May 2

May 7th

I feel a bit more with it now, stomach still a bit sore though. I think I might have pulled a few muscles, but that will soon pass hopefully.
I had two cream crackers for dinner and this is the first meal I have had without wrenching and feeling sick.
Knee pain is either terrible or mild. Not too sure how much of that pain is from the RSD. My other knee the side, the RSD started, has bean hurting a lot more too. I know RSD can mirror so it could be that but I think that's usually from the RSD side to the good side. At the moment I have no good side. That will soon change though. I prefer to be outside when I can with Summer when possible. I have said before I feel like a caged animal when I have to stay in.

I am having to go to bed when Paul does first time in years ( INSOMNIA) I listen to my ipod for  around two hours till I felt like I could sleep. I was hoping this OPERATION would help the INSOMNIA like resetting the clock, but no--- its still the same long nights and short days. You do get used to very little sleep though, and it becomes my way of life. Margaret Thatcher did it

8th

Paul out for his dinner as usual. Lindsay here to keep an eye on me. Hands and arm bruising fading now. The RSD cold thing, feeling any little change of temperature for instance like the outside door opening or just someone going past you. This is going crazy--my legs are so cold, arms too. People have got on shorts and summer tops, I am in two long sleeved ones. Hopefully this will pass when I can move around more and get out. Most people get this in early stages of RSD. I still do but not quite as bad as this usually.

10th

Knee a bit sorer today and feels tight might be the stitches pulling it. Not too swollen, less than I thought. Stitches come out 14th so not too long then I can have a bath filled nearly to the top with bubbles and stop in as long as I can. This is usually not very long as my legs complain with pain. I will post a picture of my knee after stitches are out.

My friend is having her stomach operation today so all the best to her, she is very scared I have tried to reassure her and so has her brother. He rang later and she is fine and awake, chatting to everyone.

Watched two episodes of Star trek Discovery with Andrew the second one was very good edge of seat stuff.

12th

Went to see Angela she looks very well, you would never know that she had a big operation. She said she ate all her Sunday roast dinner plus pudding. I have still to get my appetite back.

Paul did roast beef for tea and I managed a small plateful the most I have eaten in nearly two weeks.


14th

Summer had a weird do last night, she was very unsettled when we went to bed, not wanting to go in her basket and a bit shaky. She is very scared of certain beeps and if the smoke alarm beeps to say the battery needs changing, she freaks out. Also certain ring tones on the television. 24 hours in A and E gets her very upset so does GP's behind closed doors.  I watched these with sub titles for a while then gave up, as I don't like them at all. The cat two doors away is Summers friend, he cries out a lot as he is old, probably got dementia. The cry is like he is in great pain. So Summer gets very upset and wants to get out to help him. I think this might have happened last night. She had scratched the bathroom door and cupboard door too. Her claws are very sharp and strong so she made quite a mess. She did this same thing a while back.

 Cupboard door.
Bathroom door.

Went out on my scooter with Paul and Summer, nice the first time I have bean anywhere. The scooter is not easy to get out and impossible for me to do at the moment, hard at the best of times. We are hoping to get the door way and step altered so it will be easier.

My friend Jenny came to see me and bought me some flowers, that was so good of her. Nice to see someone and have a chat. Told me about what had bean going on at Age UK.




The Nurse took out the stitches from my knee, two on each side hardly anything to look at. I have had a lot worse injuries with my seizures. Bath here I come water wings at the ready.




Bath was good I washed my hair but did not stay in long as both legs hurt a lot but it was very nice.

Going to leave the radio on for Summer as back ground noise, hope it will help a bit.

16th

My friend John came round to see me and we had a good catch up chat he has not bean too good him self so it was nice to see him well again.

Summer has bean good over the last two nights so the radio will stay on for a while, whether it helps is any bodies guess. She might even be having a disco!!

Knee very painful today very numb on left side and along the shin same side. RSD not helping but when does it ever??

Chinese for tea, very good it was, small portions for me though.

Had a bath but did not feel too good so got out. I was light headed and dizzy sat on the floor for a while with everything going round and fuzzy fuzzy. I passed out briefly then Paul came in and helped me.
I sat on my chair very clammy and sweating a lot, cold and hot at the same time. After a drink and sit down I felt a bit better. Still not quite right though and I had a bath too I feel like I need another on now after all the sweating. Paul thinks I have the bath water too hot but I don't think so. I know a lot of the time I can't feel hot or cold the same as I used too be for RSD.


18th

Dull start after a few quite nice days. On my own most of day again as Paul is out at a BBQ I could have gone, but its a bit cold for me to sit out side as my temperature levels still not right. All the talk would be football anyway. So me and Summer looked after each other as usual.

19th

Not a good night awake most of it I think its going to bed at a earlier time. My bed time before was later but it suited me and I did sleep a few hours. But last night, ages to get to sleep after listening to the Ipod for two hours. Asleep a bit, awake a lot, this went on till 6-00am then I slept till 8-00am. Soon after I got up. Headache and feeling very tired and wobbly on my feet, and more pain than usual knee very stiff.

20th

Not feeling the best today-- need to get out the house more and back to my normal or near normal self.
My back and shoulders are hurting from the crutches but I still need them for a while yet. Ok in the house but outside it gives me more support.

I did three loads of washing and put it out then ironed later (not a lot though) I have probably said before I sit on the table to iron. That way there is no pressure on my legs.
Not a good day pain wise, just about every where hurts. I thought if I just moved about more this would help but not at all. I don't think it made it any worse just the  RSD being a total dick.

21st

Ness from two doors away came round to see me. She and Squidge work so I don't see her very often. They are all going to Norfolk for a few days. I am looking after Tabby cat and Ben's Hamster Mustard.

Potted up the chilli plants into big pots so they will not need to be potted again. hopefully we will have a few chillies soon.

Went to bed later than Paul tonight, I am now going up and down the stairs on my own now so it makes it a bit easier for me. I am still not too good on the stairs but safe enough. I was not that good before I had my knee done though. Knee pain not too bad but more than I thought it would be by now.

