January 2018 (1)




Well January 2018 what will this year bring? Less pain and discomfort for me hopefully. A better year for my children too. Last weeks PHYSIO so far has not done too much to help but its only the first one. Neck and shoulder very tight. Not sure what is happening with ACCUE as I don't think that is as effective as it was.

January 1st

A cold wet day. Jamie-Lee was up at around eight thirty and well rested. Tommy-Lee around ten thirty. Both said they felt good. Took Summer for her walk on the common and we came back across the Fair common and saw all the carcasses from the fire works last night. Later I took Tommy-Lee and Jamie-Lee to see them. Jamie-Lee was fascinated by them all. Summer was pleased because she had two walks in the morning.
Back home for dinner Lindsay came later to pick them up and they all stayed for tea. Paul kindly bought us all a Chinese take away. Very good it was too.

I have had a lot of pain and spasms in my legs just lately.

3rd

Cleaning up downstairs today. Night time a build up of pain and very bad spasms. I took one BACLOFEN to see if this would relax my body. Not a lot of good, made me feel very light headed. Andrew said I kept dropping off to sleep. My body felt very strange and heavy. At one point I nearly fell off the chair.

My right foot was going crazy in bed, The pain was just like the first RSD pain over thirteen years ago. This worried me as I know it can spread as it already has, the left leg so far has remained good. I will just have to hope and wait and see what happens.


4th

Woke to a very bad headache and feeling very drained. I am sure its the side affect of the BACLOFEN. I used to take this all the time, up to eight a day.

Went to see Ben next door. He is not doing very good, his quality of life is not good now and I feel so sorry for him. He sleeps a lot of the time.

5th

Age UK. Went in early as asked, last weak, by the kitchen manger as we have new menus and she wanted to go through them with Jenny and I. She did not turn up and Polly the chef filled us in. Not a lot of changes so that was good.
Steady day to start with, then a load of customers came in. Lots of lattes and cappuccinos to make. A busy day in the end. Not too good a day for me though, a lot of pills popped. Walked into the main town with Jenny and did a bit of shopping then home. The day started off wet and cold and still is. Dark when I got home around four thirty.

6th

Went to see a little baby today called Rupert, he was born on the 21st December so cute. I took the jackets and mitts round, I had made last year for him. The smaller one looks like it will fit now, they both love them.

 
 This one we think will fit him now.
 
 This one for later.


 Rupert fell asleep on me then woke for his feed.

7th

A sharp frost today and sun at last but not feeling too cold on the common. A nice walk for a change without getting wet.

A lot of pain today, more so when I try to rest and relax. That's the thing with RSD not letting you 
try to get rid of the pain, it's as though it enjoys making you suffer. Suffer you do as well. A lot of spasms in my legs. My right leg is giving way a lot. My hands are terrible too, dropping a lot of things.
Just another day in a life of an RSD suffer. People look at me and think there is not a thing wrong with me and actually think I am a very fit person. Yes I am, compared to many, but not like I used to be.


8th

Lindsay (my Daughter) phoned and said Jamie-Lee has got Chickenpox. I have not had this so I need to keep away. I have already bean told Chickenpox would be very bad for me. To the point of may be have to be in Hospital. WHY because its would affect the nervous system, which is already under attack from everything else. I still might get it as they were both here for New Year. Tommy-Lee so far has not got any signs of it, Lindsay did say he did not feel well.

10th

I feel very drained but that has become the normal for me. Lack of sleep and pain is not good for any one.
Pilates today first one of the year. This went quite well still shoulders are bad. A lot of spasms every where. I took the lady, who brought me home last time when my bike went wrong, some flowers. She was very surprised and pleased as she said she had no flowers in the house. I was very grateful to her as she saved me a lot of extra pain as I would have had to pedal without electrics. This I can do for a short time. There are a lot of hills around the Washingborough area. I just need to get new brake pads, as brakes at the moment are not good. I need to use front brake as well. As I said a lot of hills down as well as up. The down ones I usually just turn off the power and free wheel down. GREAT feeling.

Bringing my bike in the house my right leg gave way and I fell causing my knee to hit the radiator full force. I screamed as the pain was so bad. I felt sick, then the RSD full body pain hit me. I had to sit down as my body was under attack and it felt like I was plugged into the mains, with pain every where shooting throughout my poor body. This took nearly an hour to release. My knee swelled up and had the imprint of the radiator. I got away without serious damage though. 

