September.

September 1st

Wow in September. Leaves are beginning to fall getting dark a lot earlier and its getting colder at night and early morning. In between weather has bean quite nice.

ANTIBIOTICS are doing their job, and the redness and swelling is calming down. So is the pain.
As with most ANTIBIOTICS they have affected my stomach. Taking MINTEC- I find that for me it's better than stomach remedies.

2nd

Went to see Lindsay after her pain block treatment. She is not doing too bad spent the last few days in bed mostly asleep. The children have bean good and Tracy has bean coming in to help where she can. The children's Dad has also bean a big help.

Hip is a pain at the moment I think with being on crutch's a lot longer than I thought my body has got used to them. Now complaining one has gone. Hopefully by the middle of this month I will be free of them for good. Still the thought of them and a wheel chair, still scares me. I know the crutch's were after my knee operation but your mind and body can get very used to them. When I was on them at the very beginning of RSD (2004) for over three years. I got so used to them, when Wietse told me they had to go --- my legs could hardly take the weight, and I struggled to start with. I was taken off them because the RSD had spread to my shoulders causing me great pain. I can still remember the day when Wietse took them away. I said how will I walk without them????? He said you will learn, and learn I did--but very painfully. He explained at a later session that the RSD would have gone on to spread its evil so bitter sweet. Worked out in the end though-- I  am still here. Thanks to you Wieste.  

Chinese for tea very good this time I think Chinese can be a bit hit and miss- even from the same place. This is just across the road so very handy. "The New Taste."

4th

Scraped my face on the shed wall yesterday, sort of walked into it-- my face is a bit sore and red not too much pain. Funny as one thing gets better I start on another problem.

Was hoping to go into town today but rain is meant to be here all day so another day I think. I would have gone on my scooter. Not able to walk that far yet, soon though. Hoping to be back at Age UK next month. I have missed it. I know quite a lot of people there and they are mostly all friendly. Apart from Summer walk and in side the house stuff there is little else I can do.

Coming back from mine and Summers walk we saw "Eight swans a swimming" . There are not usually that many so I think they must have come from the Brayford. Building work or something going on there. Lovely to see them so graceful and bright white.

5th

Walked around with a friend and her dog called Milo. Summer and him had great fun running around.

In to town at last on my scooter. Quite a few changes as well, a lot of the town is being renovated big time. This is the first time since 26th of April I have seen it all.. Got most of what I wanted did not look in the new shops but there is always another time. I did enjoy my trip- very tired after. A lot of people asked me what happened to my face. Usual story, walked into a wall I said-- a few funny looks as well but it's the the truth.

6th

Well today- did the whole of the walk without any crutch's at all this time. I did not even take one like I have bean doing. Knee not too bad, hip not liking it or shoulders. You would think they would be pleased. I was happy at last walking as I was before the knee operation, bit better or it would have not bean worth it. Felt quite strange without it, I have got both hands free now.

Leg has improved very well and hardly any redness left as you can see, last ANTIBIOTICS to day.


Healed very well as it was a bit of a mess.


7th

Paul is at Wayne's for a week looking after his cat Timmy. This will be like a holiday as I'm not intending to do much cooking. Andrew mostly gets his own food so just me to think about and Summer of course- she will not let you forget her. Andrew and I had a small Chinese for tea/supper.

8th

Happy Birthday to Tommy-Lee 13 today and Jamie-Lee 7 today hope you both have a great day.
Jamie-Lee has a party tomorrow at Play Zone I said I would go, if only for a little while. Not bean to that one but others have bean too noisy for me.

Lindsay and Jamie-Lee came round and she had her presents here. I got her Sylvians house plus furniture and little people. We sat and played for at least two hours. She loved them. Got Tommy-Lee shower stuff sweets and money.

 
OUCH!! as Wayne said.

Got a bit worse but I do not think it's infected. Just the RSD not helping it. Knee quite sore today probably not liking no crutch to lean on.

9th

Well Wayne and a friend from his office are off to Florida for two weeks. Paul took them to the Airport they got stuck in traffic, but still got there in plenty of time. A long flight around 12 hours, no vapping either Wayne

Cleaned all down stairs. In the afternoon went to Play zone. Not too bad the tables away from the play area, so a lot quieter and not too hot either. Tommy-Lee came after he had bean shopping with his Birthday money. He got some very nice Nike trainers. Well they are the best. Stayed for a while then, Tracy brought me home when they were going to have their tea. Pleased you had good time Jamie-Lee.

