MARCHING ON. ?


March 1st

What a lovely day, a frost but so nice on the common the birds are singing and every one I meet seems happy. I look towards the north, I can see a Cathedral a Castle and a windmill. Where else can you get that?
 

 (Pictures added on 15th April.) 
No Windmill as hard to see, unless working so you can see the sails.

Even so I have a headache one of those that feels like some one has hold of my head and is squeezing it, worse around the eyes. I have like a soft spot that comes up every so often at the back and top of my head
Paul is away for the day so just me and Pup.

I had a bit of an accident later in the day. I was sorting the dead flowers out and put them in the bowl to take to the green bin. I realised that I had dropped a spoon in the bin as well. I stood on a chrysanthemums tub, it tipped up sending me into the bin chest first bashing my ribs. A lot of pain it was not worth it for a spoon.   

2nd

My friend Debbie is going away to work in Uganda for a while she is a Geophysical Land/Marine Technician. I shall miss her company and Snitters (her dog) on the common. She could be away two months or more.
I think I have either cracked a rib or bruised them either way it is painful breathing, coughing and bending forward. I am just pleased my chest infection is just about better and I am coughing less. At least my head feels a lot better,

Paul has gone to Halifax to see Wayne I did not go as its a bit much for me yet, all those miles one hundred and eighty miles return trip. Paul did stay over night this time though. Me and Pup had a girlie night.

4th

A nice smoothie made of spinach, cucumber, apple and celery very tasty. Chest not good very painful.
Looked after Jamie-Lee in the afternoon at Lindsay house, while Paul and Lindsay made up some bedroom furniture for Jay-Jay and Tommy-Lee's bedroom.
I have finished off the Teds for a friend, four of them.

5th

I have decided to go to Pilate's as I can do the leg movement ones at least. I have a lot of hip pain today as well, hopefully the Pilate's will sort this out. Chest quite sore and painful. I have remembered from a time before that bruised/cracked ribs get worse before they get better. So hopefully this is one of the worst day.

6th

Disturbed night, pain and just not able to sleep - even going to bed at three thirty last night.

Physio-- This went well Stephanie is sticking to very much the same treatment at the moment so not to stress my body out. This seems to be working very well. Needles in legs and arms.A shoulder massage with heat lamp, very soothing and so warm. I walked back no extra pain in fact I felt quite good.

Night time, Paul and I went to see Jay-Jay as its his tenth Birthday. We got him a game, Lego movie for their playstation (shared with Tommy-Lee) and a zip up top and an annual book. He liked them all, the game the best.

Jay-Jay rung me up and asked if Paul and I would join them for his Birthday meal, of course we would.

 
Jay-Jay looking very COOL.---  Just before we went out for the meal.
 Wearing his new top I got him and a new shirt his Mum got him..
Tommy-Lee. Little smiler.

Jamie-Lee after the meal well stuffed.


 8th


 I made Jay-Jay a cake.



Lindsay is calling in to drop Jamie-Lee off and is stopping a while
I am looking after Jamie-Lee today for a few hours. She has not bean too well stomach bug. Lindsay is taking the boys and a friend bowling.

She was very good playing with her toys and laughing. Summer likes it when she is here as well, most of the time like all little ones she sometimes pulls her fur or ears but I tell her NO and she gives Summer a kiss as to say sorry. She talks a lot and will copy most things the boys do. She is a very funny happy little girl. Eighteen months old now.

 



                    Having fun, a lot of the toys were the ones her brothers had.
This is a very noisy one.
 Look how big I am Nan.
 Summer watching her.
 Getting a wotsit off Grandad.
 What- more? She kept going back for more. Summer says can I have one too.


Jamie-Lee was picked up at tea time, then I could have a rest. A very good day with Jamie-Lee.
Good job as chest still sore, a different pain today very sore and tender and tight like when you get a bit of food between your front teeth. Not sure if this is good or not.

Knitting later nearly finished the second jacket for the twins.

Late night early morning not feeling that good a lot of pain in elbows and knees. Very tender to touch I think this is the FIBROMYALGIA playing up but I am never too sure as I get so many different pains.