I am doing the exercise Neal the physio gave me, well one causes spasms so I have stopped that one. I have an appointment on Friday so more exercises will probably be added or taken away.

11th

At last my friend Bev is here I have not seen her since last Autumn. We had a good long catch up chat. Exchanging presents as well, Christmas and Birthdays. All her family are doing good. Her son Russ, I used to run with, and he spent many hours here, playing on the Wii or just chatting. That was until he moved away.

12th

Age UK I just got to the counter and there was an order for cappuccinos then more orders followed. A very busy day. Hardly a minute to think. I had bean serving and had no chance to even speak to   Jenny. Joy, Sheila also Angela and her friend, came in but I had little chance to talk to them either.

After my dinner-- we get a free one as a thank you for volunteering, I set off up the hill for my physio appointment. I told him how things had bean and what exercises were helping and the ones that were not. He gave more to do as well and back in three weeks. After I walked back into town and did a little bit of shopping. Around five thirty when I got in, very tired too.

13th

Went to Halfords to get new brake pads for my bike, eighteen pounds in all. These I will try to get on later today or tomorrow. I do not need my bike  till Wednesday.
When I got back Andrew was down and listening to folk/country music.  Paul was at football.


15th

I managed to put on my new brake blocks and got them adjusted. Now I can come down the hills with a bit more confidence as the last two weeks my brakes have not bean good. I was quite pleased with myself as well, I don't know much about bikes.

Leg pain today when sat again. Doing the exercises that Neal has given me. The new ones seem to be better as he said its not an easy fix and will take time. At least the Pilates have helped  as a lot of the moves are the same as he has given me to do.


Well that's it for this Blog in two parts, to see how it goes with views.

Hope things have started well for all of you and RSD is kind. All the best Love Gill.

December


December 1st

Well here we are in December The trees are looking very different now. The common looks bare and deserted.
 
 
 
 
 
 
 
Not quite deserted---   Summer


Age UK very busy and I have a lot of pain and spasms. Taken a lot of tablets today with little relief.  Struggling to get by today, hopefully when I have my dinner I will feel better. After dinner I did start to feel more normal but still too much pain. Polly offered us all chocolate pudding. I sat with Steve and we both had some. I did not eat much of my dinner, but this was going down quite well.

I left Age UK and did a bit of Christmas shopping getting quite a few presents.
I got my glasses sorted out as well, these are for reading. The first pair I got were too big for me so they exchanged them for this pair. Hopefully these will be better.

Joy is out of hospital as well so that's good news. She  has not bean in very long. She will cope though she is a very determined lady. All the best Joy I will see you soon.

3rd

Quite mild today, I did not even have my hat on the common, so it must be warmer.
Having a few pains and pressure around face and eyes last few days. Feels bad when I lean forward pain and discomfort. Sinus I think hopefully just the cold air and not anything more.

IA Christmas dinner was very good I had the Christmas tradition meal apart from the pudding, this was Bailey's cheesecake very nice too, made me feel very full though. When we got back I took Summer for a walk and felt a lot less full. Paul went to sleep.

Frosty start today. After Summer walk I gave her a good brush and got around two good hand fulls off her. 
Went to see Joy in the afternoon. She is I think doing very well. Obviously still in a lot of pain, apart from that she was quite happy and looking forward to getting about a bit more. She had run out of tablets so I said I would get them for her and bring them back tomorrow.

Me-- I have a lot of joint pain and spasms going on. Temperature changes are going crazy as well. One minute shaking  cold, next wet though and very hot, like prickly heat feel going on as well, and I have not moved. Well hopefully when I see Doctor Mehta he can help with something.

5th

Took Joy her tablets, she is going to the bank today with her nephew, take care Joy. When she phoned me later she said it was very hard going and painful. I said it will get easier its early days.

6th

Pilate's I struggled a lot today as pain stopped me doing hardly any arm moves. Never mind I did it my way and still got some benefit from the session.

7th

Saw Ben (next door) today he is doing quite well and said he was quite happy.

In the afternoon Tracy picked me up and we, plus Lindsay went to Jamie-Lee's school play She was dressed up as an Angel and was smiling at us. The play was about three Angels that always messed up when trying to do things. Very good it was too and the singing was loud and in tune. I have seen quite a few School plays over the last few years. All different some still do the Nativety but with a twist.

