January (2)


Very cold today on the common, this did not seem to affect Pup as she ran around like a loonie.

My shoulder is tight and very painful, hands going numb. So far (1pm) I have not taken any extra tablets.
Later I had a bath with the oil that I got as a present from Bev for Christmas. This warmed up my body and helped to numb the pain if only temporary.

Spoke to Wayne in Halifax, he said they have got a lot snow. His journey home from work was a nightmare for him and a lot of others on the bus. He left work around six, he phoned us around eleven and still was not home. People were abandoning their cars and getting on the bus, most likely thinking it would be safer. Wayne said the bus was sliding all over the road. What a journey he said. Over night rain got rid of most of the snow.
We had a bit of snow but nothing like that. Halifax has way more weather problems than we do. Lincoln is very lucky or unlucky which ever way you look at it and get hardly any snow.


Pilates journey was good, a quite easy ride, one lady asked me how I got on with all the wind. OK I said no problems. I thought I must have had back wind most of the way, hard ride going back I think.
Pilates session was good but so painful at times pain in both shoulders and arm and fingers went completely dead no feeling at all. The feeling returned after around half an hour but not before causing more hot ache type pain. Even going home my hand was not back to normal. As I thought head wind most of the way. Thank goodness for electric pedal power.

Later while sat down my right heal was hypersensitive and so painful all I did was just brush my hand against it. this set pain off everywhere and again took a long time to settle down again. This time I took extra tablets IBRUES. Quite swollen as well.


Age UK-- a bit late getting there as zip stuck on my coat. A busy day, I dropped a cup and it bounced, my fingers are not good, dropping spoons and many other things as well. Over rung in the till twice as fingers not feeling the buttons well. Polly sacked me not once but twice, even though I don't get paid work there.

Bit of shopping, two pairs of pj's and a dressing gown. My others are irritating my skin as a bit rough on the inside. A normal person would not feel this but someone with RSD it can be very bad. I have a nerve rash at the moment so my shoulders are quite sore. Right foot hurting as I walked back home.
I was quite pleased when I got there today, as very tired. Bean a tough week with pain.


Lindsay around today with Jamie-Lee and Tracy. I have not seen them since New Year as Jamie-Lee has had chicken pox. Now all better, still Tommy-Lee did not get it or Jay-Jay so far.
Lindsay has not had a good week either still bad heads. Doctors are still unsure what is the plan.

Andrew played with Jamie while I finished her jacket off and she took it with her. I will have to get a picture at a later date.


A easy day just sorting out paper work and cooking tea, roast beef for Paul and I, pepper tart for Andrew, plus usual other bits. Not as much pain today but fingers are still not right.

Lindsay phoned and said Jay-Jay had got chicken pox, he was here last week so I could still get them off him. Hope you don't suffer too much Jay-Jay and get better soon.

Later Lindsay got in touch and said now Tommy-Lee has got it as well. Get better soon Tommy-Lee. Jay-Jay is covered in spots and does not feel to bad. Tommy-Lee has hardly any spots and feels bad and is in bed.

My body feels like it is on fire and very HYPERSENSITIVE back being the worst.


First pictures of the snow drops in my garden.  I have two lots, these ones about a month before the main lot.


My friend here today. He asked me if I would mend his pockets on his coat. He usually goes to the market, I know they can charge a lot. I said give me it here and I will do it now. He was very pleased as bean loosing his pens and money in the lining.

Summer was a bit naughty today she got the lid off her treat tin and ate a bag and half of mixed treats. Andrew said she was clever a few days earlier I got her a new toy-- guess where the treat is.


She did very well at the game and thought she would help herself. When I told her off she wagged her tail and put her head on one side as if to say what happened.


B12 today, this hurt quite a bit this time. I asked the Nurse about all the joint pain I have bean getting and if it could be the OSTEOPOROSIS, I stopped taking the tablets last year. She said I would have to see the Doctor about it. I will try to get an appointment if I can, not easy now since we have merged with another practice. Bad head today pressure around the eyes dizzy sore neck, when I bend forward. When I do the exercises from physio my shoulders and back are going into spasms. So not doing too many at the moment.