22nd

Went in the cupboard where we keep the bread and biscuits.The cream crackers packet was torn. Weird I thought then I saw that the biscuits were nibbled. Oh no we have a mouse. I took everything out and threw away the nibbled things. Washed out the cupboard and left two bits of cheese to see if it was still here. Early hours I looked in the cupboard and staring back at me, was not a mouse but a shrew. A tiny weeny one, looking straight at me, not scared at all, even coming towards me, more like a pet. I shut the door and got a bowl hoping he would jump into it. No he had other ideas he jumped down and ran under the fridge and kept peeking out like it was a game. He then ran out again, around the bin and back under the fridge. I did not want him in the dining room as there are loads of places to hide. He then peeked out from under the fridge again and headed for the open back door. Summer was on the grass before she went to bed. The shrew then started to go more towards the back door, please head out thought. I then thought of Summer coming in, but she did not. He paused on the frame as to say goodbye and off he went into the drain outside the door. I threw the cheese I had left in the cupboard and a few bits of biscuits and shut the door. When I opened it again he had gone. so had the cheese and biscuits Summer was still on the grass. I think he came in the door, no more than two days ago, so its right he should leave by it. By now it was 4-00am so I settled Summer and went to bed. Happy the shes had gone with out getting hurt. I left some bits in the cupboard just in case he had a mate.

23rd

No more sign of more shrew mates so it looks like he was on his own. As I said I think he came in through the door and went under the kick board where there is a gap. I have Christened him Sly as he was was very sly. I just wish I could have got a picture of him, but my camera was upstairs and I did not want to take my eyes off him.

I pricked out my tomato plants and put them in the mini green house its a bit warmer than the big one. I have more than enough so if a few don't make it all will be fine.

Went to see Angela she is doing well but not quite ready yet to come home. Her brother has gone back home to Wales and will come back again soon.

23rd

Went on the common with Paul and Summer as I am still on the crutches. I can not go on my own because of Summers lead. Used the finger less gloves (bike gloves) from when I was on crutches before. They stop my hands from getting very sore. Shoulders and arms hurt though and there's no magic cure for them. I use them only when I have to so that helps. Soon hopefully I will not need them. Nice to be out again  and on the common, Summer thought so too.

24th

Went round to feed Tabby (real name Chubby, we have always called him Tabby.) and Mustard, fed them both and stopped awhile stroking Tabby. I played with Mustard for a while but did not take him away from his home. I was a bit afraid I would drop him.



 
 Mustard. He is a beautiful colour.
 
Tabby cat (Chubby)

26th

Helped Paul clean up, well-I only did the bathroom but its a start. Sorted out Tabby and Mustard. Tabby is an old cat and quite vocal at times. I shouted him and he comes down the garden wowing at the top of his voice. Very pleased to see me. Took Mustard some cauliflower leaves to munch on, he liked them very much.

My knee is quite painful today and a bit more swollen. Taken a lot more tablets than usual.

27th

Not good news my big cactus has started to go rotten, the one on last months blog. Going to re pot it in some different compost. It did get quite wet last time so that could be it (down pour just after I re potted it) but it was quite soft at the bottom before I started. Hope I can save it. 

28th

I heard Tabby crying around  6pm I went to see what was wrong he cries a lot but this was a bit different. He was wet through and cold so I dried him off fed him and left him in for a while to get warm and dry. When I went back later he was still on the settee, he had a bit more food then went out again.The rain had stopped. Sorted Mustard out so he was happy.

I lost a few tomatoes today because I did not open the greenhouse when the sun came out, it was cold earlier but soon warmed up. Good job I have quite a few.

29th

Ness and family are back later today so last time for Tabby and Mustard. Today is also Emmie's Birthday. Lindsay left Jamie-Lee here while she went to see a friend that went to A and E. She was ok in the end so came back here for a while. Jamie-Lee went with me to feed Tabby and Mustard. Bit nervous of Mustard but she knows Tabby well. He was purring a lot while she stroked him.

Back home again and playing with the cooking set, Duplo, and Buckaroo. We managed to get all the pieces on the mule and he did not kick them off.

There-- everything on.


Lindsay was not feeling her best today and had a sleep while we played.

Popped round to give Emmie her present, a dog hand bag, a bit like Summer she liked it and took it to bed. They were all tired so I did not stay many minutes.

30th

Opened the greenhouse door this morning and the snails have had a few more tomatoes, this happened last year with the cucumbers. Put snail killing pellets all around.
 
  My little green house.

The cucumbers are still inside the house till they are bigger so they are safe.

I have put the cactus outside hoping it will dry out and start growing again and recover.

Knee not as good as I thought it would be by now, still need the crutches outside the house. May be the RSD is holding it back. I am at the Doctors tomorrow so I will ask her, not seeing my own Doctor this time. If I wanted to see him I think the next appointment would be around the end of July. Stupid or what, taken on too many people with too few Doctors.

I made a very nice chicken curry for tea with rice. Summer had just plain chicken with her biscuits she was pleased as well.

31st

Summer now has a new ball her old one does not even look like a ball now. She accepted the new one better than other times I wrapped the old ball round the new one in my pocket so I think that helped.

Spot the new one.

I now have my appointments to see Mr Joby John at Kingsmill 19th June, and one to see Doctor Solinas for my seizures on July 24th.

Appointment with Doctor Patterson-- She was running late by over twenty minutes. I went in and she asked what she could do for me? I said I have a few things I need to ask you about. She said only one thing as I am running late!!!!! I started to go through my list not being put off by what she said. This appointment was made over two weeks ago then changed so I was going to make the full use of it what ever she said. Paul was in the waiting room and said I was in there no more then ten minutes half the time I had waited to be seen..

Lindsay and Jamie-Lee came round on their bikes. Jamie-Lee had biked from her house around a mile and half.

We made a picture frame, also some wood puzzles that you take apart, then some how get them back together again. She did very well getting two back again. Lindsay helped her with the last one.



They left around four pm.By the end of the day- Jamie-Lee had biked around four miles. Lindsay thought she would be tired No she wanted to walk Suey their dog.

Well for me its bean a very long hard month with extra pain and not bean able to get out and do what I usually do. Very frustrating to say the least, fine if you like TV or just lounging around. Not for me though. Hopefully that will improve more than it has. I thought after a month I would be nearly back to full mobility. As I said before I am not a patient patient.

Hope things are going well for you all-- the days are warmer and lighter now so that usually helps RSD pain and mood. All the very best to you all Love gill.



















May.

May 1st Wednesday.