8th

Age UK again and it soon comes round. A better day all round for pain. We did have some very rude customers, inpatient and saying we were very slow at serving. I had a lot of cappuccinos and lattes to do and these take time. Some people will moan about anything I think they expect four star service for a one star rate. Anyway apart from them it was a better day than last week. Jenny was back as well, she has bean quite ill, and has to have some tests done.

After I left Age UK a bit more present shopping then home one of my bags broke on the way and things fell out. I managed to squeeze them into other bags and got everything home. Very tired tonight, just sat and did some knitting.

9th

A very cold frosty start on the common, snow on the way I think. Yes I was right it did snow but not too much.

  
 The Cathedral standing proud.
 


I have iced all my Christmas cakes, look pretty good I think. They were left on the dining room table to dry then after the frill put on they will be put in the tins ready for Christmas presents tomorrow


10th

More snow and frost over night. The next few pictures taken from the bedroom window looking into the garden
 
 
 
 The bird feeder with Mr Pigeon looking on.
 
 Queens Park.
 
 
 
 

Summer had good fun on the common in the snow she loves it and makes snow Angels by moving her body and head.


Joys Birthday today eighty years old. Not going to see her today as going out for her dinner at her nephews. Going tomorrow instead.


I finished off the cakes -- Pleased with them too.

 

 All ready and done now.


Cleaning up today and putting up the Christmas decorations.

The Lincoln Christmas Market for the last day has bean cancelled, something a lot of people are asking WHY. We have had round about an inch maybe slightly more in places. The roads are clear as well. That's the City Council for you.

 
 
My  Aloe Vera plants has got a buds on it. this has not happened before so I looked it up on the good old web. it said its not too common for it to flower, has to be the right conditions. So it must have bean just right. I will up date the pictures as it changes.


11th

A bit more snow over night very cold as well. A very winter wonderland  scene today.
Andrew came on the common with Pup and I. She was rolling around in the snow and playing ball. Very cold too it was too, but Summer kept warm, even though at times she was covered covered in snow. I had to rub the snow off her legs. That's the trouble with a little dog close to the ground.

 
 
 
 
 
 
Summer loved Andrew playing with her as usually its just me and her on the common. She likes to play ball, but I can not always throw it for her.


 
 
 I still have a rose blooming in the garden.


Into town with Andrew to look around, cold wind heading there as facing north. Had chips and curry for dinner they were very tasty and we both enjoyed them. Andrew took the shopping and I headed to Joys. She liked her presents of a Joy mug and a a large Yankee candle. She had bean to physio and has been given more exercises to do. He is quite pleased with her and said it will take time.

Stayed there a while then on to my Doctors. He said my shoulder/neck and knees needs some physio and has arranged this for December 28th. Pain wise and temperature changes there is not much he can do. Also has said how I can reduce the MORPHINE safely. That will be next year now though. I got him to look at some bad veins on my left foot. He said unless they get life threatening, they now leave them alone. Quite a few years ago I had my right one done this was blocked and causing big problems. I was still running then. Bean given ANTIBIOTICS for a possible sinus infection.  I have bean having problems for a few weeks now.


12th

I think we have had another layer of snow over night or could be just a very sharp frost. Cold on the common but nice as well. Very fresh feel, Pup did her usual and had a good run and roll around.
Later on it rained so there will not be much snow left to morrow.


13th

All the snow apart from a bit here and there has now gone. My Dad used to say when it hangs round it waiting for more to come, then it all goes away together. Not quite as cold but still a frost over night.

Pilate's I was not sure weather to go or not as hip has moved again and hurt quite a lot. I did go, no trouble biking though. A fair session but shoulder and hip painful. I got soaked coming home as hail and rain came down about a mile in. I had my waterproof trousers with me but decided not to stop and put them on. As it meant taking off my boots, gloves and undoing coat on the road side. My legs were very cold and blue by the time I got home.

15th

Age UK party I am helping out. This as usual is the last one of three they put on every year. A few changes since last year so hopefully it will go better. Around eighty plus older people sat down to a three course dinner. Everything went very well. Very tired as I did shopping on the way home.

