Well here we are in February I think January seemed a long month, to me any way.

1st February

My Brother and Sister in law called in, they are both doing better now after the accident in their car last year. Good to see them, I asked if they would take me to Pilate's so I could see them a bit longer they said yes. Paul is not driving at the moment as he has eye problems.

Pilate's one word-- painful. I think just about everywhere hurt. Electric shocks in my fingers going up my arm on the right side. Right shoulder is hypersensitive too, in fact most of the rest of me is too but not as bad as shoulder. You probably know the feeling, ants crawling on the skin and frequent electric shocks.


Woke to bad spasms in my legs very painful, hopefully ACCUE will help today as I have a session.

The student today was Nansen, on his own. 16 needles in my shoulders and arms. These were very painful with strange reactions of extra pain, cold and hot sensations shooting all over. The needles are very fine but felt like knives in my right side. The neck ones I think were the worst. Nansen said my neck was very bad the worst he had seen it. He asked if I had extra pain YES I said a lot. He could feel the crackle and movement of the ARTHRITIS I have there. This is not usually a problem, well not a big one it does play up from time to time, but I can usually cope with it.
Needles also in my legs, 3 in each, these were painful as well. Next after a few minutes rest as I had bean laying face down for about twenty minutes, so he likes me to rest a while, before any other treatment is started. A lovely massage followed of my neck, shoulders, back, arms and legs.. Nice but still painful today.

Saw my older brother and his girlfriend later in town as I did my shopping. Home then for a rest Nansen said not to over do it for the next few days as this was a big treatment.


A sunny windy day but cold. Angela here for a cup of coffee. A lot of pain still plus the pain from the ACCUE a few bruises and lumps have appeared.  Still ants feeling over shoulders. The ACCUE usually makes me feel worst to start with, then helps mostly.


Another very cold day (washing out for the first time in a week) this made my headache at the bit where I bumped it on Jan 1st, just about healed now.

Went to the crematorium to take flowers for my Parents and Brother, Summer went too its quite a long way for her about two and half plus miles, may be more. Very cold wind that felt like it took my head off. On the way back we met up with some young Travelers. I spoke to them for a while then headed for home. They had three dogs with them and Summer was a bit uneasy. I reassured her and she calmed down. I was pleased to get in out the cold. Summer was very tired and had a sleep.
I sat down had a cup of tea and did a bit of knitting. I am making baby clothes for Joy for a relation who gets a baby in June. Nice to be knitting bigger things after the tiny dolls things. A long while since I made little cardigans.


A very frosty start to the day. Still more pain than I would like but who are we to chose. Cleaning the bedrooms, Paul is doing the computer room and me the rest.  Now its getting lighter Summer has started getting two walks a day now, the afternoon one not as far.

Walking back they are usually a crop of snowdrops but this year they are a lot later. Last year late December and early January. I love Snowdrop and have a lot in the garden. 

Lovely snowdrops is spring on the way?

Head hurts a lot on the bump again not sure why unless its the cold air. This has bled a bit over night.


Going to the pictures with Angela today to see "Sing" a cartoon animation film about animals auditioning for a singing competition. The trailer look good so hears to another good film.
The film was very good. Angela enjoyed it a lot and we both laughed.


Pilate's went well, usual pain and soreness. B12 later, even this went well and did not hurt too much.

Lindsay not too good she has had a bad few days. Hopefully an appointment with a Doctor tomorrow will help and speed things up for treatment or whatever they are going to do.


At last a day out to see my friend Bev in Beeston. We met up with Russ, her son, who I have known a long time, used to run with him. (Happy days). He spent a lot of time at our house even stopping a few nights. I took the dolly stuff for Bev's Granddaughter I have bean making she was so pleased with them. Very much the same as Jamie-Lee's set I made her for Christmas.

We went out for dinner/ Lunch and was both treated by Bev. A good day just catching up we visited a garden center and fish place. Bev bought two fish for her tank. Did not get home till about seven thirty a long day and was so cold when I got off the train. Bev lent me some gloves as I forgot to take mine, tired but very pleased I went.


Age UK again very busy, slow to start but then--- a few bus loads. There was a bit of snow earlier so I think people were waiting to see what happen. Shopping, then home got a heavy load of bags, by the time I got home I hurt, fool should have got the bus, but I was going to drop a card off on the way home but hurt too much. I took it later with Summer, at least she was pleased.


Got Tommy-Lee later I think. but he has not bean too well tonsillitis again, poor Tommy, he did end up coming here later. We watched a DVD called the Doll House, about a place wiping peoples minds and re programing them to become what ever the people paying, wanted them to be. Released in  2009. Very good I left Tommy to watch quite a lot on his own as I had already watched a few earlier in the week. Wayne bought me the box set for Christmas. Strange but very good. Tommy-Lee was still a bit off it, he said his throat still hurt him, but still managed to beat me at cards.


Very cold wind, like ice, I think Summer even felt cold as she only had a little walk today and soon wanted to come home. She jumped up on my chair ready for her sleep I sat with her and she did feel cold. She was not the only one either.
Lindsay picked Tommy-Lee up about five. She has bean away for the weekend with Ben.


Happy Birthday to me.  Presents and cards very nice, my friend Lyn has bean to see me as well.
All the Lincoln family here for a Chinese takeaway for tea, good is was too. Jamie-Lee gets very excited  and could hardly wait for my cake to be lit and they all sung Happy Birthday to me. A lovely day and Thank you every one.

Pitures to be added at a later date.


Woke early with a bad head, managed to get back to sleep. I have had quite a few mixtures from the HERBAL team but not felt much difference as yet. Sleeping is still the same, bed anywhere from three am to six am. People say how do you survive on so little sleep--- I say I don't know, I just do.