Well operation day--  THE KINGSMILL IN SUTTON IN ASHFIELD there for 11.30. Operation on my knee a MENISCUS TEAR KEY HOLE SURGERY- DAY JOB. The hospital is about hour and half away on a good run. I waited in the day room and was told I would be second going down.
Talking to a very nice junior doctor, he was very interested in my RSD. I gave him my blog details he said he would have a look. A nurse came up to me and said change of plan, you are now going down first, because I have an allergy to latex they did not want to risk anything. She said the air would have to be cleaned or something not too sure what this meant, and this takes twenty minutes to clean. Get ready, ten minutes later I was on my way, very calm, almost looking forward to this as it will be one less pain hopefully.

Arrived in the anaesthetic room (1.30pm) and saw Mr Joby John the surgeon. The theatre nurse said looking at him you need a mask I said no he is operating how will he see. She said the mask is for you laughing. She then said to Mr Joby John here are your  drugs "WHAT"  I said DRUGS. The drugs are for you she said, for him to give you during the operation. Everyone laughed, the nurse said you are very calm. The cannula went in, mask on, injected. The last thing I remember was the theatre doors. I thought to myself, I have never seen live in the theatre, I still did not, I was gone.

This is where things went a bit wrong. I started to have SEIZURES after the operation in recovery forty five minutes in all, one going in to another. (I found out later) I was in the recovery room a long time. Paul rang up and they said I was still in there five or six hours later. I was not going home today. I was taken to a ward and had another set of SEIZURES. The next thing I remember clearly was Thursday morning in pain and the usual feeling of having SEIZURES. Not sure where I was. A lady said I got to the ward around 8-00pm.

2nd

I was told a bit what happen, on drips, SALINE and PLASMA not feeling too good, exhausted. Big bandage on my knee more for protection than the wound.


Bandage on my knee with dressing under neath.
(This was redressed as it slipped down when I got home.)


The physios came to see if I could walk on my crutches, these were give to me before the operation in the day room. I could not walk, shaking like a jelly and in terrible pain everywhere. I was given ORAMORPH. I could have this if I wanted every one or two hours. Physios would come back tomorrow. Sat out of bed for a while but felt terrible and started shaking. I was put back to bed  They were a bit concerned that the SEIZURES would start again, something no one wanted specially me.
Paul came in the afternoon he was a bit shocked.

3rd

On, off, sleep, last night, Feeling a bit better but still feel very weak. The physios came again and I tried again to walk. This time very shaky still but not as much as yesterday still pain.They asked if I could do the stairs. I managed but I just about shook the crutches from my hands. I was passed fit to go. The nurse told me what to do exercises and said stitches come out in two weeks. Still not feeling the best but I was going home. Phoned Paul he said he would be here after dinner.

He left home around twelve thirty so here about two pm. Doctors letter and tablets and soon away.
NO an accident held Paul up at Newark roundabout. He got here at four thirty. I decide to go home in hospital gown and dressing gown, returning it at my check up in around six weeks. The journey was very painful and I still felt very weak. Home, Summer went mad to see me and was crying with joy. She sat with me for a lot of day.


4th

Lindsay here as Paul at football for the day. Lindsay cooked chips for dinner and afterwards Jamie-Lee made cakes. Tracy came later. I sat down and just rested most of the time.
After dinner I felt very light headed and sick. Lindsay helped me to the bathroom where I was violently sick. I then tried to lay down on the bathroom floor, not good as it ceramic tiles and cold.
Lindsay and Tracy helped me back to the chair where I continued to be sick. This is just about the last thing I properly remember. Lindsay, Tracy and Jamie-Lee stayed with me till Paul got back. They were getting ready to go home when I started to be ill.

Paul came home around six thirty, and I was slumped in the chair and not very responsive at all. Later in the evening I got worse, still wrenching and was very unresponsive and about 11-15pm he called for an ambulance. I was taken to hospital where I started to have more SEIZURES and still being sick till there was no more to come up, wrenching and in terrible pain like GASTRIC FLU. On oxygen and a drip Paul said the Doctor had a job to get a line in as my veins are very thin and hide when I am ill.  No wonder I have so many bruises where he tried. I had a chest Xray and a CT scan on my head and stomach. I was admitted to a ward around seven thirty am. Everything hurts, stomach terrible pain just about everywhere. The ward is very noisy as it straight from A and E.

5th

Trying to make sense of what has happened. The nurse sat me in a chair later, but I started to shake a lot so back to bed for me.Worried about more seizures, violent headache, the nurse said this is most likely dehydration. Still on a drip (three bags in total)  Lots of blood taken to test for electrolytes as very low (something to do with your blood)  probably because I was so sick. A horrible day and so much pain. Had to wait for pain relief as they were so busy, not good for RSD. That did not help much, not really any sleep either. If I sit up I start wrenching and feeling dizzy. Saw it get light from pitch black not a good night. I want this nightmare to end, but its not a nightmare its so real.

6th


Feeling quite a bit better but still quite shaky, still stomach and chest pain, knee not too bad, at least my head ache has gone.
I also saw the PHYSIO here as well and she had me walking with a zimmer frame.


 



Which I can take home with me and I have my crutches at home too. I got on quite well considering  my chest and stomach hurt so much and how shaky I am. She said I am fit to go.

I saw the Doctor and he said I have got a SOFT HEART MURMUR and my SEIZURES are a mixture of EPILEPTIC and NON EPILEPTIC  SEIZURES .The chest xray and a CT scan on my head and stomach were clear.. The heart thing is not a concern, but I need to see the Neurologist and will be sent an appointment soon. I hope it's Doctor Solinas I see, as he knows me, from the very bad SEIZURES I had before. Anyway home in two hours time, just to make sure I am alright.

A nurse took out my cannula I pressed on it for a while, it was in my arm bend, I then sat and listened to my ipod. A bit later my arm felt wet, I looked down and there was blood dripping out. A big pool on the floor and all over the bed. I shouted the Nurse and she sorted it out. Did you press on it? Yes I said. The more senior Nurse said it can happen. I have at least two pints left he was joking you have around nine to ten. I had lost about half a pint he thought. Good job I did not go to sleep. I said to her you nearly killed me. She looked very scared but I made her laugh by saying I nearly did not go home.

I rang Paul he was surprised as we were told that I needed to see a Neurologist before I went home. Anyway I am not complaining two different hospitals in two days is not good.