16th

Sinus I think has improved a lot so the ANTIBIOTICS have done there job. I have a blocked sinus so not completely clear but a lot better. The heavy feel and pain have gone. As one thing goes another seems to take its place a lot of pain and burning around my right shoulder. Very annoying and sore.

Looking after Ben and Emmie tonight so that's always fun. All went well with the children and they were both asleep when Ness and Squidge got home.

17th

Went with Angela, to see a friend in Hospital, she had a fall and was taken in. Not very pleased at being there though. Nothing really hurt just a shake up. Hopefully she will be soon home. A few things have to change before that happens as she is getting to the stage she needs help.

18th

In town today with Andrew and Paul doing a bit of Christmas shopping.  Very cold with a sharp frost and cold icy wind. With the grandchildren getting older its hard this year knowing what to get them. Jamie-Lee has bean easy. Got a few ideas now and we will top up the rest with money both Jay-Jay and Tommy-Lee are very fashion smart boys and like to look their best.

19th

My Brother and Sister in law here to day to exchange presents. Both are doing not too bad.
I have now taken the last ANTIBIOTIC so will soon see if this makes a difference. My face feels better and not as tight and sore.

20th

Last Pilate's today till 10th of January. I always check the battery on my bike before I set off I don't want to run out of juice, yes half power so OK. Well that was the idea-- I ran out and had to peddle about half way there around two and half miles. I think the power was on the low side of half.
I asked if anyone had a pump as back tyre was almost flat, not sure if I got a puncture. A lady said she would get me home by putting my bike into her car. I did not think it would fit in, it did or else a hard ride home. When we go back I will get her some flowers as it was a lovely thing to do and I was very grateful.

Went to Angela for her Birthday tea,  picked up two friends on the way John and Vera. A nice afternoon, hope you had a Happy Birthday Angela. 

21st

Dentists check everything good, teeth also gums. Not back for a year.
Did the rest of Christmas shopping and was pleased with how much I crossed off the list. Happy with what I got hopefully the boys will be too.

Weather is mild again no two days the same just lately.

I am looking after a friends cats for a few days feeding them and checking up on them.

22nd

A easy day as pork/turkey buns plus soup and drinks. I met Joy and we went to Age UK together. After I helped her with her shopping.
Carried on to the Doctors after to get tablets all fine today. Over the last few days I have bean having a lot of bad nose bleeds. Could do without that as I don't want to get ANAEMIC again. I think it because of the infection and the cold air. Hopefully it will soon clear up.

23rd

Very nice walk on the common with Pup frosty and cold. Cleaning the bedrooms and washing today.


Plant opening out a bit more.


After tea Paul and I went to Joys to take presents. Joy is doing better now but still a long way from normal movement in her arm. She put out a few snacks and drinks. Very nice too. Thank you Joy very nice.
Later I watched some old Top of The Pops a lot of Christmas ones like Slade and Wizard. All the classics ones I like.
Ironing later with another bad nose bleed. Feels very cold tonight I think a sharp frost for morning.

24th


On common with Summer I thought my running club were doing the Annual race but it was not them. I think the Triathlon club instead. This always makes me feel sad as I want to take part.

Well Christmas -- Lindsay here with Jamie-Lee in the morning. She helped me make little sponge cake. Sat on the work top near a fresh boiled kettle, near a toaster and coffee maker, with a knife in her hand. Health and Safety would have gone mad!!!  The cakes were very nice, she does not like cakes too much so did not eat any. They will be iced tonight also making the Mince pies as well later.

 Paul is picking Wayne up from Halifax to come here for Christmas. They will be eight around the dinner table tomorrow. Hope things go well.  
The cakes and mince pies turned out very well and were tasty, well you have to try at least one.

25th

Merry Christmas everyone. A hectic day with all the children and grandchildren too. In the end nine for dinner. Everything went well and dinner was a great hit with every one. Present were opened and everyone thanked. A good day but very noisy and hard work too but very good all the same.

Walked back with Jay-Jay to help him with his presents as he could not carry them all. The rest are being picked up tomorrow. Everyone was going to stay for tea as well, but most were still full from dinner so headed off home. Rest time for me a long day with a short night.

26th

Headed to the Crematorium to put flowers on Mum's, Dads and my Brother Phillips stone. Very cold so I did not stop too long.