Not too good today no Pilates head pounding and quite dizzy. Joints are very bad hurts to walk if fact, it hurts to even breath. Very tired as well but as usual no sleep. Andrew and I were watching TV when it started playing up so he turned it off. Problem was it did not turn on again. Wayne bought me it less than two years ago. So I will get in touch with them to see what can be done if any thing. Two years is not long for a TV. The warranty was for eighteen months.


Suppose to be meeting friends in town today for a chat and cuppa. Not really feeling up to it but this has bean arranged a while. I did end up going and quite enjoyed the time with them, nice to meet up.

Later I did some more of a puzzle I started a while ago  very difficult one. I finished, with help from Andrew and a little bit from Paul, around midnight. 

I agree this was one of the hardest puzzles I have ever done. When I told people what I was doing, most said I could never do that, no patience.


 I rang up the television warranty place and spoke to a very informative man who said he will see what he can do. He agreed it had not lasted very long. He needs to speak to Wayne as he has the receipt and did buy it. Wayne thinks they will try to sell an extended warranty then mend it.

Age UK was very busy, straight in with the lattes and cappuccinos this was the trend for the rest of the day. Jenny does not use the machine so it was all down to me. I know my wrists hurt a lot. Setting off the CARPEL TUNNEL.
Got a new zip for my coat decided it was worth the effort of putting it in. I don't like doing zips, find them hard to get straight, then my fingers are not the best with spasms and pain. I never know when they are going to jump or give way. Not too good when using a sewing machine.

I got the old zip removed and the new tacked in ready for machining tomorrow.


I managed to get my zip done, after not a good start. Cotton got all taffled up in the bobbin, then the needle broke. After that things went better and I was able to make quite a good job of it. Hopefully it  will last a few more years now, as its a long parka type coat, warm and fits well.


Afternoon watching Robot Wars with Andrew. Some good battles today, even the big house robots got taken out by one of the battlers. Very good and exciting viewing. I used to watch this quite a lot years ago, seems it has come back again. Afterwards I felt quite stiff and in pain so took Summer out for another walk, she was very pleased and could hardly wait to get out the door. Later I did the ironing.


Cleaning up today downstairs, Paul is helping me.

I have now started my Lion rug this will take a long time to do. I like to have a mixture of things on the go so I can have a change. This is a big rug and will look very good WHEN finished. The grid is quite hard to follow but I will get used to it. Done eight rows so far only one hundred and thirty two to go!!.


Sorted out my crystal glass cupboard, this I hate doing as my hands are very unpredictable so I could drop them. Today my hands seemed quite good or so I hoped. Anyway it was a good day and I got it all done. Shines now and looks a lot better.

Started knitting a small toy called Charlie this will keep me occupied with the rug as well. Nice to have a change I think.


Not at Pilates today again I hurt too much, body very hypersensitive too, headache and tired so I will rest a bit if I can..

Well here we are at the end of January not going too good for me but it could be worse. I wish I could get up in the morning and feel like I have actually bean to sleep and may be without pain. Is that too much to ask for?                        All the best to you all Love Gill.

January 2018 (1)

Well January 2018 what will this year bring? Less pain and discomfort for me hopefully. A better year for my children too. Last weeks PHYSIO so far has not done too much to help but its only the first one. Neck and shoulder very tight. Not sure what is happening with ACCUE as I don't think that is as effective as it was.

January 1st

A cold wet day. Jamie-Lee was up at around eight thirty and well rested. Tommy-Lee around ten thirty. Both said they felt good. Took Summer for her walk on the common and we came back across the Fair common and saw all the carcasses from the fire works last night. Later I took Tommy-Lee and Jamie-Lee to see them. Jamie-Lee was fascinated by them all. Summer was pleased because she had two walks in the morning.
Back home for dinner Lindsay came later to pick them up and they all stayed for tea. Paul kindly bought us all a Chinese take away. Very good it was too.

I have had a lot of pain and spasms in my legs just lately.


Cleaning up downstairs today. Night time a build up of pain and very bad spasms. I took one BACLOFEN to see if this would relax my body. Not a lot of good, made me feel very light headed. Andrew said I kept dropping off to sleep. My body felt very strange and heavy. At one point I nearly fell off the chair.

My right foot was going crazy in bed, The pain was just like the first RSD pain over thirteen years ago. This worried me as I know it can spread as it already has, the left leg so far has remained good. I will just have to hope and wait and see what happens.