Paul picked me up and got all my tablets and second doctors letter and we were off home.
The journey was painful my knee felt every little bump so did my stomach and chest.

Summer again was very pleased to see me and sat with me a long time. Poor Summer she does not know what to think as I keep disappearing.
Phoned up a few people to tell them I was home. I think if you ring up your self, and they have spoken to you, and not a messenger they feel more assured.

Bed time struggled to get up the stairs but I was looking forward to my own bed and not one that's get you hot and sticky. Home and please no more hospitals for a while.Mr Joby John did say it was a risk with the RSD and SEIZURES. If it makes my knee better it will have bean worth it.




Slowed down but not for long.


I put this short blog up to let you all know how things went with my operation.
All the best to you all and I hope you having a better time than me Love Gill.




April


April 1st

Rung up Doctors a lot later than usual- as CYSTITIS no better and I could not believe it when they offered me an appointment with Doctor Metha (my own Doctor) but not till 4-50pm. I took the last sachet of the stuff I got from the chemists. Hopefully this will help till I get sorted out later.

Cleaned up downstairs but had to sit down more than usual, the pain is quite bad and spending most of my time going to the loo.

Saw Doctor Metha he said it was CYSTITIS and gave me ANTIBIOTICS MacroBID 100MG 2 a day for a week. Also I asked him about my IBS which has bean terrible the last few weeks. He gave me BUSCOPAN this works very well as I was on it before. 8 tablets a day though. I asked about my DEXTA scan I had and he said I need to start ALADRONIC ACID again. The OSTEOPOROSIS is not worse but there is a lot of thinning of my bones so to keep it at this level would be good. Keep going at that rate bones please, then things will be good. One less thing to bother about. More than likely they are strong because of the running and walking I did.

3rd

I feel far away today could be the tablets as I have gone up 10 a day.

Skip here for next door to take away the rest of the household things away Wayne (Ben's stepson) and Julia (Ben's daughter) soon got it filled up. The house now is cold and mostly empty not nice.
Julia said when the new people come in they will make it their own and the house will no longer be  Ben's. I know that's right as that happened with Mr Lambert (who lived on the other side of us) who passed away, then the house was altered and renovated and no longer his. This does not make it any easier though. Julia and I both had a few tears after she showed me a picture of her dad, a lot younger and very handsome too.

Later in the day someone pulled up in a car and chucked a load of plaster, wood,and a plastic sheet on the skip. Some of this dropping off on to the road I shouted at them but they just rode off. This was something Julia was worried about so as the skip is full, its getting picked up tomorrow.

4th

Very cold walk on the common with Summer wind like razor blades. Snow on the way ?

I did a lot more of the Lion rug, going very well I will put up a picture when it's done. Quit a few more weeks yet though.

Tablets are helping the CYSTITIS so that's good, still a lot of pain but not as much urgency to get to the loo now. I wish I could say the same for my knee which is not good, swollen and in pain. May the 1st  can not come soon enough. Locked up later so I could not move it. Wiggled  and rubbed it so it released, very painful.

5th

Age UK-- Jenny not here still not quite right yet hopefully back next week. The day was quite busy .
No weird things today and no awkward ones either. Polly was on the counter with me so helped a lot.
Knee very sore today  No shopping straight home quite tired so could do with a rest.

6th

On my own today Paul is at an away game and Andrew is at work. Easy day for me I did not do too much as tired from yesterdays Age UK. I don't really do too much there but its still makes me very tired. I do walk there and back, usually less painful than the bus. I would sooner walk while I still can any way.

Paul back and we all had Chinese for super/tea very nice too.

7th

On own again as Paul out for his dinner IA meal I did not want to go. Andrew at work. Me and Pup had a girls day I gave her a good brush and put a hair tie in, so she can see as her hair is so long. Hair cut on the 11th so not long. As her hair is so long now, this takes a long time to brush and comb. Something Summer does not really like, so she grumbles and grunts a lot. All she is interested in is the treats (tiny biscuits) she gets during brushing, and the chew after she is finished..


She needs a hair tie now--Hair cut soon.


Angela phoned up she has an hospital appointment on Wednesday. I said I would go with her as she is a bit worried about it. They don't bother me now as I have had so many. Nice to help out a friend and always good to have a second set of ears.

Andrew back from work and Summer thought it was her teatime as he usually comes home at after 6pm, her tea is at six, today is Sunday so around 4pm or earlier.. I told her not yet, she was not pleased.

8th

Not a good day a lot of pain, head, left leg, and hip not sure what is going on but its not nice. I feel very drained as well. Rested today and took extra painkillers. Thinking about it later, and this could be that my B12 is due. A lot of time I feel extra pain and tiredness. I am having it done tomorrow.

9th

I feel a bit more with it today. Still a lot of pain though. B12 hurt when injected but not for too long after.
Did some more of the Lion rug, it's getting very close to the top. I somehow missed out a whole row how I did it I don't know, I had to take out three rows. Not as easy as putting them in. Took a long time to put right. When its done I will put a picture up, as it will look more impressive than showing you it not finished. Did quite a bit of ironing as well later..

10th

Went with Angela to the hospital, she needs to see someone else but he is on holiday but she did find out a few things.

Feeling a bit better today but still pain, worse being my head. Tired but that's my way of life now.

11th

Lindsay and Jamie-Lee here we played with the big red bus. She then did some colouring too. I also did some and she said mine was good. Lindsay looked good today probably the best I have seen her for a while. Andy her ex partner, saw how bad she was last week and has bean helping her out. He is not all bad but sometimes goes about things the wrong way.

Summer is having her hair cut today..

    
 Be for cut.
 On the table ready-- no escape now Summer.
 
Now she looks like a little lamb again.


Speaking to Maxine the groomer she said the kennel cough injection is a bit of a con as there are a lot of different strains of it and they only inject for two. I think I was done a bit


Knee is very tight today and feels very stiff.

12th

Knee not good, woke up early hours with terrible pain in my foot and leg.

Very cold with a wind straight from Siberia.

A fairly steady day at Age UK, this I was pleased about, Jenny was back too which was good. She is not quite right yet but well enough to be here.