Went to Asda and bought a pair of leather boots and a shirt, exchanged a jumper too. Paul got me the boots and shirt for my Birthday.

Bad head again across the front I caught the cut with my hair brush and made it bleed quite a lot. This is certainly taking a long time to heal. (Happened New Years day)

Went on my bike for a test as I would like to go to Pilate's on it tomorrow if I can. Everything good and working well, felt good to be back on it again. My bike is electric or pedal assisted or ride as normal I usually have it on peddle assisted. Hopefully next month I would like to try and run again. I still miss it dreadfully and feel bad when I see people running. Some I know and they say are you back running yet? NO. A lady I know that lives in the street wants to run so we are hopefully starting in March.


Short night again but I did have twenty minutes around four thirty am.

I am going on my bike to Pilate's the weather is milder but a cold wind again. The ride was good, apart from a car that pulled out a side road,  I thought he was not going to stop, the driver wound down his window and put his hand up as if to say sorry.
Pilate's went OK but shoulder not good very painful and foot spasms again. Going home no problems apart from when I got home I had no key. I knew Paul would be home soon and he was. Trouble was Summer knew I was at the door and started crying not understanding I could not get in.


A lot going on more than usual. Wayne is not too good started on some new tablets and they have made him feel very bad. Sick all the time. He is going to talk to his Doctor. He said he has not felt right for a while but did not want to worry me.

Lindsay is not good either, still no further with Hospital and Doctors. I don't think they know what to do, but meanwhile she is getting worse. The extra bit she has in her brain is now two parts and not one.

Andrew on the other side is doing well, work is going good. He has met someone he quite likes.

Me I have a lot of pain in my shoulders and knees.

Summer had her haircut today look at all that came off.
 I saw some one that knows her and they said has she had lost weight? I said no- just a hair cut.


Age UK busy again very tired at the end of my stint, Bit of shopping then on to the Doctors.

Picked up tablets on the way back, or at least tried to. The chemist said we have not received a prescription from the Doctors as yet. Done on line as usual so I went to the Doctors to see what was going on as this was put in on 11th Feb. They said NO its at the Chemist. Back there-- no they have not received this as all their incomings are logged. I said can you ring them as this so far has taken over half an hour. They spoke to each other and they agreed to write another prescription out. TWO DAYS they said---NO I said today, but a prescription needs two days. There are Doctors here now,  get one of them to write it. I said its had nearly a week. I had to sit there till a Doctor sorted it out. One of the tablets I needed was the Morphine one  OXYCODONE. If I don't get it I will go into withdrawal.

Finally got the prescription after all this, the chemist did not have OXYCODONE one. This is usually ordered as soon as they get the prescription- but because of the mess up it was not. With it being a controlled drug there are rules they have to follow. Tomorrow for certain. They said they have had a lot of people doing their prescriptions on line like me and got the same response I got. Not good enough over an hour wasted. On the way back to the chemist I noticed a poster saying "why are you waiting, do it online and it will be waiting for you". NO NOT TRUE. Home an hour and half after I  first arrived at the chemist.
Very tired and in a lot of pain a sit down, tablets and a cup of tea helped.


Got tablets from chemist as promised. She said they have made a lot of people happy today.
A nice sunny windy day washing out for the first time in ages dried too.

Wayne still bad if not worse, blood now coming up. I said maybe A and E?.  Trouble is when you  continued to be sick nothing is going in so you can become dehydrated very quickly.

Blue sky again what more can I ask for--well quite a lot really. Knees and shoulders very sore today.
I did quite a bit done in the garden today, looks nice now. Things are growing well and bits are coming up, not sure what some are but will know soon.


Found out today that vitamin  D can help stop colds. I take this twice a day (with CALCIUM) for OSTEOPOROSIS  I have not bean getting many small colds since I first got RSD. I thought it was something to do with this. I still get nasty virus type things or flu that will last a few weeks though.

A lot of pain in my legs when sitting, bit like cramp/spasms without the tightness, nerve pain not good also knees are bad today.

Poor Wayne is still bad and worse, as he is so week and lost so much weight now still nothing stopping down. He says he is hot and shaking and smells. Even Timmy cat is keeping his distance. Poor Wayne. He has bean in touch with the Doctor again for advice.


Nana funeral today at least she got her 100th Birthday last year. A lot there, pleased she was remembered. A lovely lady, she had a long and varied life. Think what she has seen alter in the 100 years she has lived. Two wars, changes of Prime Mister, technology, fashion, plus many other things too. Lindsay and I did not go to the after buffet thing.  I did not want to, Lindsay was not too good either we came back home here to be with Summer.

My pain has backed off a bit but I have bean taking a lot of IBRUES and DIHYDROCODINE.


Very wet and slippery on the common and so windy after the affects of storm "Doris". I slipped and pulled my hip out a bit, it does this from time to time often in Pilate's, well the pain made me scream out and frightened a few birds. I have to wiggle my leg and hip to get it back in again this itself is as painful, as I am not sure which way to take it. After a few very painful minutes, it went back to its place. The pain died down straight away to a more manageable level. Bit tender the rest of the day but not too bad but I am on a lot of pain stuff.

Joy came round and I showed her the baby cardigans, she was very pleased and loved them, two down and two to go. I made an extra one from me. I will post a picture later when all are done.

Lindsay also called in, she is looking bad, she had words with the Doctor and he is trying to hurry things up as day to day she is getting no better, a lot worse. This is a tremendous worry for us and terrible for her

Later when I had my bath there was a bit of bruising around the hip..


