Fifteen years today-July 13th.

Well, fifteen years has gone by since this RSD plus all its friends invaded my life making it "Hell on Earth". I think back to when it happened. If I did not go running that night or had not doubled back for a friend. Would things have bean different? (I had already passed the bit where I fell, it was the second time round, that caused me to fall).. But there are not, so its up to me to make the best of it. Most people can not cope and end up in a wheelchair at some time because of the pain and the sheer pressure of it all. WHY am I not? I am no different to them, am I? I think I am a strong person and that helps a lot in this case. I did not want to be anywhere near a wheelchair just the thought of it scared me s**tless. I did need to use one for a while though when I was not able to walk the first few years because of the severe pain. I still do if things get really bad, plus my scooter. This I did not get for two years but pleased I did because it got me out more.

RSD is like nothing else--- to start with hardly anyone has heard of it-- even most Doctors, mine did do some research to treat me with more understanding. I have never yet met anyone with it apart from online. So you have no one to discuss your problems with, NO specialist- again, you are lucky if someone has even heard of it. When I have bean in hospital-- its the Pain Team I have to deal with. I am no a big fan of them. They always make things worse for me or is it I just do not want them. When I have SEIZURES, I have to stay put as I am not safe otherwise. No walking or moving around, mostly sedated. All this time the RSD is winning and gaining more control. Once that happens that's it, game over. That is not going to happen, that's if I can keep things together. In some references RSD is called the DEVIL CURSE not without reason. RSD is similar to MS in some ways but can be more painful.

I have had very bad dark days after the SEIZURES or illness-- when I think it would be so much easier to just lay down and give up. I have on many occasions looked back at my life that was perfect to me, well-- may be not that good, but a lot better than now. I could run, walk, have fun, go out when I wanted to, sleep, and have a life with friends.

Since the RSD this has all changed. Now I can not stand loud noises, vibrations, car journeys of more than say an hour, even then I have pain and are more like a ZOMBIE when I arrive because of extra tablets. Going on the bus can cause be to scream inside with pain. Ten minute journeys that's all I am talking about, that's all. Because of the vibrations, not everytime, but most and if I have bad pain this will be worse after for sure. This restricts me a lot-- no parties, crowds, pictures. I have bean a few times but had to pick a very good day. Even then the flashing lights and then noise from the speakers, its not good. but its the best I can do. A lot of times I have to shut my eyes. Angela thought a few times I was a sleep.

When watching Glastonbury there were loads of flashing (images). (Even that sort as well) this can make me feel very unwell. This is partly to do with the SEIZURES. Colds, knocks, normal every day things that do not bother non RSD person will make my life hell. I have a heavy cold at the moment. I have given up a lot but still have things I can do. I am still able to walk just some days, still on crutches from the knee operation but hopefully soon that will be changed. Bean a longer journey than I thought it would be. Knitting on good days, sewing when I can, puzzles, (but not with fire hopefully.) I can take Summer for her morning walk most of the time. Housework a bit hit and miss.  Looking after the Grandchildren, plus the children two doors away, and cat sitting. Typing this, my fingers are not good the feeling has gone and my brain keeps fogging up. I make a lot of mistakes so everything takes a lot longer. Things like this you all take for granted and just get on with it. For me very frustrating. People ask me out and are disappointed if I say no and after a while don't bother asking I try to explain but its not easy.  I have got fifteen years experience and still don't under stand it. Just wanting a big hug some days, but knowing this will hurt. Disability is another thing. PIPs say I am not disabled, an ongoing case at this moment. This is very frustrating

Running is what I miss the most just the sheer pleasure of it. If you have never run you will not really understand. Just think waking one day and everything you did the day before, work, pleasure, every thing just like that gone.Then add the PAIN and how would you feel???

In the beginning I had Wietse he was an Angel in disguise. He helped me so much and without him I know I would not be as good as I am now. He used to say it was me that was doing all the hard work not him. He showed me the right path for sure. A shoulder to cry on and someone who knew what RSD was. Thank you Weitse for all you did for me. (get in touch please)
I have had some treatments that helped somethings but made others worse. I think the cure if there is one, is a long way off so all I can do is just get on with it and keep moving.

Thank you all for reading this all the best love Gill. 