Looked after Ben and Emmie for a few hours we played and then she showed me her dance moves. She is very flexible and enjoys dancing and exercise. She hurt a foot not long before her Dad came home and shot up stairs. I went up and she said she was OK. I told Squidge when he came home.
He was home before 11 o'clock, so  I was able to go home and have my bath before Paul went to bed. I have to be supervised since having seizures in the bath last year. Watched TV the rest of night.

13th

Paul at football so another day on my own. Lincoln has gone up into the next division so well done Lincoln.
Sorted out the pots from next door that used to be Marcins who used to live there. They will do just right for the beans that I am going to plant at a later date..

Very sharp frost later when I went to bed.

15th

Very cold again and windy.
Lindsay came with Jamie-Lee a bit later and stayed for dinner. We played with a track and train set. Pop up Pirate and the Big Red Play Bus. Most of the toys were her Brothers and some even Andrews her Uncle, and my son. If you look after them they last for more than one lot of children.
 
17th

In town today I mostly do any shopping after Age UK but this limits me to what I can do. I do not leave there till at least 2pm some times later, so I am tired and usually in pain so put off things till another time. So today I decide to go into town with Paul as he was going out for his dinner. I got most of what I wanted, so pleased. Tired when I got back as knee was very tight. I walked there and back around 2 miles plus around town, I could get the bus but this usually makes my RSD pain. worse. Summer was pleased to see me. She is not left much on her own and usually goes to sleep.

18th

My hands have bean fairly good so I decided to put all the crystals back in the glass cabinet. All went well and no breakages. I breathed a big sigh of relief when I finished.


 
 
 
 
 
 
All back again where they belong.


Two lots of washing and all the ironing done. Arms and shoulders really hurt now.

Summer at vets later she had the rest of her booster and she still cried a bit when he injected her again. I think she knows what it is now. Different vet, different tactics, the other vet which she has usually has, strokes her to reassure her and then injected her. She has never yelped before as I don't think she even knew that she had bean injected.

20th

Family BBQ, well without Andrew as he is working today. Very warm in the garden, Lindsay did all the cooking and it all tasted very good. Even Jay-Jay turned up with his girlfriend and stayed a while. A good afternoon all round.

23rd

A bit cooler than the last few days. Doing a bit in the garden and greenhouse. Staked the rose bush next door as its had a slight lean for the last few months. I usually look after it for them.

Pain most places- its the ache that does not go away and really gets to me. Not able to rest properly or even relax.  Hope it will improve soon.

24th

Saw a lovely sight, a mother duck with 13 little ones mostly dark with yellow bellies. Lincoln people are called the Yellow Bellies so I thought this was quite good. There has not bean many ducklings this year so this was so nice to see.

Later Lindsay, Tracy, and Jamie-Lee called in they are going to the Fair on the common nearby. This time its only here from Wednesday to Saturday not a week as usual. Afterwards they called in, Jamie- Lee said she had a great time. Going on lots of rides the first few nights are always a bit cheaper.

25th

A prickly job today-- re-potting a big cactus, not easy as very sharp prickles. When it was bought around twenty years ago from Wilkinson's it was about two and half ins high. Now it measures 35 inches high. I got load of pickles in my hand despite wearing two pair of gloves and using a thick towel. Hopefully now it will feel better in its new pot and grow even bigger.


The brute.

Looked after Jamie-Lee later while Tommy-Lee played in a football match. She had tea with us and said she could eat ten chicken dippers with chips and of course gravy, she had five and that was about right. We played with all sorts of things,she likes it here as we play a lot of different games and no competition from her brothers either. Andrew did look after her too playing hide and seek with her.  At one point she locked him in the shed with out his phone. He did not mind at all and enjoys playing with her. When her mum came back she said she had not bean here very long, only four hours.
Hopefully we would have tired her out.

26th

Talking to other dog owners on the common about the kennel cough vaccine. Most said more or less the same as Maxine (Summers groomer) that they had not had it for their dog. Never mind he was a good sales man that Vet.

Age UK today after a week off for Good Friday. Very busy, loads of customers most were in a very good mood and telling jokes as well. Very tiring and knee pain as well. This is my last day here for a while as knee operation on 1st May.  Everyone that knew wished me luck and said keep in touch. Hopefully things will go well and it will not be cancelled.

29th

After Summers walk, I had my hair cut by Debbie same as last time as she did a good job, a bit shorter this time. Again looks good. She had just started to cut when there was a phone call from the Kingsmill Hospital where I am having my knee done on Wednesday. OH NO I thought it has bean cancelled. No they were just ringing up to make sure I had no cold, cough, or sore throat. Every thing alright.

Joy my friend called in and we had a good chat,cup of tea and sausage roll.


30th

Well day before my operation---so probably my last day of freedom till I recover. I will be home the same day or the next so not away from my little Pup Summer for long.


Well not too bad a month as they go-- less pain would be nice. What will May bring for this  operation. I am not worried about the operation itself, just the after affects. Hopefully the RSD will not flare up with the extra pain. I do need to have this, so there is no choice really. Anyway all the best to you all hope you are all as good as can be. See you next month. Love Gill.


Summer waiting for Andrew to come home from work.





I have put this little bit on now to update you all.

May 1st Wednesday.

Well operation day--  THE KINGSMILL IN SUTTON IN ASHFIELD there for 11.30. Operation on my knee a MENISCUS TEAR KEY HOLE SURGERY- DAY JOB. The hospital is about hour and half away on a good run. I waited in the day room and was told I would be second going down.
Talking to a very nice junior doctor, he was very interested in my RSD. I gave him my blog details he said he would have a look. A nurse came up to me and said change of plan, you are now going down first, because I have an allergy to latex they did not want to risk anything. She said the air would have to be cleaned or something not too sure what this meant, and this takes twenty minutes to clean. Get ready, ten minutes later I was on my way, very calm, almost looking forward to this as it will be one less pain hopefully.

Arrived in the anaesthetic room (1.30pm)  and saw Mr Joby John the surgeon. The theatre nurse said looking at him you need a mask I said no he is operating how will he see. She said the mask is for you laughing. She then said to Mr Joby John here are your  drugs "WHAT"  I said DRUGS. The drugs are for you she said, for him to give you during the operation. Everyone laughed, the nurse said you are very calm. The cannula went in, mask on, injected. The last thing I remember was the theatre doors. I thought to myself, I have never seen live in the theatre, I still did not, I was gone.