A very large purple bruise around my hip, swollen too, feels quite sore.. I showed Paul and he was shocked.

This just came up after my trip!!

I don't tend to make too much of my pain as people are not really interested as it is on going all the time.

Age UK one word--MANIC--busy none stop all the time up till about two o'clock. Even then we had people in asking for meals. This place is very popular. Not surprised how cheap it is. My hip hurt with being on my feet all the time.

Bit of Shopping, buttons for cardigans I have made. Also picked up tickets for a live show, screened from London theatre Angela and I are going to on March 9th called Hedda Gabler.  

Wayne has bean admitted to Halifax Hospital and is in a bad way he can not keep anything down and is severely dehydrated and bringing up blood. They have put him on a drip which he says has made him feel a bit better. Also Xrays of chest done and blood taken. To start with they could get none as his veins had shrunk. Later he was transferred to Huddersfield Hospital. He has bean in touch and still nothing will stop down. Poor Wayne all on his own so far away.


Bruise still as big and a lot blacker-painful at times.

Wayne has bean in touch and is about the same still nothing will stay down not even water, still on the drip. They are thinking this is more than a reaction to the tablets, so more tests are to be done.

Got Tommy-Lee and Jamie-Lee to sleep tonight as Jay-Jay is having a teenage sleep over with his friends. This way he will not be bother by his sister. Have a good time Jay-Jay soon will be your Birthday-- 6th March then you will be a teenager. Look out Lindsay this is where it all starts. hope he is not as bad as you was!!!!!

The children were good and both slept well but bed time a bit later than usual. Tommy has football tomorrow but not till the afternoon.


Jamie-Lee was up and not happy with Tommy-Lee because he went back to bed.
Most of the day with Jamie-Lee playing. We did a 200 piece puzzle that glowed in the dark, plus one of Jamie-Lee 100 piece ones. she is good at puzzles and enjoys doing them.
They both decorated biscuits later in the day.

 Jamie-Lee and her Biscuit..


Tommy-Lee was picked up for football after Jay-Jay and two of his friends plus Tommy-Lee went Trampolining. This was a good time for them and they all enjoyed it. Jamie-Lee stayed here with me and was picked up around 8.30pm. She was tired and ready for bed. I think they all were.


Spoke to Wayne he is still in Hospital but doing better and feels more like he should. Still on a drip, he will be there for a few more day yet, as still being sick but no blood now. This in itself is a great relief for him and us. He is having a camera down his throat tomorrow--- also a scan.


Had an herbal appointment today. We discussed how I have bean since last time. I said the tea I will carry on with, not any of the other tinctures. I don't think they are doing much to help me and they are not cheap either .I hope to reduce my OXYCODONE soon. Maybe then I will try some more herbal mix to boost me a bit.

Summer had her booster injection as usual, no trouble, she got a treat as well. Tracy took us both in the car, Jamie-Lee came too and she said Summer was very brave. Jamie-Lee had her injections last week.

Well another mixed month a lot of downs plus a few ups but that's life. All the very best to you all
hope life is treating you well.. Love Gill.



I thought I would start the New Year off with a few pictures from the end of last year as there were a lot on December's Blog.
 Deep in thought. Jay-Jay.
 Smiling Tom.
Curly Jamie-Lee.
 Wayne, Lindsay and Andrew. We did not realize how tall Andrew had got till this picture was taken.
 Jamie giving a tired Summer some attention I was tired too, quite too steady at Age UK. 
 My lovely Grandchildren- well mostly.
 Add a equally lovely caring Mum. 
 All together now.
 Joined by Paul this time. Jamie-Lee not Happy???
  Jamie cried because she said Summer was not in any pictures and she is Family too.
So here she is- and Jamie-Lee is right Summer is very much Family. Jamie-Lee happy now.
 Jamie kept tickling Summers belly and making her wriggle.
 Paul, Lindsay and me.
I think this a brilliant picture.
Tin of Westie biscuits I got as a present from Nes, I actually got two tins, one from another street neighbour. The biscuits are Westie shaped as well..

Happy New Year to everyone. 

Well I started off the year with a BANG walked into the bathroom door causing a deep gash and a bump to my forehead. The force of the impact knocked me back on to the bathroom sink, this in turn hurt my right hip. The head bleeding went on for quite a while. I decided not to go to the Hospital as I was feeling alright, a bit dizzy to start but that soon passed and I was not knocked out, in a lot of pain though. Sat down the rest of the night. I was a bit worried how my body would react to this. May be more pain or a seizure. NO just the the bump and a big headache-- I was so pleased. Still bleeding hours later Paul put a dressing on it for me.


Head very sore and still bleeding,  dressing on still, not doing too much today. That is apart from taking Jay-Jay to get him some shoes. This did not go well as no one had any that would fit, or he liked, at Clark's both shops plus various cheaper ones. With this being a Bank Holiday the shops also shut early. Paul even took us to Sainsbury's. I rung up first and they were open till 7-00pm, yes the store was but not the shoe shop. Wasted journey? Not quite-- I got a new mixer and Andrew some new shoes. Bad head later and very tired. 


Pilate's, first one of the year, Joy not here she has a bad back. I went on the bus today. A good session but I felt quite stiff specially around my hip where it hit the sink. Other wise quite good but made my head bleed again. Came back with a pounding head. Took a few IBRUES that helped a lot. 


My Daughter got a new washing machine yesterday in place of her broken down one, it was through the insurance. This I am pleased about so I don't have to do her washing any more. This time of the year there is no good days to dry them. Many of the children's tops with logos can't go in the dryer. I know she is pleased as before Christmas they said they were gong to repair it. 

