September 1st

Had a nice letter from my friend Beeston Bev catching up with everything that has bean going on. I rang her and told her my news and family news. We are going to meet up in October after her holiday and mine.

Jamie-Lee was here from around 1-00pm. She had bean at her Dads but got bored. To be fair to him he has had the two younger children for the last few days while Lindsay recovers from her pain block.
I spoke to her and she said the pain felt a little bit better than the last few days.

Chris (Andrews Friend) played with her for a while, so did Andrew and Hannah.
We all had tea then Jamie-Lee went back to her Dads she could not stay here as I have a full house already.


Went to see my Mum and Dad also Brother Phillip at the Crematorium took some flowers and stayed a while. I tend to tell them everything that has bean going on. Some how this makes it all less real they are not still here. Everyone has their own way of coping with death.

Phoned Lindsay and spoke to Jay-Jay he said Mum was telling them off so she must be feeling better. The last few days she mostly bean asleep or resting.

My knee is still playing up and I am very tired, lack of sleep I think, but not much I can do about that one.


Walk on the common with Ben-- glass all over and bin bags just emptied out. The glass is on the paths and grass and lots of it. I carried Summer but not everyone is lucky to have a small dog. I picked up as much as I could, one lady said the Council had bean informed and were on their way to sort it out.


Early hours of the morning I was sat with my feet slightly up, when I tried to stand up pain shot through my left big toe, the toe went right under and pain went up my leg. I tried to bend the toe straight but all I could was try and rub it back to normal. This went on for over an hour. I was sweating and in a lot of pain. Finally the spasm released and I was able to stand up, only for it to start again. This time it only lasted a short while. Even when I went to bed my big toe was still twitching and I was afraid it would all start again. I think this happened because I had my legs up to try to stop the pains in my knee.

Cleaning up later. Night time and I try to knit a pair of boots for Jamie-Lee's doll that she is getting for her birthday. The pattern did not make sense to me picot edging in the middle of the boot instead of sewing it up. I tried it so many times. In the end I went on the web and realised that you do it from the back and not the front. Over three hours to do the first one and an hour to do the second one.
I usually don't give up on things but I nearly did on this one. RSD can make your brain I think, turn to mush. 


B12-- has it really bean eight weeks since the last one. This time it did not hurt too much.
Joy was here just before and we had a catch up chat. She always brings Summer a chew so she was happy.


Age UK very busy today I did not even speak to Jenny for over an hour. I was late getting there as I was waiting for a phone call.
Trying to find a pretty dress for Jamie-Lee's doll that I mentioned earlier.
I got two very pretty ones at a charity shop so I was pleased. Little new dresses are very expensive.

Bean looking after a neighbours cats again Andy, one of them likes to sit in the road. He knows that I am feeding him so he crosses the road to see me. Not a good thing to do as there are cars and vans up and down. Not a busy road but it only takes one car to hit him. I know he is missing his owner and I think he is eating more to make up for it. I not too sure if the other cat is getting any food as he is not always there. This week a few people have thought he was homeless. He even ended up on face book, asking if any one knew who he belonged to.

Bad head pains later I think because I am exhausted but how can I sleep when my body will not let me. All my conditions get mixed up and they all start fighting each other.


Happy Birthday to Tommy-Lee 12 and Jamie-Lee 6 today. Paul had sorted out a special surprise for them at football. Magic Moments where they get to meet all the players and get special attention.

We got Jamie-Lee a Annabell doll plus a lot of clothes, some from when she was first born plus a bouncy chair. Tommy-Lee a Lincoln City football kit.

 Opening her present.
 There she is Annabell.

 Tommy-Lee looking at the tickets.
 Well happy.
 His football shirt.
Lindsay and Tommy-Lee with the tickets Jamie had a melt down so would not have her picture taken.

Soon it was time to meet Paul at the stadium.
With Paul in the dug out.
 Also in the dugout.
Tommy getting autographs.

Despite Jamie-Lee having a meltdown she enjoyed the match very much.
Tired after all the cheering.
With the Lincoln City managers-- The Cowley Brothers.

I hope you both had a lovely day and enjoyed all the surprises.


Happy Birthday to Ben next door ninety four today. Took him a card and a present of Lynz he was happy.

Still bad head and very far away feeling. At times dizzy too. Not doing too much today.

Andy is back today so hopefully the cats will settle down and stop crossing the road now. He gave me a voucher for looking after the cats that was very nice of him as I don't expect anything.

Andrew and Hannah made cakes for Tommy-Lee and Jamie-Lee Birthdays.

 Barbie Girl.
Football mad.
I think they were lovely and a lot better than I could have done.


