June. 1st

Pilate's was painful everytime I put my arms up, pain and spasms shot across my shoulders. Legs not too bad apart from my knees. I did what I could.

I went to see Angela in the afternoon. She is better now and waiting to start a new job hopefully very soon.

I am feeling very tired, well exhausted, Pain spasms lack of sleep all lead to a poor life.
I think I need my B12 more frequent  than I do now, three months apart. I need to see the Doctor about it. Also may be upping some of my tables or adding some to help this pain thing I am going through.


Age UK again, Not too busy today. Nills said it has bean dead all week. I know the work is sometimes a bit much for me but I do enjoy it. I would not go if I did not. Angela is not going there anymore but I will see her at other times.


My Daughter Lindsay is doing as well as she can be. Still bad heads and being sick a lot of the time.
She is having another scan on the 17th of this month. Hopefully by then they should know what to do. I hope so, as its very worrying. She is like me, feels caged if held down by illness or accidents.

A day for me of cleaning upstairs and washing, nothing exciting. Knitting later, a hoodie for Jamie-Lee As I have finished the cardigan I was making her.

All finished.


A warm sunny day, I think Summer has arrived. Sorted out the greenhouse and the herb garden. A general tidy up as well. I still feel very drained and I am taking way more tablets than I should.


Not a good day. I feel very bloated no doubt because of the extra tablets I have bean taking or IBS. Out in the garden a bit, also cleaning up downstairs. A lot of pain and bad spasms and burning. Usually the pain gets a bit better in the Summer or it has in previous years. See if I can get in the Doctors tomorrow after Pilate's.


Pilate's painful again. At least I have less pain today or at least not as sharp. I called in at the Doctors and I can not get in till  Monday, then its some one I have not seen before. How are they going to know about my RSD, they are not. They have taken on too many new patients mostly foreign ones. So there are never any appointments. The receptionists say ring up knowing full well there are no appointments to have. Very frustrating, then there is the chemists as well, not able to get tablets that day, I have bean on for a long time, years..... Sometimes I think it might be worth changing Doctors and chemists, or are they all the same?


Physio I saw the Tutor- Jason , Nassen and Brinny (students), Three needles in left shoulder and six in right shoulder.  After a massage by Nassen. this was quite gentle. Very cold going home even though it was a warm day. My finger next to the little one went very white and painful. Not sure if this was from the massage or RAYNARDS. Fair bit of pain later in my shoulders.


Age UK lots of people here today very busy. Rained coming home and I bought an umbrella from pound shop, kept me dry, I think if it had bean windy it would have broke.

Tonight it's Elton John, I am really looking forward to seeing him. I have never bean to a concert before. I just hope my body will cope with the noise and vibrations. I hope the rain will stop too, as the concert is outside.

The night is great yes I did suffer but it was so worth it seeing Elton after liking him for so many years. He is sixty eight and still sounds great.

I have put the concert is on a separate blog already published.


Early hours of the morning I had a seizure, while in bed this woke me up and after a while Paul woke up. This lasted about two to three minutes. After I had severe muscles spasms in my legs and arms. These were worse on the RSD side. I took two BECLOFEN this seemed to help a bit. About an hour later I went to sleep. A seizure for me is exhausting. This I think was caused by the concert, But I would still do it again.

Not feeling too bad pain around the eyes, not sure whats that's all about. I feel very drained but that's normal for me.

Tommy-Lee is staying here tonight so that will be nice for me. Tommy-Lee is a great talker and will go on for a long time.


Saturday Nights Alright for Fighting". Awoke to a Black eye.

Paul said I had a black eye I thought he was joking till I looked in the mirror. My left eye is black and sore right eye is swollen but not as black.

 Paul thought I had had another fall or another seizure. I had neither. When I go to the Doctors tomorrow I will ask if this black eye is a result of the seizure as I think it is.

 Black eye from last nights seizure. I googled this, as I did not know this could happen after a seizure, it can.

 Tommy spent most of the day here and he said had a good time.


Fair night but I was awake a lot with spasms in my legs. My eye is quite black and hurts when touched.

We have got Jamie-Lee today after her Nursery School. We played all the time, outside and in. She enjoyed her time here and so did I.
 Having fun with the playdoe.