This is the plant set I got for my Birthday from my friend Bev. Doing good.



9th

A beautiful sunny day warm as well. So nice on the common. I feel a bit better today lack of sleep does not help. I did sleep a few hours last night though, four maybe.

While coming back from the common I had a reminder from the RSD a very sharp pain in my foot followed by electric shocks all over my body. My foot went very stiff, more so than normal. The RSD was saying I am still here don't relax yet. Just lately the RSD has bean quite good. At least the spasms have lessened back to my normal ones.

In the afternoon I did a bit of tidying in the garden and green house. Soon be time for the seeds to be in. I am in no hurry as last year was not good for growing things too wet and not enough sun so every thing was late. I was picking tomatoes up to late December

Chest still sore but I was careful. I sneezed and that really hurt even though I held my chest.


10th

Awake at six thirty, very hot sweating, pain in stomach. Went to toilet when I got up- and not before, which I was quite pleased about. Pains in stomach quite bad now getting worse. Toilet again bad diarrhoea this time.
A walk on the common might help ease it a bit. The walk did not help and I only just made it back to go again. This went on most of the morning. Headache then started, I felt very week and so dizzy.
I decided to go back to bed for a while. I got up later still very much the same. I tried a bit of dry toast but managed only a mouth full.

Going into the bathroom I felt very sick and light headed I passed out, when I came round I was a little sick and had to lay on the floor. Extremely hot and sweating, wet through. Pain everywhere. I felt so bad and weak. Paul helped me back to my chair.

Jamie-Lee was not well last week so it might be the same as she had, some gastric bug- or one of the many others that are around.


11th

A very rough night pain extremely high temperature and still sweating the same. Paul gave me a wash as I was very smelly and clean PJ'S. Minutes later just as bad. rested and sweated all day. Head feels like its going to explode. Towards sixish I felt a bit better, head calmed a bit.

Paul helped me have a bath that was nice. Still sweating afterwards but at least I did not smell as bad even Summer turned her nose up at me earlier.

13th

Quite a bit better now, still sweating but not as much, high temperature down. Still  diarrhoea and stomach pain. I am no longer dizzy which is good.


Had a nice walk on the common with Summer so that felt good. Paul has bean taking her while I was ill.
The weight I put back on I have lost again, back to eight stone two. Even more chocolate to eat now.

14th

Fair night not as hot now and thankfully the sweating has stopped as well. I feel about normal, well my normal. My rib's are still sore and click when I turn to the left, then jumps back again like they have got stuck.

16th

Lindsay and family here for dinner. I have not seen too much of them over the past few weeks so it will be nice. Dinner went very well every on enjoyed it. Jamie-Lee and Tommy-Lee I think ate the most. Always hungry them two.

After, we went to the park and also Ben (two doors away) came too. They all had a good time with Jamie-Lee running round and playing football.

Lindsay took the jackets to Cheryl for the twins I hope she will like them. She did, she rang me later. She liked them a lot and said I am sure they will look good on the babies. I hope to have a picture at a later date.


17th

Fair night I feel quite tired today and pain levels are up. Chest is improving so long as I don't sneeze or cough. Back, shoulder and hip pain, right leg keeps going into strong spasm.


No physio again this week as Nicola had a car accident. I think every one is alright but battered.
I am so pleased.


19th

Pilate's went good did some moves that I could not manage two weeks ago. There is still a few that hurt my ribs still like laying on my front and lifting my chest up. Diamond press its called plus a similar one. This still hurts too much. I was pleased with what I could do though. I am now sure I cracked a rib or two because of the pain and cracking when I moved. They are getting better and don't hurt nowhere near as much as they did. The trouble with being on a lot of pain medication is it covers up pain so I never know how much pain I am really in. Also any new pain that comes up can get missed. Good in some ways but not others.

When I broke my foot I was not in as much pain as I thought I should be in for a break. The pain was just a different pain.

2oth

Not a good night I forgot to take my MORPHINE tablet. I only got them from the chemist yesterday because the day before Doctors were shut for training. I put my tablets out every morning and did not add to the night time ones. I felt strange before I went to bed but put this down to tiredness and the end of the virus/bug thing.