A nice sunny day, washed the bedding and managed to get it dry outside. A lovely walk on the common with Summer. Cold but nice. I know Summer enjoyed it and was running around like a little Pup.

I have a lot of pain today, joints and head also. I feel like my body is detached from brain today, a far away feeling. Not sure if this is the bump or ????. 

Summer had another walk later with Andrew also. She was very Pupped up and excited like she was meeting someone. We half expected a dog to be waiting for her on a corner. Very cold tonight sharp frost I think later.


Age UK today again. On the way I took a jacket back for Jay-Jay waited in the queue for ages. While there a lady stole a coat, the staff went after her and got it back. She was then questioned by the security man, one of the shop assistants said. This made me a bit late but Nill's was not too bothered as he knew I would be coming in. We were quite busy too.


A quite day, Lindsay's not here so just the three of us, Andrew here still. Plus Summer as well.
My head is still a bit sore and headache, still it is healing, but slow, but I suppose it's early days, still less than a week.

 Still a bit nasty looking.Taken today.

I have bean waking up the last few morning really sweating. I had this a bit back but I thought it had settled down, I was wrong, makes my short nights even shorter. I did wonder if it was the HERBAL TINCTURE I am taking from the Herbalist at the college..I will keep taking it for a while and see if I can come to some conclusion.


Got two little extra ones today-- Nes asked if I would look after Emmie (4) for her, her brother Ben (9) came round a bit later to get her and ended up stopping while their Dad got tea. They both had a good time playing so did Summer. Neither of them really wanted to go home and Summer wanted them to stay too.

 Summer dressed up.

Emmie playing with Summer, she thought it was very funny when I put a dress on Summer. As you can see Summer does not mind a bit.

Pilates today this was taken by Jeff this time. A good session I thought some of the other ladies were not too sure, as it was a bit faster than Jo's classes. Joy has still got a bad back so was not here.

Summer has had a few extra afternoon walks with Andrew and I, she enjoys these. She is a dog that would walk all day-- or be satisfied with her usual trot in the Morning. Easy to please she is.

Lindsay called in and advised me to have my head checked out. I am going to ACCUE tomorrow and that is near to the Walk in Centre ( like A&E) so I will call in after. A few people have said I should have it checked as its very slow to heal. This was a deep gash though, I don't think they will do anything now though.

Knitting later, these are more little doll cribs plus clothes for four inch dolls, presents for two little girls later in the year.


Joy is here here today still having a lot of trouble with her back. I have lent her some knitting patterns for baby things as her niece is having a baby later on in the year.

We both went into town together on the bus. I carried on to ACCUE. Bought them up to date with everything and showed them my head I had a dressing on it as it bled last night after my bath.

ACCUE treatment was this-- By Candy with Hassim and Fangi looking in. Four needles in each knee, one in each wrist, one in my head and also ear seeds to help with relaxing. They asked about the TINCTURE I was given I said it has not helped me much if at all, also about the sweating.  Hopefully the  ACCUE treatment will help. Over time this has become less affect.

Called at the Drop in Centre and saw a very nice Doctor who looked at my head. She agreed it was a deep gash. I should have gone on the day I did it she said and asked why I did not. I said it was January 1st all the people who had accidents last night would have bean there, so I did not feel like going to wait for hours. (I have bean before for various things and waited ages) She said I should still have gone the next day. Maybe I should have.

Nothing needs to be done now and she asked why I had come today. I said because everyone said I should have it checked, and it was slow healing. She said it would take time to heal as it was so deep. If I had gone on the day it would have had a few stitches. Not possible now because of the skin around the wound started to heal. I am to look for any infection in case it gets infected it would possibly infect the bone. No need for a dressing unless it bleeds again.

Later I banged my head in the bath. I put the bath mat upside down and tried to turn it over while sat on it and leaned forward too far and bumped my head on the tap. Only a little bump but enough to make it open up again and bleed again.


A cold day, snow in places and we had a flutter earlier. Some places have had a few inches and are quite bad with Schools and work places shut. A bit of Snow and Britain falls apart. Very cold on the common but Summer enjoyed it a lot.

Age UK today Nills said it had bean a mixed week with some busy and slow bits. One lady always seems to be in everybody's way and today she was the worst ever. In places she should not be, and doing things she should not be doing. I even had to ask Nills to have a word with her. An accident waiting to happen. Well the rest of the day was alright.


Last day here for Andrew as he is going back home to Amsterdam today. He has bean here a lot longer this time. Arriving 20th December. We will miss him, Summer will a lot and I know she will cry. Paul is taking him to Doncaster Airport for 2-55pm flight. They got off on time too which was good. I took Summer for her walk late after we all said goodbye. I thought this would help her.

 Coins Andrew left for rent while he was here-- GOLD,     NO CHOCOLATE. Thank you Andrew.
We had a good walk and she seemed fine when we got back not looking for Andrew at all.
She did get very mucky as this dog kept jumping on her wanting her to play. 

About 4-00 pm (Amsterdam an hour ahead) Paul had a message saying that Andrew had landed and everything was good.
See you next time Andrew.


Sorting out bedrooms and general house work.

Paul, Lindsay and the boys are at Lincoln v Ipswich tonight. This is the first Lincoln match they have bean to. Lincoln are expected to win as well. Lincoln did win in the last few minutes. The boys enjoyed it so much and they were on TV's Calendar News doing an interview. They were so excited. Lindsay suffered a lot with the noise and cold, she came back with a banging headache.