Woke to a very bad headache and feeling very drained. I am sure its the side affect of the BACLOFEN. I used to take this all the time, up to eight a day.

Went to see Ben next door. He is not doing very good, his quality of life is not good now and I feel so sorry for him. He sleeps a lot of the time.


Age UK. Went in early as asked, last weak, by the kitchen manger as we have new menus and she wanted to go through them with Jenny and I. She did not turn up and Polly the chef filled us in. Not a lot of changes so that was good.
Steady day to start with, then a load of customers came in. Lots of lattes and cappuccinos to make. A busy day in the end. Not too good a day for me though, a lot of pills popped. Walked into the main town with Jenny and did a bit of shopping then home. The day started off wet and cold and still is. Dark when I got home around four thirty.


Went to see a little baby today called Rupert, he was born on the 21st December so cute. I took the jackets and mitts round, I had made last year for him. The smaller one looks like it will fit now, they both love them.

 This one we think will fit him now.
 This one for later.

 Rupert fell asleep on me then woke for his feed.


A sharp frost today and sun at last but not feeling too cold on the common. A nice walk for a change without getting wet.

A lot of pain today, more so when I try to rest and relax. That's the thing with RSD not letting you 
try to get rid of the pain, it's as though it enjoys making you suffer. Suffer you do as well. A lot of spasms in my legs. My right leg is giving way a lot. My hands are terrible too, dropping a lot of things.
Just another day in a life of an RSD suffer. People look at me and think there is not a thing wrong with me and actually think I am a very fit person. Yes I am, compared to many, but not like I used to be.


Lindsay (my Daughter) phoned and said Jamie-Lee has got Chickenpox. I have not had this so I need to keep away. I have already bean told Chickenpox would be very bad for me. To the point of may be have to be in Hospital. WHY because its would affect the nervous system, which is already under attack from everything else. I still might get it as they were both here for New Year. Tommy-Lee so far has not got any signs of it, Lindsay did say he did not feel well.


I feel very drained but that has become the normal for me. Lack of sleep and pain is not good for any one.
Pilates today first one of the year. This went quite well still shoulders are bad. A lot of spasms every where. I took the lady, who brought me home last time when my bike went wrong, some flowers. She was very surprised and pleased as she said she had no flowers in the house. I was very grateful to her as she saved me a lot of extra pain as I would have had to pedal without electrics. This I can do for a short time. There are a lot of hills around the Washingborough area. I just need to get new brake pads, as brakes at the moment are not good. I need to use front brake as well. As I said a lot of hills down as well as up. The down ones I usually just turn off the power and free wheel down. GREAT feeling.

Bringing my bike in the house my right leg gave way and I fell causing my knee to hit the radiator full force. I screamed as the pain was so bad. I felt sick, then the RSD full body pain hit me. I had to sit down as my body was under attack and it felt like I was plugged into the mains, with pain every where shooting throughout my poor body. This took nearly an hour to release. My knee swelled up and had the imprint of the radiator. I got away without serious damage though. 

I am doing the exercise Neal the physio gave me, well one causes spasms so I have stopped that one. I have an appointment on Friday so more exercises will probably be added or taken away.


At last my friend Bev is here I have not seen her since last Autumn. We had a good long catch up chat. Exchanging presents as well, Christmas and Birthdays. All her family are doing good. Her son Russ, I used to run with, and he spent many hours here, playing on the Wii or just chatting. That was until he moved away.


Age UK I just got to the counter and there was an order for cappuccinos then more orders followed. A very busy day. Hardly a minute to think. I had bean serving and had no chance to even speak to   Jenny. Joy, Sheila also Angela and her friend, came in but I had little chance to talk to them either.

After my dinner-- we get a free one as a thank you for volunteering, I set off up the hill for my physio appointment. I told him how things had bean and what exercises were helping and the ones that were not. He gave more to do as well and back in three weeks. After I walked back into town and did a little bit of shopping. Around five thirty when I got in, very tired too.


Went to Halfords to get new brake pads for my bike, eighteen pounds in all. These I will try to get on later today or tomorrow. I do not need my bike  till Wednesday.
When I got back Andrew was down and listening to folk/country music.  Paul was at football.


I managed to put on my new brake blocks and got them adjusted. Now I can come down the hills with a bit more confidence as the last two weeks my brakes have not bean good. I was quite pleased with myself as well, I don't know much about bikes.