While I was at the Doctors-- She checked  my eyes and said the left pupil is a lot bigger than the right, apart from that the eyes look good, about a week for the swelling to go down. I know they are quite sore today. She said she thinks this because of the seizure as well..

 We discussed tablets and B12 injections the tablets are to stay the same. I wanted the OXYCONTIN to raised a bit, because of the extra tablets I seem to be taking. She said if after another month, and things are still as bad she will alter them. I don't really like taking any of them but without them I would not have a life. My B12 is to be every two months starting Wednesday. Hopefully this will help me to not feel as tired. I know a lot of it is lack of sleep, but about two months after the B12 injection I start to feel very weak and tired.


Pilates, this was good apart from the usual pain, quite a lot of spasms in my arms.

Just as I was getting ready to go for my B12 injection, the rain poured down. Sincil Bank, the way I go was flooded in places. the drains could not take the extra water. I did not get too wet though, sensibly I had an umbrella.
My injection really hurt this time, made my eyes water. Still raining hard on the way back. The B12   pain lasted the rest of the day. Hopefully it will be worth the pain.


Age UK was quite busy. Everyone asked about my black eye. A few funny comments as well, one man said did I get drunk and fall over, another said whats the other person look like. They were concerned too, or I think they were.

Bit of shopping then home. Tommy-Lee and Jamie-Lee are here for tea and stopping over night. Lindsay is having her big scan tonight.

Chinese for tea too they both enjoyed the meal. Jamie- Lee was good and settled to sleep quickly. I was able then to play a game with Tommy-Lee called Smaths this is like scrabble but with numbers. We enjoyed the game even Paul played a bit helping Tommy and me out. Like I said a good game. Tommy-Lee did not go to bed till about 11.30 hopefully he will sleep in tomorrow.


Jamie-Lee had a good sleep but seemed a bit moody. Tommy-Lee slept in till about 10am. He said he felt good and rested.

We are all going on the common with Summer, I asked Jamie to get her trainers on but said she wanted her canvas shoes on, the common is very wet and these would have bean ruined. She had a melt down and said I am not putting on my trainers. I said, not going then-- Tommy and I waited to see if she would change her mind but NO, No No she said. So Tommy and I went without her. Paul said she kicked up big time after we went getting her trainers on now. Too late Miss.

We came back and she still was mad with me but it was her choice. We walked down to the bridge which seemed to help.

Soon Lindsay and Ben were here for dinner. Sausage and chips all round home cooked of course, good too. Lindsay said the scan was awful and made her sick and a very bad head ache, it lasted about an hour.  After dinner Lindsay took Jamie-Lee home and Tommy and I went into town. We had a good couple of hours and he got some high top boots, a t shirt and shorts plus a hat and water bottle.
The hat is like Ben's so it made him laugh. Got Jamie-Lee 2 dresses as well.
I will go with Jay-Jay at a later date. A good day but not without the dreaded pain and extreme tiredness. A long day but at least we had a good time in town.


At Paul's parents today then on to my brother and family. Gary's birthday is tomorrow so we took him a card and present. They are all well and David is working hard, he is a Landscape Gardner. The weather has not bean the best for him though. Nice to see them all.

While there I got a high pitched sound in my ears, this lasted the rest of the day.
Steak for tea very tasty too. Knitting and reading rest of night.  Late phone call from Andrew he is here for a few days hopefully starting Thursday. This will be great as I miss him, with him being in Amsterdam, I know its not a million miles away, but its far enough. Saying that Wayne is nearly 2 hours away. This would not be too bad if the RSD did not play up when travelling. Lindsay is the only one near to me.

Still black eye, this is going down slowly though. Not as much pain around and in my eye.

                                                                  Black eye almost gone now


Happy Birthday to Andrew my youngest son.

Dentist today everything checked out OK. He took an X-ray of my teeth to see how they are doing deep inside the roots. Not really any concern there either, just a bit of white showing where it should not be. General wear and tear, he will check them again in six months.

Knees hurt today and shoulders as well along with the usual constant pain. Had a bit of a bad stomach with a lot of bloating too. Extra tablets don't help either.


