July.

July 1st

Lindsay, Tracy, and Jamie-Lee came round. Jamie-Lee was very brave as she had a blood test and did not cry. I told her she was very brave and next time to watch the blood going up the tube. She said she might.

My new iron came today and I used it on the bedding a lot better than my old one and soon got through it all. Still ironing with my left hand but, this makes my right shoulder and right hand hurt a lot. Anyway all done and put away.

2nd

Tided up the tomatoes and cucumbers they are not doing too bad. I have had better crops but the weather has bean so variable so that does not help. The greenhouse one day over a hundred F the next barely 60 F.

Walked to get the rest of my tablets which they did not have last time. Again they are not, there's no prescription from the Doctors according to them. So went round to Doctors to see what and why. They now have a doorbell system since CORONAVIRUS, that you press and wait, and wait, and wait, 3 times I pressed it, and no one came. A young lad went to the window and banged on it, as by now we had bean there a while. They said they never heard the bell!!  The prescription will be ready in 2 days and sent as usual to the chemist.

Angela came round she is doing well, we both enjoy our chats together.

3rd

Cleaning up downstairs today. Quite a lot of pain hopefully moving around a bit will help me. I have taken a lot of extra tablets as well so getting working. 
The park is open at last and a little boy was so excited to be able to use the slide again. A lot of the bigger children have bean going over the fence. Good that things have started to go back to normal again- whatever that is. I have said be for on this Blog that the VIRUS did not really change my life much at all.

6th

Got Jamie-Lee again for tea and after for a while, as usual, she was starving and when it was tea- clean plate from her again. We played games this time, Guess who- and Kerplunk. Both of us had a good time, and Lindsay was early back so that was good.

7th

Had a day in the garden just weeding a bit and deadheading the flowers. Just took my time and got it all done. I would sooner be outside than inside any day.

I had a letter from the Physio that treated my wrist and arm to see if I wanted to a telephone appointment. I do of course and got in touch with them.

8th

B12 injection done this hurt quite a bit. I told the Nurse about my arm, as she always asks how things are going. We spoke about Physio there instead and I need to speak to someone next Monday 13th, to see what can be done there. This if possible, would be better than going to the hospital around 2 miles away. The Doctors is around half a mile away.

9th

Put on my running shoes as I thought they are doing no good just sat there. I usually only wear them for running. Will I ever wear them for running again?? Sad time remembering the good running days,

Wore them to go into town I had forgotten how nice they are to have on. My feet like they were on pillows.

Lindsay my daughters Birthday is on Sunday and I wanted to get her a few things. Still big queues at Primark, I was going in there but was not going to wait, as could be quite a while. Got a few bits for her already though and am going to Asda Home tomorrow to see what they have.

10th

On the common today, I gave the horses some apples I tried to share them out but one horse was very persistent and he got more than any of them. Got a bit scary with big horses surrounding me but all apples gone now and not wasted. Summer was waiting further back as she does not like the horses at all. She was very good and just sat waiting and looking to see when I was coming back. We played ball and then went home she was happy.

11th

Watched an Elton John concert on YouTube, live from Australia well it was in 1986. Very good, from his dress up and big wig days. After I watched Joseph (Joseph and the Amazing Technicolor Dreamcoat), this also was good.

12th

Lindsay, Tommy, and Jamie-Lee came round for tea as its Lindsay birthday today. We all had Chinese good it was too- everyone enjoyed it.

Lindsay liked everything we got her Jamie-Lee helped her unwrap them. I think she was nearly as excited as if was her Birthday.

13th

Had a word with my Nurse Practitioner about my shoulder, she thinks it may be FROZEN SHOULDER. I am not so sure, she has not seen me but by what I said to her. She promised to send me some exercises by email by the end of the day.

I am waiting for a call from my Physio so I can get his view. This will be a video call so he can see me. No exercises came through from the Nurse.

16th

Met my friend Joy in town and we sat outside a little cafe having a drink. Good to see her, last time was early February. A good chat was needed but not too long as others wanted the seats. Soon hopefully things will be better and all will be back to normal.

Got a few bits of shopping, A lot of the shops are only open for a limited time. One lady I spoke to said it was like this in the war.

