I arrived up at the Hospital this morning at 9-30 as Gill and I had a ward appointment with Jo she's a psychologist. The meeting lasted about an hour and a quarter and was very productive. She will try and see Gill again on Tuesday 6th. I left the Hospital about 11-15am. Gill stated that she had had a few seizures around breakfast time. Visited Gill from 2-00pm until 4-00pm, she wasn't very settled and was in a fair bit of pain and discomfort, a little more settled in the evening visiting between 6-30 and 8-30pm
Arrived at visiting at 2-05pm and Gill was asleep, she gets mad with me when I don't wake her up but with her having insomnia her body doesn't get much sleep so that's why I don't wake her up. She woke about 3-00pm and had her blood taken for tests just after. Gill said that just before lunch her 2 young male physios got her out of bed and she managed a couple of steps. Well done Gill. Due to tiredness I didn't visit in the evening and this was okay with Gill.
Gill had a few seizures in the very early morning. Gill had discussed her Diazapan with the Doctor yesterday and they both agreed to cut the dose from 1 x 5mg tablet 3 times a day to just 1 x 5mg tablet in the evening, this turned out to be a big mistake because Gill's pain levels were a 10. It was then decided that she would have 1 in the morning and 1 in the evening. She was also a bit upset because she had to have a catheter fitted. The nursing staff fitted a silicon one because Gill has found that she is allergic to the normal latex ones. She spoke to our son Andrew on Skype, he's the one who lives in Amsterdam. This seemed to do the trick and it brightened her up a bit
Gill wasn't too good at visiting time this afternoon as she had had a seizure about lunchtime in her sleep (something that has never happened before) so this really frightened and upset her, she was also hallucinating in her sleep with the big red monsters which she describes as forward facing pacman with big teeth. I decided to leave about 3-45pm as the nursing staff wanted to wash and tidy Gill up and adding a few more dressings to her already growing list and is now in double figures, she also has cuts above and below her right eye.
Gill had had a few seizures during the night. At afternoon visiting she said that she had had a chat with her psychologist Jo and then a meeting with one of Jo's colleagues Dr Shakina Bellam. She suggested that Gill, from tomorrow, try a new drug called DULOXETINE. Gill and I read the information about it and she decided that she would take it to try.
Why is this medication prescribed?Duloxetine is used to treat depression and generalised anxiety disorder (GAD; excessive worry and tension that disrupts daily life and lasts for 6 months or longer). Duloxetine is also used to treat pain and tingling caused by diabetic neuropathy (damage to nerves that can develop in people who have diabetes) and fibromyalgia (a long-lasting condition that may cause pain, muscle stiffness and tenderness, tiredness, and difficulty falling asleep or staying asleep). Duloxetine is also used to treat ongoing bone or muscle pain such as lower back pain or osteoarthritis (joint pain or stiffness that may worsen over time). Duloxetine is in a class of medications called selective serotonin and norepinephrine reuptake inhibitors (SNRIs). It works by increasing the amounts of serotonin and norepinephrine, natural substances in the brain that help maintain mental balance and stop the movement of pain signals in the brain.
I do hope it works as I do worry an awful lot about her.
After this her two lovely physios got her out of bed and she managed about 6 steps with a frame. Really well done girl its the most she's walked for a couple of weeks
Gills not too well today, her seizures started at 3-50am and had 3 in 15 minutes and also 1 at 10-05am and again 11-15am. Gill was asleep when I arrived at 2-00pm. Gill's hairdresser/adopted daughter arrived about 2-15pm and I decided to wake Gill up, seeing Helen seemed to brighten her up a bit. She was quiet tired at the evening visiting as she had another seizure just before I arrived. Later that night she was quiet relieved, no pun intended, she had a poo the first in 15 days, rumour has it that the local sewage works were put on alert. She also started her new one a day tablet, Duloxetine. The side effects she was having from this tablet was light headedness and her eyes felt like they were the other side of the room.
Gill again had a few seizures during the early hours. She also had a chat with her psychologist Jo. When I arrived at visiting at 2-00pm Gill seemed quiet with it and her brother David and sister in law Bev were there, my mum and dad arrived shortly after. When they left Gill's physios arrived and got her to walk with a frame about 20 foot to the window.
She had a rest and walked back to her bed with a beaming smile on her face with a few of the other patients saying well done, she was knackered but happy. At the evening visiting Gill seemed really tired. Lindsay, Tracy, Jay Jay, Tommy Lee and Jamie Lee was also visiting.