June 1st

Had one of then phone calls today, the sort that tell you your computer has virus or is about to shut down. I humoured the Indian lady, they are mostly foreign in an Indian call centre.
She said your computer is at very high risk, as it was down loading viruses. We need us to sort it out and get to the source of the problem. I asked her who our Internet provider was? She ignored me and carried on talking. Again I said who is our provider- again she did not stop but carried on talking what she/we needed to do. Referring to a sheet in front of her no doubt. I started talking and asked her again about the provider not stopping this time, and said you are a con call swooping on vulnerable people. There is nothing wrong with this computer at all. I put the phone down and checked out the phone number on the Internet. Lots of stories from people everywhere. Some would have bean taken in by it all and worried that the computer will become unless. They get in by logging onto the computer by an invite from you, after a lot more questions to scare you. Sort out a few non problems that you don't have, then charge you around £170.00 for the privilege to get your computer back. Hopefully they will be soon shut down, but as one gets shut another one takes over.

Well that's my rant for the day, I hate it when people get hurt like this and it's happening more and more.


We will be having new neighbours soon as they have got the keys to Ben's house next door, a few things need to be done first. Quite a bit of noise for the next few weeks, they said but as one family will be moving in soon, another will be moving out a few doors away. Shame to see them go too but I wish them all the best in their new home. So two new residents to the street soon. We have bean here forty three years and have seen a lot of changes and people coming and going.

My left leg, knee and foot operation side are very swollen and sore. I have bean taking a lot of extra tablets. I would have thought by now things would be back to normal, but no I am still on the crutches outside the house. Because the RSD is having a field day now, with both sides now being attacked with pain. I have bean quite restricted to what I can do. Not being able to go out with Summer on my own walking, longer car journeys are out too. You all know what I mean, every day things that non RSD people do without thinking about it is so frustrating at times. As I have said many times I am not an indoor person. Hopefully my knee will soon start improving and I can get on with my life. I do have my scooter but it is difficult to get it out on my own. So unless someone is here to help me, its a no go, but I am home a lone Summer is here but not too much help.

Jamie-Lee biked around four miles on her little bike to see her friend Tracy today, with Lindsay of course. She loves her bike and goes on it whenever she can. Well done both of you.


Colder start to the day where has the Summer gone? On the river we saw a swan and seven very young signets but no Dad. I know Swans mate for life so I hope he is alright may be having a lie in!!


Full PAIN everywhere today- really getting to me now. I have had a headache since my SEIZURES.  Some of this could be because I am in more, but its very annoying. At least we have a garden so I can do a bit there. I sprayed the garden for green fly. This has needed doing for a while but either rained or bean too windy which has held it up. Soon after finishing though it did rain but not for long, any way job done.

Angela has gone to Wales for a few days with her brother to get fully fit after her operation. Hope it does not rain all the time.

My friend phoned up and said she is having a baby after a long wait with many problems. A few baby things I think to make soon, when she finds out the sex. I hope things go well for them all.


Visit from Joy today- always nice to see someone. She is still not good with her back pain, but had a scan so hopefully that will show something up. A good chat and catch up with all her news and mine too which is not a lot at the moment.


Andrew out with Pup and I today as Paul is out most of the day. Summer enjoyed her walk very much  chasing after her ball. So tired when we got back so was I. I have bean walking a bit outside without the crutches. PAIN is still here, knee tight and sore if moved wrongly, which seems to be every way at the moment. Five weeks now and still not right. I feel very light headed and very tired almost like I am getting a virus or something. Could be tiredness or the RSD striking back.


Got Jamie-Lee for the day as Tommy-Lee, her brother is in a knock out football tournament. Raining heavy too so a wet match for everyone. Jamie-Lee arrived at nine. This could be a long day as Lindsay said she was tired. Hopefully I can keep her happy. She was a bit moody before dinner but after two sausages, chips and gravy she was very happy. Played with all sorts today plus she bought her Ipad, always a standby for when she is tired.

Lindsay phoned up and said the boys were in the semi final of tournament so they were doing very well. A bit later Lindsay came home with the great news they had come runners up in the final. So very well done to all the team and Ben their Manager. Big cheers all round. I gave Tommy-Lee a lolly as a reward not much I know but I think he was so happy at how far they got, so it did not matter to him. He stood there beaming with his medal around his neck.
The team- Ben on the left- Garry in the middle.
They manage the team between them.

They soon all went home and I was able to relax a bit myself.