10th

Face not quite as raw today I think the swelling is going down now.

My friend Jenny came to see me. Always nice to see her. Good chat and catch up from Age UK Jenny goes there as well, she volunteers the same as me, or will be soon again I hope. Missed it a lot, can be a lot of fun. A lot of things go wrong, or that might be just while I am there.

Jenny bought me some Celebrations chocolates for doing some sewing for her. Thank you Jenny- a good day, and now some treats to eat.

12th

Nice walk but my right knee is giving me some pain, not the operation one.

Bean watching Wentworth, a Lady's prison-- on series six. Bean very good, edge of seat stuff, recorded it ages ago and saved it to watch in one go. Well three nights for me as have to move after so long or pain and discomfort gets too bad.

13th

Looking after Ben and Emmie tonight. Squidge came round yesterday and asked me. I thought it was that day. Some how between us I got it wrong- its tonight.
The children were very good as aways Emmie was dancing and singing. Watched young girls doing dancing on TV. She likes movement and does gymnastics and is very bendy like most children, also very skinny.

14th

Paul's at football, first game since their Managers Danny and Nicky Cowley left so will this dishearten the players and watchers?

Normal day for me doing this Blog, washing out blowing well. Warmed up a bit, as chilly this morning on the common.

Finished off the Doctor Who puzzle I started and there was no fires this time.



Went into the garden and saw this lovely scene for the end of the day.





Beautiful sunset.


17th

Up a bit later than normal. I have bean so tired just lately. Even if I am in bed for more than four hours its still broken sleep. I can not even remember the last time I slept a whole night. Probably when sedated in hospital. I think this is my CHRONIC FATIGUE/ME causing this. Makes you feel like you have FLU the whole time, a dull ache for days at a time. I also think because I have not bean to Pilate's since last November my muscles are slacker and weaker.

18th

Fair lot of pain today back and hips plus right side, Knee locking up too operation side.

Angela called round for a chat and coffee, tea for me.

My friend John also came round and brought me a present a Crystal Angel.



This is for doing all the mending/sewing for him. I must have saved him a lot of money, as where he used to take his mending to the market they charged quite a bit. Probably a bit neater and better job but I do my best. If I do not think I can do anything he brings or anyone elses mending. I just say that is beyond me. I don't do zips either.

I asked John if he wanted to stay for tea and he said yes. Beef in buns, fried potatoes rings and onion rings. John had sausage as well as not much beef. Very nice it was too I enjoyed it very much.

I suppose a lot of you readers of this blog are the same as me loose their appetite when in more pain than usual. Mine goes down hill very quickly, but up again when feeling less pain.

Checked my emails and I had nearly 3000 yes-- three thousand plus 300 junk emails. I usually get about 30 over 2-3 days. Looks like someone had hacked into my account. Also my Pay-pal account had bean got at. Sorted that out and no money had bean spent or taken out.
The emails Andrew is sorting out later today. Nothing is safe these days.

Had a nice bath later that helped with my pain, spent the rest of the night knitting and TV. A lot of the time I can't do my knitting or sewing because my hands loose their grip. Also this BRAIN FOG that most of us get. Very annoying counting my stitches and I get say 30 not right as only 20 on the needle try again get another number. Same when doing cooking or anything that needs my brain it just goes to mush.Not able to hold my knife or fork like I used too or cut things the same. Hitting the wrong keys while doing this blog. But I struggle on-- and I am still walking so that really good but a lot of time it hard.
People look at you and see a very different view to the real struggle that's really going on.

19th

Paul is cleaning the carpets downstairs today, as they are a bit grubby. We bought a carpet cleaner last year and its really good, a BISSELL one- cleans very well. I think they will dry too as warm and windy today.
All carpets were about dry at night time. I will vacuum over them tomorrow and put the stuff back in place.

20th

Upstairs carpets turn today, I am like I said vacuuming downstairs. They all look a lot better upstairs too. They will be vacuumed tomorrow if dry.

Tidied up the greenhouse and watered it. Sorted out the flower boxes by removing the dead flowers  and any weeds. Picked quite a few red tomatoes, cucumbers are ready too so everything is looking good outside.

I did not go to bed till 3.30am as I did not feel tired at all, but my body hurts so much. I have an almost lay flat recliner chair so if I do fall asleep I am in a better position than an upright chair.

21st

Awake at 6.30am no sleep after that, so I got up just before 8-00am.

Quite a busy day, vacuumed all the upstairs carpets and put thing back as downstairs. Just Andrews room to do another day as it was only cleaned today. He will do that-- maybe.