Up at 8am despite only getting two hour in bed. Took Summer on her walk, the mornings are getting quite a bit colder now.

Cleaning up downstairs today. Not sure how it will go as not much go left in me.

Night time looking after Jamie-Lee for a few hours. She had some tea with us. I thought Mummy said you had already had your tea Jamie-Lee, she had chips and gravy. I have never know a child like gravy so much.

Andrew and Hannah gave her the cake she was very pleased with it. She said I have never seen such a beautiful cake, even better than yours Nanny.

Jamie-Lee very HAPPY

Tommy-Lee did not come as he was out with his friends. He can have his at a later time.

Soon Lindsay was back and time for for Jamie-Lee to go. She took her cake and Baby Annabell things home.


Pilate's this week knee still not good but I decided to go. Not too bad a session either. Jo was back from her holidays. Not good-- bad weather and bad conditions where she stayed. Nice day so I did some washing. Bit cold going there on my bike soon be time for gloves.

I had my bike serviced while the class was on. The man lives at Heighington and runs a bike shop, so it made sense to have it done there. The man I already knew he was a teacher from Andrew and Lindsay's primary school. He adjusted my brakes and checked and replaced cables, Oiled and tightened. Going home it did ride better and the brakes were very kean..

When I got home and opened the door, Summer shot out as Smudge the cat was there in the road as usual. A van was coming round the corner I pushed my bike in and stopped the van. I picked Smudge up and carried him back to his side. I shouted at Summer to get in, she did what she was told-Good girl Summer. The van driver was laughing as well. Not funny for me, but it must have looked like a Monty Python comedy sketch. Ironing later, arms and shoulders hurting


A chilly start to the day. Andrew came with us on the South Common. He and Hannah like to see the horses.
The day soon warmed up and the washing got dried. I washed Summers basket too. I ironed later, after yesterdays lot my arms and shoulders were really hurting today. A few tablets later and things were a bit better. Ironing two days on the trot does not go well for me.


Age UK today last one for a week as on holiday starting Saturday.  Quite busy, and a few moaning customers, and some just plain rude. We also have some lovely people come too.

A bit of shopping then home. I need to pack as not even started yet, but for me just open the cupboards and wardrobe and take out the things I need Simple.

I am looking forward to a week away as the last few weeks have bean a bit tough.That why this blog has bean published a few days earlier. The next one will be all about the holiday and what I got up to..
  All the best to you all and I hope things are going well as they they can be.. Love Gill.

August (2)

August 17th

Age UK very busy--I went in and did not get signed in till an hour later as the customers kept coming. A long busy day and pleased I am not doing it all the time.

Squidge (a neighbour) came round and asked if I would look after Emmie and Ben. I said I would if they were back around midnight as I was very tired and bean in a lot of extra pain. (I sounded a bit like their parents.) I went round at 7-00pm. Emmie and I did all sorts from colouring to playing with her dolls. Ben was mostly upstairs coming down for food and to see me. Ness and Squidge got back around 11-45pm so not late. I stayed for a drink then home.

Had a nice soothing bath then a bit of TV then bed. Lots of extra tablets taken today probably at the limit whatever that is. Even took OROMORPH last resort.


The last few days my sweating has bean quite bad, this had stopped a lot but now seems to be back with a vengeance. Not a lot I can do about it.
Knee has not bean good either so I think the up in pain levels have not helped the RSD at all.

Finishing off the cleaning I started on Thursday, despite my knee pain I got it all done.


On Summers walk with out Ben today. He will join us later on the afternoon walk. Paul's parents came round, but I did not see them too much as out with Ben at 3-00pm.
Andrew and Hannah (Andrew's girlfriend) went for a walk too, as they often do, and go and see the horses. There are only nine now and they come right up to you. We saw them walking towards the horses and joined them. . Ben liked it when he could pat and stroke them. They kept trying to get in his pockets I think for treats 

Knee very painful at night time I did not know where to put my leg as it ached so much.


Washing and ironing (bit warm for this) and changed the bed, cleaned the bedrooms apart from the computer room.
Andy came across and asked me to look after the cats for him on Sunday and Monday morning
I also took up a pairs of trousers for him

Heavy air later on, hope there is going to be a storm. My head is bad and I feel like a weight is on my back and shoulders.


Got Jamie-Lee today as Paul took Lindsay to Nottingham for a pain clinic appointment. Hope they are better than Lincoln. While Jamie was on her Ipad I got the rest done upstairs. When I came down we played Kerplunk for a while. She even roped Andrew and Hannah in for a few games. I think they both enjoyed it too.

Lindsay got back around 2pm so not too late. She is to have an injection into her head/neck next week. This hopefully will block the pain she is getting. About time they did something.