Went on to see Merriam the lady who had the fall. She is now in a rest home for a few days to get her strong and walking better. As soon as things are put in place at her house for her safety, she hopefully will go home again. I gave her her present, Biscuits, chocolates, Christmas cake and mince pies. I stayed quite a while. Bike all good now and no puncture just a bit flat. Electrics good as well.


27th

A wet day with cold rain with bits of snow.

Paul's parents are here later for tea. A good day Andrew and Wayne here too.

28th

Wayne is going back to Halifax today, Paul is taking him. A very cold day frost and icy wind.
Cooked dinner and after I got a lift to the Hospital for some physio on my shoulders. Paul carried on to Halifax with Wayne.

The physio was painful but hopeful all the same. He said my shoulder is badly damaged with the RSD and everything else going on, but should be able to help a bit. Massage first, he then pulled and tugged my right arm. Very painful at times. I am to go back in two weeks and do some exercises he has given me and heat pad when sat down.. Walked home still very cold and frosty. Bad headache later. Paul got home around nine.
29th

Age UK last one of this year. We only had on one main and pudding choice, plus soup. This made things a lot easier for everyone. Not over busy but steady all the same.


31st

Had a bit of a gunky throat the last few days. Little like blisters at the back. Headache about gone now. I am sure it was caused by the physio I had.



Plant now almost like a hyacinth. 

Well quite another mixed month again. At least I now have some help with my shoulder. Pain up and down as usual. I think we have had most types of weather too. 

Next year I am thinking I might do more short Blogs than a months at a time.  Something I have bean thinking about. So look out there might be more in January.
All the best to every one and a Happy New Year to you all. Lets hope things improve next year. All the best Love Gill.
To end the year, is Summer all dressed in her Christmas suit. 
 
 

Merry Christmas and A Happy New Year.






November

November 1st

November already-- a lot of the trees are bare but quite a few have still got leaves. After a cold start to October then a very mild spell, I think the trees were confused as some days the temperature reached 24c, summer time warm. So a lot of the trees stopped loosing the leaves.
Soon they will be bare and go in to the hibernation mode. To wait for Spring, may be that would suit me ?.

Pain wise not a lot of change. Last night my legs hurt so much when I was sitting, the pain was almost like my legs and hips being crushed. I think what makes RSD worst is the fact-- well ! it never goes away for one, and every day can be so much different to the previous one. The pain can come and go just as it pleases. Now if you have an injury or some other medical condition the pain is  mostly the same or worse with exercise or movement. Not RSD, for me sitting can be more painful than walking depends on where the pain is though. I know every RSD suffer is a bit different but on the whole that's how it seems to be with me. I think why I can still walk and move around is the fact I have worked though the pain, not easy when you can take a bucket full of pain meds and be almost free from it, pain and discomfort that is. Obliviously this renders you useless and all you do is sleep. This is not an easy thing to do. I have never bean brought up to take tablets at the first sign of pain, but go for a walk or do something that takes your mind off the problem. I know in a lot of cases this is not possible, and in the end some times pain meds are the only way for any relief.

RSD is here to stay but that does not mean I am making it feel welcome.

Pilate's- on my bike, as usual. A few people have said its cheating to have an electric bike. Mostly the ones that have cars and exercise is not a word they use very much. I still pedal and do go around ten miles return trip every week. So I don't care what the others say. I know with out it I would not be able to pedal a normal bike no near as far. I get a lot more spasms now, so a non electric bike would not get used just like my last bike. A few at Pilate's are saving for one like mine and think its great what I do.

In the afternoon planting bulbs and a bit of tidy up in the garden. Paul helped a little bit.

2nd

At last some of the pain has lost it grip, I think that's down to the ACCUE I had end of last month. hopefully it will give me a few day rest from it but I know it won't last long it will be back, as the cold is here now so that makes everything worse. I do get my electric blanket on so that does help so long as I don't get too warm. YES on the whole a better day all round. Even though its bean quite a busy day I am not tired even at five am.