As most of you know MORPHINE is very addictive and by not letting the body have it what it wants it gets mad.The extra I had in the Hospital does not help the addiction either as it gets used to more.
I took it as soon as I realised and everything settled down.

Went to see Paul's Nana as she is in a home near us for a while. I have not seen her lately. Christmas I was ill. She is quite well but not really happy there, she wants to go back home.
Trouble is she is not safe on her on. I hope they get her sorted and she feels more at ease.

I ache today- just about everywhere shoulders are very tight. Spasms are more frequent.
Lack of physio  I think is the cause. Hopefully next week everything will be back to normal.


21st

A fair bit of pain today. Shoulders, back right calf and both feet hurt and feel hot but very cold to touch. My chest still feels tight and when I cough or sneeze it hurts.

Out today for dinner at Jo's with Adele, John and Paul. A very nice meal of fish risotto I am not really a fish liking person but I really enjoyed this. Jo is like me if she gets a bone, she can not finish the rest. So she is aways extra careful. Pudding was good too, choc chip cookies soaked in sherry and a bonoffee type sauce and cream.
A good day nice to be around friends.

22nd

Lindsay here with the family. We all went to see Nana. Her great Nana and the children's great great Nana- five generations in all.






 

    Nana with Lindsay, Jay-Jay and Tommy-Lee plus the family picture that was taken at Christmas.

 
Jamie-Lee wondering who this little lady is.


23rd

Summer had a bath. I used some gloves that I got for Christmas, exfoliating ones and they work very well bathing Summer. I was able to do her feet and face without using anything else very good at removing dirt, and bits between her toes. A good tip for dog owners.


I will only get mucky again.


She does not even mind the water on her head. 
Help.
She puts her feet up on the side so I can wash her belly.
All dried and clean, very white and so soft as well, after about twenty minutes with the hair dryer and a brush. She needs a hair cut.


Later I made two fruit cakes one for us and one for Bev, to take tomorrow as i'm going to see her and Russ.


24th

Up early, Seven thirty as going to see Bev and Russ on the train. The journey was not too good, at times it felt like the train was not even on the tracks. A group of women celebrating a Birthday as well quite loud. This did not help but I don't begrudge people having fun just jealous sometimes.

Bev met me at the station and we went for a cup of tea at a little local cafe.
We stopped for dinner and as joined by Russ. I have not seen Russ since he came to visit me in Hospital so a good day.

After dinner we went back to Bev's stopping on the way for Russ to show me his new place where he will be living now. Very nice and a little dog lives there with his new landlady.

At Bevs we caught up with all the news. Lots of tea. During the day I had to take OROMORPH and IBRUES for the extra pain.I have taken quite a few extras just lately.

All too soon it was time to go back home. We said are goodbyes at the station and I hoped the journey home would be better, It was. Paul and Summer met me at the station and we all walked home. A very nice day thank you both very much.

25th

Physio at last, I'm sure that is why I have had more pain. Nicola is ok after her accident, but still quite sore. The others involved are ok as well.

Physio was a little different as Nicola used a few different points to try to reduce the pain and help me relax more. Seventeen needles all together, ten in my legs, two in stomach, two in hands, two in arms and one in my right shoulder. Some were a little painful but soon settled. I know a few of the places felt very tender when Nicola pressed them. A good session I think, hope it helps me a bit.

Walking home quite cold but I think this was more the weather than the treatment.

26th

Pilates- This went very well, I was able to do the laying on my stomach ones this week and as long as I did it very gentle it did not hurt my ribs too much. First time this year I felt good with what I had achieved.

Teatime Lindsay dropped off the boys and Jamie-Lee so she could go to the Doctors, she thinks she has a chest infection.


The boys have both bean to Aikido class and are doing very well, they got there suits today and put them on to show me. Also the moves they do. Jamie-Lee was copying them.  


 
 Tommy-Lee and Jay-Jay ready for action.
 
 Tommy-Lee.
 
 Jay-Jay looking quite serious.