Gill says she had a seizure about 1-00am. When she came round Sally the lady in the bed opposite was comforting her. I arrived up at the hospital at 10-15am as Gill and I had a joint appointment to see Jo her psychologist. The meeting went well with Jo saying that she would write to our GP Dr Mehta, she also said that she would try to have a meeting with Gills neurologist sooner rather than later to discuss whether Gill could have more tests for epilepsy or some associated complaint. She also said that if Gill was still in on Wednesday (Jo's away on Monday and Tuesday) she would come and visit Gill again. She said that if Gill was home she would phone her or send a letter. Jo only does Hospital patients. I left the ward about 12 noon and will be back again for the evening visiting at 6-30pm. Arrived at 6-30pm Lindsay and Tracy arrived about 7-00pm. Gill says she's had a busy day and is quiet tired and she hasn't had a seizure all day. Hope you have a really good nights sleep. Love you. Gill had a seizure about 11-00pm
Gill has had 3 seizures today at 3-00am, 1-05pm and 1-20pm. She was asleep when I arrived at 2-00pm and woke at 2-10pm. she said that her catheter was removed this morning and she had had no monsters after the seizures. She went for a wee, good start to the catheter being out. Gill was getting a lot of stomach pain as she was on large doses of senapod type medication to make her go. Lindsay, Tracy, Jay Jay, Tommy Lee and Jamie Lee visited for about 30 minutes which was long enough for Gill. I arrived for the evening visiting at 6-30pm. Her friend Pilate's John visited her at 7-20pm. Gill is very tired today so we left a bit earlier.
I arrived at visiting at 2-00pm and Gill was laid nearly flat in the bed, she said that she had had quiet an eventful early afternoon. Just after lunch at about 12-30pm she was sat out in her chair, and had been all morning, she fell asleep, dropped forward hit her head on the table and then hit her head on the floor. When she hit her head on the table it made quite a noise and everyone in her bay heard it, her ward friends Sally and Anne rushed to help her and called for a nurse. She was helped back into bed and the nurse checked her over then called for the Doctor who examined Gill. The Doctor said she had bumps to the front and back of her head and was to stay in bed for the rest of the day, The nurse did checks and obs on her every hour up to about teatime with everything being okay. I visited in the evening and Gill was okay but still had a headache and was very tired. Importantly she said that she hadn't had any seizures today. I hope she is turning the corner.
Well it Monday again and I hope the last week she is in Hospital. Visited Gill at 2-00pm and she said that she hasn't had any seizures today. GREAT. She did have a bump on the back of her head and a bit of a bruise on her forehead from yesterdays fall. She said she had her breakfast sat in her chair but had been told by the nurses that she was to be back in bed before 11-00am. Gill said that a neurologist had visited her and that they were going to do further tests either while she was in Hospital or as an out patient, depending on when she was going home. Gill says that when she walks to the loo, and the nurses have to walk with her, she is very shaky on her feet. She is also complaining that because of all he senapod type medication that her bum is red raw and quite painful. Gill spoke to Andrew, our youngest son who lives in Amsterdam, on Skype this afternoon. Her ward friend Sally was discharged this afternoon and has left Gill all her details. When Gill is well she's going to spend a day with Sally who has horses on the farm where she lives. Stay well Sally. Lindsay and I visited in the evening and Gill is still very tired and shaky on her feet and has a headache, she decided to stay in bed since 11-00am and Gill said because of yesterdays fall the physios haven't been to her today but have smiled and winked at her every time they have walked passed her bed. No seizures all day again.
Gill had a seizure at 2-10am. In the morning she had a little walk, using her frame, with the physios but felt very shaky. All her joints and muscles ache again today and she is feeling very tired still. While I was at visiting this afternoon Helen and Chris arrived to see Gill which brightened her up a bit. In the evening while visiting with Lindsay and Tracy one of her psychologists, Amie, arrived for a chat but said she would try to get back later if not tomorrow. During the later evening Gill lost her electric bed to an elderly patient who was in more need of it. Gill was disappointed to get an older type one with no footplate.
In the early hours Gill had a seizure and came out of it with her legs hanging over the end of the bed. I wonder if the change of bed type caused it as she was worried about dropping off the end of it. She said she sat out of bed from before breakfast until about 11-15am. Jo her psychologist spoke to her today for about 30 minutes and said she would come back to see Gill on Friday. A Junior Doctor had asked Gill for a chat and answered many questions he put to her. I arrived for visiting at 2-00pm to find Gill asleep. At about 2-10pm she had 2 small seizures 1 after the other lasting about 10 to 15 seconds each. She seems very tired today, probably with all the elderly patients around her with one in particular up and about every few minutes disturbing her sleep patterns. While I was visiting tonight Lindsay, Tracy, Jay Jay, Tommy Lee and Jamie Lee came to visit Gill, this always leaves her a bit happier.
Gill's new Doctor visited her this morning and said she could be home in the next day or two. Me personally, I don't think she's ready for home yet, probably early next week and Lindsay thinks the same. Gill had a load of blood tests this morning and Jo had said that she wants a care plan put into action before Gill leaves the hospital. Gill says that she is also expecting occupational health to visit her soon. I arrived for visiting at 2-0pm as usual and Gill said that the nurse had agreed to me pushing Gill in a wheelchair so she could get some fresh air and sun as it was a lovely day. We sat in the sun for about 15minutes and Gill really enjoyed it. Both Lindsay and I visited her in the evening.
Bruise from when I fell asleep and hit the table and floor.
