March (2)

March 16th

At the hospital to check up about wrist. The Doctor was quite concerned about how little movement I had in my wrist and arm. I told him about the spasms I get if I try to hold things, or reach or stretch my arm. We spoke briefly about RSD he had heard of it- one of the few at Lincoln hospital. I told him I have had it for over 15 years. I told him I thought it has spread to my wrist. He agreed it most likely had. (Not a specialist)

He said it was a very bad injury to my wrist. I am to have physio, but when that will be no one knows. He did say it will be an emergency one though. Hopefully he said this will help the RSD as well.

Things have almost come to a stand still in lots of places. Boris keeps saying there is worse to come from this Corona virus. 

18th

Saw a squirrel in the garden- got 2 pictures but not too clear as he moved very fast.


 
To the left near grass.

In town today to get a few bits before we are all locked in. Went to CAB but they were closed. I thought they would be but worth a look. I am appealing against the decision they made.

Angela came round later and we had a good chat. She brought me some flowers a few days ago and they are just beginning to come out. So nice of her she said I do a lot for her so its way of saying thank you.




19th

Paul food shopping today, he said a lot of the shelves are empty. He took Lindsay shopping too to stock her up. With 3 children the food soon goes.

I looked after Jamie-Lee while they were away. She did my nails, very pretty they look too. On the right hand they are still long, another symptom of RSD. I can never usually keep my nails long, as  they always break and split, so it's nice she can do them for me. Jamie-Lee does enjoy it as well.
 
 Very pretty.

Walked home around 1PM- as B12 injection later.

 At the Doctors no one got in without questions  about your health. Not many in the waiting room so that was good, the injection hurt a lot today, seemed to spread right up my arm. All done for 8 weeks now.

On to the Chemist, as Lindsay wanted Paracetamol for the family if needed but they had none. I had to stand behind a line away from other people.

B12 arm (left) hurt more later going up my arm to my neck. Hopefully this will be better tomorrow. With my wrist not good  I think any pain is made worse.

20th

Boris has closed schools, pubs and parks. Meetings are not to be taken place, gatherings of not more than 2 people. Hopefully this will stop the Corona virus spread.

Arm and wrist is terrible pain today- spasms at the slightest movement. Reaching out for things with the other hand even makes it go into spasm.

23rd

Boris has locked down the country- no unnecessary going out. Shopping and walks for dogs or exercise are ok, but limit the time and not to get close to others. Recommended 2 metres apart rule to be applied at all times. This hopefully will protect more people from dying.

Summer has still being going out just the same. Andrew has bean coming too, Summer has really enjoyed him going as 2 people to kick her ball. We have bean keeping our distance from other
walkers.

Andrew has made Summer a  designer collar and lead very smart. Well done Andrew and thank you.
Summer looks very smart in it.

 
 
   Summer showing off her collar.


So far my days have not bean any difference, as I hardly go out any way. So long as I can still get out with Summer that will suit me. We have a garden so that's good. I feel sorry for people in flats as they will have only communal space. People don't have to stay- in they can go out for walks just do what I do keep your distance. If we all do the same we can beat this virus.

Rung up physio as had a letter from them to make an appointment, this Wednesday 25th. I know it would be quick as it was an emergency appointment.

24th

Call from physio- I explained what had bean going on with my wrist and arm. He had not heard of RSD no surprise there though. He said he would get back to me as most appointments are not going ahead only special cases.
He rang back a while later and said I can come in but alone. Sounds like a set up, and I will be mugged or some thing- no only joking I am sure it will be ok.

Started doing another puzzle this one is a long narrow one and will not fit on my normal board. So big Bertha board had to come out. This puzzle is a Christmas one so I think will look good when done.


25th

Physio- saw a man called Vinnie very nice. We sat around 2 metres apart. He asked me quite a few questions, I did a pressure strength test, 60 lbs on left hand, barely 10lb on right. This was very painful and put my arm into a bad spasm. He gave me a few exercises to do, much what I am doing now but an easier version. Like press up against the wall that were too hard for me on right wrist. Do them on a lower table- hands as flat as I can, and lift up heels slightly. This puts less pressure on my wrist. I asked him if he had looked up about RSD so he understood it more. He said he had a bit, and it was complicated, I said it sure was. A few questions then that was it- I thanked him for seeing me. I am to go back after all the Corona virus has passed. I was very pleased I was able to go as it reassured me.

Did a bit more of the big puzzle it is hard like I thought it would be. There are shiny bits so only able to do in certain light. Lots of windows and houses- the snow and sky look the same.

27th

Sowed the seed for the tomatoes and cucumbers. Put them in what Jamie-Lee calls hers and Wayne's bedroom. Gets lots of sun when there is any, so they should do alright. At least this year they are a bit earlier going in.

My wrist pain has not improved. Still terrible spasms going up my arm when reaching, or at times just moving it. I am doing the extra exercises that the Physio gave me, but that's causing more pain. But like every one used to say when I was running NO PAIN NO GAIN.

The lock down with me is going alright- not really much difference as I don't go out much any way  (hospital and Doctors.)
I know some people are more affected  Looking out for my neighbours as well.

Summer is still enjoying her walks with Andrew coming with us now. Hopefully this will still be able to carry on and there will not be a total lock down.