Pilates today walked quite a long way as the bus I was on did a detour. I did not know where I was with not knowing Heighington. A nice dog walker pointed me in the right direction and I managed to find the hall for my Pilates session. I missed a bit but soon caught up. My joints hurt but apart from that I did good. Even got a lift home with Jo (the tutor). Thank you Jo.

Angela came round later she is doing well and enjoying her job mostly.

A bit of bad news later-- Paul's Nanna has passed away in her sleep. The one hundred year old lady whose Birthday pictures were on last months blog. She will be missed by a few people.



Age UK busy as usual. No major accidents either. Everyone behaved today as well.
Bit of shopping then home. I have got the children tomorrow, so getting the bedrooms ready for them.


Only two children to stay for the night. Tommy-Lee and Jamie-Lee. Jay-Jay is staying at home this time. Played with Jamie for a lot of the time mostly dolls.

These are the dolls clothes I made for Jamie-Lee for Christmas. The basket I made a few years ago. Note the tiny doll in the basket within the larger basket. I just made her a bed and a blanket. The dolls are 4"-5" high and the tiny one less than an inch.

This little doll is tiny less than two inches high. Jamie said she was cold as she had no clothes. I made her a dress. She then said her feet are cold, so little shoes. Next she said these have no shoes Nanny--all five of them . I said no more, they will have to stay under a blanket. The shoes I made were very fiddly.

After she had gone to bed and settled I had a long chat with Tommy-Lee just about general things. We then played cards I won one game and the next game he slaughtered me, winning 11 hands to two, we play go fish.


Jamie woke up about eight, after a nine hour sleep.  She said she had a good sleep, Tommy also had a good night as well.

I went on the common with Summer and left the children with Paul. He did crumpets for them both. Very cold and frosty today. Lindsay came about four to pick them up. Both were good and well behaved.


A visit from my friend John in the afternoon, he is busy but doing well and he is happy. He is one of the people I made a Christmas cake for, he said it was very good. When taking it home he hardly got inside his house before he had some, very funny. He was very pleased as last year he had a small cake, this year a lot bigger one.


I have an HERBAL appointment today to see how I am getting on with the drops and things they gave me last time, I said they have not made a lot of difference to me and the sleep stuff has not done anything. I have agreed to carry on a while just to see if things change.

Went to Joy's for a very brief visit, she is doing better now but still in pain with her back, Next week she is going to see a specialist.

One of my tablets has bean stopped without any discussion with me. I have a call later booked to see whats its all about.

Spoke to the Doctor, he said I have bean on it a while about nine years. So I need to have another DEXTA SCAN to see how things are going. After the results we can see if I still need to take them or something else or better still, no tablets.


Pilates again on the bus, but this time no detour. Very cold and frosty. A good session no major problems but quite a bit of pain in my shoulders. Shins hurt a lot today not too sure why, maybe because its cold or just because they want to!!!

Afternoon, doing this blog and tea.


Age UK again very busy today right from 11.30 through to 2pm. We have 22 tables and at no point was there one free for more than a few minutes. Only two waitress's as well so they did a brilliant job keeping all the customers happy.

I had to make two hot chocolate drinks and as I took the co-co powder tub out from the bottom shelf, the marshmallow tub fell forward and a lot fell out, about half a tub full, Nills said that will come out your wages. The customer looked very shocked then we explained that I am a Volunteer and get no wages (we get a meal if we want). The customer laughed and looked relieved.

I left there to do a bit of shopping, wool and MAGNESIUM BATH SALTS  I tried this a few years ago and was very HYPERTENSIVE to it, (this was when I was with Wietse the physio, probably around 2008 plus) The HERBALS asked me to try it again as they said it might help the nerves to calm down a bit, and generally relax me. Funny because on the way there last Tuesday I picked up the same packet I got today, and wondered if I should give it another try. Weird or what. I walked around and got the things I needed.

I wonder why I felt so cold I knew the icy wind had got stronger but something was missing. NO not my coat but my scarf. I had left it at Age UK so had to go back for it, quite a way as out the town centre,  but its a week till I go again. The scarf means a lot to me as Cilla the lady next door gave me it. A cashmere and silk one so not cheap and very temping to a thief. Scarf picked up and put on home please. A lot warmer now.

I tried the bath salts later and I was fine no bad reaction to them, quite a warm feeling though. Did it help me sleep though???


The answer to sleep is NO but I will keep trying. One night I did sleep over four hours straight, so that's good.

My head is healing quite well now after a very slow start. The pain has mostly stopped too. The cold still causes a bit of pain though, so I pull my hat down and that helps.

Well the end of the another month, the first of 2017. I think this went alright too. Apart from my head .Hopefully this year I will keep away from hospital and more accidents..

All the very best to you all in 2017 and I hope this will be good year for you all. Love Gill.


1st December

Well the last month of this year and of course the last blog.

My mouth sore is improving and its easier to eat now. Accue today. I brought them up to date with the changes, like my eye socket pain and hip and joint pain. The team treating me were the same as last time Jason, Candy, Hasim and Brett. I had needles in my shoulder and hip to start with. After these had done there job. There were more in my wrist and in my forehead. Hopefully this will help the eye pain. Another one in the top of my head. Also ear seeds; one in each ear. I am to press these to relax me, I have had these before.


Age UK-- Nills said they had not bean busy all week. I said, they have followed me again and we will be busy today.  Callum is not here neither is Gwen. Not a lot of Waitresses either. We did get very busy too. 

Not as cold today like the last few days it had warmed up quite a bit while I was in Age UK.


Christmas meal out at dinner with Paul, and a lot of others from IA.  I had made a Christmas jumper to wear. All was looking good till I lifted it off the table and all the decorations dropped off. A second choice of a Santa jacket was what I wore instead. Paul wore the full suit. They all said we looked like Mr and Mrs Christmas. The meal was good, a nice time out meeting people I have not seen for a while.