Angela back from Wales now, a nice change she said but a lot of rain fell I said it has here too.


Hey rain stopped and washing out blowing well. Helping Paul clean up. Andrew at work and Summer thought she was going with him for some reason. She looked very sad when he said goodbye to her. He will not be long today Summer as its Sunday 10.30am until 4.30pm. She still waits for him in the passage laying down around ten minutes before he comes home, how does she know. The ice cream van that came down the street last year, playing the music she disliked so much. Well it still coming but no music. she still grumbles and barks. She knows the engine sound of the van, plus other various car sounds like Paul's and knows when someone is coming here, very clever I think.


A wet start again so Summer's walk was a very mucky one as she got very wet playing with her ball. She was happy and that's all that matters.

My fingers have bean getting very bruised from burst blood vessels. Just from holding a knife, door handle, even just turning on the tap stupid things.They hurt but do not last long usually. I still have one on my thumb from Age UK from the till, this was a big one though. My fingers on my right hand RSD side go white a lot of the time and have not a lot of feeling to them which makes doing things a lot more difficult.


Rained all night. I heard a lot of it, very heavy at times more like a monsoon. Summer decide to go down Sincil Bank today instead of the common. We thought it would be drier but no it was flooded. The drain holes from the road to the river get bunged up with leaves and rubbish. People also deliberately put cans and bottles in them thus blocking them up..


Not a good day, so much pain whats going on? I have taken four- 400mg IBRUES so far and its only dinner (1-00pm) this is on top of all my prescribed ones. Some days I am taking eight and still I am in pain. I am a bit worried that I did something to my knee when I had the SEIZURES, or is it just the slow healing. Anyway I go to the Kingsmill on Wednesday the 19th So I will soon know. My shoulders are bitterly complaining so are my wrists. If I don't use the crutches out the house I can not go very far. Wietse did say not to use them at all but it will not be much longer I hope. So when off them for good hopefully the shoulder and other stress pain will go..

The weather is cold again, my hands turned white today and my face was red. I think that's what they mean by Flaming June I think, as its certainly not the weather. I got earache too with the cold wind.

I wrote in my diary today-- WHATS A LIFE- IF YOU CAN NOT LIVE IT. That's how I feel trapped within my own pain.


Woke to ice cold feet and legs spasms in both legs. Managed to get them calm again wrapped my legs in the quilt and went back to sleep only for it to happen again twenty minutes later. This time they did not release so I got up, even though I had only bean in bed a shot time. Spasms and pain most of the day.

The river is high after all the rain we have had, I have seen it higher though. Around Lincolnshire there has bean flooding and people bean moved to a safer place. We are higher up so not much chance of street getting flooded. Sincil Bank on the other hand is close by and the football courts near the ground are under water.


Angela came round for a chat and we watched some programs she had missed when she was in hospital.

Our computer has gone wrong big time hopefully it can be fixed. Wayne and Andrew both know what they are doing.

Looking after Ben and Emmie from Seven tonight. Emmie knows I will not be able to go up and down the stairs like I usually do. Emmie did some dancing and played on her Ipad. Tabby came in for a while and I was stroking him. Squidge came home around twelve thirty so not late. When I came home everyone was in bed. Me and Pup again as usual. Watched a bit of television then bed a few hours later.

At last I have finished Shawn Sheep made for a relative. Also a pair of gloves for me plus Munchkin.



Paul out first off so Summer was later for her walk. She did not mind, the common is very wet in places, and she loves running through the puddles. Well there are some big ones and she always seemed to love going through them.

My pain levels are very high and still taking a lot of IBRUES. Knee spasms are bad - OK in the house but walking a distance it tightens up and is very painful. Fibromyalgia  is playing up as well big time.
Andrew has got me a CDB oil vape, not sure if its helping or not but I will keep trying it. I have nothing to loose have I ?

My poor big cactus had died big time- when I repotted it last month I noticed it was a bit soft. I thought it was from the rain as we had a down pour and I did not get it in the house in time. Poor thing but it was old.  

Poor thing this rotted more later and smelt terrible.


Fathers Day. Lindsay came round in the afternoon on her own for a change. She got Paul a mug, pen and a teddy. Wayne sent a bottle of Whisky and Andrew got him beer and is going to pay for the Chinese we had for tea.