3rd

Age UK not a good day regarding accidents and things going wrong. I pressed a button on the coffee machine that I had not used before so did not know what it did. Soon found out-- it flushed the machine out so the over flow bucket over flowed. So I had that to sort out with the help of another lady. After that I over rung in the till by £2,000-00. Spilt things as well as hands not too good HYPERSENSITIVE fingers so not responding to touch very well. We were very busy and not a lot of staff either. A new kitchen manger looks like not being very soon as no interviews have taken place yet. They are not very fast at getting things done. Some of the staff are having to do the work of two people and not getting any extra for it. Not a happy bunch at the moment at all.  I still like it there but that's only one day a week. I still manage to mess that up a lot of time, but mostly it goes well and do my best. I have bean told by quite a few that they like Fridays the best, as a good bunch of volunteers in.

Pain later down my neck and head as well shooting up and down.

4th

Found out today one of my friends has had a stroke and has bean in hospital a while. she is improving and should make a full recovery. I know how strokes can affects people as both my parents had a lot of them. At one point both of them went though being paralysed for quite a while and long stays in hospital and recovering at home. Strokes are unpredictable and need to be managed well.
I spoke to her daughter and she said both of them are coping well and the dogs miss her a lot. Get well soon and get back home with your daughter and pets.

Bad head and neck today. I had a lot of spasms during the night and morning so its tight and the pain is the shooting type again.

Cleaning the bedrooms, but having to stop to clear my head and rest quite a bit today.


5th

Bad nose bleed to start with just poured out, not had one as bad as this for a while, headache not as bad though so maybe it had something to do the the bleed. My nose has a blood vessel that has got very week after so many bleeds, so any extra strain it starts again. I have said this a few times but this is for those new readers that don't know. My knees hurt a lot today probably after my bike ride as is was a bit cold and windy so extra effort was needed.

6th

Made another Christmas cake, in all I am making 7, this is the third one so half way. Most are for Christmas presents.

A lot of pain today hip, knee being the worst. A lot of the time my body is going into spasm. Not a good day for me.

7th

Poor Tommy-Lee has got Tonsillitis again he has this on a regular basic. Hopefully soon they will have him in to take them out. I know the hospital here are over run with waiting lists, so might not be any time soon. I looked after Jamie-Lee while Paul took them to the doctors.

8th

Pilates very cold going and back too. Nearly got knocked off my bike not once but twice by drivers that were not taking notice of the road. The first was a works van pulling out a side road, talking to his mates. He did not even look my way and pulled straight out. If I had not being watching him he would have hit me full on. As it was I had to serve to the side of the road if there had bean any thing coming the other way I would have bean hit from them. He did pip as if to say sorry but that's not good enough.

Further on in Heighington a car this time started to pull out pf a side road again only to change her mind to let me pass. I put my hand up to thank her and just as I got level with her she pulled out causing me to brake very heavy. WHY do this-- make your mind up and keep your eyes on the road drivers, Maybe that way there will be less accidents.

I was pleased when I arrived at the hall for Pilate's in one piece slightly shaky but OK. Any way the session went well.  No problems going home.

Found out my friend Joy has had an accident, falling down the stairs and has badly hurt her shoulder.. She is in hospital and will go on to a care home as she can not do much for herself. Get better soon Joy. The care home is near us so I will see more of her.

10th

Age UK busy but not manic like last week but we did run out of a lot of the things on the menu. People are starting to eat earlier and then another lot come in as like a second sitting near 2pm. Some moan and say why have you run out of this or that. I say we stop serving around two so the meals are based on that. I also said try to get in a bit earlier then there would be more choice. More moans. Jenny's not here today, I was told she was unwell, not able to get in touch with her as I have no number. The staff will not let me have it as confidential information. Office staff usually come in to help but they are not dedicated and often cause more problems. A lot of the time on my own with back up from the kitchen. Polly the chef, said I/we had done very well.

A lot of joint pain today but its very cold, got colder as the day went on. Very tired when I got home.

12th

Very tired today and I ache all over the dreaded ache/ache pain not able to get comfortable any way, sitting, standing and reclining .

Angela called in for a chat. She is doing well and looking forward to a week off work soon. I am going to do her garden for her as a Birthday treat.

13th

Pain lifted a bit I am pleased about that.
Going to see my friend Lyn as it's her Birthday, going on my bike after dinner to take her present and card. I have know Lyn since Wayne was born 1979. We have still kept in touch as the family's have moved on and had children of their own.
A nice chat with her and her husband Mo, good to see them again as not since February, my Birthday.
No problems with the other road users.

Soon after I got back from Lyn's Jay-Jay called in, he is looking a lot happier so I am pleased about that. He said even School is going better.