Tommy-Lee came back with Lindsay. He had dropped his mobile phone down the toilet. He has only had it a few weeks. Jay Jay broke his other one. Tommy is usually good with his things but this just slipped off the toilet top straight into the bowl Not sure if it will dry out, hope so.

Jamie-Lee was getting a bit loud and tired so all of then left for home. Bit of peace for me also.

Chris, one of Andrews friends has bean staying the odd night to finish off some Uni work and is here today. Helps him out as his home is not in town.


No Pilates today my knee would complain as still very sore. The scan could be along way off.

No Ben on Summers walk, his Mum said he was having a lie in, then they were going swimming. Ness asked me round for a chat and cup of tea. Sat in her garden very nice and warm. Emmie's paddling pool would not blow up so I went and got my own one. No blowing up just pull up the sides. Ness filled it up and Emmie got in. Cold water too, no hot, Jamie-Lee has a few buckets of hot in it. Emmie was having a good time in it so I left it there till Jamie-Lee needs it.

Came home and gave Summer a bath so she's nice and soft now and white again.

A lot of rain overnight chucking it down when I went to bed around 4-30am, seemed a lot colder too.


Going into town to get Tommy-Lee and Jamie-Lee shoes. Jay-Jay is alright as he only got his earlier this year. I think he has slowed down in his feet growing as already in an eight.
Went into Clark's shop and was asked if we could be helped, I said do we need to take a ticket, NO she said I will serve you now. Shock horror, as we normally have to wait even when Lindsay has booked. Not very much later two pairs of shoes and £84-00 lighter we left the shop to go for dinner. I was very pleased it was quick as the noise was very loud and I was already in pain. I thought it would get to Lindsay but she said she was OK. A better day for her

Chip shop here we come. Tommy ordered fish and chips adult size, and looked worried as it was the dearest thing on the menu. I said as long as you eat it, its OK. He just about did just a few scraps of chips left. We all had a good meal. Another £25-00 gone. I realise now why I don't take them shopping much.
On to JDs Sports to get a bag for Tommy-Lee,  I found a bargain pair of trainers for him, £10-00 only. He was so excited they fitted well too size six now. I bought one, Lindsay the other one. He stood at the counter in his socks waiting to pay so he could wear them home.
Now lets go home as I hurt and am very tired. Lindsay got picked up later and they went home.

Very cold night I think Summer is over for now? I could see my breathe when I breathed out.


Age UK again, soon comes round and busy again. Did not leave till nearly 3-00pm. I am pleased that the work is not too hard as I would never be able to do it. This little voluntary job makes me feel like I am no different to anyone else there. No shopping today straight home.

When I got home Hannah, said she would cook tea. A lovely chicken curry with rice very very, nice. Thank you Hannah.


Very tired, well exhausted, is more the word. I went on to a CHRONIC FATIGUE website and looked at the symptoms and everyone I could tick. I was diagnosed around twelve years ago. I did not think it had such an impact on me., If I could only sleep I think it would help everything. I bet you ones with RSD are thinking the same too.
Anyway it's my life and I just have to put up with all the crap that RSD and the other things throw at me, I can't throw it back either. Its here to stay so I try to make the best of it and try to carry on with my life but sometimes its very tough. Also knowing it will not improve-- the opposite really as we are all getting older.


Quite a nice day I think Summer has returned again. A lovely walk on the common with Summer.
My knee felt sore the whole way round. Hip very painful as well, but I think this is the way I am walking because of my knee.

Out tonight with the in laws. It's Pam my sister in laws 60th Birthday meal, also her and Malcolm's 40th wedding anniversary. At one point Pam was given 5% chance of recovering from a stroke and brain haemorrhage. She has done extremely well to be at this Birthday. A good meal and catch up with everyone.

 Paul and I.
Malcolm and Pam.
The birthday girl herself, Pam.


Lindsay at last is having something done about her brain bleed and violent headaches. A pain block into her head/neck. This is hopefully going to stop the pain but it can be risky as it might not work. She will know in around three or four days. Paul said she was suffering on the way home.

Pilate's went quite well, Jeff took the class as Jo was on holiday.  Knee quite painful after and also  from biking.

I got a phone call to say I was booked in for a scan tomorrow, 2-00pm at BMI Hospital (a private one).


The scan was a MRI one- this felt like being on a roller coaster and being shocked at the same time, very painful. The scan lasted around twenty minutes. Very noisy even with double head phones on. I just laid there very still and listened to the music hoping it would soon be over. I counted five songs so I knew the end must be in sight. When I got off the table I was shaking and my whole body was tingling. This lasted the whole day. I felt quite strange at times too. RSD does not like noise or vibrations, MRI scan is all this and more. Hopefully the scan will show what is wrong with my knee. Still could be the RSD spread but I am not sure about that as the pain is different.