Watered the greenhouse with Summer almost attached to the hosepipe. She loves water and I let her play with the hose after. She gets very wet as she gets hold of the hose and sprays herself. Must be nice on a warm day.

Bean looking after Tabby cat for the weekend- so went and fed him. He has bean left some cat treat sticks and he loves them. I go round a least 3 times a day. They will be back on Sunday (22nd) so not long Tabby. He sat on my knee for a while purring away and did not want to get off. I will come back later to see you Tabby.

22nd

A lot of people out on the common today a heavy almost stormy day.

Pain has eased quite a bit so that's good. I am able to type this blog without so many mistakes, apart from spelling that is. Spell checker takes care of that later. Other wise you probably wont be able to understand it- not too good at spelling. I can tell if it is spelt wrong and a lot of time put it right myself.

23rd

My son Wayne just came back from his holiday in Florida. On the very LAST Thomas Cook flight. He said it was awful as the staff found out mid flight that the company had gone bust. Wayne said they were very brave but you could see that the pressure was getting to them. Some were in tears the rest very close. When they landed the passengers gave them a round of applause. Wayne said there were loads of Thomas Cook planes on the tarmac-- something you never see.

A very tired Wayne headed home to see Timmy his cat who fussed round him.

Paul put a bit on facebook and it was seen by the Lincolnshire Echo group. They contacted Wayne the next day. He was asked to give his view. He said he was very tired (12 hour flight.) but he would do his best. The write up got in the local paper complete with a picture of him not looking his best. What a journey for all the staff a big Airline like that, who would expect it?

I thought the article was very well written--Very well done under a lot of pressure and less brain power too from jet lag. Another note he was on page 3 !!- never thought he would ever be on page 3.

  
        Wayne's story.

25th

Last night I was in bed around four hours, not asleep all the time though.

My friend Joy came round for a visit, she is not bad. We had a good chat so that's always nice I think plus tea of course. I have not seen her for a while.

 Face a lot better now just very dry skin hopefully I won't do that again- (Scraped on the Wall)

 
 
 Loads better.

26th

Happy 65th Birthday Paul. He was out all morning so had his presents and cards later.
We are out for a meal later at MaCh Indian Restaurant not far away. Six are going Andrew, Lindsay, Ben, Tracy, and of course Paul and I. A good meal it was too. Not too noisy, so a lot better for me very relaxed atmosphere.

 All looking good.

27th

B12 today also I hope I can get some ANTIBIOTICS I have CYSTITIS/ WATER INFECTION so the earlier the better. 
The Nurse sorted out a prescription- MacroBID 100MG  NITROFURANTOIN 2 a day for a week,   for me via the Nurse Practitioner so I was pleased. I thanked them both. My arm after the injection did not hurt too much either.


28th

Went to bed earlier than usual, felt a bit off it. CYSTITIS always hits me bad, back and over bladder area. So not unusual at all. Very unsettled night, awake most of it hot- cold- pain just very uncomfortable.

I got up, felt a bit wobbly still nothing unusual. Half way down the stairs I felt very sick wrenched but was not sick, shouted Paul and he got a bowl I think, in case I was. Helped to my chair and just sort of collapsed. Violent head pain, back, in fact pain everywhere- head was the worst. Light hurt my eyes I had trouble walking. I laid on my recliner all day in the dark and quiet, barely with it at all. Was it a virus or reaction to the ANTIBIOTICS. I had these before though. Time will tell.


30th

I feel a bit more with it today still weak as I've not eaten a lot over the last few days. Paul took Summer for her walk. When he came back I had a bath. I thought I smelt as I had bean very hot and sweating. This was nice but tired me out for quite a while.

A nice day, so washing out and hopefully drying too.

I have a rash on most of my body now. I think it must be reaction to the ANTIBIOTICS so not worried, would have bean if a few days ago.



Well not a good end to the Month- If fact not really a good one at all, hope you are doing better.
All the best Love Gill.

August.

August 2nd


Happy Birthday Summer nine today.
Andrew took these pictures of her in the garden, well chilled as only Summer can be.




 
 
HappyBirthday Summer.


In the greenhouse tieing up the toms and cues they are doing very well even the two little ones that went in later. Took a few leaves off the toms as quite a lot of tomatoes are forming. Dead headed the plants in the garden too. Looking very colourful out there.

Cooked tea, chicken tonight. Summer had some for her tea as a treat. Plenty left for another day for her, she is a lucky girl.