14th

The weather has gone damp and milder again yesterday a frost, today rain. Sunny in the afternoon or so the forecast says, we will see. In town with Andrew after dinner for a short while he is after getting some boots.
Going to see Joy later today she has settled in the care home now, hopefully she will not be there too long and get back to her own home. Joy was better than I last spoke to her soon after her fall, but still in a lot of pain. Her shoulder is dislocated and damaged at the joint so that's why it can not be put back in place. While there the physio came to see her. She moved her arm very slightly and you could see the pain on her face and the scream she let out. Not a lot she can do with her. Joy is back at the hospital next Monday so hopefully there will be some news as to what will be done.

As I was leaving the home I looked on the wall and there was a good picture of Nana smiling back at me. This was a bit of a shock and tears welled up in my eyes. She passed away 18th of January aged just over 100 years old

Got Tommy-Lee and Jamie-Lee to sleep tonight. Lindsay is out with Tracy. Jamie-Lee played with her dolls till bed time. After a story and five minutes on her ipad she settled to sleep. Watched a bit of TV with Tommy-Lee then he went to bed a bit later than he should have but he was a sleep nearly straight away. Time for me to rest a bit now bean quite a busy day.

15th

Paul got the children sorted out for school I waved to them from the bedroom window Have a good day both of you. When Jamie-Lee got to School she wanted her Mum and cried a bit Paul left her with a teacher and she soon calmed down.

Pilate's went quite well not doing too much with my arms but still plenty of things I can do. Quite a good session.  No problems with the other road users today.

16th

Andrew is going back to Amsterdam for a few day as there is an event on so he will be filming.
Paul went out to the car but the battery was flat. Ness kindly jump started him so he was able to take Andrew to the Doncaster Airport. They arrived on time so no problems. I will miss him as got used to having him around. He will be back in a week, so not that long.

Started making a little crib set out of a soap and moisturiser holder for Jamie-Lee's dolls..  I have no pattern to go by but hopefully it will look good.

17th

After a sharp frost and a chilly walk on the common I set off for town and Age UK. Paul was going to town so we walked together. Cold as well direct north wind in our faces.
Jenny was not here again, she has a bad virus so is quite ill.  I was not very pleased with the volunteer before me as they left the counter busy and things not stocked up so not happy. Someone said she was not well.  Busy again so Steve helped me out most of the time. Someone from the office came in to help but only stopped 20 minutes then went, I said to Steve we can cope, he said cause we can.
A busy day with a few not so good customers. We are still very short staffed as well. The general caretaker left today as well. Got out a bit earlier as had a bit of  shopping to do then home.

19th

Another cold frosty start to the day. White over again. On the common while playing with her ball Summer was attacked by another dog. We both think it was jealous when Summer was with her friend. Summer did not seem to be hurt. Neither was the other dog but Summer is not a fighter so she did not put up much of a fight. I know she cried a lot and limped away. The lady said I don't under stand it she is never like this. Anyway hopefully when they meet again they will still be friends again. Later on I spotted Summer had a nasty bite on her neck quite deep. I will have to keep a check on it.

Angela came round in the afternoon. After she had gone I did something I had not done for a long time I WENT FOR A RUN yes a Run, only around twenty minutes but I did run. The only problem I had was the extreme cold it got to my breathing. My legs felt good so did I. Hopefully things will keep well  and I can go another day. I have waited so long to do this.
(Well done Gill, proud of you.....Paul)

20th

A lot milder day, rain over night. I met Nikki and her friend with their dogs Basil and Lucy. Basil is Summers boyfriend. We had a talk and I said about Summer. Nikki said Lucy got attacked by the same dog yesterday as well. So much for not doing it before, like an hour earlier.

No ill affects after my run, my legs feel like they run but are not sore, so I am pleased. I do bike and walk a lot so its not like I am unfit. That seems weird saying that when I have RSD plus the other stuff. I am as fit and strong as I can be with what's going on everyday.

21st

Pictures today with Angela we saw Paddington Bear 2. We both thought it was very good, at one point Paddington was trapped and looked like he would die. I shouted out quite loud you have got to save him. A few people laughed. I don't think any of them wanted Paddington to die. Anyway he got rescued so all was well. A good film for all ages.