So much pain later- what is it?  RSD or the knee recovering, I will soon have answers hopefully as I see Mr Joby John on Wednesday. Not sure what I want to hear from him as if its the RSD playing up it could go on for a while. On the other hand if the operation has not done the job whats next? Any way I soon will know.


Took Summer out on my own today and she was very good. Bit awkward but when we get on the common its easier. She loved it today still quite a bit of water around but its drying up.

Normal day- cleaning up and washing a lovely warm windy day so the clothes dried very quick.

Still struggling with the various pains but sitting down makes it no better so might as well just carry on as much as I can.


Kingsmill Hospital today for the follow up appointment to see Mr Joby John about my knee-- what will he make of it all.
We (Paul and I) got to Kingsmill early so went for a cup of tea and a sandwich. Not there in clinic  very long and we went in. Mr John thinks my knee is still healing and will just take more time. He assured me that even with having the seizures the mend he did, will not fail. He showed me on a drawing he had done. I felt better after him saying this. He suggested a steroid injection like I had last time would help. This did not help last time because the knee needed repairing but now it should. I agreed and went into the treatment room and waited for him. He also said try one crutch when you can and then none. I am to go back in six months.

The injection does hurt but there is an anaesthetic in there to help with the pain. Right here goes, the injection was going in and the pain was crazy, burning like larva and hurting way more than last time. All done just lay there for a while he said, the nurse will come in and tell you when you can go. After he left I felt very strange, pain off the scale and far away feeling. Hot and heart pounding in my chest. The nurse came back and said right get up slowly. I started to and felt like I was not even in my body. She shouted lay back down you look terrible and I felt it- just stay there and you will be OK soon she said. I lay there like I was floating very hot and knee on fire. My body was also getting hotter and painful. She came back in and still said I did not look right. I think we will take your observations. She started with temperature and pulse both were raised. Next blood pressure, this was well high. 210 over 100 plus. No wonder I felt so bad. she asked me what I took for blood pressure I said nothing I don't have high blood pressure. She said we will check it again soon. The nurse came in about ten minutes later, she did the checks again, still very high. The nurses looking after me were Jenny and Lesley- they were very concerned. A more senior Nurse was called Susie came to see me. Paul was asked to sit with me. Two more blood pressures were taken still very high--204- 186 over 100 plus.
Paul went to get a wheel chair but the nurse said stay there I will get one for you. They did not want me walking to the car or walking anywhere. I was getting worried now. The blood pressure was taken again and still the readings were high. They were so concerned that they said I should go to there A and E. Mr Joby John had bean in a few times to check on me as well.

Susie and Jenny I think it was, took me straight there in the wheelchair . I was seen within five minutes. Blood pressure still 186 over 100 plus. They said that I was just below the level to be admitted. Very much at risk from a stroke or heart attack. I was more worried now as I did not feel that good as it was, now worse. Any chest pain or just something different get straight to Lincoln A and E.

I would like to say a big thank you to the Nurses, Jenny, Lesley, and Susie plus Mr Joby John for looking after me so well. Also the Kingmill A and E department. 

Nice to be seen so quick but it does get you a bit worried.
Any way it was the injection. I was fine this morning so I will be tomorrow. I will see my own Doctor or anyone I can tomorrow. If I feel worse chest pains, or any thing different I will go to Lincoln A and E.
The drive home was not good, pain had built up everywhere and my knee was on fire and I was still so hot too.


Saw a Doctor James and he took my blood pressure and it was still very high. 188/114. He wanted me to start taking tablets for it. I said NO leave it a few days and see what happens. I am still sure its a reaction to the STEROID INJECTION and the RSD doing its thing. He said I was very much at risk from heart attack or a stroke They do say some nice things to reassure you!!!. I know it was for my own good but I have never had problems before this apart from illness of course. He has said I will be fitted with a blood pressure monitor soon and that will be arranged by the nurse next week. He will see me in a weeks time. Go home and rest- any chest pains or lack of functions go straight to A and E department.


Happy Birthday Andrew- his day off so that good.

Spent most of my day doing the beds, washing and ironing quite a busy day. Still feel very hot and not right but sitting down is no better so might as well get on with it.


Lindsay came round and said STEROIDS can make your blood pressure go up. I looked it up and it can. RSD makes it worse. When I had one last time before I had my knee done it was alright though. This one did not hurt nowhere as much as this time. May be that the RSD was being kind to me.