29th

Clocks have gone forward so an hour less in bed. A very cold day with wind feeling like its coming from Siberia, sunny though dried most of the washing before the sleet came down.

A very cold walk on the common. With it being very dry and sunny the common has dried up a lot after all the rain and floods earlier in the year. Hope it stays that way so we have more choice of directions we can go.

I have now finished off the puzzle I thought there was one bit missing but I found it under the Velcro fasting on the puzzle board. Definitely one of the hardness ones I have done. I think the different shape of the puzzle did not help. A lovely puzzle one more done- plenty more to do.
 
 
Andrew  has made a little name tag to go with Summers's collar and lead.
PUP.

Well here we are again with another Blog. Things a bit different all around us. Hope things here will be not as bad as other countries. If we all pull together and the same way, hopefully we come through this nightmare. All the best to you, where ever you may be love Gill.




March (1)

March 2nd

Finished off another puzzle this one is a WASGIJ one usually they are quite funny as this one is.




Summer had her hair cut, looks very smart again. I think she also looks younger too. I know she has bean behaving like a Pup again- crazy dog.



So cute.

Doing last months Blog- sat at the table as usual near the window. I looked up and saw a cat on the bin. Paul had left the lid up, the cat was perched on the side trying to reach something that was in the bin, nearly falling in a few times. He then saw me, and instead of running away, he just looked at me through the glass. He is a very pretty cat as you can see.




My Daughter Lindsay put a tap in her kitchen all on her own, even taking the old one out as well.
Well done Lindsay you have my spirit. Paul was going to do it but she ended up doing it on her own.



4th

Watched Star Trek with Andrew, 2 episodes brilliant. My Mum loved Star Trek when it first started with Captain Kirk and Spock. We used to watch it together, around 50 plus years ago. Good then and still good now

5th

In town getting a bit of shopping. I did not realise how much my hand would hinder me. Putting shopping in the bag, getting money out and putting the change back in my purse. I had to ask for help in every shop.

Got Jay-Jay a few things for his Birthday, already got him a bag that he and Lindsay picked out last week. Out tomorrow for a meal with him and family. This will be the first time out for a long time.
Noise and just the amount of people now can really make the pain and spasms worse. I just hope it will be quite.

Hand not really any better than it was, there was a few days where it improved slightly this has not lasted. Spasms all the way up my arm if I lift it. The burn and colour changes, hot cold it's all there. I remember when I first did my foot and was told it was RSD, it was 1 step forward and 2-3 steps back. Still not sure if this is RSD spread but I think it's very likely now. If not RSD spread, its severe nerve damage, hopefully I will know more on Monday 16th as I see the consultant then.
I managed to get on top of it then-- can I do it again if I need too.???

6th

Reasonable night good to see everyone together. There was one man that was very loud and that raised the pain levels quite a bit. The music was also a bit higher than I would have liked, but  we  were near the speaker. Could not move as all tables full. A good night anyway, Jay-Jay enjoyed himself so that matters the most.
Andrew got him a necklace with a kangaroo on it- as he is mad on them since he saw a baby one in its Mother's pouch.

7th

Did a little bit in the greenhouse but its hard going with a almost useless hand. Soon be time to get it ready for the tomatoes and cucumbers. Last year they were in very late- this year I hope to get them in a lot earlier.

Paid for it later with spasms and pain, fingers swelled up and were very hot. Pain from fingertips to shoulder. I will be very pleased when things are more normal. Just hope they can be.

9th

Hand bad this morning very stiff and swollen.

Angela called in to see Paul as he gets the Meerkats coupon for half price tickets with his insurance to see films. She and a friend are going to see Military Wives film tomorrow.

I printed off some information about RSD as her friend does not understand why I do not go with them. I have tried to explain but it's not easy for me, or for them to understand as it's so complicated.
The noise and the flashing light would do me no good at the moment if ever. I would probably leave there in an Ambulance after having a seizure. This would spoil the day for everyone something I would not want at all. Hopefully one day I will be able to go with them.

10th

Not a good day terrible spasms from fingers to neck. Hand is very stiff and tight.

Angela called in after her pictures and said it was good and they both enjoyed it. They both thanked Paul for the coupon.
Another 2 puzzles done. 

 

12th

Today is PIPS TRIBUNAL DAY to see if I am entitled to PIPS. I was asked lots of questions from 2018. I first applied for this in 2017 after my DLA was taken away. This has gone on and on till now.  Many phone calls only to be told it would be soon.  At last it was today. The decision would be posted to me. All the questions were as I said about 2018, then why did they ask about how I got there.

The pain I was going through while in there was bad. I took extra tablets but they had little affect.
Now its awaiting game.
  
13th

Managed another puzzle, all the puzzles are done mostly one handed- as hand still not responding.
I think my appointment on Monday is still on. A lot of things are getting cancelled now because of the Coronavirus. 

The more days pass I think this is RSD spread to my hand, all the signs are there- but there's still a slim chance it might be nerve damage. Not as many spasms today if I am careful.

14th

PIPS results back- 1 point off getting it. All this time to be told this over 2 years waiting.
 
Another puzzle done- I think these are the only things keeping me sane. More so now after the PIPS result.


Still not a good start to March and I am still in pain. PIPS decision did not help much either.
Hope you are having a better  time than me-- all the best to you love Gill.


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