Lindsay has bean asleep most of the day so no news that it has helped yet, time will tell.


Age UK steady today so I was pleased as knee still playing up. Left around 3-00pm as Jenny and I stopped to help Chris the cook.

Forgot to get my tablets so Paul said he would get them tomorrow.

Hannah cooked tea again, I could get used to this. This time pan fried chicken and leak and potato bake in a cream sauce plus spinach. All very tasty, again thank you Hannah.

Well that's August Blog done. Hope things are well with you all.

Just something that has got me quite mad.

I walk past the Salvation Army place and usually there are up to ten people sat/laid there. I say laid in a very loose term as some are completely out of it, almost naked and on the floor. I would say out of the ten, only two could get up and walk. What can this be that has rendered these people like this...... "Legal Highs" that's what. The stuff that this Government has let happen. I go into the town centre and more of them Zombies-- that's what they are being called. Extra police have bean drafted in to cope and move them on, that's when they can walk. At times they are taken away in an ambulance. The cost to the city must be huge and could have bean avoided. .....  LEGALISE MEDICAL CANNABIS. This has sort of come in for medical use, but its very hit and miss. People who use this are NOT laid on the streets half naked and out cold. NO they are at home very relaxed and eating munchies, (one side affect of Cannabis). Probably the only side affect so long as they don't mix it with alcohol or other drugs. This works for pain, I know I have tried it. This can help people with MS and Cancer plus many more- children are alive today from using it. People are made to use backstreet sellers and feel like a criminal. That's what they have become because, its NOT LEGAL. The Government could gain money too on tax. So WHY don't they bring it in for ALL pain suffers now? This would have to be regulated as the strength and type could very.

 I have done now.
All the very best to you all love Gill.


August 1st

Very tired today, I think its after being at Wayne's the last two days. Paul usually goes on his own to see him as it can mean a lot of pain for me. I cleaned the computer chair that Wayne kindly let us have looks good. Knee still sore but calmed down a bit, so it should with all the painkillers I have taken.


Age UK quite a bit busier than last week.

One of Andrews friends Chris (he has stayed before) is staying the night or two.


Lindsay and Jamie-Lee came round. Jay-Jay and Tommy Lee were out somewhere.
Lindsay cooked dinner after I prepared it all.
Later Jamie-Lee and I went to the park. She met a friend there from school. A nice afternoon for her running around with her friend. She took her pram and baby Annabel with her. A little boy borrowed the pram and baby, he had a very good time looking after her. He was not so keen to give Jamie-Lee the pram back. After a while we headed back home. 

I am looking after Tabby cat while his owners are on holiday. Feeding him and cuddling him he purrs very loud. His cry is also loud especially when he sees me getting his food.


Another sunny day and windy too. Perfect for washing.

Angela popped round for a chat after she had finished work. We talked about the Holiday in September in the Lake District.  Paul, Angela, and I too are really looking forward to a break. I think we all need it.   


Cleaning most of the day Joy came round for tea and a chat. She looks very well now and I think she is on the up. 

Knee still not good locking up, and if I just slightly twist it while walking it shoots a pain from the knee cap down or up my leg. Feel a bit like my knee cap is tight or moved. Appointment next week at the Doctors.


Pilate's I decided to go this week, another warm day. Knee was not too bad biking, but it's electric so a lot easier. Cool breeze going nice but a bit chilly for me. There were road works but not a thing going on when I finally got out the standing traffic. I carried on and just near the Spar shop, a lady did a three point turn, not looking at all. More interested in her friends at the shop. She just missed knocking me off my bike. As I went past her she put up her hand up and smiled. I just put my arms up in in disbelief. If I had not bean looking I would not be here probably squashed.

Pilate's was a good session but I only did what I could. The ride home was uneventful but knee sore. Some times I think there must be a force or something stopping me going to Pilate's

Lindsay was here with Jamie-Lee when I got back. She had brought with her the paddling pool.. The weather was a bit cooler so we delayed getting the pool set up. Jamie was moaning to go in it. Later Jamie Lee did go in and played for a while. Summer loves children being here. She plays and runs around following Jamie-Lee all the time. She will be very tired later and tomorrow.


My younger brother, David, called round. It's his 60th birthday tomorrow. So he picked up his present and card. He is going to do our patio later on in the year.