I played with Jamie and Tommy, building Lego or trying too when she would let us. Both boys went in the front room to watch television with out Jamie bothering them. We played some more with the Lego.


Lindsay came back with ANTIBIOTICS not a chest infection but an infection somewhere. They all headed off home. Paul and I had tea, bolognaise and pasta shells, very good too.


27th


Today is not a good day I ache a lot and my body feels heavy as well.
No use feeling down about it, the bedrooms need cleaning and vacuuming hopefully this will help. I am sure I have said this before.

Doing the bedrooms did not really help, but when has RSD bean accommodating?

I have now finished the other Teds suit for Cilla's Ted, who lives next door. I took it round and she loved it a lot. She even tried to pay me, after refusing money, chocolates were offered. I took neither I have plenty of chocs to eat. I was just pleased she liked them.

 
I also made the teddies a few years ago.
 
Showing her matching pants.  
    They look very smart now.


The rest of the day I felt cold then hot then cold. This RSD certainly causes a lot of trouble. My feet are burning but are very cold to the touch. Right foot is still playing up as well. Is it FIBRO or RSD or both?

Wayne is here tomorrow so that will be good.


28th

Fair night but short as usual. I feel quite drained and tired. Pain wise about the same maybe slightly better.

Dentist today for a check up. I know I need a filling after it popped out at Christmas while flossing, I thought that was good for you, I am having the filling done on Monday the rest of my check up was good. In the Chair less than five minutes £18-00 for that. More to pay on Monday£31-00. I have not had anything done for a while though.

I met Paul we had dinner in town and met Wayne at the train station. He had a good journey, obviously he did not have the same train I had going to Beeston last Monday

Headed off home. Caught up with each others news.

Late evening pain quite bad took OROMORPH. I am getting a lot more nerve pain even after increasing the GABAPENTIN. My legs feel like they are full of sand. Very painful even to the touch.

29th

Lindsay and family are here. Mothers Day early I got some lovely presents from Lindsay and the children.
I was well spoilt.


Tracy also got me a present as she said I am like a Mum to her- Aah nice.

Today was warm enough to sit in the garden. The children played and we sat and talked, a good day. 
An extra one as well Ben from two doors away and when they all left it was tidy everywhere.


30th

Happy Mothers Day to all the Mothers out there.


 
 
 More presents, from Wayne, the new Elton John Yellow Brick Road CD, plus the badge off the card..



Andrew teamed up with Summer and with a bit of help from Paul got me a
beautiful flower planter basket.



Wayne and Summer.


Paul took Wayne to the train station, its bean very good to see him, Summer thought so as well.


My Mum is no longer with us but I took flowers to her remembrance place. I do miss her, as time goes on I miss her more. So much I want to tell her and cannot. For me this does not get any easier.


 31st

Dentist went well a very numb face all the left side and across my forehead. A lot of nerve pain on the right side as well. My face is very cold as well. The numbness takes a long time to go. Five o'clock and still numb. The pain has gone though.

As for the rest of me a better day. Legs are no longer heavy. Still painful shoulders and right hip. I can't have it all good can I?

I have just entered Race For Life I hope things will be good for me by June and I will be able to do it.
Joining two others and running for their relation who has Cancer.


This month has bean quite an eventful one. Starting off in Hospital, chest infection then cracked rib(s) and to finish a stomach bug. All this in the first three months of the year. I missed a physio session and a pilates one by being ill. As usual the RSD has to join in as well and add its bit. Still things can only get better.

Hope everyone else has had a better start Love Gill.


I am ending this blog with Summer she can usually bring a smile to my face and most other people she meets.
Summer in bed after a long day very tired.

SAVED


This has to be a happier blog as the last one was so hard for me to write, and for people to read and take in, it made some cry.


  I am so pleased my Mum is home.




February 1st

At last a walk on the common with Summer and Paul as well.

Still blood and pain from the catheter I will be so pleased when it comes out.

Keeping myself busy doing teddies and knitting.


2nd

Will is here for a while, he liked his new hoodie and sweets. This was a late Birthday present from us.
He looks well. His mum dropped him off and his Dad picked him up. He is going home tomorrow.
He said its good to have a few days off. He works long hours, and a lot of them at a disabled home for adults.