Having Jamie Lee over night, hope she is good as I do not feel my best  today. This was arranged a while a go so I could not really say no to her. She will be fine, if not lock her in the shed. We had a game of Monopoly before Lindsay went home, Jamie-Lee won.
Andrews here to play with her as well. Good rest of the day and she went to bed fine but a bit late.


Jamie-Lee slept very well and came with Summer and I on the common which was good. She kicked the ball for Summer and she has got a powerful and controlled kick. Summer loved it and was tired when we came back.

Lindsay picked up Jamie-Lee late afternoon and the rest of the day was pretty calm and quite. She liked Munchkin so much I let her take him.

Went outside and startled a bird and it flew over my head. I felt it hit my hair, good job I did not see it as I don't like birds close. Andrew was in the shed and saw it fly over.


Humid day like yesterday I can feel it, headache again not like before though. That I am sure was the high blood pressure.

Joy is here for a visit. I was going to meet her in town but did not feel up to it. I have not been into town since before I had my knee done (1st May)
Angela was here yesterday, she is doing very well and just about back to normal now.

Pain wise not too bad knee feels very tight but not as swollen as it was.


Colder to day- wheres summer gone? Here Mum not you duckie (Summer dog)

Nurse to day to have Blood pressure monitor put on. She took my blood pressure and it was 125/80 so not high and I had just walked here.. This monitor will take the readings every 25 minutes till midnight then hourly until the 24 hours is up at around 11.45am tomorrow When I go back tomorrow the nurse will access the reading and I will see the Doctor later on to discuss the results. The cuff is very tight and I can feel my arm going numb and it feels sore.


The nurse took off the monitor cuff, my arm was very red .She looked at the reading. She was surprised as the highest blood pressure was only 162/84 that was when I was going to the Doctors. I am still using the crutches as my knee soon hurts if I don't. So its quite hard work and the weather has bean very warm/hot. The lowest was 91/58, this was when I was asleep at 4am. These are normal readings. The nurse was quite surprised at the results, I was not. I did not even have to see the Doctor. I was pleased I did not have the tablets as the Doctor suggested. I knew it was the steroid injection. Another thing I am going to have to be careful about. How many more things are there going to be.


Paul is away for a few days till Monday so just mostly me and Pup. My arm is bruised where the cuff has bean
Hopefully I am going to sort out the greenhouse and put in the tomatoes. First I need to take out the Fuchsias cuttings that have bean growing over the last six months, most of these are to Wayne's for his garden the rest are going in two hanging baskets with some self set Lobilia.

Got the fuchsias out and in a tray for Paul to take. After he had gone I dug and watered the green house. Mixed in some compost and left it a while. Very hot in there 115F-- at one point I felt very dizzy and not quite sure what was going on. A bit of heat stroke I think, had a drink and a long sit down then I felt better. A few hours later they are all in.


Cucumber plant is a bit small so will go in later. I have seeded another four just in case the snails get this one or something else.

I am now very tired so the rest of the day/night  is sit down time. Had a nice bath- Andrew was close in the shed so he listened out for me. Makes it a bit hard now, as I have to have someone here so I can have a bath. (SEIZURE in the bath) No more early morning ones like I used to have.Later Andrew and I had a Chinese for tea/super. Not one of the best but was hungry so ate it. Knee is very painful, in fact I hurt every where I think the RSD is angry.


Cleaned up all downstairs. Very hot so sweating a lot and more sit downs needed. Knee is very painful and going into spasm. The rest of body seems to be in sync with it. I have taken extra pain tablets again today.
Jenny asked me go to her house for a few hours, so that will be very nice. She picked me up. We sat in the garden, which is lovely and tidy and organised. Her husband Bob was there too. He loves trains, Hornby model type ones and has one set up. I also like trains so watched it going round. A very nice afternoon just relaxing and talking. Thank you Jenny and Bob. Jenny took me home and got there just before Andrew came home from work.

Lindsay and Ben called in. Lindsay did not look too good. She was more concerned about me- as she said I looked tired and pale. When its hot I do not eat too much and she was bother about that.

Very heavy air later and a few spits of rain but no storm. I hoped there would be.


Today doing the bedrooms- not as hot today but very windy, so that will help cool things down. Just finished and put the vacuum away when a plant got knocked off the table by the wind, the soil went all over the floor in the dining room. Managed to clean it up with the dustpan and brush. 