This is where things went a bit wrong. I started to have SEIZURES after the operation in recovery forty five minutes in all, one going in to another. (I found out later) I was in the recovery room a long time. Paul rang up and they said I was still in there five or six hours later. I was not going home today. I was taken to a ward and had another set of SEIZURES. The next thing I remember clearly was Thursday morning in pain and the usual feeling of having SEIZURES. Not sure where I was. A lady said I got to the ward around 8-00pm.

2nd

I was told a bit what happen, on drips, SALINE and PLASMA not feeling too good, exhausted. Big bandage on my knee more for protection than the wound.


Bandage on my knee with dressing under neath.
(This was redressed as it slipped down when I got home.)


The physios came to see if I could walk on my crutches, these were give to me before the operation in the day room. I could not walk, shaking like a jelly and in terrible pain everywhere. I was given ORAMORPH. I could have this if I wanted every one or two hours. Physios would come back tomorrow. Sat out of bed for a while but felt terrible and started shaking. I was put back to bed  They were a bit concerned that the SEIZURES would start again, something no one wanted specially me.
Paul came in the afternoon he was a bit shocked.

3rd

On, off, sleep, last night, Feeling a bit better but still feel very weak. The physios came again and I tried again to walk. This time very shaky still but not as much as yesterday still pain.They asked if I could do the stairs. I managed but I just about shook the crutches from my hands. I was passed fit to go. The nurse told me what to do exercises and said stitches come out in two weeks. Still not feeling the best but I was going home. Phoned Paul he said he would be here after dinner.

He left home around twelve thirty so here about two pm. Doctors letter and tablets and soon away.
NO an accident held Paul up at Newark roundabout. He got here at four thirty. I decide to go home in hospital gown and dressing gown, returning it at my check up in around six weeks. The journey was very painful and I still felt very weak. Home, Summer went mad to see me and was crying with joy. She sat with me for a lot of day.


4th

Lindsay here as Paul at football for the day. Lindsay cooked chips for dinner and afterwards Jamie-Lee made cakes. Tracy came later. I sat down and just rested most of the time.
After dinner I felt very light headed and sick. Lindsay helped me to the bathroom where I was violently sick. I then tried to lay down on the bathroom floor, not good as it ceramic tiles and cold.
Lindsay and Tracy helped me back to the chair where I continued to be sick. This is just about the last thing I properly remember. Lindsay, Tracy and Jamie-Lee stayed with me till Paul got back. They were getting ready to go home when I started to be ill.

Paul came home around six thirty, and I was slumped in the chair and not very responsive at all. Later in the evening I got worse, still wrenching and was very unresponsive and about 11-15pm he called for an ambulance. I was taken to hospital where I started to have more SEIZURES and still being sick till there was no more to come up, wrenching and in terrible pain like GASTRIC FLU. On oxygen and a drip Paul said the Doctor had a job to get a line in as my veins are very thin and hide when I am ill.  No wonder I have so many bruises where he tried. I had a chest Xray and a CT scan on my head and stomach. I was admitted to a ward around seven thirty am. Everything hurts, stomach terrible pain just about everywhere. The ward is very noisy as it straight from A and E.

5th

Trying to make sense of what has happened. The nurse sat me in a chair later, but I started to shake a lot so back to bed for me.Worried about more seizures, violent headache, the nurse said this is most likely dehydration. Still on a drip (three bags in total)  Lots of blood taken to test for electrolytes as very low (something to do with your blood)  probably because I was so sick. A horrible day and so much pain. Had to wait for pain relief as they were so busy, not good for RSD. That did not help much, not really any sleep either. If I sit up I start wrenching and feeling dizzy. Saw it get light from pitch black not a good night. I want this nightmare to end, but its not a nightmare its so real.

6th


Feeling quite a bit better but still quite shaky, still stomach and chest pain, knee not too bad, at least my head ache has gone.
I also saw the PHYSIO here as well and she had me walking with a zimmer frame.


 



Which I can take home with me and I have my crutches at home too. I got on quite well considering  my chest and stomach hurt so much and how shaky I am. She said I am fit to go.

I saw the Doctor and he said I have got a SOFT HEART MURMUR and my SEIZURES are a mixture of EPILEPTIC and NON EPILEPTIC  SEIZURES .The chest xray and a CT scan on my head and stomach were clear.. The heart thing is not a concern, but I need to see the Neurologist and will be sent an appointment soon. I hope it's Doctor Solinas  I see, as he knows me, from the very bad SEIZURES I had before. Anyway home in two hours time, just to make sure I am alright.

A nurse took out my cannula I pressed on it for a while, it was in my arm bend, I then sat and listened to my ipod. A bit later my arm felt wet, I looked down and there was blood dripping out. A big pool on the floor and all over the bed. I shouted the Nurse and she sorted it out. Did you press on it? Yes I said. The more senior Nurse said it can happen. I have at least two pints left he was joking you have around nine to ten. I had lost about half a pint he thought. Good job I did not go to sleep. I said to her you nearly killed me. She looked very scared but I made her laugh by saying I nearly did not go home.

I rang Paul he was surprised as we were told that I needed to see a Neurologist before I went home. Anyway I am not complaining two different hospitals in two days is not good.

Paul picked me up and got all my tablets and second doctors letter and we were off home.
The journey was painful my knee felt every little bump so did my stomach and chest.

Summer again was very pleased to see me and sat with me a long time. Poor Summer she does not know what to think as I keep disappearing.
Phoned up a few people to tell them I was home. I think if you ring up your self, and they have spoken to you, and not a messenger they feel more assured.

Bed time struggled to get up the stairs but I was looking forward to my own bed and not one that's get you hot and sticky. Home and please no more hospitals for a while.Mr Joby John did say it was a risk with the RSD and SEIZURES. If it makes my knee better it will have bean worth it.




Slowed down but not for long.


I put this short blog up to let you all know how things went with my operation.
All the best to you all and I hope you having a better time than me Love Gill.





















March

March 1st

Woke up with a headache so not the best start, I had this a few days ago but it went, now back with vengeance.

Age UK today as well, Very busy as soon as I walked in. While serving I got bad TINNITUS in my left ear this is something I have had for a long time now, even be for RSD (15 years nearly) - I asked Jenny if she would take over which she did. After a few minutes on the window sill, I was fine again apart from a buzz in my ear, I can cope with this and after a while it also went.