Bladder pain plus back pain and for some reason now leg pain as well.
My appetite is getting better and I feel stronger.
I found out today that I was in the Navenby Ward for a few days. I thought I went in the side room the same day. Just shows how out of it I was. Bad days, but over it now. (I mentioned this in my last blog.)

3rd

Lindsay and family called in they have all bean ill a bit better now but still not right.
I am learning about things that happened to me last month while in hospital and getting a few flash backs. Also I am still getting strong spasms in my legs and back, more than the usual so its still a bit scary not knowing if its all going to start up again. I have started taking MAGNESIUM tablets at night, they can help sleep. Worth giving it a try anyway.


5th

Today's the day hopefully the catheter will come out for good.
Catheter out just need to do two wees, managed well but pain and blood but that's quite normal. YES its out and stopping out. A good day.
The nurse thinks I am allergic to latex and that's why I had all the pain and problems. Something to remember for next time, yes they'll more than likely be a next time, these seizures are here to stay.
Fair bit of pain in my bladder plus some blood, but its so good to be free from pain up the "Pain up bum" as he was called. Rest in peace mate you did a good job.
Things will calm down as the days go on.

6th

I got weighed 8st 1.8lbs in my pj's. A little bit put back on.

Physio- Told Stephanie about my time inside. Very gentle treatment from her eight needles in my legs and two in my hands plus the calming one in my forehead. The same treatment I had with Nicola as I had no problems with it. So nice to see Stephanie as I have not seen her since before Christmas.
A good session and I felt good afterwards too. Warm this time not cold like last week. That's the problem with RSD even two identical treatments, can and will have different out comes and side affects.

7th

Not a good night, pain and spasms and twitching in my legs and back, pain as well.
Bladder doing well though, less pain no blood so far today. (10-00am)

Going into town with Paul. Just as we got back Paul's sister, Michelle and husband Pete came round to bring me a Birthday card and flowers for next week 13th.

 
  Flowers from Michelle and Pete.

Quite a lot of pain today had to take OROMORPH this helped quite a bit. Later we went to see two little ones that had just turned one, Riley and Josie, yes twins but they were in bed asleep. So we did not see them. I am making them both a hooded jacket each.

I got two more get well cards, plus one I did not put on my last blog. The middle card just looks like Summer.



8th

Took Summer for her walk on my own. Cold day but nice to be out.
I am keeping myself busy doing craft stuff, knitting and sewing. Pain has eased off a bit now. OROMORPH taken again.


10th

My friend Lyn is here today, we met while having our first babies in hospital nearly thirty five years ago. She brought me presents and a card. While talking to her I had a very strange feeling like I was going to pass out and my head felt like it was going to explode. This did not last long but it was not nice. Lyn did not realise anything was wrong. I have had this before when I was very tired or in a lot of pain.

Poor little Tommy-Lee has tonsillitis but is being very brave.  


11th

Weighed again 8st 2.6 lbs a bit more weight on.
My brother David and sister in law Bev are here to see me today brought presents , two little mini plants.



Plus another present for on the day and a card. Later on my other friend Bev came with presents and a card. Helen and Chris came round and Helen did my hair. Another card and present for me. Had Chinese take away for tea. Helen also did the boys hair. Nice to see them all.

A good day but very tired later and quite a bit of pain what would I do with out OROMORPH I know it has side affects but it does work well for me. As for the side affects you get used to them. Side affects or pain what would you choose?


12th

In town getting more wool for teddy clothes I am knitting for Cilla next door.
A very windy day here as much of this month has bean, with a lot of rain. A lot of damage around the country and flooding in other areas. We have bean quite lucky to escape major damage.

Got a Birthday card from Andrew in Amsterdam so I opened it on Skype so it felt like he was here.
He has got me a twenty pound limited addition coin to come later.

Not too sure if I had another small seizure as I was sat on the chair reading and next thing I knew I was laid across the chair with my head nearly touching the floor, with a bad headache. Bit weird as I was on my own so still not sure. Have I had them before and not know ?