Lindsay called in with two homemade chicken curries- a korma and a madras one for me and both home made. Had one later very nice too.

Not a straight forward month-- but at least my knee is not going to be an extra problem, it just needs more time to heal. I was very worried that the SEIZURES had done some damage. I was reassured by Mr Joby John. RSD takes every chance it can to cause trouble- but I am still walking and doing things, so it has not won this fight yet and never will.

Hope things are good with you all and you have bean able to enjoy some of this very warm weather.
All the best to you and see you next time Love Gill.

At least Summer's chilling out with the hot weather.

May 2

May 7th

I feel a bit more with it now, stomach still a bit sore though. I think I might have pulled a few muscles, but that will soon pass hopefully.
I had two cream crackers for dinner and this is the first meal I have had without wrenching and feeling sick.
Knee pain is either terrible or mild. Not too sure how much of that pain is from the RSD. My other knee the side, the RSD started, has bean hurting a lot more too. I know RSD can mirror so it could be that but I think that's usually from the RSD side to the good side. At the moment I have no good side. That will soon change though. I prefer to be outside when I can with Summer when possible. I have said before I feel like a caged animal when I have to stay in.

I am having to go to bed when Paul does first time in years ( INSOMNIA) I listen to my ipod for  around two hours till I felt like I could sleep. I was hoping this OPERATION would help the INSOMNIA like resetting the clock, but no--- its still the same long nights and short days. You do get used to very little sleep though, and it becomes my way of life. Margaret Thatcher did it


Paul out for his dinner as usual. Lindsay here to keep an eye on me. Hands and arm bruising fading now. The RSD cold thing, feeling any little change of temperature for instance like the outside door opening or just someone going past you. This is going crazy--my legs are so cold, arms too. People have got on shorts and summer tops, I am in two long sleeved ones. Hopefully this will pass when I can move around more and get out. Most people get this in early stages of RSD. I still do but not quite as bad as this usually.


Knee a bit sorer today and feels tight might be the stitches pulling it. Not too swollen, less than I thought. Stitches come out 14th so not too long then I can have a bath filled nearly to the top with bubbles and stop in as long as I can. This is usually not very long as my legs complain with pain. I will post a picture of my knee after stitches are out.

My friend is having her stomach operation today so all the best to her, she is very scared I have tried to reassure her and so has her brother. He rang later and she is fine and awake, chatting to everyone.

Watched two episodes of Star trek Discovery with Andrew the second one was very good edge of seat stuff.


Went to see Angela she looks very well, you would never know that she had a big operation. She said she ate all her Sunday roast dinner plus pudding. I have still to get my appetite back.

Paul did roast beef for tea and I managed a small plateful the most I have eaten in nearly two weeks.


Summer had a weird do last night, she was very unsettled when we went to bed, not wanting to go in her basket and a bit shaky. She is very scared of certain beeps and if the smoke alarm beeps to say the battery needs changing, she freaks out. Also certain ring tones on the television. 24 hours in A and E gets her very upset so does GP's behind closed doors.  I watched these with sub titles for a while then gave up, as I don't like them at all. The cat two doors away is Summers friend, he cries out a lot as he is old, probably got dementia. The cry is like he is in great pain. So Summer gets very upset and wants to get out to help him. I think this might have happened last night. She had scratched the bathroom door and cupboard door too. Her claws are very sharp and strong so she made quite a mess. She did this same thing a while back.

 Cupboard door.
Bathroom door.

Went out on my scooter with Paul and Summer, nice the first time I have bean anywhere. The scooter is not easy to get out and impossible for me to do at the moment, hard at the best of times. We are hoping to get the door way and step altered so it will be easier.

My friend Jenny came to see me and bought me some flowers, that was so good of her. Nice to see someone and have a chat. Told me about what had bean going on at Age UK.

The Nurse took out the stitches from my knee, two on each side hardly anything to look at. I have had a lot worse injuries with my seizures. Bath here I come water wings at the ready.

Bath was good I washed my hair but did not stay in long as both legs hurt a lot but it was very nice.

Going to leave the radio on for Summer as back ground noise, hope it will help a bit.


My friend John came round to see me and we had a good catch up chat he has not bean too good him self so it was nice to see him well again.

Summer has bean good over the last two nights so the radio will stay on for a while, whether it helps is any bodies guess. She might even be having a disco!!