Age UK after the first hour or so it calmed down, and was steady till 2pm then trailed off. We always have a few late diners.

My friend who I spent a few weeks in Hospital, came in to say hello, she is doing well.
Also Joy paid me a visit she is not so good, back problems again.

Bit of shopping then home, still headache lasted for the rest of the day.

2nd

Washing and ironing also doing a bit of sewing, Paul's new trousers need taking up a hem. Got them done and all went well.


Started a new puzzle- Dr Who this time not going to be so hard I think-- but I have bean wrong in the past.

5th

Very windy and cold on the common, bit of a shock after the summer like weather we had last week.

Cleaned up downstairs took most of the day then did some more puzzle. Some how the candle that I had on the table set the puzzle piece board alight. I just looked up and saw flames. Split second thinking I picked it up and quickly took it into the kitchen and put it out under the tap. I did not panic either, but did think whether the window was the right thing to do, but that could have set fire to the curtains. What I did not realise that the puzzle board had dripped and set fire to the carpet in 4 places.
Summer also got a blob on her head, she was smoking but it did not burn her owing to her thick fur.


 Candle and the puzzle board.
 
Burn marks on the carpet.
My little Summer oblivious to anything that just happen than goodness she was not burnt.

After I sat down the the reality set in and I was a bit shocked. The puzzle board was damaged but was able to cut it off so still usable. The carpet not so good Paul said he would have a word with the house hold insurance. This carpet has bean down 6 years I was surprised but when I thought about it we put it down the year Jamie-Lee was born 2012. Also more important Summer was fine. A lot of black bits had settled on top of things and a smell of burning too. I had just cleaned up as well.

The house insurance have agreed to look at the carpet an if all was good they would pay out for a new one. We have to pay the first £100. Yes we are getting a new carpet but this room is so full of cabinets and glass wear, its going to take a long time to clear it. I feel quite bad that it happened and foolish as well. I think the candle got pushed nearer me when Paul came home, but never mind it could have bean very worse.

6th

Happy Birthday Jay-Jay 15 today where has the years gone. He is out today so seeing him tomorrow.

Angela popped in to see me she is well. Later my friend John came round he wanted a bit of sewing done and a Teddy mending, a dog got hold of it a while ago

The insurance men came to see the damage (quick work) he took a lot of details and said the carpet would be replaced. He had some samples and we chose one very similar to this one we have now.
He was a very pleasant men and said not to feel guilty as these things happen. The carpet fitter will help us move the heavy stuff if needed.

7th

Haircut a lot shorter this time as the hair was annoying me and just looked a mess a lot of time. I have had it long for a while so time for a change. Still have a few curls and my hair always looks better in a few days.

  
All the hair that was cut off all my curls too. The hairdresser took a long length too.

Went to see Lindsay and family and to give Jay-Jay his present. We have given him money and 2 bags of lollies and Munchies sweets. He is going to buy some speakers. 
Chinese for tea tonight I had lemon chicken for a change good it was. Enough left for another day so tomorrows tea maybe.
8th

Age UK A steady day no real problems either. Jenny not here as she had a previous appointment, Polly was helping me. I did manage to put milk in the tea pot instead of the jug, the customer laughed.

Everyone really liked my hair and said it made me look a lot younger. I said next a toy boy, Polly said what here, meaning Age UK. I said probably not then.

While having my dinner I sat with a customer and she was telling me about her husband having NON EPILEPTIC SEIZURES like me but not so violent like mine. His was caused by a virus and high temperature. She also said the Hospital did not treat him very good either. Some nurses were quite rude to him and told him he was putting it on like I was. I said to her who would want to put it on. We both feel like we know each other but neither of us are sure from where or when.

9th

Very windy walk with Summer on the common. Good for the washing got all dried.

Emptying the display cupboards in the dining room ready for the new carpet. I hate moving my crystals they are so delicate and the way my hands are I am pleased when they are safe in  boxes.

Finished off the "Dr Who" puzzle one bit missing I think it might have got burnt a shame really. The last few bits were quite hard, as all black with bits of stars on for the night sky. Never done a puzzle that caught fire before.
All done.

10th

To fly or not to fly-- Today is the changed date to go up in the plane, but there is snow at the Airport so its a no go. There will be another day and better weather too.

Wayne has snow too, we are expecting some so the weather man says. All we got later was a short shower of hail stones with another one later.


11th

My brother David is having his Hernia operation today all the best to you.

I wish my operation would come up too. My knee is locking up a lot and I am getting more over all pain more night/bed time spasms and very cold from the knee down and swelling up..
Last night when sat it locked up completely and I could not move it at all. I had to massage it then stand up. This took a few minutes and was very painful.

12th

Spoke to my brother David's wife Bev, she said he is doing well, not too much pain and is home. He is a bit like me does not like to sit down for too long doing nothing.

Cleaning up most of the day.

13th

My friend John here for a chat and a bit more sewing to be done. He said I have a complaint laughing. The  popper I mended last time on his jacket, does not keep fastened so a rethink is needed. He said his Teddy I did for him is very good and he was pleased with it. I will do his jacket at a later date.

Phone call from carpet man he is coming tomorrow. So we need to get most of the furniture out. Also we have decided to have new underlay as most had gone a bit thin. Paul got some and we spent the afternoon putting it down. The carpet man will only do the carpet. We put the carpet back down ready for him coming tomorrow. We needed to do this so the underlay did not get damaged, or Summer hurt her paws on the gripper rods. Hopefully doing the underlay will make the carpet last longer-- so long as I have no more accidents.

14th

Took the rest of stuff out of the dining room ready for the carpet to be laid. The man arrived and got on with the job. I went upstairs on the commuter.. Summer said her very many hellos he has two dogs himself so thought Summer was lovely. He got on with the job and soon was finished and it looks very nice, a bit lighter and more shaded, a very good job pleased


Now to get the stuff back in the room. Andrew helped with some when he came home, by tea time we had got it all back in now just the cupboards to fill back up. We can take our time with them so no rush.

15th

Age UK steady day early finish as some new floor lay going down.