Age UK bean a bit of a problem, the rules have changed and people are not happy. We do not now get a meal after our shift unless we pay, 10% off WOW. A meeting was called after we got a very sharp, almost rude letter. Again with the meeting no communication again, we were not even told by the volunteers co-ordinator that there was a meeting today. No poster, nothing said. Word of mouth for most. I said at the meeting that there is a lack of communication from you lot. The boss being the worst, very rude she is. Anyway things were sort of put right, but I think a lot of volunteer's will leave.

My knee is extremely painful today. Lots of extra tablets far too many, they don't seem to work as well as they used to, or is the pain getting worse? I have a Doctors appointment on Tuesday so hopefully will know then what is going on with the knee. My Doctor looked at my knee last time but was not sure what the problem was. Since then it has got much worse. Walking does not help but going on the bus is worse because of the vibrations. People do not understand this and think there is nothing wrong with my knee or the rest of me. In some ways I can't blame them as its not easy, even for me to under stand whats going on.

By the time I left the Age UK it was nearly three o'clock. After doing a bit of shopping I finally got home around five o'clock. Some had bean there since eight thirty.


Ness and Ben came round to give me a present from all of them for looking after Tabby cat.

Ben asked if he could come on Summers walks with me. I said yes course you can so tomorrow he will be joining Summer and I.

Jenny (Age UK.) asked me to sort out a pair of trousers for her by taking up the hem. The first leg went well the second for some reason did not. Looked why, then realised the original hem was not straight. So I had to re do them but got there in the end.

Angela has had a good report from her Doctor as she was very worried as she thought it would be bad news after having some tests done last week. I gave her an early birthday present of a Halcyon first series DVD, as it is on television but she can not watch as its on too late. This is the second time it has bean on she loves it.

 She bought me some flowers. Thank you very much Angela.

Paul has had a bad back but is much improved now. He is able to move around more. He had a trapped sciatic nerve.


A very wet start to the day. I forgot all about calling for Ben when I got back to our front door he was waiting outside for me. I said to him I totally forgot sorry. He said never mind. I said it does, come on we will take Summer a bit further. We went down Sincil Bank and Summer and Ben were happy.

Terrible head pain later so bad I thought my head would actually blow off. This was to do with the storm we had later. A lot of hip pain but I think that's more the way I have bean walking to protect my knee.


Early Doctors appointment 9.20- he looked at my knee and agreed it was very swollen, not sure what is causing it, but its very inflamed. He is organising a scan hopefully it will not be too long. He does not think its the RSD spread, I don't as the pain is wrong but at one time it did cross my mind.

Went round to get Ben, this time we went on the common I showed him the sand pit and the under ground stream. He enjoyed the walk a lot, so did Summer. He met a few of Summer friends too. I think she was showing off as she kept running around them.

Pictures to see "Mamma Mia 2 here we go again" When we got in the pictures for the 2-30pm showing, we thought it was weird that there was no adverts on the screen. An odeon worker announced that this showing would not go ahead. We were told that the bulb had blown and as its a specialist job to fit another. They said it would be ready for the next showing 5-30pm. Refunds would be given or another film either today or another time. We chose to come back for the 5-30pm one today. Angela got a refund for the film and we did not have to pay for the 5.30 one. We were both shocked and pleased. The film was very good and we both enjoyed it a lot. Lots of old Abba songs. Angela dropped me off at home and went to feed her cat.


Pilate's- hopefully my knee will be alright as I have the bike ride first. Very windy going and cooler. The Pilate's session, yes things went OK but a lot of pain in my knee and shoulders coming home
Very tired later.


Walk on our own to day as there was no answer when I knocked on Ben's door. Paul sent his Mum (Ness) a message and we agreed to go again later. Lindsay went home and soon Ben arrived to take Summer out. A good walk on the common with Summer running around. She will sleep well again to night.

Well that's it for this Blog. Hope you are as well as you can be and had a lot of this real summer sun. 
All the best to you love Gill.

Pictures I  took of the cat over the road early this morning- he is sitting on a car bonnet. His name is  Smudge, I am looking after him and his mate Cowley (named after Lincoln City football manager) in September for a week.

July (2)


Checked my batteries on my scooter and found they were not charging up as they should. Even though at the moment I don't use it too much I keep it topped up. The scooter was bought in 2006 so I think the batteries have had it. Hope new ones are not too much money as spent quite a lot just lately.
I will look in to it when I need it more.


Paul and I are having a day out at Cleethorpes a seaside town. The journey was good for me. I don't get as much pain while travelling in the car now on a good day. We walked down to the sea soon after we arrived. They was not much sand to see as the sea was well in land. This was around 11-30am.


 We went round the shops and had dinner fish and chips of course, LARGE PORTIONS too. 
After a while we had another look at the sea what a difference the sea had gone out and we could hardly see it.