 Skinny Christmas.

A lot of nerve pain and joint pain today.


Lindsay finally has her appointment for her head at Sheffield. This has bean changed twice already.
I was going to look after Jamie-Lee, but the children are all ill with this NOROVIRUS. Lindsay was up most of the night with Jamie-Lee then Tommy-Lee felt ill so did Jay-Jay. So I did not have her today. Hope they all soon recover. Jamie-Lee's play is on tomorrow so she will miss it. Poor Jamie-Lee she was so looking forward to it and I was going to watch her.

Lindsay has seen the Doctor and this is what she said - Lincoln Hospital should not have let her go home when they did. She should have bean taken to Sheffield straight away where she would have received specialist care. Lindsay did say that they were not doing anything for her and the noise and light were terrible, hospitals have lights on constantly and can be very noisy places. So it was part her decision to leave. The Doctor said she was not surprised at that choice. The scans that have bean taken show the same finding no worse or no better.

They are going to see if they can reduce the pain she is getting and introducing some different treatments. One is BOTOX injected in to the head. She will see a headache pain specialist probably to change her tablets for something more effective, another even more detailed scan plus repeating the the same scan again to compare. Also she is seeing a more experienced neurologist.

Lindsay felt more at ease with these plans, and said this Doctor seemed to  understand what was going on. As in the past times it seemed doubtful. All that needs doing now is to get started with it all so she can get her life back. I just hope this happens very soon. She is back at Sheffield in three months so everything needs to have happen be for then.


Herbalist appointment today, last time I was given drops last time to calm me down. I have felt much different though may be a bit calmer.  Today I have bean given some of the same drops plus some tonic drops also some tincture to help me sleep. WELL!! This lot cost me £30 so I hope it does something.

I was also given a print out of a book by Professor Lorimer Mossley and David Bulter,  both Australians as not much research is going on in UK. It is titled "The Explain Pain Hand book". This deals with pain much the same way as I have bean doing the last few years through mindfulness.

Shutting out the pain and not letting it take over. I can remember a few Blogs with RSD 1 - Gill 2  which shows I was winning or RSD 3 - Gill 1 that time the pain would have over powered me. Just small things that made me feel like I was at least, trying to help my self, and not relay on tablets more and more. I think it worked for me, as over 12 years later, and still walking, painful most of the time but still keeping going. How I am not even sure my self.  People say how do you do it ?? Other say you are strong willed. I say I want a life, hard as it is; its better than a wheelchair one. I know this as I spent a lot of time in one, also crutches for over three years in the early days. I HATED IT, having to rely on someone else to do things for you was not an option that  I wanted. No one does but for some it be comes permanent.

As Sir Elton John says..... I AM STILL STANDING. Hopefully I will keep doing, so as long as things don't get worse and the worst seizures stay away.


Would have bean my Dads Birthday today, 95 what would he say to all this? He died soon after I was diagnosed. I think it would have made him very unhappy to see his only Daughter, and Granddaughter suffering..

Pilate's went well Joy was back too,she is more or less recovered. She enjoyed the session as well.

OH NO-- Lindsay has the virus she is feeling very bad no tablets are keeping down so head pain is extreme. Get better soon Lindsay, she said stay away, normally I would have gone to help her but I don't want the virus (no one does) but if I get it the RSD will make a big thing out of it and I will suffer badly, a 24-48 hour virus will become a least a week long.

We have the builders here to re roof the kitchen and bathroom part of the hose and cement the end wall.


Age UK busy as usual. Some things went wrong today but that's part of the fun. I put milk in the tea pot then put t bags in the hot water jug. The customer did not mind as he got two pots of tea for the price of one.

Out for at meal at night with his family Nosey Parker's just down the road. I had gammon and it was very tasty.


Got Jamie-Lee here for a few hours till Tracy picks her up. She was good and played mostly with the Pay doe.

In the afternoon Paul and I went to see Cinderella the Christmas Pantomime at the Theatre Royal.
We were given tickets by a friend.We had good seats too The Royal Circle no less.

The Music started and I nearly shot out my seat, so loud. I thought I don't know if I can cope with this!!! When the Actors started the music went down a bit, thank goodness and I was able to enjoy the performance. Not with out pain though. My knees have gone crazy this week with a lot of pain deep in my joints more the knees. I know when the music started my pain levels shot up to danger zone.

Just be for we set off to the theatre I realised that I had lost my Teddy brooch that my Mum gave me the last Christmas she was here ( she passed away in November 2004). I was very up set, this brooch had not left my jewellery box for twelve years. The first time it did, I loose it. I wore it last night.

Paul and I went back to the Nosey Parker to see if it dropped off there, but no I looked at home but no luck. This put a bit of a dampener on the day as  could not stop thinking about it.

Lindsay phoned up and could sense some thing was wrong as she was out for the day I just said
 not to worry. She praised it out of me and said she would put it on Face Book. You never know some one could have picked it up in the car park. Thank you Lindsay, and every one else who shared and cared..

The Pantomime was very good and I enjoyed it a lot. Thank you Peggy for the tickets.

 Already to go. Oh no we are not.
 Lets begin.
 Me- ready for the start.
 Kerry Katatona.

  The end.

 Coming back we took pictures of the Christmas lights.....

  Very nice they are too.

When I was in the bedroom a teddy bear dropped off my rocking chair This is where they all sit.
This was a bit strange as he sits well back from the edge, not easy for him to fall off I picked him up and put him back...then I saw my brooch. This must have dropped off when I put my cardigan on the back of the chair. Was Mum helping me?? I was crying all over again Happy tears this time. This went straight back in my jewellery box and I don't think it will come out again.