Knee very painful today very numb on left side and along the shin same side. RSD not helping but when does it ever??

Chinese for tea, very good it was, small portions for me though.

Had a bath but did not feel too good so got out. I was light headed and dizzy sat on the floor for a while with everything going round and fuzzy fuzzy. I passed out briefly then Paul came in and helped me.
I sat on my chair very clammy and sweating a lot, cold and hot at the same time. After a drink and sit down I felt a bit better. Still not quite right though and I had a bath too I feel like I need another on now after all the sweating. Paul thinks I have the bath water too hot but I don't think so. I know a lot of the time I can't feel hot or cold the same as I used too be for RSD.


Dull start after a few quite nice days. On my own most of day again as Paul is out at a BBQ I could have gone, but its a bit cold for me to sit out side as my temperature levels still not right. All the talk would be football anyway. So me and Summer looked after each other as usual.


Not a good night awake most of it I think its going to bed at a earlier time. My bed time before was later but it suited me and I did sleep a few hours. But last night, ages to get to sleep after listening to the Ipod for two hours. Asleep a bit, awake a lot, this went on till 6-00am then I slept till 8-00am. Soon after I got up. Headache and feeling very tired and wobbly on my feet, and more pain than usual knee very stiff.


Not feeling the best today-- need to get out the house more and back to my normal or near normal self.
My back and shoulders are hurting from the crutches but I still need them for a while yet. Ok in the house but outside it gives me more support.

I did three loads of washing and put it out then ironed later (not a lot though) I have probably said before I sit on the table to iron. That way there is no pressure on my legs.
Not a good day pain wise, just about every where hurts. I thought if I just moved about more this would help but not at all. I don't think it made it any worse just the  RSD being a total dick.


Ness from two doors away came round to see me. She and Squidge work so I don't see her very often. They are all going to Norfolk for a few days. I am looking after Tabby cat and Ben's Hamster Mustard.

Potted up the chilli plants into big pots so they will not need to be potted again. hopefully we will have a few chillies soon.

Went to bed later than Paul tonight, I am now going up and down the stairs on my own now so it makes it a bit easier for me. I am still not too good on the stairs but safe enough. I was not that good before I had my knee done though. Knee pain not too bad but more than I thought it would be by now.


Went in the cupboard where we keep the bread and biscuits.The cream crackers packet was torn. Weird I thought then I saw that the biscuits were nibbled. Oh no we have a mouse. I took everything out and threw away the nibbled things. Washed out the cupboard and left two bits of cheese to see if it was still here. Early hours I looked in the cupboard and staring back at me, was not a mouse but a shrew. A tiny weeny one, looking straight at me, not scared at all, even coming towards me, more like a pet. I shut the door and got a bowl hoping he would jump into it. No he had other ideas he jumped down and ran under the fridge and kept peeking out like it was a game. He then ran out again, around the bin and back under the fridge. I did not want him in the dining room as there are loads of places to hide. He then peeked out from under the fridge again and headed for the open back door. Summer was on the grass before she went to bed. The shrew then started to go more towards the back door, please head out thought. I then thought of Summer coming in, but she did not. He paused on the frame as to say goodbye and off he went into the drain outside the door. I threw the cheese I had left in the cupboard and a few bits of biscuits and shut the door. When I opened it again he had gone. so had the cheese and biscuits Summer was still on the grass. I think he came in the door, no more than two days ago, so its right he should leave by it. By now it was 4-00am so I settled Summer and went to bed. Happy the shrew had gone with out getting hurt. I left some bits in the cupboard just in case he had a mate.


No more sign of more shrew mates so it looks like he was on his own. As I said I think he came in through the door and went under the kick board where there is a gap. I have Christened him Sly as he was was very sly. I just wish I could have got a picture of him, but my camera was upstairs and I did not want to take my eyes off him.

I pricked out my tomato plants and put them in the mini green house its a bit warmer than the big one. I have more than enough so if a few don't make it all will be fine.

Went to see Angela she is doing well but not quite ready yet to come home. Her brother has gone back home to Wales and will come back again soon.


Went on the common with Paul and Summer as I am still on the crutches. I can not go on my own because of Summers lead. Used the finger less gloves (bike gloves) from when I was on crutches before. They stop my hands from getting very sore. Shoulders and arms hurt though and there's no magic cure for them. I use them only when I have to so that helps. Soon hopefully I will not need them. Nice to be out again  and on the common, Summer thought so too.


