jamie-Lee would say.


Woke to very cold legs and spasms and pain not nice.

Angela came and brought me a present and card for tomorrow. She did not stay long because I had a B12 injection booked. I forgot yesterday so when I went in today I apologised. They said it was strange, as I never miss an appointment. I did ring up yesterday and said I had forgot-- OK they said and booked it for today. A student Nurse injected me and very well too. This injection hurts who ever does it sometimes more than others.


Happy Birthday to me 64 today.

Most of the day on my own with Pup. Paul out for his dinner and Andrew at work.

Lindsay and family came round for tea a Chinese for nine of us around the table, well Lindsay sat on the chair. Very nice it was too. I really enjoyed it all.  Really good to have some one round.

Tommy-Lee Jamie-Lee me and Jay-Jay.

Flowers, presents and cards I received.

A lovely sunny quite warm day on the common with Summer Pup. Running after her ball and playing. The common is quite wet this morning so she came back mucky.

Rung up everyone to thank them for cards and presents.


Age UK on my my own as Jenny is not well. Polly helped me out on the counter. We were busy too, so good to have her with me.

Gary the caretakers last day so he was pleased that people made a fuss of him he starts a new job on Monday. All the best to you Gary I will miss you. Age UK have not started any interviews yet so we are going to without a caretaker for a while. How that will work out I am not sure but it can not be good.

Popped in to Andrews shop where he is working and said hello to him and his work mate, looks like a very nice place. Good to see him back at work and doing something he enjoys.


Cleaning up down stairs Paul started in the front room and I in the bathroom and we met in the middle. Cooked tea watched a bit of late TV. Also watched Star Treks Discovery with Andrew, a good episode.

After Andrew went to bed I watched a program about assisted dying, very interesting and very sad at the same time.
Louis Theroux did all the interviewing it was a very good insight in to people that have had enough of the pain and suffering. Sounds a lot like us RSD suffers-- well sort of. Their lives will not be very long and they will suffer so much at the end. So going out without this is easier for them and their loved ones dying with dignity as one of them put it..
Not legal in this country. Some of the people were desperate and suffering a lot- some just had weeks/months to live and would die in a lot of pain.


Lindsay here with  Jamie-Lee. Jay-Jay and his girlfriend joined us later. Tommy-Lee out with his mates. Lindsay did us all bacon butties. Very nice-- ages since I had one.

Lindsay is not doing too bad after her pain block injection on the 17th.

Jamie and I played with the Barbie dolls so she was happy. Jay-Jay moaned quite a lot but he is at that age 14 nearly 15. He has got himself a nice girlfriend this time, one that tends to calm him down when he needs it.


Soon after I got up the phone rang, around 9.30pm,  Kingsmill Hospital here, we have a cancellation. We can fit you in today for your knee operation--- can you get here for 12-00pm. I said could it be later ? No. We have at least an hour and half travel as its in Sutton in Ashfield near Nottingham. Could I ring you back in 5 minutes-- Yes but no longer as we need to fill the place. Paul was at the hospital volunteering I tried to get hold of him but no luck. I rung the consultant back and told him. I asked how near I was at the top on the list he said in the top quarter, but things can change with cancellations or a emergency's. I thanked him and hoped to hear from him very soon. I hope it is soon as my knee is worse than it was-- very tight much more pain, and very cold foot and leg. I know my RSD side has bean weird for a while but this did not affect my left side as much. I think the RSD is playing it up a lot and causing a lot of problems. Hopefully this will not flair up after the operation.


I was going to Pilate's today but got a message from Jo saying its not on for the next two weeks. She is not too well. All the best Jo and get well soon.

Well ironing it is then- over two hours worth as I got some new sheets and as they are cotton I iron them. A warm day as well. The weather has bean very good the last few days and Spring like as well.


Cleaning the bedrooms today well three of them Andrew does his own. I had to keep sitting down as knee keeps locking up.

Another warm day, people I saw out walking had shorts and vests on. Not warm enough I don't think for that-- me anyway-- but get ahead on the tan.

Summer and I like the warmer weather as well as she can have her ball more times on the common without getting so wet and mucky. Not that muck bothers her too much that's my job to get her clean.


Well Age UK again, it soon comes round. When I got there is was not too busy but that soon changed.
Only two in the kitchen and two waitresses. Jenny and I on the counter. Plus Vera and John !! not that they do too much anyway. John goes to walking football soon after he gets here. Vera just seems to disappear all the time. She is in her eighties so I suppose she does well.

We even have a new Caretaker-- as Gary left last week I was surprised as things do not move very fast here regarding the Staff replacements. He is very nice too, a lot like Gary.


Quite a bit colder today but the sun came out later. Doing this blog and puzzle later, the Candy Crush one, hard one again but it will not beat me.

Andrews at work a full week for him as he has worked everyday, so I am so pleased for him.
I am having it easy today as out tomorrow.


Today Paul and I are flying-- yes literally, going up in a four by four plane part owned by my friends Dave and Bev from Beeston .
The day started off quite foggy but that soon cleared and became a warm sunny day.
We set off for Tollerton Airport for the flight to meet Dave and Bev there. Sunshine till we just got past Newark, then blanket fog and bit of sun here and there. We arrived at the Airport to find it was in a thick covering of fog. We met up with Dave and Bev and waited till it started to clear as it had in Lincoln. Bev said a few miles away it was clear and sunny. The fog started to clear so Dave and Paul started to do the fight checks. The sun came out but quickly hid again. No flight today. Disappointing yes, but we can come again.

 Dave did take some pictures of plane and Paul and I.


 Taken through front screen so not too good.

 The plane-- You can see the fog.
We had a cup of tea with them the cafe had closed but we always take a flask with us so we shared that. We said our good byes and headed off home. Still foggy till just before Newark again then bright sunshine. Bean sunny in Lincoln all day.


A frosty start but again soon warmed up and was another nice day. Washing and a bit of sewing and tidied up the green house.

Finally rang up my hairdresser to book an appointment for my hair to be cut. I am getting fed up with it being longer it grows so fast a bit like my nails. RSD makes your nails grow faster.

Going to Asda Living to get a new toaster as ours does not toast very well now, so its not much good.
Found one but out of stock for,  in soon we were told. Got a new nozzle for the hose pipe so not a wasted journey.

Heard later on the Radio that this day has bean the hottest day on record for February. 21C -70 F.


Finally got my latest puzzle Candy crush done   I thought this would be easier after my last dog one. BUT no it was very hard.

Paul came home with the new toaster he tried it and it was good, toasted the whole piece of bread in one, no turning it round.

Found out today from some very nice work men that the garage that shut down near us a while ago, is going to be another garage.We have bean a bit worried-- as stories were going round that the ground was going to be turned into flats. As our garden backs on to it we were more than a bit pleased. Hope the information was right. I think it will be but, till things happen no one can be sure.


A very warm start to the day no cool wind either warmer than previous days-- could it be than the 25th.

Summer had fun on the common till a very excited spaniel pinched her ball. He dropped it and she got it back but she was a bit worried and panicked as her ball is very special to her. Only one thing is worse, not getting her tea.

Doing a bit of tiding up in the garden. Watched A Star is Born with Bradley Cooper and Lady Gaga.
Wayne got me the DVD for my Birthday. Very good but sad too.

I was sat talking to some one the other day. They said having RSD is not too bad is it.!!??  You can still do most things and have not really lost anything.
NO NOT A LOT--Just my job, my running, most of my friends, my social life, plus many others. They have minor problems at the moment and think they are worse off. Theirs can be easily put right

Anyway all the best to you all Love Gill.


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