I have a DEXTA scan at the hospital so I set off to walk up the hill. My knee was not too bad, going up, down, I think will be the worst. Had scan no problems. I have one regularly to check up on the OSTEOPOROSIS as I came off the tablets 2 years ago as I had bean on them longer than I should. I still take CALCIUM 2 a day.  As I came out the Hospital a bus was waiting so I got on it, hoping it would not shake up my RSD too much and cause pain. The bus ride was smooth and no more pain  than usual, this must have helped my knee not having the pressure going down the hill. I walked back from town with no extra pain so was pleased.

16th

Sorting out the cupboards in the dining room got a lot done so we were pleased.

Spoke to Wayne- there is a lot of flooding around him in Halifax and surrounding areas. They are on high alert. The town got very bad flooding a few years ago. He said it had bean raining non stop for 3 days and nights. So long as the rain/snow stops they will be OK and the threat will be lessened.

17th

A cold sunny day, changed the bed which got washed and ironed. A few showers but nothing major the wind is too strong for that.

My knee is very painful as I had a lot of spasms in bed despite taking my QUININE.

18th

A nice walk on the common not as cold as yesterday. Sumner played with her ball as usual and met a few of her friends. She always has a good time and loves her walks getting very excited when her lead goes on. She can hardly wait for me to get ready. Trouble is the common is very wet and mucky and she comes back not very clean, In fact some day she has to be washed.

Early hours of the morning I think I passed out, I found myself on the floor. I don't think this was a SEIZURE but can never be too sure but if it was it was mild as no damage done. I think I just passed out, I had not bean feeling that good all day. Very light headed and balance off.  Very unsteady when I got up to go to bed after sitting for a while.

19th


Feeling a bit off it today. just finished cleaning up and Joy turned up unexpectedly. Good to see her, she has not bean well herself. She said I did not look too good. I told her what happened last night.

The rest of day I had a rest and later did my lion rug, going quite well too. Getting the shape now so able to see what it is.

20th

Lindsay and Jay-Jay came round, it was nice good to see them both. The house next door is about sold so the household things are going bit by bit.

Lindsay came back later with Ben and picked up a fridge-freezer from next door she bought, so more things gone. A skip is coming next week for all the rubbish that is left from the loft and various room Cilla was a bit of a hoarder. (Ben's late Wife)

21st

Summer had her booster injection today. The vet said she really needs the new kennel cough one as well, as she goes on the common, and meets other dogs. I was not sure but took his advise agreed to it. She did not like one bit, it as it goes up the nose, the injection made her yelp also. He was not as gentle as her usual vet. She soon recovered though.  The main injection  is in two parts so another one in two weeks. Not the kennel cough bit though. I think Summer will be pleased about at least.The cost was £58.40-- £23.40 being for the kennel cough bit.

22nd

Age UK a steady day and even Vera was good not getting in the way as much. Closing at 2pm today as kitchen is getting a Spring clean. Everything had to come out in to the cafe. I said it looked a bit like a car boot sale.

24th

Hopefully today we are up up and away, the sun is shinning here and at Tollerton so we think it's a go--- today a morning flight instead of afternoon one this time.
We met Dave and Bev at the Airport he had done his pr-flight checks so we would soon be off. We went to Banbury near Oxford. Miles go very quick in a plane, the clouds made shadows on the ground something I think you only see from above the clouds. Paul even flew the plane he was well pleased and proud of himself, not often you get to do that. A very good flight and the views were great.Very windy though. You could feel it tipping the plane at times.


 The plane.
 Dave the pilot.
Paul.
 Bev and I in the back.
Going up.
Dave concentrating.
 The controls co-pilot side.
 
 
 The clouds making shadows.
 The plane grave yard.
 This was the ceiling in the cafe at Banbury.
 
  Out side the cafe.
 Looking very serious he was flying the plane.
 Bit more relaxed now.
 
 
Coming back to Tollerton ready to land.



Dave and Bev had a another flight later with two more friends.

Later on I did not feel too good, whether it was the flight or just a coincident or something else not sure.

25th

I feel about right now headache and tingly feeling gone apart from hands.

I got a letter from Kingsmill Hospital with a date for my knee operation "1st May". Well pleased about that so will soon be all done. Nor worried about the operation just the after bit when I will be restricted at what I can do. I have my scooter but if on my own, will I be able to get it out the house as a bit awkward. Any way I will find a way for Summers walks. I will not stop in the house any longer than I have to.

26th

Got cleaned upstairs today.
I feel very bloated and fat, legs and ankles swollen too.
I did some more of my Lion rug, coming along nicely more than half done now.

Sold some more of the things from next door, a bed and a wheel chair as Julia could not get down to do it herself. Both were pleased with their purchases.

27th

Angela called in, she is on her way to York for a few days.

Pain in stomach low down, and very bloated feels like cystitis hope not. Not good, late night and early morning, hot cold dizzy. I know now I was right thinking it was cystitis.

28th

Tried to get an appointment at the doctors could not even get through to them. When I first called they were not even open then 30 seconds later 15 people on the line and I was cut off. I tried 8 times each the same. Not good enough, by the time you can get through all the appointments have gone. Try ringing up at 1pm they say, to go through it all again. Went to the chemists and got some thing from them, hope it helps
 
My friend Bev is here she brought flowers and cakes. I told her about my cystitis. She is one of the ones who kindly took us up in the plane. Thank you very much Bev and of course Dave as we would not get far with out him being the Pilot.

29th

Paul away for the weekend not back till Sunday, so just me and Andrew and of course Pup.

Angela called in on her way back from work. She came back yesterday from York.

31st

Mothers Day

Andrew wished me Happy Mothers day. Summer gave me a high five well more than one. Lindsay and family came round later with a card. Wayne sent me a Baby Shark CD---- At Christmas he kept annoying me by singing it or playing it on his phone. I am going to play it non stop when he next comes here. No joking aside it was very nice of him. Thank you Wayne. I will play it but perhaps not all the time. He did send us another Cd for Paul and I as its our 44th wedding Anniversary. The CD is from the year Wayne was born 1979. This will have a lot of songs that I will remember well.
 From from 1979 to today, I have listened to Radio 1 most days, even when in hospital.


Hope things are going well for you all- if not as well as can be. I am just glad I am having my knee operation next month. Hopefully things will go right and I will be soon be back to my normal state of mind, which is far from most peoples normal mind state. I know the recovery will take more than a few days, more like weeks. That is going to be the hard bit for me.

All the best to you all Love Gill.



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