13th

Happy Birthday to me.
Lindsay phoned up and sung Happy Birthday to me with Tommy-Lee and Jamie-Lee, Jay-Jay was at school. Nice surprise

Lots of presents and cards. A notebook cooler from Wayne, You put a laptop on it and it stops your legs becoming hot. I am using it at the moment and it works very well.

Me using my laptop and new notebook cooler.

 Flowers from Paul.



Doctor Who DVDs from Paul and flowers.  A diary from Summer.
Money from his Mum and Dad, Chocolates, perfume, soap, planter from friends. Plus the presents I already mentioned.

 
Lots of presents.
   

My cards.


A plant and card from Cilla and Ben from next door, plus a card from her cleaner.



Cilla and Ben's present.


Physio- Same as last week with ACUPUNCTURE. I had a massage on my lower back and left hip to try to help the pain as its bean quite bad the last few days. Stephanie kept asking me if I was alright. This was quite painful hopefully it will help. A second year student was an observer to watch and learn. Stephanie and Nicola are third year students so in May they will be moving on to other things. I hopefully will carry on with the second year students.

While at physio Paul had put up Birthday balloons and a banner. A very nice touch to come home to.

On the wall also is the rug I made last year.



All decorated up.


Lindsay and family came round later with cards and pear drops from the boys. She is buying me a smoothie maker later when back in stock. Tracy came as well with presents and card. Badedas bath and shower stuff. I think this is my favourite one.  A cake and birthday song later as well. Thank you to everyone who got me cards and presents. After being so ill, this is one Birthday I looked forward to.

Paul cooked me a Birthday tea. Steak, chip with mushrooms, grilled tomatoes and peas very nice. Summer had steak as well
A very good day all round apart from pain.


14th

Bad night PAIN in my back and hip shooting down my leg. This often is the case after massage but feels a lot better later usually the next day.

Looked after Jay-Jay and Tommy-Lee later as Lindsay had to take little Jamie-Lee to the Doctors she is not very well at all. High temperature crying a lot which is not like her at all. Lindsay thinks it her ears.

Jay-Jay and Tommy-Lee had a go on the sewing machine with me helping, they made a bag each.



 
Tommy-Lee drew a picture on his.



They liked doing it, so very happy. I was machining teds earlier, slight problem with the cotton reel holder it got stuck and dropped inside the machine when I tried to get it out. So its going into the repair shop tomorrow.  I can do without it for a while so not too big a problem.

Lindsay came back and said Jamie-Lee has an ear infections in both ears. Poor little thing she was crying in pain sat in the car. Jay-Jay and Tommy-Lee got ready and went home. They were both pleased they had a go on the machine and made their bags.


15th

Took the machine to repair shop not a big job they said. Also having it serviced, it's done a lot of work lately as I've used it on most of the teds. My foot gave way in the shop and I nearly fell over. The same thing happened just as I was getting in the car causing me to scrape my leg on the bottom of the door frame. Its like my foot just goes though water instead of solid ground. This has happened before a few times usually it means I fall over or fall into things like the door frame.The same place where I scraped it before when I slipped off the chair. Pain apart from leg, is pretty good. Hip has calmed down and feels a lot better.

Very sore burning pain and hot. Not as bad as the last time I scraped it.
The last time. My leg was getting cleaned up and a new dressing put on it.
This picture was taken on the 8th of July 2011.

Still, not as bad as last time. This was caused when I slipped off a chair July 5th 2011.
I even ran that night, club handicap with a lint dressing on my leg. This I was to regret as it stuck to my leg. My leg got worse as the days went on. I ended up having burn type dressing, dressed every day for eleven days then after that I changed the dressing myself. The leg got infected as well ANTIBIOTICS. I have a sore throat today and a bit of a sniffle not really a cold though.


Lindsay and co came round for a little while but Jamie-Lee was not too good. Tommy-Lee has recovered from his tonsillitis now. 


16th

A lot of pain and burning from my leg. Helping Paul clean up and a bit of knitting. Writing this blog as well, a lot easier than the last one.
A sunny warm day here quite a spring like day. Lovely on the common went on twice.
 