17th

A good video call with Vinnie my Physio, the same one that has bean treating me for my wrist so he last saw me in March. This was when my arm started to hurt and go strange. He does not entirely agree with the diagnosis of frozen shoulder, more the rota cuff but possibly both.

He send me some exercises to do- yes these arrived, unlike the Nurses ones. Some I can do but others no way but I will keep trying. Talk to him again in 6 weeks.

Shopping with Andrew at Morrissons Paul took us and waited in the car as he said it would be too much for him to go round. Anyway not knowing the store at all-- we could not find things so a lot of asking the staff. Some of the freezers had packed up so no fish stuff, or much of an ice lolly section. Mostly Paul who eats these anyway, and we have got some. All done what we could- ended up with 2 trolleys full. Over £140 worth.

Hardly through the door and Emmie came round with her Dad Squidgy, to see if Summer could play.!!!
I said come back in 20 minutes as I need a sit down as very heavy and warm today around 24-25 C.

She came back and we played in the garden with Summer. She asked when she could take Summer for a walk. I said now, if you want. so we set off but it was very warm and she struggled a bit, as she does not walk much as both parents drive most places. She is very thin though and Andrew always says a strong wind would blow her away. Not back long and Squidgy came to get her as they were having a Chinese for tea. I think she would be very tired and hungry too.  

18th

Got Jamie-Lee all day today as Lindsay is having some injections in her neck for her headache problem. Hope all goes well as these are not nice. I had pain blocks early on in RSD- but they did little for the pain or anything just I think made things worse so in the end stopped them.

Lindsay injections she said were better than usual but still very painful. They did them a bit lower in her neck and used a scan this time, not used to be for. A different hospital, different way, some new treatment coming up for her soon.

We took all the dead roses off the bushes, also next doors. Mostly Jamie-Lee did this with the secateurs.
She enjoys gardening very much and being outside. She is very active and bikes and walks most places as Lindsay does not drive.

 She tried to teach me Minecraft a game she plays but I could not do it. Touch screen not good for my fingers as they do not know what they are doing-- neither do I most of the time either.

Jamie-Lee enjoyed her time here and was picked up around 5pm, 7 hours after she arrived. Then she did not want to go.

I had finished her cardigan so she took that and said it was beautiful and loved it.  No picture but the same as Emmie's one I made in May for her Birthday.

Pain on weeing later blood too, so not good took some powders from the chemist as I did be for but not a lot better this time, a lot more painful Another phone call to the Doctors Monday for ANTIBIOTICS.

19th

Trying to keep busy despite the pain and frequent trips to the toilet. Watered the greenhouse and potted a few plants, gave 2 away. A lot of washing done and dried.

Started doing the exercises more and hopefully, they will get easier with time but still difficult.

20th

Got the ANTIBIOTICS I needed so that's good hopefully they will help. I need to take in a wee sample next week as this is the third time this year I have had this. Not feeling the best so not doing much, very hot and ache a lot. I think the RSD is playing me up. GO AWAY I HAVE ENOUGH TO COPE WITH.

21st

When Lindsay phoned up to see how we all were and said she was coming round. I thought no- I had not told her I had an infection. I had a one-sided terrible headache and hurt all over.

Angela also came round before  Lindsay got here. She did say she would go but I said it's alright as a chat would be nice. Just as she was going Lindsay arrived with Jamie-Lee. She took one look at me and said what's wrong then told me off for not letting her know. I said you were not good after your injections so that's why I did not tell you.

Just sat in my chair but then had to go and lay down as got very dizzy- Lindsay helped me upstairs.
 I think I had a sleep but not sure as not really with it at all.

Lindsay and Jamie-Lee brought me a drink up and helped me sit up as I was all over the place.
She said I kept saying there was something in my tea. I can not remember this at all. Straight away she knew something was not right.  

She was correct I had a seizure, not a big one, and only one. Jamie-Lee was sat next to me on the bed and it scared her a lot. I think maybe the headache over the one eye was a warning. One to watch out for I think.

22nd

I slept quite a lot overnight very weird one a lot of the time felt very far away and not really with it.

Lindsay came round again to check up on me. Paul was out for his dinner and I was not safe to be on my own after the seizure. She said looked a bit better as yesterday looked terrible. I think she was surprised I did not have more seizures.

She is not too good her self but better than past times after the injections. 