      Paul and I on the beach a bit windy.

Later Paul had an ice cream, but I was still too full from dinner. The day was very warm but with the usual sea breeze. We decide it was time for home and Summer. We had got her a chew so she would be happy. Cleethorpes is no where as big a place as Skegness or Mablethorpe but I like it at times because its quieter. Going home was good as well not too much pain. A good day out the first for me since February when we all went to Mablethorpe for my Birthday..


Another fine day warm and breezy. We have bought a new carpet cleaner as the last one is about had it. We got a bargain too reduced from £250 to £169. Paul used it on the stairs and hallway and said it was very good. The carpets were dry in around an hour and it smelt nice too. With having Summer the house can get a bit of a doggy smell at times. Most of the time we have the back door open so its better but in the winter it can be a Summer smell.

Andrew is back today from Amsterdam after a few problems he arrived here around 1-30 am (20th).
Paul had picked him up. He was tired so was Paul but Andrew had a good time catching up with few people. Most of the time spent there was work related.


Age UK Jenny is not here today as she has not bean well all week. I spoke to her and  she says she should be back next week. I was not on the counter much today but doing various easy things, a bit of washing up. stocking up and general bits. A nice steady day but I did have an exploding Pepsi can. I took it out the storage cupboard with some others, and this one exploded in my hand. I dropped it and the spray went everywhere, walls, radiator in the cupboard and all up my leg, skirt and shirt.
Garry helped me clean up. He said the same thing happened to him a few days ago.
No more events for the rest of the day. The cafe was not busy so an easy day for everyone.

Bit of shopping then home. My knee is still playing up and can be painful at times even giving way as well.


My leg is a lot better now. the dressing from the nurse have certainly worked very well.

Picture of my leg still a bit sore but hell of a lot better took nearly three weeks though as I did it on the 3rd July.

Picked my first cucumber today and the one and only radish.
My first one this year there are a lot more to come but the Tomatoes are not doing the best very slow to get going.


Very warm again but with clouds.
Cleaning upstairs and its making me sweat a lot. There seems to be no air and the breeze is warm as well. Having to stop a lot of time just to calm down a bit and cool off.

My left foot, well my little toe that is, started hurting later on. The pain was like when I first got RSD. Despite taking a lot of tablets the pain would not go. Even when I went to bed around 4-30am the pain was still as strong.


Another very hot and humid day. The storms that were promised did not arrive so still the air is hot. Thursday is meant to be even hotter.

Lindsay is here with Jamie-Lee and Jay-Jay. Her freezer has broken down and she has found another one but just needs to get it. I said I will have Jamie for a while. I gave her the pram and doll that I have had for ages. The doll is a Baby Annabelle, a bargain buy from a charity shop. I think it was four pounds. The pram someone was getting rid of so I had it, and cleaned it up. She loved it and played with it most of the time changing her clothes and feeding her.

Jay Jay was BB gun shooting, making animals with balloons with  Jamie-Lee and a few other things. Lindsay came and picked them both up.


Pilate's was hard for me today as my knee is hurting a lot. The ride on my bike was very nice as a cool breeze blowing. Lost my key for the my bike. Jo gave me a hand to look for it. I had it when I went as its work the electrics, so I knew it was either in the hall or my bag, wrong it was hidden outside in the shrubs. We found it and I was soon on my way home very cool again but pain in my knee swollen more than it was.

Later my sore leg really started hurting. I pressed round it and a load of gunk and very dark blood shot out, a lot of the swelling went down and it stopped hurting as much.


Going to my friend Joys today, it bean quite a while too since I was last there. I walked in to town then got a bus the rest of the way around a mile..We sat outside and chatted, had some sandwiches and tea. Very nice too, good company good food. When it was time to go I stepped out her front door and the heat was like an oven. I went back on the bus, this was hot I had not bean on long when a very sharp shower came down. Most people did not notice as they were on their phones. When they did look up probably after getting drips from the open bus window, they were so surprised that the rain was coming down fast. The shower did not last long and the sun came out again and was very hot. I also caught a bus home again around another mile. Big mistake the bus was full with people with around fifteen standing, in the end. I got a seat with getting on at the station. I was so pleased to get off. I know why I don't usually use buses now. I thought I  had lost my bus pass but I had put it in another part of my bag so all good. I thought typical the first time I use it for ages then I had lost it.

Bit of a storm later that grumbled though out the night.


The air is still hot though even after the storm last night..

Age UK about the same as last week steady but not over busy, nice, I like it like this. Very hot  in the kitchen and behind the counter.

More storms later around six pm,  more heaver rain this time. Very nice and cooling.