17th

Paul and I are going to Ingoldmells for the day I quite like the seaside in the winter. When we got there most of the shop were closed. We found a place to eat "The Copper Kettle" very nice and all freshly cooked. The lady kept apologising because she had a lot of meals to do. This was the only busy place we went in. In some of the shops we were the only ones in there.

We nearly got hit by another car pulling out and not looking. Paul did a emergency stop, I shot forward and pulled my back and neck. Not too bad though it did not ruin the day Even the RSD was good and did not play up too much.

On the way back we stopped at Pennells and got a plant pot and orchid compost so I can re pot them.

Grazed leg is quite swollen and sore, also my ankle is swollen and tender may be I pulled it or something.

18th

Throat very sore and husky voice. Having a quite day knitting and resting .
Phoned my friend Russ who has had a hernia operation he is doing well, sore but at home I wish him all the best.

19th

Throat very sore looks like an ulcer at the back. Earache as well very hot. I changed the sheets and washed them, it was nice windy during day for a change.
I have bean taking ECHINACEA tablets they seem to help me, it takes away the worst of it anyway.

Night time we joined Lindsay for a carvery meal out. Very good it was, I ate quite well in between coughing. A good night. Jamie-Lee is a lot better and ate very well. I even managed to get my  smoothie maker from Lindsay and co, a good night.


20th

Still not too good coughing up stuff now so it looks like its on my chest as well, quite hot. I am hoping to get away without ANTIBIOTICS.

Made a smoothie but only had banana, apple and honey plus milk it was very nice. 


My new smoothie maker very easy to use.



Physio day.

Stephanie did the same as last week with the needles, 8 in legs, 3 in each hand a extra one this week to help my throat. Massage and heat lamp on lower back and both hips. This was very good even though at times it hurt. Another second year student was in on the session.

We called and got frozen fruit, berries that sort of thing to use in the smoothie maker.
Later in the afternoon I felt light headed and very tired cold as well.


Paul got an award from the running club, The Chairman's trophy for his work doing the booklets and other admin things.

Paul and Martin.


21st

Big day today I have all three grand children from eight thirty onwards till Lindsay comes back. She is at a funeral. We played cards, even Jamie, she had the jokers. A game called go fish and pontoon. Tommy-Lee won most of the time.
When it came to Jamie-Lee's sleep time she would not let me do her nappy. She was running around without one on and sat in Summers basket. Eventually I got one on and she got in her buggy and had a little sleep. Ben came round to play also. They all played together upstairs and outside. Later my friend John came round for a cup of tea. He found it bit noisier than usual. Ben's Mum Nez popped in later as I saw her going pass with Emi. Jamie and Emi played as well but Jamie is quite rough at times and kept knocking her over. Every time she cuddled her better. Emi is very dainty We joke that she will do ballet and Jamie will be a rugby player. On the whole they got on well. All the boys decided to go back with Ben so a bit quieter, only Jamie who can be very noisy at times.
Lindsay got back about six and had a bit of quite time, then went and got the boys and headed off home. Along day but good as well.

22nd

Voice not too good and chest very tight. Still coughing up stuff. I feel cold then hot I think that's the infection, almost certain I have in my chest. Back is sore from massage and my right wrist is swollen and hurts. A lot quieter day nice in a different way. I love have the children here I just wish I could do more with them.

23rd

A better all round with pain and no extra pain tablets OROMORPH either.


My leg has improved so much just about better now.



Summer had a bath the first one for a long time so white and fluffy now. Still a ginger chin- this is from staining from water and the common, most westies have it some a lot worse than Summers.


I will not be clean for long Mum.Wait till I get on the common and roll in all that mud and horse Poo. It does feel good though, to be clean and smelling nice.


Paul and I had a few games on the WII. One game called the CUBE Paul did very well first attempt on two games I was down to my last life and failed to beat the cube.

At night time I spoke to my RSD friend Billy who lives in Spain. He has had RSD for less than a year so in the early stages. So nice to be able to talk to some one that under stands what I am gong through. I told him if he has any questions I will try to help him. Theirs always Wietse as well.