Andrew played Guess who, with Jamie-Lee she was pleased as she loves Uncle Andrew a lot.

I just rested and hoped this headache would soon go. Went about 4pm.

23rd

More with it today but still hurt all over. I took Summer for a walk on the common hoping it would help loosen up everything, Andrew took her yesterday. My head pain went around 4pm.

25th

Finished off Jamie-Lee's bolero cardigan, This gave me a few problems and had to pull down a lot. With 142 stitches on each row around the collar that's a lot of work. This took 2 hours to sew up as well and I had to it in stages.
All done.


Strange later I kept seeing things that were not there, a tree branch on my chair, a person stood near me, and flashes of someone walking past me. Very strange. I was not asleep either as I walked into the kitchen and bathroom. I think this is from the seizure I had. 


26th

My friend Jenny's birthday: Happy Birthday Jenny hope you had a good day!

Started another little jacket set (hat gloves and jacket) for a friend, whose partner is having a baby in September. This pattern I have done lots of times and is a favorite. Working in Aran wool, so took a bit of getting used to as been working in double knit. I am doing the hat first to get used to the wool.

Taken last ANTIBIOTIC so time will tell if the infection has gone. 

28th  

The first time this year I have peeled potatoes and carrots. This took longer, but I did it; my wrist is improving and getting stronger. Forearm and shoulder still not good but with the new exercises I got from the Physio I think in time, things will improve.

29th

As a lot of you know I am a Radio 1 listener right from day one when radio 1first started. Well, they do challenges and other strange things; especially if Greg James has anything to do with it. This was a suggestion from Steve one of the listeners.  Too good for Greg to refuse. 

This time was to get all the countries in the world to tell Coronavirus to get lost (go away etc) their way and in their native language. 193 counties and it went right up to the deadline at 10am but they did it. Well done Greg and Radio 1. 

30th

My oldest sons Birthday today Happy Birthday Wayne hope you have a good day. 

Cleaning upstairs today. Quite warm for this but I got everything done. Soon after Lindsay phoned up and asked if I would have Jamie-Lee for tea and a bit after, course I would.

Today we had a big pilates ball to pump up then balance on. Jamie-Lee did quite well. 
Lindsay got me this when my balance was bad and it helped quite a bit.

After tea, we went to the park which is just across the road. Nice and cool now so it was very pleasant sitting on the grass. I had a swing and a go on the horse. Jamie just about went on everything. There were not too many people there as I did say if there was a lot, we would go on the common instead. 

When we got back Lindsay was already here to pick her up. She said she had a good time here. 


31st

Going to be hot- hot- hot. 33c at 4pm and rising. The wind is very warm too more like abroad than UK The greenhouse was around 110c I put the shade on to protect the cucumbers and tomatoes as they were wilting a bit. 

Nice on the common still quite cool.  



Well, again a bit mixed month again. Another seizure out the blue. Jamie-Lee was Ok with it when she saw I was better now. Having to wear masks in shops- not bean in one yet so not affected me. 

Hope things are going well with you all.
 Love Gill.

 


16 YEARS TODAY-- 13th July.

13th July

'16 YEARS TODAY'

16 years today since all this started from just a fall. Bang: RSD settles in.

Someone said to me once if you are going through HELL just keep going. I think this has helped me a lot and I kept going. At times this has bean very painful and near impossible. The seizures have added to the stress my body has to endure, plus the knee operation as this did not go to plan. I had about recovered fully from that then after another fall; a broken wrist. Still removing from that and things are still not quite right yet.

RSD takes away a lot of my life but I fight back. I mostly can still walk well but not without pain.  The common Summer and I go on, just about every day keeps me going. I know without that I think my life would be a lot different. Of course, Summer is the best thing ever for me. She understands when I feel bad, and gives me love and cuddles.

I was told that in time I would be in a wheelchair, most if not all the time. This really scared me as an active person that is the last thing on your mind. I think I could understand it more if this pain and everything was caused by a bad accident and not just a fall.

RSD can not be seen like a plastered limb, so it's hard for people to understand the pain. WHY one day I can do things and not another?  WHY extreme pain one day and less the next.?????   RSD, that what.