Pilates went OK, quite a lot of shoulder pain. Made a cake for Andrews birthday as he is coming over for a few days taking in a few events here in the UK. This was not too bad but I have made better in the past this is by looks as not taste, we will soon see.


PHYSIO and ACCUE today I always look forward to this as it usually helps for a while.
Today same people as last time. Jason, Brinney, and Nassen.
I had 7 needles in right shoulder and 4 in my left. 2 in my back this is for INSOMNIA (well they can try.)  1 in each leg . These hopefully will help a bit with pain.. A massage by Nassen on my back and shoulders. Also a head one I have never had anything like this before. At times it felt like he was pulling my whole scalp off. Not really painful, but not pleasant, quite soothing in a weird way.


Sleep is not good at the moment, I know it never has bean for a long time. Just lately my body seems to think it can exist on about 3 hours a night, less sometimes, last night an hour and half. (So much for the needles for sleep) .I can get to sleep but not stay asleep for more than a few hours. People say I look tired and should get to bed earlier !!! If only it was that simple, unless you have had any trouble with INSOMNIA who have not got a clue what we go through. I have a friend who I have mentioned before, who gets ten hours a night and some nights twelve hours sleep. They say how do you cope, I DON'T KNOW.

Anyway its not going to go away I don't think so put up with it. On to Age UK. A steady day not with out it mishaps though. Calum was in charge as Nills was off for the day.

Things were pretty good till I filled up the filter coffee machine again. People asking for drinks and more people behind the centre than usual. I did the drinks and heard sizzling, I looked round and I had not put the jug under the brewing coffee. OH NO--- coffee everywhere. Lucky not much went on the electric plugs close by (too close by).  Everywhere else though, in between serving I was cleaning up the split coffee.  BUT it did- I soon learned, the over flowing coffee shut down all the electrics, the till, all the ovens, everything. Not the lights though. Not off long as they have a back up system in place.

Calum said he is pleased I only come in on a Friday, only joking he was, I think. We get on well. He said I am a walking danger. I got the sack twice and no wages this week?? Two minutes later he asked me for two teas, I said I thought I was sacked. The look on the customers face was a picture.   Apart from that---- the rest of the day went quite well. The usual accidents but nothing major. Quite a steady day.

Very tired and shaky at times. Lack of sleep can play tricks with your mind.


Andrew arrived in UK today, but not here till mid week as he has  an event in Peterborough. Paul picked him up from east Midlands Airport and took him there.

I have Tommy-Lee and Jamie-Lee for the day from 8-00am. Tommy is not well and Jamie is not right either both have bean off School. Tommy-Lee spent most of the day on the settee but picked up a bit in the afternoon.
We all watched Dumbo and Toy story after dinner, well me and Tommy-Lee did, Jamie went to sleep. She missed all Toy Story and half of Dumbo, Summer jumped up on the chair with her.

When Jamie woke she watched Dumbo, Tommy had a another sleep with Summer. Later Lindsay arrived to pick them up about 8-00pm I think, so a long day. My stomach is playing up as well. Could be IBS.


Spoke to Andrew the event is going well and he is being recognized by a lot of people.

I have got the three young ones again today but not for long. I have not seen Jay-Jay for a while so that will be nice for me and I am sure Summer will be pleased to see him.

Angela is also popping in for a while so a catch up on her week too.

I had the children again for a few hours. Tom is still not well neither is Jamie she was quite mardy today. At least I can pass them back to Lindsay, one of the joys of being a Nan.


Fair night got about three hours sleep. Andrew is here now for a few days and his belated birthday.  We were not sure what to get him, so I am taking him shopping while he is here.

Andrew with Summer before her haircut-- Scruff Pup


Summers hair cut-- she had got quite a heavy coat on her so must feel a lot better now. As usual she looks like a little lamb. She is so white, she has got a name from a few people on the common---
The Persil Dog.
She has not bean bathed yet so a bit mucky.

Jay-Jay had a bit of an accident on his bike and has a very swollen knee.  They are all here for tea a big Chinese. Very good it was too.

A lot of pain today mostly joints, with RSD being what it is, the pain can come and go all the time. Also the pain a lot of time is referred. Nerves are jumping  and burning like I am on a BBQ. I hate it with all my heart, its especially hard for me when I see younger people have it and how they suffer as well. The pain from HELL that's RSD.