Out for a meal today with friends. I had roast beef and all the bits, Paul had the same.. Nice meal but had to be re heated as it was not very hot. I had a pudding, strawberry and ice cream sundae, very cold but nice. Made my head hurt quite a bit.


Today  Paul and I are travelling to Halifax as it Wayne's Birthday. Happy Birthday Wayne. Staying the night. Hopefully I will cope as my left knee at the moment is very sore and stiff.
The journey was not too bad but still pain. I have a very painful cold sore on my bottom lip.
Gave Wayne his cards and presents. We have not got him much, as we hope to get him a new patio set tomorrow.

We went out for an Indian meal in Bradford at a place called the Aagrah Pudsey Kashmiri, very nice too, some of the dishes were a bit fiery. We all enjoyed it very much.

 Some of the food we had.

Not a good night for me not a lot of sleep even less than usual. I think the curry's had made me hot and also a different bed.


Bad head, the same as I have had before, pain in the eye and soft spongy head. Took one of the CARBAMAZEPINE tablets and it helped take the worst pain off..

Going to try to get Wayne a patio set in Halifax, after looking round we got a very nice set for him just what he wanted well pleased.

The new set.

Wayne's cat Timmy. He had the big box that the patio set came in, he loves boxes.
Timmy hiding.

Back home to his house in a lot of pain, popping pills like smarties.
Paul put together the patio set. I cooked tea then around 9-00pm we headed home arriving around 11-15pm. A painful but good day. Good to see Wayne and Timmy Cat.

Well again a bit mixed month end. I was pleased I was able to travel to see Wayne as most of the time it is not possible because of pain. I know I still had a lot but was able to still enjoy the stay and see them both.

Hope things are good with you all and are enjoying the still hot weather All the best love Gill.

July (1)

Well here we are in July and its still good weather too.

Sorting out the car park again, as the weeds have grown fast. This time I put some root and weed killer down so that should frighten the weeds a bit. The trouble was the garage had left two cars very close to own wall so I could not get to the weeds there

A lot of extra pain today mostly in my right foot and left knee. I am trying my best to ignore it. Only a few extra tablets through out the day.


Another warm sunny day I think the last time it rained was June 2nd. Cleaning up again.

Lindsay is at the Royal Hallamshire Hospital in Sheffield today hopefully this time things will start to go forward and she can get some sort of treatment. Paul has taken her.

My friend John came round for a cup of tea but no cake this time, so we had ice cream instead, he did not complain at all. A good chat with him too.

Soon Paul and Lindsay were back and the news is after this scan they will compare to the other one taken earlier this year, then they will decide what to do as tablets have had a hit and miss affect.

Lindsay and Tracy stopped for tea as well so did Chris, Andrews friend.  Children are on Holiday with their Dad.We had a very good tasty Chinese.


Andrew came on Summers walk today so that was nice as usually I am on my own. Summer enjoyed it too.

Saw Doctor Mehta in the afternoon, we discussed how the tablets were working,. I said quite well.
He said they were for WEIRD pain I said that will be about right then. Got a prescription for more my regular pills.  When the Chemist gave me them he said 10/5 (strength) but it did not register. Should be 20/10. I think when I rung up the Doctor (4th June) things got confused, and he knocked off the higher one to leave the lower one instead of both of them staying on prescription. We got it sorted out hopefully when I pick them up on Friday all will be well. Very tired to day even nodded off around 11-00pm.


I am back at Pilate's today as I think I can cope with bike ride and the session. Nice to be back again as not bean since 22nd of May. I enjoyed it as well quite tired when I got home but I thought I would be.

Left knee sore and foot still playing up. Oh the joys of RSD. The only consolation is my legs don't grow hair like they used to so do not need waxing or shaving.

Knocked my leg on the garden wall only a deep graze but it hurts a lot and the RSD has made a mountain out of it as usual.


Age UK-- Jenny was back so I was pleased I enjoy the time with her. Not crazy busy but steady. The customers are eating earlier than they used to, before no orders were taken until 11-30am. Now when I go in (11.30) they are already eating. Bit of shopping then home. Still Summers day so quite warm.

The tablets had not bean done right so a long wait at the Doctors and Chemists while they sorted them. This time things are as they should be hopefully.


England playing Sweden in the World Cup Quarter Finals  I watched a bit and the penalty shoot out WE WON 2-0, next the Semi Finals.on the 11th versus Croatia.


Guess what still hot and sunny again I could get very used to this. The heat does not bother me too much. My leg is not looking too good maybe infected as the last few dressing have bean manky. Using some ATRAUMAN I had left when I scraped my leg badly before in July 2011 nowhere near that bad this time. 