I do not think there will be a cure any time soon for the UK. In America, some go through the KETAMIN COMA, but this can be fatal. My RSD friend in Florida had it and suffered a heart attack. She was around 22, she recovered, but it did not improve her RSD. A few years later she had a second go. Do not know what happened as she stopped her RSD Blog. She's still on Facebook but does not talk about her RSD. This KETAMIN thing is something I would never have.

My very first Physio way back in 2004 said to me this-- USE IT OR LOSE IT- meaning if you do not move your limbs despite the pain your brain will forget how to move them. This was good advice for me and I think spurred me on.

Well, this is me again wishing you all the best and just keep going. Love Gill.

July Blog at end of the month.


June (1)

June 1st

Another warm day- planting some peppers that we have bean given, also some sunflower seeds that Andy from across the road gave me. Rain is on its way soon so it will be a good start for them.

All washing done and dried. Cleaned the bathroom and the kitchen.

2nd

Paul did the ironing so that was good, thank you, Paul.

On our walk today we saw the swans with 7 babies. One of the babies or signets, as they are called, went into the water and got in trouble from his Mum or Dad. He soon went back to the bank with the rest of the family.







The little white cat who is called Snowy, tried to get in through the dining room window- cheeky little thing. Andrew and I had to shut the door as he was determined to get in. He is a very friendly little cat and now goes in the shed for naps while Andrew is having a smoke.









4th

Helping Paul sort out the big cupboard we have opposite the back door. This holds everything from Summer's food to toiletries and all the household pots and pans plus more.

Lindsay phoned up, she has hurt her back and the Doctor has put her on DIAZEPAM. Rang her later and she said it had helped.

The weather has now turned a lot colder down from 23-24C to 10-12C or lower.

Later on, Summer had bean out for a wee and stood at the door to be let in, stood behind her was Snowy who also wanted to be let in. We are going to be careful or he will sneak in.

5th

Rang the Hospital about my appointment Monday for my wrist. After a lot of questions, they agreed to see me. This I was pleased about as my wrist, fingers, and arm are still not right. 

Bean knitting a small rabbit as a present for a little girl. I made one of these ages ago for the Hospital as a comfort toy.






8th

The appointment went quite well, The Doctor showed me the X-ray from when my wrist was first broke 1st January. The bones were different from each X-ray and even I could tell they were healing now. Still not quite right yet, he said but on the right track. The nerves are not as good still quite a way to go be for they are right. He said because the bones are doing good I do not have to see him again.

 In around 1-2 months' time and if no better- I need to go back to my own Doctor and might have to have a small procedure called a decompression, on my wrist to loosen off the tightness of the nerves. This he thinks if necessary, be done under local anesthetic, hopefully  I will not need it. I am trying to use my hand more- but that's not easy when it goes into spasm at the slightest touch.

10th

Pulled my first radish today, also the sunflowers are coming up. Both these were from Andy across the road.

A lot of pain today around my right shoulder and neck, very tight. Fingers are also very stiff.

11th

Did the ironing still left-handed as the right hand will not take the weight of the iron and hurts too much anyway.

My granddaughter Jamie-Lee was here and had tea with us, she was good as usual.

Fed the greenhouse tomatoes and cucumbers both are doing well. Apart from one cucumber that has died no idea why, it just did.  Any way still 2 left and they are looking good. Weird because Andys cucumber died too but Lindsay is doing really well.


Finished off the bigger Ted for Ness, 2 doors away- she is a Nurse at Lincoln hospital.




Also a look-alike Summer as a Pup, for Izzy who loves Summer so much.




 




13th

Repotted my 2 orchids as were not looking very happy. Hopefully now will do better.

In the garden, most of the day tiding up roses and a bit of weeding moving a few bits around.

Very heavy feel to the air today- storm headache. Later on, it did feel fresher but get the storms we were told to expect.

15th

Tomatoes are on their second tieing up so getting big- 2 lots of flowers on them so soon little tomatoes will be forming. Cucumbers also flowering too. The 2 that are left are doing very well.

Rung up Maxine the lady that cuts Summers hair, for an appointment. She will ring back as shopping at the time. Trouble was the landline decided to play up and she could not get through and had no other number We could ring out but no incoming calls were able to get through.
Summer looks more like a sheep so bad;y needs a cut. An appointment was made for next week, when we realized what was happening with the phone.