Leg pain today when sat again. Doing the exercises that Neal has given me. The new ones seem to be better as he said its not an easy fix and will take time. At least the Pilates have helped  as a lot of the moves are the same as he has given me to do.

Well that's it for this Blog in two parts, to see how it goes with views.

Hope things have started well for all of you and RSD is kind. All the best Love Gill.


December 1st

Well here we are in December The trees are looking very different now. The common looks bare and deserted.
Not quite deserted---   Summer

Age UK very busy and I have a lot of pain and spasms. Taken a lot of tablets today with little relief.  Struggling to get by today, hopefully when I have my dinner I will feel better. After dinner I did start to feel more normal but still too much pain. Polly offered us all chocolate pudding. I sat with Steve and we both had some. I did not eat much of my dinner, but this was going down quite well.

I left Age UK and did a bit of Christmas shopping getting quite a few presents.
I got my glasses sorted out as well, these are for reading. The first pair I got were too big for me so they exchanged them for this pair. Hopefully these will be better.

Joy is out of hospital as well so that's good news. She  has not bean in very long. She will cope though she is a very determined lady. All the best Joy I will see you soon.


Quite mild today, I did not even have my hat on the common, so it must be warmer.
Having a few pains and pressure around face and eyes last few days. Feels bad when I lean forward pain and discomfort. Sinus I think hopefully just the cold air and not anything more.

IA Christmas dinner was very good I had the Christmas tradition meal apart from the pudding, this was Bailey's cheesecake very nice too, made me feel very full though. When we got back I took Summer for a walk and felt a lot less full. Paul went to sleep.

Frosty start today. After Summer walk I gave her a good brush and got around two good hand fulls off her. 
Went to see Joy in the afternoon. She is I think doing very well. Obviously still in a lot of pain, apart from that she was quite happy and looking forward to getting about a bit more. She had run out of tablets so I said I would get them for her and bring them back tomorrow.

Me-- I have a lot of joint pain and spasms going on. Temperature changes are going crazy as well. One minute shaking  cold, next wet though and very hot, like prickly heat feel going on as well, and I have not moved. Well hopefully when I see Doctor Mehta he can help with something.


Took Joy her tablets, she is going to the bank today with her nephew, take care Joy. When she phoned me later she said it was very hard going and painful. I said it will get easier its early days.


Pilate's I struggled a lot today as pain stopped me doing hardly any arm moves. Never mind I did it my way and still got some benefit from the session.


Saw Ben (next door) today he is doing quite well and said he was quite happy.

In the afternoon Tracy picked me up and we, plus Lindsay went to Jamie-Lee's school play She was dressed up as an Angel and was smiling at us. The play was about three Angels that always messed up when trying to do things. Very good it was too and the singing was loud and in tune. I have seen quite a few School plays over the last few years. All different some still do the Nativety but with a twist.


Age UK again and it soon comes round. A better day all round for pain. We did have some very rude customers, inpatient and saying we were very slow at serving. I had a lot of cappuccinos and lattes to do and these take time. Some people will moan about anything I think they expect four star service for a one star rate. Anyway apart from them it was a better day than last week. Jenny was back as well, she has bean quite ill, and has to have some tests done.

After I left Age UK a bit more present shopping then home one of my bags broke on the way and things fell out. I managed to squeeze them into other bags and got everything home. Very tired tonight, just sat and did some knitting.


A very cold frosty start on the common, snow on the way I think. Yes I was right it did snow but not too much.

 The Cathedral standing proud.

I have iced all my Christmas cakes, look pretty good I think. They were left on the dining room table to dry then after the frill put on they will be put in the tins ready for Christmas presents tomorrow


More snow and frost over night. The next few pictures taken from the bedroom window looking into the garden
 The bird feeder with Mr Pigeon looking on.
 Queens Park.

Summer had good fun on the common in the snow she loves it and makes snow Angels by moving her body and head.

Joys Birthday today eighty years old. Not going to see her today as going out for her dinner at her nephews. Going tomorrow instead.

I finished off the cakes -- Pleased with them too.


 All ready and done now.

Cleaning up today and putting up the Christmas decorations.