Gill had had a seizure at about 1-10pm and because this different bed didn't have a foot board she ended up on the floor at the end of the bed causing more dressings to her left knee, hip, elbow and left side of her face and swelling under her her eye. Gill of course was very upset when I arrived at 2-00pm, she was very very sore and had 2 lots of Oromorph for the pain. She also said that the Doctors were going to discharge her on Monday 19th which she was very pleased about. The lady who had taken Gill's electric bed had gone home so while the nurse was applying Gills dressings after visiting had finished, Gill asked her if she could have the bed back and the nurse said that it had already been agreed that she was to get the bed back, but because they were very busy it could be later in the day but definitely before bedtime. Jo her Psychologist came to visit Gill at about 3-00pm for a chat which lasted about 30 minutes, she said she would come again on Tuesday if Gill was still in. True to the nurses word her bed was swapped over about 7-00pm and a big smile covered Gill's face, she feels a lot safer in this bed. At about 7-15pm Lindsay, Tracy, Jay Jay, Tommy Lee and Jamie Lee arrived they were also pleased that Gill had got her bed back. Hope you have a better nights sleep. Love you
I'm not visiting this afternoon as I have a Charity Meeting, its only the 3rd session I have missed but Lindsay, Tracy and Selina were seeing her this afternoon. Selina had done a charity tandem parachute jump this morning and Gill was disappointed she couldn't go to watch. I visited this evening and Gill looks and sounds quite with it, she says she thinks its her best day so far, I hope that's not tempting fate. No seizures since the early hours of yesterday morning.
Selina, her husband Lee and Lindsay came to visit Gill this afternoon after Selina had done a tandem parachute jump for the MIND charity. She showed Gill photos of the jump and she spoke a lot about it, Gill was very pleased for her but also a bit jealous as its something Gill's always wanted to do.
Talk about tempting fate, late last night Gill had a seizure in the bathroom, she's really made a mess of herself. Huge swellings and grazes to her left knee, grazes on left ankle, left hip, left arm, left shoulder but the worst is her head there's a dressing covering all the front of her swollen forehead bad grazes going into her hair line, swelling over both eyes with the left eye being closed and the right eye nearly shut, the bridge of her nose and all the left side of her forehead and grazes on her finger joints. She could have been there for around an hour as the nurses were doing there drug rounds and the other patients in her bay aren't really very helpful or with it at all as old or in bed. Most if not all would have bean asleep. So she's had no help from them since Sally left.
Thank you Paul for your side of the Hospital stay now I am able to I will tell my part.
I could have OROMORPTH at last, it was not given earlier because it can cover up things if I was getting worse. Went to sleep I did not wake till 11.15am. A nurse washed me and I sat out a bit but spent most of the day in bed. I felt like I had bean beaten up. Everywhere hurt. I don't think the toilet is the best place to have a seizure. The floor is non slip and like sand paper.
When Paul arrived to visit he could hardly believe it. Lindsay and Tracy faces said it all.
Wayne arrived in Lincoln about 11-30pm.
My left eye closed completely, right one just a little slit. I feel very sore everywhere. I walked with the physios a bit shaky but safe enough if I can do the stairs I can go home. Stairs were no problem.
The neurologist came to see me and Paul and said I had no control over my seizures. He gave us both advise and was pleased the way I was doing. Very tiring day. Not home today but tomorrow if all still good. I will get to see Wayne a bit more. He is only here for the day as he called in on his way back from London as his companion lives in Lincoln so it worked out well. There was a surprise visit from Sally who had had to have a check up at the Hospital. She was surprised to see Gill in the state she was in and said, what have you been doing I only left you a week ago. Sally and her mum stopped for about an hour. We were both pleased to see them.
Happy days Gills coming home from Hospital today. I will be picking her up at the afternoon visiting session
Home today like Paul said, both eyes open not fully but more than they were. I still have a bad headache and everywhere hurts, 11 dressings still on. Paul came at visiting time with Wayne so that was good. I think Wayne was a little shocked at the mess I had made of myself. Bought 2 frames to walk with upstairs and down.
Weird but I was very cold last night I felt like I was outside on a cold night in my pyjamas. Paul felt me and said I was hot not cold. he still put a blanket over me. RSD sending the wrong messages again
As I said yesterday still not good nights sleep, hopefully it will come.
Paul is looking after me well and should be proud of himself. Thank you very much. Summer also protecting me as well in the only way she knows how with her love.
The next lot of pictures are to show how well I have healed since all the damage that occurred while having the seizures
Not another good night. Cold hot all the time. Paul said I had like a small seizure in my sleep just my legs going like running kicking, about 2am. I know I was still awake at 1.30am. I was not aware of this at all. I had a bath this morning, and got dressed for the first time since 22nd April. Everything is a little bit big, BAGGY PANTS. I have lost about a stone in weight.
Tracy phoned up and asked if we wanted a K.F.C for dinner. I said yes I had a burger and Paul had a boxed meal. Very nice too I enjoyed it. Thank you Tracy. After dinner we sat outside a bit and Jamie-Lee picked the flowers and took them to Grandad. She was very funny. The boys were at a party so we did not see them today.
A better day today I have not used the frame to walk with at all 7.00pm.
I fear sometimes for my future as how much more of this my body can take. Paul said this has bean the worst and most violent of all the times in hospital.