Later Summer was sick and not her usual self at all. Probably picked up something off the common. She is always finding something to eat that is not good for her.


19th

In town today a few more shops open a big queue for Primark- not a place I needed to go in so I was quite pleased.

Later night time I was looking after Emmie the first time this year. She is usually easy to look after and her Dad is never very late. We came back here as she wanted to see Summer. At one point she was scared of her but not now.

20th

Phone now mended man, came today while I was out with Summer, so that's good.

Summer her usual self now so I am pleased hard to see her looking so unhappy.

Poor little Jamie-Lee has had an accident she had gone into an iron railing cracking her jaw and badly bruising her face and chin. Lindsay (her Mum) took her to A and E and after X-Ray, she was able to go home- in pain but better than Lindsay thought she would be. She even asked for food soon after coming out of the Hospital. Brave little girl, hopefully, she will not hurt too much tomorrow.

21st

Happy Birthday, Andrew. This was a Birthday he so nearly did not make after he was attacked last December.

We got Andrew some computer stuff consisting of a case and a water cooling setup for the computer. The inside of the case lights up in different sequences- very nice. Not just for looks though- as his room is up in the roof, and can get very hot, so this sort of cooling system can cope a lot better to cool things down. Other presents from Wayne were natural shower stuff- Lindsay and family were beer and tobacco.

Father's Day- as well so Lindsay round to see Paul. He got presents of Rum, beer, cheese, and a pork pie, very happy he was too. Indian meal later on for Andrew, Paul, and I. Very good it was too, a different place to what we usually one we have not tried before.

22nd

Hair cut for Summer- she was so relaxed that she was nearly falling asleep after ten minutes so Maxine had to hold her up. After around an hour, she was done, looking more like a little lamb now and so cotton wool soft and white. She hopefully will be a lot cooler, just in time too as hot weather is returning again.

23rd

Another hot day but very heavy. I have a storm headache. Quite a bit of all over pain too.

Doing more tieing up in the greenhouse and weeding. Trying to just keep going- is better than sitting for me, if though I am exhausted most of the time.

Jamie-Lee and Linday here for a while played with the cooking stuff upstairs. The swelling has gone down on her face so not too bad,  just a bruise under her chin. Lindsay said the swelling had gone a lot.



Making Jamie-Lee a cardigan to replace the other one that Emmie had. This one is a bit paler pink all was going well, then I made a mistake, trouble was I did not see it for a few rows so had to pull it down and start from there again. I got it all right in the end and now going good.

Ironed all the bedding with left hand again as right still not able to hold things that are a bit heavy like the iron. Soon getting a new iron as this one spitting out  scale, it is quite old and used a lot.


24th

Just general cleaning up today, very hot temperature 29-30c did not really cool down at night either.

Put some CDs on a memory stick for Angela for her car.

25th

Had Jamie-Lee later, staying for tea as well. We played with the cooking set again and made pretend meals. Jamie-Lee made a great big trayful for Andrew no meat or fish of course she said because he is a vegetarian.

28th

Bit cooler today no storms as yet- some rain though.

Paul has got a bug/virus or something and has bean in bed last 2 days.

I cleaned the computer room so everywhere clean and tidy now.

Bit more knitting Jamie-Lees cardigan- usually with Summer close by.

Sat watching TV later and looked down and saw Summer laid next to my chair, only it was not her as she was further away- it was Snowey the cat, how long he had bean there I do not know. He gave a big yawn and walked off. He must have walked straight past Summer while she was asleep. Cheeky little thing.

Oh well, another strange month because of the VIRUS- but trying to make the best of it the same as everyone else.

Hand is a bit better- but no strength or power in it, fingers very tight. Shoulder is the worse though and at times very painful, with shooting pains from my fingers up to the shoulder and in reverse as well. My shoulder creaks and cracks if I try to lift it up and out. Still feels very tight and stiff too.  Going to see the Doctor soon that's if I can get to see him. So many questions to start with then often a phone call appointment which is not the same as he can not see what is happening to the arm and shoulder.


Summer is a lot better at night now, and at times stays in the dining room to sleep instead of the front room.

All the very best to everyone and see you next time Love Gill.



Picture of Summer and Snowy eying each other up at night time.

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