Icing all the Christmas cakes ten in all.

My friend Angela started a new job today I hope she gets on well.

My knees have gone CRAZY they hurt so much. Like tooth ache not letting up at all. The weather has bean mild and damp for the last few day so that I think has something to do with it. I just wish they would ease up.

Had to go out and get more eggs and icing sugar as I had ran out. Got back and finished the cakes. The builders are getting on well with the roof over the kitchen and bathroom, despite getting rained off a few times.


My friend Bev is here today from Beeston. I have not seen her for a while so we had plenty to talk about.

She has bean to America, and also got a new Grandson. I too had plenty to tell her, not as exciting as her news but news all the same. Talked about Lindsay, She is having a bit of a better week. All too soon it was time for her to go. Exchanged presents then said our goodbyes till next time..


Pilate's today, PAIN everywhere. After I went into town to get some Christmas presents, shopping and Paul are not a good combination. Most things we saw were in the wrong size or the wrong colour. We did manage to get some presents though.

I am now tired but will I sleep? Knees hurt like hell, even the burn!

Builders have now finished and work looks good. The older builder would like a cake as well, so that's another one to make.This will be over the weekend and will make it eleven in total. Many more and I will be opening a bakery.


Another mild day where has winter gone. I prefer the colder sunny weather than the damp warmer  
type. I think the damp weather causes me as much pain as the cold frosty type.

Went with Angela today to see one of her friends. She is a nice lady who can not get out much now as she has bad legs. She loves to talk and most of what she says is very interesting. Shame she is mostly house bound, I would hate it. Once I stopped in for a month after being in Hospital, the first two weeks were alright because I was so week but after that I felt like a caged lion.

After tea Paul and I went to do a bit more Christmas shopping at the BIG up hill Tescos. This place is huge, built last year I think. We did get a few bits so it was not a wasted journey.


Age UK are having the third party for the old uns today. I bet the kitchen staff are pleased its the last one.  This is a three course set Christmas meal. About one hundred and eighty people today and about the same the previous two days. I wore my made up Christmas jumper which was a disaster on the IA Christmas meal (4th) as every thing dropped off. This time most stopped on but Santa did only have one eye at the end.
A good day but very tired when all done. I needed to do some shopping as well so I did not get home till six pm.


Foggy  day and very cold. Made the builders cake so number eleven and the last-- but saying that a neighbour has asked if I will make him one in the New Year. Of course I will.

Got all three grandchildren over night and most of tomorrow. They all are excited about Christmas
Tomorrow Lindsay and Ben are having dinner with us and I am cooking beef with all the trimmings.


The children were not up too early about nine I think, but Jamie-Lee  did go up to the boys and wake them up an hour earlier. We have a three story house and the boys sleep at the top, which was Wayne's then Andrews room. I went on the common with out them as its very wet and they had no suitable shoes/boots. Jamie-Lee did not say any thing as I went be for they came down.  Lindsay arrived for dinner everything was good apart from the beef which was a bit chewy.


Angela's Birthday (Happy Birthday Angela) so going round later. Andrew is arriving later today from Amsterdam so Paul will be picking him up from the Airport.

Paul dropped me off at Angela's house she had put on a buffet for us, Paul stopped a while then set off for the Airport. Andrew was on time and more importantly on the plane. We got Angela's a bottle of Rum as a present. We talked and ate, then she dropped me off home.

No one was in, Summer was, as not back from the Airport yet. As requested by Andrew we had Chinese for tea. Very nice too, chatting and catching up as Andrew not bean here since July. A good day all round.


Pilates went well quite stiff in joints today. I think this is more the FIBROMYALGIA than the RSD, pain in my knees and elbows. The sort of pain that does not give up. In fact it hurts more when sat.
Jo made biscuits and Christmas bits which were very nice -Thank you Jo.

Later I made mince pies and iced the cake ready to be picked up by the older builder, Dave.

 Summer helping too.


Dentist today 11am, or so I thought, They changed the time to 10.45 and did not tell me so when I arrived at 11am they said I was late and could not be seen. I showed them the slip that clearly said 11am. The quite blunt receptionist said I would have had a letter or call-- I had neither. Another appointment was made for tomorrow. I was not happy, the idea was to stay in town and do some shopping as I have an afternoon Doctors appointment later. I decided to go home after a bit of shopping then walk back later. All I needed to see the Doctor for was to get my OXYNORM as no repeats left on my prescription. Also GABAPENTIN was coming to an end too. We have two Doctors surgeries, and the one I was at today was right through town so a lot further for me to walk.

At the Doctors she was pleased with the way things were going . Renewed the prescription, she is not a Doctor I usually see, as not quite the bed side manner of the others, but today she was charming and very nice to talk to.

When I got back Angela was here so was Lindsay with all the children, so no peace for a while. nice to see them all though.

After tea we to see my Brother and Sister in Law, they are both doing well after their car crash and David hopes to be back at work very soon.


Age UK not a normal day and not many there when I arrived. Its Mince pie day and hot chocolate with hot turkey and pork rolls, so no other meals. There was carol singing too. Andrew came with me and met a few of my work mates and friends. We did a bit of shopping in town.

Dentist went well this time and I do not have to go back for a year.

Went to see Paul's parents at night to exchange presents.


Sort out day, and cooking gammon sausage rolls. Wrapping presents. Wayne arrived here today, Paul picked him up from Newark station.