Pilates, not too bad a session a lot of shoulder pain though.

Wayne has arrived here as well so all the family are together again. Good or bad ??

I know we had Chinese yesterday but guess what we are having another one today. Wayne's fault, he could not get yesterday.
 Andrew's cake I made was good too despite me thinking it wouldn't be....It soon got eaten be-for I got a picture .

Another enjoyable meal too. I did not have as much this time. My stomach is still a bit weird. Jay-Jays knee is very swollen but he said it does not hurt as much. he said he hit a big pot hole in the road which caused him to fall off his bike. Tom and Jamie are still not right. I think they have both had a nasty virus.


Not a good night, awake a lot, less than two hours sleep, I feel very drained and so tired

Andrew and I are going into town to get him his birthday presents. We did well and managed to get a lot of nice clothes and a few non clothes things. He was happy.

Wayne is heading back to Halifax as he was only able to stay one night.

Well June here and gone and the weather is not good a lot of rain and cold days. Come on Summer find your way here.

A mixed month for me. I am not sure if the ACUPUNCTURE is as effective as when I first started. Or it it just not enough of it, the massage is good most times. I know this pain is here to stay, but if I can make it just a little bearable I will be pleased.

The very best to you all Love Gill.   

Elton John.

The day I have bean looking forward to is here. The Elton John Concert-" Wonderful Crazy Night"  at the Lincolnshire Showground. Paul and I, plus Andy a friend from the street set off early, good job too as there was a lot of traffic build up throughout the City.

We arrived and took our seats after the usual toilet visit. The stage looked so big and bright. Elton was going to be on very soon. We did not see much of the support act but it sounded pretty good.

 Sitting waiting for Elton to arrive.
 One of the screens Elton's new Album.
View from our seats. We were quite near the front.

One thing that bothered me was would I be able to cope with this, the noise and the lights also the vibration.

The stage went dark then lit up into a bright loud spectacular sight. There sat on stage not very far away was the one and only Elton John. Amazing, I felt tears in my eyes and a lump in my throat.
The roar was deafening, I have liked Elton John even before he was famous, very early seventy's.
Songs like "Your Song" and "Tiny Dancer". Of course you can not forget Bernie Taupin. He came from Lincolnshire too,  Owmby by Spital- meeting with Elton 1967.


The rest of the night just got better. We were on our feet with the rest singing and moving with the music. The music was very loud, the vibrations were bad too.. I just hoped my body could cope. A few times I felt dizzy and in a lot of pain. I remember thinking to myself if I got ill here would Elton notice?  The night went on getting better all the time apart from the steady rain, but that was hardly a issue here, we had Elton---what more could anyone want.                                                                                                                                                                    
John Mahon joined the band in 1979
 Davey Johnstone with Elton more or less from the start.

Other Band members are Kim Bullard, Keyboard, Matt Bissonette,  Bass guitar- Ray Cooper on percussion. He was with Elton in the early days.

 The Drummer Nigel Olsson. Since 1970s then left, rejoined 2000.

The night was fantastic, Elton played old and new songs. My first ever concert at 61 well worth waiting for. Elton John practically on my door step, what Elton fan would not want to miss this?
Yes the noise did get to me and the vibrations and lights. (Got through with the help of medication) Would I do it again. YES.

The show lasted about two hours, it took us over two hours to get out the car park. A brilliant night.
Not bad for someone that's 69 years old, yes 69 born March 26th 1947.

Hope you are all well and enjoyed this extra blog Love Gill.


Mixed May.

May 1st

Stomach still feels a little sore after my bladder trouble. I think the ANTIBIOTICS have worked though

I am sorting out a few plants and re potting them.  I pulled up a weed in the garden and got an electric shock straight up my arm, this was so sharp that I nearly feel over. That's not right is it?


We are at a big truck show later. This is on a separate blog already published.
The show was very good but I paid for it later with a lot of pain everywhere. Chinese for tea too.