The Lincoln Christmas Market for the last day has bean cancelled, something a lot of people are asking WHY. We have had round about an inch maybe slightly more in places. The roads are clear as well. That's the City Council for you.

My  Aloe Vera plants has got a buds on it. this has not happened before so I looked it up on the good old web. it said its not too common for it to flower, has to be the right conditions. So it must have bean just right. I will up date the pictures as it changes.


A bit more snow over night very cold as well. A very winter wonderland  scene today.
Andrew came on the common with Pup and I. She was rolling around in the snow and playing ball. Very cold too it was too, but Summer kept warm, even though at times she was covered covered in snow. I had to rub the snow off her legs. That's the trouble with a little dog close to the ground.

Summer loved Andrew playing with her as usually its just me and her on the common. She likes to play ball, but I can not always throw it for her.

 I still have a rose blooming in the garden.

Into town with Andrew to look around, cold wind heading there as facing north. Had chips and curry for dinner they were very tasty and we both enjoyed them. Andrew took the shopping and I headed to Joys. She liked her presents of a Joy mug and a a large Yankee candle. She had bean to physio and has been given more exercises to do. He is quite pleased with her and said it will take time.

Stayed there a while then on to my Doctors. He said my shoulder/neck and knees needs some physio and has arranged this for December 28th. Pain wise and temperature changes there is not much he can do. Also has said how I can reduce the MORPHINE safely. That will be next year now though. I got him to look at some bad veins on my left foot. He said unless they get life threatening, they now leave them alone. Quite a few years ago I had my right one done this was blocked and causing big problems. I was still running then. Bean given ANTIBIOTICS for a possible sinus infection.  I have bean having problems for a few weeks now.


I think we have had another layer of snow over night or could be just a very sharp frost. Cold on the common but nice as well. Very fresh feel, Pup did her usual and had a good run and roll around.
Later on it rained so there will not be much snow left to morrow.


All the snow apart from a bit here and there has now gone. My Dad used to say when it hangs round it waiting for more to come, then it all goes away together. Not quite as cold but still a frost over night.

Pilate's I was not sure weather to go or not as hip has moved again and hurt quite a lot. I did go, no trouble biking though. A fair session but shoulder and hip painful. I got soaked coming home as hail and rain came down about a mile in. I had my waterproof trousers with me but decided not to stop and put them on. As it meant taking off my boots, gloves and undoing coat on the road side. My legs were very cold and blue by the time I got home.


Age UK party I am helping out. This as usual is the last one of three they put on every year. A few changes since last year so hopefully it will go better. Around eighty plus older people sat down to a three course dinner. Everything went very well. Very tired as I did shopping on the way home.


Sinus I think has improved a lot so the ANTIBIOTICS have done there job. I have a blocked sinus so not completely clear but a lot better. The heavy feel and pain have gone. As one thing goes another seems to take its place a lot of pain and burning around my right shoulder. Very annoying and sore.

Looking after Ben and Emmie tonight so that's always fun. All went well with the children and they were both asleep when Ness and Squidge got home.


Went with Angela, to see a friend in Hospital, she had a fall and was taken in. Not very pleased at being there though. Nothing really hurt just a shake up. Hopefully she will be soon home. A few things have to change before that happens as she is getting to the stage she needs help.


In town today with Andrew and Paul doing a bit of Christmas shopping.  Very cold with a sharp frost and cold icy wind. With the grandchildren getting older its hard this year knowing what to get them. Jamie-Lee has bean easy. Got a few ideas now and we will top up the rest with money both Jay-Jay and Tommy-Lee are very fashion smart boys and like to look their best.


My Brother and Sister in law here to day to exchange presents. Both are doing not too bad.
I have now taken the last ANTIBIOTIC so will soon see if this makes a difference. My face feels better and not as tight and sore.


Last Pilate's today till 10th of January. I always check the battery on my bike before I set off I don't want to run out of juice, yes half power so OK. Well that was the idea-- I ran out and had to peddle about half way there around two and half miles. I think the power was on the low side of half.
I asked if anyone had a pump as back tyre was almost flat, not sure if I got a puncture. A lady said she would get me home by putting my bike into her car. I did not think it would fit in, it did or else a hard ride home. When we go back I will get her some flowers as it was a lovely thing to do and I was very grateful.