Went round to feed Tabby (real name Chubby, we have always called him Tabby.) and Mustard, fed them both and stopped awhile stroking Tabby. I played with Mustard for a while but did not take him away from his home. I was a bit afraid I would drop him.

 Mustard. He is a beautiful colour.
Tabby cat (Chubby)


Helped Paul clean up, well-I only did the bathroom but its a start. Sorted out Tabby and Mustard. Tabby is an old cat and quite vocal at times. I shouted him and he comes down the garden wowing at the top of his voice. Very pleased to see me. Took Mustard some cauliflower leaves to munch on, he liked them very much.

My knee is quite painful today and a bit more swollen. Taken a lot more tablets than usual.


Not good news my big cactus has started to go rotten, the one on last months blog. Going to re pot it in some different compost. It did get quite wet last time so that could be it (down pour just after I re potted it) but it was quite soft at the bottom before I started. Hope I can save it. 


I heard Tabby crying around  6pm I went to see what was wrong he cries a lot but this was a bit different. He was wet through and cold so I dried him off fed him and left him in for a while to get warm and dry. When I went back later he was still on the settee, he had a bit more food then went out again.The rain had stopped. Sorted Mustard out so he was happy.

I lost a few tomatoes today because I did not open the greenhouse when the sun came out, it was cold earlier but soon warmed up. Good job I have quite a few.


Ness and family are back later today so last time for Tabby and Mustard. Today is also Emmie's Birthday. Lindsay left Jamie-Lee here while she went to see a friend that went to A and E. She was ok in the end so came back here for a while. Jamie-Lee went with me to feed Tabby and Mustard. Bit nervous of Mustard but she knows Tabby well. He was purring a lot while she stroked him.

Back home again and playing with the cooking set, Duplo, and Buckaroo. We managed to get all the pieces on the mule and he did not kick them off.

There-- everything on.

Lindsay was not feeling her best today and had a sleep while we played.

Popped round to give Emmie her present, a dog hand bag, a bit like Summer she liked it and took it to bed. They were all tired so I did not stay many minutes.


Opened the greenhouse door this morning and the snails have had a few more tomatoes, this happened last year with the cucumbers. Put snail killing pellets all around.
  My little green house.

The cucumbers are still inside the house till they are bigger so they are safe.

I have put the cactus outside hoping it will dry out and start growing again and recover.

Knee not as good as I thought it would be by now, still need the crutches outside the house. May be the RSD is holding it back. I am at the Doctors tomorrow so I will ask her, not seeing my own Doctor this time. If I wanted to see him I think the next appointment would be around the end of July. Stupid or what, taken on too many people with too few Doctors.

I made a very nice chicken curry for tea with rice. Summer had just plain chicken with her biscuits she was pleased as well.


Summer now has a new ball her old one does not even look like a ball now. She accepted the new one better than other times I wrapped the old ball round the new one in my pocket so I think that helped.

Spot the new one.

I now have my appointments to see Mr Joby John at Kingsmill 19th June, and one to see Doctor Solinas for my seizures on July 24th.

Appointment with Doctor Patterson-- She was running late by over twenty minutes. I went in and she asked what she could do for me? I said I have a few things I need to ask you about. She said only one thing as I am running late!!!!! I started to go through my list not being put off by what she said. This appointment was made over two weeks ago then changed so I was going to make the full use of it what ever she said. Paul was in the waiting room and said I was in there no more then ten minutes half the time I had waited to be seen..

Lindsay and Jamie-Lee came round on their bikes. Jamie-Lee had biked from her house around a mile and half.

We made a picture frame, also some wood puzzles that you take apart, then some how get them back together again. She did very well getting two back again. Lindsay helped her with the last one.

They left around four pm.By the end of the day- Jamie-Lee had biked around four miles. Lindsay thought she would be tired No she wanted to walk Suey their dog.

Well for me its bean a very long hard month with extra pain and not bean able to get out and do what I usually do. Very frustrating to say the least, fine if you like TV or just lounging around. Not for me though. Hopefully that will improve more than it has. I thought after a month I would be nearly back to full mobility. As I said before I am not a patient patient.

Hope things are going well for you all-- the days are warmer and lighter now so that usually helps RSD pain and mood. All the very best to you all Love gill.

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