What a day-- spent in Hospital, NO, for a change not me. My daughter Lindsay banged her head and started with a violent headache and being sick all the time. Paul dropped us both off at the Hospital about 8-30 in the morning. I thought as we all did, concussion. After seeing a few Doctors and a CT scan she was admitted. The scan showed up bleeding to the brain. Also showed up something that should not be there. A mass of abnormal blood vessels. The Hospital is not sure what to do so is taking guidance from the Nero Doctors at Sheffield. They are not sure whether to leave her here or transfer her to Sheffield. Nobody seems to know what to do. Very frustrating and tense today.

The doctors have decided to leave her here but are on standby in case they are needed at any time. They can air lift her or blue light her, in a matter of emergency, but this will be a danger as well because of the road bumps and noise. What is the best for her at this time.  Not sure????

She is very poorly being sick and crying with the extreme pain in her head and back. Most of the  time unconscious. Her eyes are black and she is a strange colour. She cannot stand light and noise is bad as well. she is having another scan, a MRI one this will show in more detail what is going on. I left the Hospital about 9pm totally exhausted and very worried. The Hospital said they would ring if things got worse. I thought there is only one way worse, and that does not bear thinking about.


Lindsay's pretty much the same. Ben's Mum came all the way from near London to see her. That was so nice of her. This was a first time meeting for me too. I think she is very nice and she thinks the world of Lindsay. Her face had a very worried look.

The Doctors are doing observations every hour or two. She can move everything and can talk if only a little.
MRI scan is now tomorrow.


The scan revealed this mass of extra blood vessels but they are able to get more information from it as Sheffield experts will look at it on Friday..

My Nero Doctor, Doctor Solanus, saw Lindsay while I was with her. He said she has bled before and she has to be careful. Ben and her were going on Holiday, Doctor said if this bleed had started on the plane Lindsay would not have walked off it. Very worrying for everyone that knows her and cares about her. This now is a waiting game to see if the bleed has stopped and if it has, whether it will start again.

Me-- I am trying to hold it together and not get too upset or I will be in Hospital as well.
The children are at there Dads and not very happy.


I cooked a Sunday dinner and Angela joined us, a nice meal too. With being at the Hospital most of the time I have not cooked many meals at all. 
Tommy-Lee is stayed the night at our house. He likes staying here. He misses his Mum I think more than the other two. Paul is taking him to School tomorrow.


News from Sheffield is -- they are not sure what to do as this condition is rare.  Only one or two percent of people have this. Lindsay's case is to be looked at by the Vascular team sometime this week.

She has improved a bit but a long way from being right. Her headache has gone down a bit but she still can not stand light. Still being sick a lot of the time.


Went to see Lindsay she had a very bad night violent head pain and sick a lot more. She looked as bad as the first day it happened.

Today I have physio- I need it as I have had a lot of pain the last two weeks. Treatment is pretty much the same now, as it seems to work the best for me. 5 needles in each leg and foot. These sent my body crazy and weird sensations in my legs. After these were taken out quite a few bled.
Next were my shoulders 1 needle in each. Then a very gentle massage this was painful.

I walked back to the Hospital, Lindsay looked a bit better than she did earlier.

My legs were very tingly all night and one place was very sore.

I am making a long haired teddy for a present for a young girl at Age UK. Got it finished, Over two hours just to stuff and stitch up. A lot of work has gone into this Ted I think it's one of the best I have made.


I feel quite sore after yesterdays physio session. A small lump on my right leg, it feels squidgy and painful. I feel very tired and dizzy at times also a weird head. I think this is from being inside the Hospital most of the day.

Before setting off to see Lindsay-- Problems at Chemist getting my tablets more problems at the bus station no bus came. I usually walk but I felt very tired today, as if that was not enough I left my house key on the bus. Got to the Hospital two hours after I had left home. Not pleased..

Lindsay is about the same.


Age UK are holding a Birthday party for the Queen. A three course sit down meal for all the old dears. A good but very busy day but I enjoyed it and most things went to plan.

I gave Anna her Teddy and she loved him I asked her what she was going to call him and she said Gill. I thought that's nice but she might change her mind yet. A lot of the people there thought I had bought it for her and asked where I got him.

  Not sure if Summer thinks too much of him.

The picture of Anna with Ted did not work out--- so will try again and put it up at a later date.