Went to see Nana well Paul's  Nana. I walked down about fifteen minutes arrived at her home to be  told she had gone to bed, as a long day. I think they had a lot of activities during the day. I went up to see her in her room and she was asleep, I touched her cheek and she woke up and said a few words. I showed her the things I had brought her mostly home made cakes and bits. I asked her if she wanted me to go she said YES PLEASE. I gave her a kiss and left. Fifteen minutes walk back, for ten mins there. But never mind at least I got to see her. It's her Birthday very soon, 100 years old.


Merry Christmas to everyone and a busy one for me to day. Lindsay and family came mid morning   and opened presents here. All lovely presents I think I am set up for the year now in bath products and slippers. There were six extra for dinner but it all went very well, everything cooked perfect.
An unusual warm day as well did not seem right for December. Only three children here but felt like more as they were very excited. I think I coped quite well with it all. Thank you to every one for all the presents.

 Andrew and back of Summer with Wayne in the back ground.

 Slippers from Joy.

 Merry Christmas everyone-- now wheres my presents?

 Handsome Tommy-Lee.

 Jamie-Lee looking puzzled.

 Jay-Jay with his monkey cushion.

 Presents everywhere.

 Jay-Jay, Wayne in the light, Jamie-Lee, me and Tommy-Lee. 

 Lindsay having a better day.


Funny how a big room suddenly becomes very small.

What a day I can not cope with a lot of noise or a lot of people be for RSD I was alright. I think I did well at least I survived.

My eyes are very dry and have bean for a while this alone can be very annoying as the eye lids stick to the eye. I have had dry eyes for a long time now, part RSD and part medication. At times this can be a problem or not so bad. A lot of joint pain too, knees being the worst. The cold foggy air does not help much.


A colder day and brighter a lot better all round. I love cold bright day the common takes on a Magical look and feel. Andrew came along with me and Summer, as most days he has. Today she played with her ball which she loves.

Summer with Andrew playing with her very loved ball..

Tracy here later as she has bean to her parents for Christmas, more presents exchanged and more great things.

Lindsay called in, on the way to Wacky Warehouse for a Birthday treat for Ben's (Lindsay's Boyfriend) Daughter 7 today.
 Bella, Marshall and Birthday girl Poppy. Undoing Christmas presents, and for Poppy Birthday gift too.
 The little baskets  with Teddies in are the ones I made them for Christmas.
 Ben their Dad and Lindsay's boyfriend.

 Wayne and Lindsay.


Knees hurt terribly, in fact I hurt all over. The sort of pain that does not go even after throwing everything I have at it. Trying to relax and do things is not easy today. Wayne home today, coming back on Friday for a Birthday. Paul's Mum and Dad here for tea everything went alright. A busy few days but I survived again.


Today we went to The Collection in Lincoln town centre. This a collection of Lincoln finds and past history. Well worth a visit. Also no charge to get in, donations welcome.

 Andrew being a soldier.

 This long boat when dug up and was in one piece but got damaged later.


We found a friend.

 Andrew thought he needed a vape.

 A little clock work model display.



A cold day with freezing fog. This did nothing for my pain especially going up hill. We had dinner in town at "Hunters"a fish and chip shop. Chips and Irish curry for me and Andrew, fish chips for Paul. Very nice too-- I asked what was the difference between English and Irish curry, was the Irish one thicker !!!
 Very good and just what we needed to warm us up.

Quite pleased to get home as now so cold, Summer was pleased to see us as well.


Another sharp frost and cold. I have got two children today Tommy-Lee and Jamie-Lee. They will be here for tea too. Jamie-Lee played with her new babies and all the thing I had made.

Andrew kept her entertained for a while while I played cards with Tommy-Lee.

We had tea; potatoes, veg and turkey in gravy. Both of the children cleaned their plates. Both said it was good. Neighbours have asked us around for New Year so I think we will go for a while. I hate the Auld Lang Syne song - it makes me feel very sad and too many sad times this last few years.


Age Uk for a while today. We are not that busy today but it did pick up later. No one was too bothered though as not many volunteers in today. Lattes were the hot item on the list I made I think 12 or more. Plus a few other coffee drinks.

Wayne came back from Halifax for the party I think was very good of him. 

I left early so I could go to Nana at her 100th Birthday Party. A lot of people I have seen for a long time. I spoke to Nana and was not sure if she knew it was her party, but when she sang Happy Birthday she sang TO ME with a big smile on her face. She knew. We got her an orchid for a present .

 Present from us.

 Nana's cake.

 Happy Birthday Nana.

 The toast to her.

Blowing out the candles and singing.

A remarkable Lady who has battled cancer and pneumonia and still smiling. She has bean in hospital a lot and no one thought she would come out a few times. BUT, she did, and here she is in her 100th year. A VERY VERY HAPPY BIRTHDAY TO YOU NANA.


Well nearly another year passed. We are going out like I mentioned earlier for a little bit.. Andrew is out with a few friends tonight as well. Wayne also celebrating the New Year tonight with a friend.
A nice time at Ness and Squidge's house fireworks are going off everywhere tonight, so we came back a bit earlier to be with Summer. I did not intend stopping all night any way. A little bit too much noise for me.

Came back, and at Midnight watched the fire display on the common from the bottom of the garden. Good it was too--- Summer was barking and running around, but not scared of them. I think they just annoy her and when she barks she anoyes all the neighbours that is the ones that are not drunk by now.

Well 2016 has come to an end not the best of years for our family but probably not the worst either.

Hope you all as best you can be and had a good Christmas and New Year all the best Love Gill.

 My family. A very Happy New Year from all of us.

 Don't forget ME.

 Happy Wuffey New Year from Summer too.

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