An awful of spasms later though out my body some painful. This could be a bit of extra strain from playing on the WII or just the RSD playing up again, the moon, who knows? Bed four thirty.


24th

Whole body hurts not a good night spasms continued and I did not sleep much at all. I felt very light headed on the common. Apart from that, good walk, nice almost a spring like day. Some of this could be down to my chest problem but I know a lot is down to the RSD. I think it has woken up. For the last few weeks after all the hospital stuff it seemed to take a back seat. Now it could be ready for a another fight. A quite knitting and sewing day.


25th

Weight still eight stone four pounds.

I spoke to Doctor Mehta he agrees I have a chest infection and he has put me on ANTIBIOTICS two a day for a week. I am coughing up a lot of yellow stuff and also blood.There is a place in Bath that treats chronic pain conditions---   http://www.rnhrd.nhs.uk/page/79--- He is willing to refer me when I need to go there. At the moment there is no need as the RSD is not too bad. (Thank you Billy)

Went into town on my own today this was nice. I now feel better in myself apart from my chest which is quite tight. Hip not so good and shoulders are not as good as there were. But I am better than I was.

26th

At last I am ready to go to Pilates I have missed it, but have bean doing a bit at home but its not the same as a class session. I did pretty good, even did the one legged balance at the end. I was pleased with myself. I got given a book called "Mindfulness for Health". This explains in easy terms how to cope with pain and everything that comes with it. I have started reading it and its very interesting.
Thank you Jo. Some of the hints I do already, like music to keep the brain occupied and trying to keep busy

I felt a lot looser later on in the day as well. I could ache tomorrow though. Very tired later but I could not switch off. Bed after four even then I did not sleep well.  

27th

Physio-- Stephanie did about the same as last week as this seems to work for me, without my body going into melt down mode. Treatment was four needles in each leg, two in each wrist, one in each of my arms and the soothing one in my forehead. My legs were warm that's a change they are usually cold to ice cold. My arms were very cold though. After the needles were taken out I had a nice soothing massage on my lower back and shoulders. This was very nice, shoulders hurt, but not too bad. My shoulders have bean very tingly with electric shocks again. Well at least my hips are a bit better. Walked home today and bought a book about smoothie recipes. Some very interesting ones to try out. At the moment I just put things in I like and hope for the best. Some good some not so good. As I use it more I will put on my blog a few different ideas or strange ones knowing me. After all I like jelly baby sandwiches- good but big sugar rush.

Later on I had a headache other wise feeling good. Legs now cold and arms are too even after a bath.
Chest infection doing well.

28th

Bad head it feels very tight and when I bend forward it makes it worse. Every so often I have a soft lump that comes up on the right side of my head. Just feels like I have  bumped it or bean hit over the head very soft and quite painful. I think its to do with the Fibromyalgia. Also my skin is hot not like me at all usually cold. This could be to do with the chest infection I have.

My friend Carol popped in to see Paul and I, so nice to see her its bean quite a while. I used to run with her.- Happy days.

Paul and I went to meet Loren the girl who helped me when I was ill in the university cafe. (11th Dec).  I wanted to thank her for everything she and her boyfriend did. I got them a box of Thorntons chocolates.
She is a lovely girl and I am very pleased to have met her. I wish her well in everything she does and I hope she achieves all she wants to do. Saw a few of the physios there as well.

Paul and I had fish chips and mushy peas for dinner, very nice it was too. We got a bit of shopping mostly fruit and veg for the smoothie maker. I am making different ones, you could say experimenting. So far they have all bean good. Made one today of spinach, cucumber apple and grapes. The colour looked like I had blended a Teenage Mutant Ninja Turtle tasted good though.



This is a better month for me, well things could not have got much worse could they? My brain seems to be in gear and working well. Sometimes I struggle a lot with writing and computer work. Lack of sleep and pain does not help.

To all my friends, I hope things are going well for you all.
Summers on its way so warm days ahead. I do hope so. All my love Gill.




The shame I have to share the chair with POO BEAR.
Maybe if I look the other way he will disappear.

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