I think Lindsay has improved for the first time since she she went in. Hopefully this will be one step forward, but not two back like the last few days. She walked around the bottom of her bed about ten steps while holding on to the frame.

My lost key was found on the bus. Will be picking it up on Monday.


Angela came round for dinner and bought flowers so nice. A nice day all round I still feel very tired all the time. Someone said it got something to do with not sleeping much. No, I did not think of that.

People think when you have INSOMNIA all you need is an early night, if only it was that simple.!!!!


Lindsay's getting stronger now, she walked to the toilet, helped by a nurse, with a hat covering her eyes as light is still a big problem. Very dizzy and in pain with her head. Sheffield did not come to any treatment plan yet, as they are going to discuss it more next week. Lindsay is very disappointed as they said they would have an answer today.


Lindsay has bean told she can go home. Well--- she asked to go as she said she could rest just as well at home. No noise or upsets not doing anything either. They wanted to keep her in longer, as she still is a long way from better. she said she can rest at home as its quieter and more relaxed for her.  I sort of agree with her so long as she does what is asked of her. The next few weeks are like a ticking time bomb in her head.
She will need to still have some form of treatment done soon, so will be heading back in at some point.


Lindsay is coming home today, at last she says.

Pilate's was a bit weird, I was doing a move which involves rubbing a ball with my LEFT foot. This was so strange my right foot (RSD side) started to hurt a lot. The harder I pressed the more my RIGHT foot hurt. Very strange but RSD is. I hurt a lot-- all my joints burn.


Age UK very busy today, I think the sunshine's brought everyone out. A long painful day for me.

Lindsay has bean here during the past two days and sleeping nearly all the time. She is still in pain and the light bothers her a lot but is better on her feet now, not as dizzy. She is still being sick, more so if she moves around.


Most of the day on my own as Paul is out. I feel very drained and sore everywhere. Not doing too much just resting. I think the past two weeks have caught up with me.

Wayne arrived about 11pm  for a short visit, to mostly see Lindsay. Paul picked him up from Halifax after dropping someone off at Manchester Airport. Always good to see Wayne.


Got Tommy-Lee and Jamie-Lee most of the day.  Arrived about 11am and left about 6pm. They were as pleased to be here as I was to have them both. I have not seen too much of them over the last two weeks. Cooked dinner for them and us of course. They had tea here too. Both had a good day.

Paul took Wayne to Newark to get his train a lot later than scheduled, as he was busy fixing a friends laptop.

A better day for me but still too much pain, more so in my legs, they are burning like a fire.


The common looks very lush and green at the moment, the trees I think, are looking there best. The Chestnuts look so big and very full of blossom, lots of  big conkers later in the year I think, all the trees are a sight to see. Everywhere is so green. The buttercups and daises are everywhere.
Very pretty.

 So yellow and so many of them this year.
A beautiful horse chestnut tree.
 I don't think I have ever seen the trees so full of blossom. 
Many a chat spoken around this bench set. 
 The leaves are so lush and green on this beach tree.
 In contrast to the green, the white of the May tree.   
Summer on her walk. Who me!!
A view down the river.

At last I have some time to get in the garden and greenhouse. Tidying up and re-potting, spraying as well. I also sprayed next doors roses and Ben's garden too. He had lots of nasty bugs.

My garden, what I have done, looks very good now. Hopefully I will get the rest done soon.

I ache everywhere and my foot is killing me going into spasms.


Finished off the garden and checked for the green fly killer working. I am pleased to say it has in all the gardens. Everywhere looks good at the moment. I have planted some potatoes that had sprouted, they might grow.


We picked Jamie-Lee up from nursery, she is spending the day with us. She sat with Paul in the car while I did my Pilate's class, this went well still very sore in a lot of places. I have forgotten what it feels like to not have pain everyday. I know a lot of you are the same.

Jamie-Lee had a good day playing with Play doe and Barbie dolls. After tea, Lindsay and Ben picked her up. This is the first time Lindsay has bean out. She said she was coping well but was sick a few times. She is looking better though.

Me-- I feel drained and pain most places. Bad head most of the time, I know this is probably from lack of sleep.