   This is what happened when I slipped off a chair.

I think this is helping, its very expensive I know that as the Nurse said last time. The tablets I am taking for my NEURALGIA, CARBAMAZEPINE are helping a lot and I have only had one bad attack of the pain since starting them on 25th June. Make me a bit wussy some days but even that is wearing off. Good some thing that work against this RSD beast.

Potting my Olive tree but had not got enough potting compost, so went to B and Q's to get some on my bike. Strapped on my bike box and peddled home no problems. Had dinner then soon got it re potted. Hopefully it will be a bit happier now.


A lot cooler day not a lot of sun. Most people will be pleased as its bean very hot.

Changed the bed and did the washing plus two other loads. Windy today so a nice breeze to dry it all. Looks like RAIN yes that wet stuff that we have not had for ages like I said earlier in the blog.

Nice walk with Summer, met a friend so we walked down Sincil Bank with her as she was going home. Her dog had not bean well so it was nice to see her and talk, The dog is better now. She has an allergy to grass and has hay fever. From February on wards she looses her fur, then it grows back. She has bean told this will happen every year. Poor thing she has to keep away from grass and trees in hay fever time.

My leg is leaking and hurts today, Summer has started sniffing it as well. This is not a good sign I am at the Nurse's on Thursday so if no better I will get her to look at it.

In the greenhouse tieing up the toms and cues they are growing well now after not a good start. A few baby cues growing as well and some toms starting to appear.


Got Tommy-Lee and Jamie-Lee for tea and a few hours after as Lindsay is at a football meeting.
Jamie-Lee played with Lego and Tommy-Lee did some BB shooting in the garden. I told him not to shoot Karol our next door neighbour  he said he would try not to. Lindsay came to pick them up and peace for me and a nice bath as I hurt a lot.  No rain.


Pilate's went quite well a good session, on my bike as usual nice breeze if fact a little chilly but it soon warmed up. On the way back a big lorry got a bit close and I had to go quite close to the verge. The nettles were tall and leaning towards me and I nettled my hand. The nettles are very dry because of lack of rain and are falling over. All the way home it hurt.

Football -YES I watched England v Croatia 2-1 to Croatia  World Cup Semi Final We did not win but it was a good match. I understood the offside rule as well.

Andrew went to Amsterdam to day for a few days.


Summer had her hair cut she looks so sweet a bit shorter this time as she is getting hot.


Happy Birthday to my daughter Lindsay we went to see her with her presents she was very pleased with all of them. We got a microwave plus clothes. Her Brothers, Wayne, Andrew, plus Summer and Timmy and us all put together to get her a new mobile phone, She was very pleased with it and said thank you to every one.

Paul took me to the Doctors after Lindsay's for my B12  not too painful, a Student did it this time. While I was there I asked the Nurse to look at my leg. She said it was very gungy but did not think it was infected. She put on a iodine dressing and gave me more. I am to go back if no better when I take the dressing off.


This day 14 year ago this RSD HELL started. 14 years of pain and suffering. This Pain never goes, imagine whats its like to have flu everyday? RSD sufferers don't have to.


Got Jay-Jay here for a few hours he watered the garden and the greenhouse and rubbed down some paint work, We are decorating the hall and stairs, two flights. Paul thought it would be easier with Andrew away. Not as many feet going up and down.

Six weeks today since it last rained 2nd June.


Tided up the toms and cues in the greenhouse, also the morning glory plants, another hot day.
Later I went to see Angela on my bike, nice cool ride. She made dinner and we sat in the garden for a while but it was too hot. We watched a bit of football but it was not the same with England not playing. France won 4-2 so that was good as it was Croatia that knocked England out the cup.


In the garden most of the day. Also washing and ironing. Hot and heavy today a few clouds later as well. I think it will rain.

Caught my sore leg on a box so the dressing was nearly pulled off. The dressing smelt but it has healed up quite a bit. I cleaned it up and put another dressing on it.


Lindsay and family came round for a Chinese, late Birthday tea for Lindsay. I think everyone enjoyed it. I know I did.

As I sit finishing off this months Blog the rain is coming down sounds so nice and the air is a lot fresher.

Not too bad a month apart from leg and I bruised my arm a few days ago on the bedroom door but that's about right now. Hope things are good for you all and you are able to keep cool.

Summer has.

 All the best to you all love Gill.

Leaving comments...

Some people I am told are having trouble leaving a comment.This should help.

Click on to comment next to envelope, at bottom of each posting, write comment, copy Text in box the same as shown, choose ID, click on anonymous, see preview, publish.

You can always leave your name in the comment if you wish.