22nd

A very windy day not too cold though. Pilates on my bike as usual. A good session, I still don't do a lot of the arm moves, but leg wise, I do them all.

After dinner I went to see Joy but first into town to get her a few things. Joy is not dong too bad but is in a lot of pain still. She will see her Doctor at the hospital this week so hopefully things will progress from there.

23rd

Andrew back from Amsterdam he said things went well for him and he had a good time.

Poor Joy has seen her Doctor and he wants to operate as soon as possible. Her shoulder is a mess and needs a new joint. She was a bit shocked. I said its for the best as the Doctor could bodge it up and need more than one opp. At least this way it's just one opp hopefully, then recovery. I know she is quite worried. She said what if I don't wake up after? All the best Joy and you will be fine.     

24th

Age UK was MANIC Jenny is still ill so most of the day just on my own I did get help, but not until later. A good day though. I was told that we have had a new cook on trial so it would be nice if he got the job. Then hopefully things can back to normal again.

25th

Went to Angela's to put in some winter flowering pansies. So cold in her garden we did what we cold then inside for a welcome cup of hot tea. We sat and talked a while, had some apple pie and more tea. What we did of the garden looks  good and will add a bit of colour. In the warmer weather I will have another go. A while later Angela brought me home. A nice hot bubble bath later which  Angela gave me and I felt good. Well that's not really true. Quite a bit of of random pain. Also temperature changes are as bad as the pain its self. This temperature thing can be Ok for a while then flair up and be very extreme.

26th

I marzipaned all the Christmas cakes, they smell very nice, leave a week then I can Royal ice them.
Bit of tidying and sorting out in the kitchen. Making some fingerless gloves for a friend.


28th

Joys operation was meant to be today but is now tomorrow, she is quite worried and will be pleased when it all done. Poor Joy, it was only March when she had her falling off the bus accident when she broke her elbow and hurt her ribs and knee. Hopefully after this things will go better for her.

B12 today this was done by a student, did not hurt too much either. She has joined our surgery. Good, we need more Nurses.

29th

Pilates again, very cold today icy wind. Things went well and I had a good session. Very cold going and coming back. My hands were like ice so were my feet. I made a very nice curry for tea. Just what we need on a cold day.

Pictures of the things I have made over the past few weeks.

 
 Both for a baby boy due very soon of a friend.
 
 Set for a little girl.
 
The set I made from a soap and hand lotion basket, for Jamie-Lee.

                      Glove and hat set for Vera from age UK. She was supposed to be knitting them!!

 
2 pair of Finger less gloves.
 Little 4" doll.
Mermaid Barbie.


30th

Cold day, icy wind I think it will snow.  Accue today, I hope it will help the pain as its bean building up quite a bit, from sort of bearable to extreme pain out of nowhere.

I saw Kandy today for treatment I have not seen her in a while. Needles were placed in my legs, ten in my right leg, nine in left, also 6 in shoulders, five in right the worst one and one in left. The right shoulder felt like it was on fire. Heat lamp on both knees which were ice cold. Kandy could not understand how the top of my leg was warm and so were my feet, well warmish  but knees were ice cold. Knee warmed up but by the time she had done the other one it was ice cold again. I said that's  RSD for you. She has suggested going to see my Doctors and may be asking about scans to see how the joints are doing. I go soon (11th December) so I will talk to him.

After a cup of tea I headed up to the hospital to see Joy. The snow was coming down very thick . The zip on my coat decided to break as well, lucky there was buttons. I like the snow and was dressed for the cold so I was quite warm. The Hospital is up hill really most of the way so that kept me warm..
Joy has had surgery on her shoulder a new joint. Things did not go very well and she lost a lot of blood. This resulted in her being in ICU for twenty four hours or more. Now she is doing well, up and walking around, a bit wobbly though. I think she has done extremely well. She only had the operation Tuesday.

Stopped quite a while then Paul picked me up. Had Chinese for tea.

A lot of PAIN later, shooting burning and most of every thing RSD has. I could not relax at all, my legs and knees are swollen. Hypersensitive everywhere. I know sometimes the ACCUE can set things off for the worst but with RSD it could be anything or nothing.


Another mixed month, Pain but I have had worse. Up and down. I am seeing my own Doctor on the 11th Dec for an update so maybe he will have a magic pill to help me !!.

Hope things are as good as they can be with you all. All the very best Gill.

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