Went to Angela for her Birthday tea,  picked up two friends on the way John and Vera. A nice afternoon, hope you had a Happy Birthday Angela. 


Dentists check everything good, teeth also gums. Not back for a year.
Did the rest of Christmas shopping and was pleased with how much I crossed off the list. Happy with what I got hopefully the boys will be too.

Weather is mild again no two days the same just lately.

I am looking after a friends cats for a few days feeding them and checking up on them.


A easy day as pork/turkey buns plus soup and drinks. I met Joy and we went to Age UK together. After I helped her with her shopping.
Carried on to the Doctors after to get tablets all fine today. Over the last few days I have bean having a lot of bad nose bleeds. Could do without that as I don't want to get ANAEMIC again. I think it because of the infection and the cold air. Hopefully it will soon clear up.


Very nice walk on the common with Pup frosty and cold. Cleaning the bedrooms and washing today.

Plant opening out a bit more.

After tea Paul and I went to Joys to take presents. Joy is doing better now but still a long way from normal movement in her arm. She put out a few snacks and drinks. Very nice too. Thank you Joy very nice.
Later I watched some old Top of The Pops a lot of Christmas ones like Slade and Wizard. All the classics ones I like.
Ironing later with another bad nose bleed. Feels very cold tonight I think a sharp frost for morning.


On common with Summer I thought my running club were doing the Annual race but it was not them. I think the Triathlon club instead. This always makes me feel sad as I want to take part.

Well Christmas -- Lindsay here with Jamie-Lee in the morning. She helped me make little sponge cake. Sat on the work top near a fresh boiled kettle, near a toaster and coffee maker, with a knife in her hand. Health and Safety would have gone mad!!!  The cakes were very nice, she does not like cakes too much so did not eat any. They will be iced tonight also making the Mince pies as well later.

 Paul is picking Wayne up from Halifax to come here for Christmas. They will be eight around the dinner table tomorrow. Hope things go well.  
The cakes and mince pies turned out very well and were tasty, well you have to try at least one.


Merry Christmas everyone. A hectic day with all the children and grandchildren too. In the end nine for dinner. Everything went well and dinner was a great hit with every one. Present were opened and everyone thanked. A good day but very noisy and hard work too but very good all the same.

Walked back with Jay-Jay to help him with his presents as he could not carry them all. The rest are being picked up tomorrow. Everyone was going to stay for tea as well, but most were still full from dinner so headed off home. Rest time for me a long day with a short night.


Headed to the Crematorium to put flowers on Mum's, Dads and my Brother Phillips stone. Very cold so I did not stop too long.

Went on to see Merriam the lady who had the fall. She is now in a rest home for a few days to get her strong and walking better. As soon as things are put in place at her house for her safety, she hopefully will go home again. I gave her her present, Biscuits, chocolates, Christmas cake and mince pies. I stayed quite a while. Bike all good now and no puncture just a bit flat. Electrics good as well.


A wet day with cold rain with bits of snow.

Paul's parents are here later for tea. A good day Andrew and Wayne here too.


Wayne is going back to Halifax today, Paul is taking him. A very cold day frost and icy wind.
Cooked dinner and after I got a lift to the Hospital for some physio on my shoulders. Paul carried on to Halifax with Wayne.

The physio was painful but hopeful all the same. He said my shoulder is badly damaged with the RSD and everything else going on, but should be able to help a bit. Massage first, he then pulled and tugged my right arm. Very painful at times. I am to go back in two weeks and do some exercises he has given me and heat pad when sat down.. Walked home still very cold and frosty. Bad headache later. Paul got home around nine.

Age UK last one of this year. We only had on one main and pudding choice, plus soup. This made things a lot easier for everyone. Not over busy but steady all the same.


Had a bit of a gunky throat the last few days. Little like blisters at the back. Headache about gone now. I am sure it was caused by the physio I had.

Plant now almost like a hyacinth. 

Well quite another mixed month again. At least I now have some help with my shoulder. Pain up and down as usual. I think we have had most types of weather too. 

Next year I am thinking I might do more short Blogs than a months at a time.  Something I have bean thinking about. So look out there might be more in January.
All the best to every one and a Happy New Year to you all. Lets hope things improve next year. All the best Love Gill.
To end the year, is Summer all dressed in her Christmas suit. 

Merry Christmas and A Happy New Year.

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