Early phone call from Wayne some Russians have hacked into our computer.  Lucky he saw it, as he was off today. this could easy spread. (We have a "log me in" system set up between us.)

Physio today, with the Tutor-- Fanyi  this is the top man here and also a year two student, Nansen . The ones I usually see are doing exams or on Summer break.
He did much the same as usual, as he said it works. Five needles in right leg four in left, two in each arm, and one in my neck. These were in about twenty minutes then removed. A massage by Nansen.
this was a bit different as he used many different techniques, flat hand, the sides and fingers even tapping. Painful at times too but relaxing also. Also a leg and arm massage.
While sitting in the cafe my legs tingled and were very red, flushed face too. I felt very light headed as well.

I spoke to Wayne and he has managed to sort out the computer. He said they, the Russians, had set it up to come back too, so he managed to get in before they did. This could have caused no end of problems for us. Hopefully they will not get in now.

Thank you Wayne, you are always doing a computer for us or someone else. What would we do with out you???


Age UK again no Angela today, she is not well. We are short staffed but not as busy today. Steady but not rushed off our feet. A new thing added since last week a Smoothie Maker more things to do.
Bit of shopping then home. Or so I thought, spent over an hour sorting out a prescription.

Got home about 5-30pm we are out at 6-00pm for a Football presentation for Tommy-Lee and Hykeham Tigers. Tommy got a Trophy for most improved player of the season, nine and under.

 Me and Paul.
 Michelle- photo bombed this one. Ben and Lindsay.
Tommy-Lee, me and Paul.
Ben presenting the trophy's and his speech.
Tommy-Lee getting his rewards.
 Hykeham Tigers players
Garry and Ben with some of players.
Ben, Lindsay Tommy-Lee and Ben's son Marshall.
Tommy-Lee with his Trophy's

And again looking very proud.
With his even prouder Mum.
 Disco time.
Doing his dance moves.

Ben, Lindsay's boyfriend did a very good speech and with the help of  Gary, part of Hykeham Tigers  gave out the Trophy's. A good evening but as usual not PAIN free. There was a Disco with flashing lights and it was very loud. Lindsay did good too as it was very noisy most of the time.


Lindsay and everyone has set off to Essex to see Ben's family. I hope she takes it steady. We have little miss Jamie-Lee till Monday night. She is sleeping as well, the first time she has stayed here over night. Played in the garden a lot of the day as so nice. Bedtime no problem straight to sleep.  I had bad nose bleeds and headache so ended up going to bed about 7-00am. I  thought I would see Jamie-Lee getting up.


I slept till about ten, Jamie was up a little earlier, she said she had a good sleep and liked Wayne's bed. This is the bed Wayne sleeps in when he's here so she calls it Wayne's bed. Angela popped around in the morning she seems better now.

Another nice day, so out in the garden again.
 Jamie-Lee playing on the slide.
 Summer in the shade.
 Look at me Nan.
 Karol on the right, from next door with Piotr his friend.
 Being bouncing on the trampoline. Hard to get pictures as she moves so fast.
 She loves Summer.
 Still going strong.

Jamie-Lee had a bubble bath later with loads of bubbles. Trouble was getting her out again. Straight to sleep at bed time. I think she was ready for bed after all the playing she did.


Bit better night for me, bed a lot earlier more my time about four.. I usually go between two and four in the morning.
In the garden again but not as warm today. Jamie-Lee seems a little off it as well. Bit of a cough and chesty. Lindsay's back today so she can sort her out with her asthma medicine. She sat and played on her Ipad.

 Quite for a change- Summer too.
 Fast asleep.

 Jamie-Lee was fast asleep when Lindsay came back with Tommy-Lee.

They all had a good time too. Lindsay copped with it quite well, but felt bad when here. I said rest and let the others do the work for you. Jay-Jay came round. He did not go with them as he was on a France trip. They all went home to leave me for a quite evening with Summer. Not used to a three year old running around.


A lot colder day, Summer has gone into hiding. Flaming June tomorrow as well. Catching up on every day things and doing blog.

Well that's another month gone by,  the days most of the time are getting warmer, so that's good for me and most RSD suffers.
 I hope you liked this blog and all the pictures.  
Best wishes to everyone Love Gill.

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