Went round to see Tabby cat he is well and as I said last month not too good on his feet. I brushed him and he fell over, poor Tabby. He sat on my knee at night time for over an hour purring away then went to sleep. I thought I was here for the night, but he did wake up and go outside. Time to go home and cuddle Summer.

Knees and legs are burning  left knee and foot are swollen and funny colour and shiny. I think the RSD has spread to my knee after the operation. This would explain why I am still in pain after all this time. I am hoping I am wrong but you just know after fifteen years.

4th

I got bitten a few days ago by mosquitoes and they hurt a lot, some are very red.

Paul and I are going to Wayne's today and stopping over night. I have not bean there for a long time because of a lot of pain while travelling. Today I hope things will be good and the RSD will be kind.
The journey was not too bad- but I took a lot of extra tablets.  Good to see Wayne, took his Birthday presents from us and Andrew. Timmy I think was pleased to see us too.
Indian for tea/supper, good too. Wayne stayed up with me and watched a bit of TV. That was nice just us having a Mum to Son time.

Cooked dinner for us all pie (in small oven) and veg, but the oven went off, so the pie was not ready when veg was. Soon sorted put in big oven, Wayne remembered why he did not use the small oven--- because it goes off. Anyway it was very good.

Wayne needs to take Timmy to the vets as he has to have regular checks on his blood as he is diabetic. Trouble is he does not like/hates going in his carrier. Wayne usually has a job to get him in and gets scratched a lot, some are bad ones as he is a big cat and strong. Well after a fight he was in, not happy at all. Swearing at him and looking like he was going to get him when he was released.  Blood taken and Timmy back home still not happy, but soon be tea time Tim. He is like Summer he enjoys his tea.

We all had a sandwich then soon headed back home. In a lot of more pain, and am very tired but pleased I went. We did not do much but that was the idea. A nice restful weekend-- watched a weeks worth of TV I think.
Home again- Summer was very pleased to see me, Andrew had looked after her while we were away. Thank you for looking after my little girl. Nice surprise Ness and family had brought me some shortbread as a thank you for looking after Tabby. That was nice of them thank you.

6th

Washing and general things not too much though as tired and a bit more pain than usual, spending time with Pup.
Popped round to see Ness to say thank you for shortbread but only squidge there. Ben was out with Nes, getting school uniform. Emmie wanted a chocolate bar, but they had none, so I went and got her one from home. she was very happy. Stopped a few minutes then home again. I think Tabby thought I was going to let him sit on my knee again as he was looking.


My friend Bev phoned up and is coming on Thursday, I have not seen her since we went up in their plane. So something to look forward to.

8th

Burning whole body and very itchy again, this had calmed a bit but back again. Taking ANTIHISTAMINES these help a bit. Trying hard not to scratch or I would have no skin left. Body feels so hot but cold to touch. Typical RSD .

Bev here mid morning so good to see her. Talked and caught up with each other news. Its a pity we do not live closer as we both like a lot of the same things. A good day nice to have some one to talk to.

9th

A lot of rain over night coming down very fast early morning before I went to bed, very humid as well.
Big puddles on the common, I think Summer went through most of them. She loved it whatever the weather she is happy on her walks.

Went round to see Ness she was in this time. Thanked her for the shortbread. Tabby was there we sat outside. He cries a lot even when sat next to you- as I said before he is an old cat. Ness is a bit worried as she found a swelling on his hip. Poor Tabby- she does not think he is in pain though as no reaction when she pressed it.

Angela came to see me too, she is doing good. Lindsay called in with Tommy-Lee and Jamie-Lee. Tommy had treated Lindsay to dinner for her birthday. Jamie-Lee too, Lindsay paid for drinks as he did not have enough money. Good lad Tommy.

Went to see my youngest brother after tea. His Birthday is tomorrow so took him a card and presents. Gary his son my Nephew, has got a new little dog a chihuahua called Roxy she is so tiny only a few weeks old, so will grow a bit more yet. There other dog Laddie likes him as well and looks after him. The cat is not so keen.


10th

A very windy walk on the common showers too.

Brushed Summer she is molting a lot, soft and fluffy like cotton wool. Cleaned her teeth also she is not keen but lets me do it. Same when brushing her, does not like her face brushed. More interested in the treats she will get.

Found out my friend Sally has got into the Olympics 2020 for Triathlon. Well done Sally. I think back to when we were both in hospital together, very ill and we used to talk about things like getting back to normal. Well Sally-- you came through it all, I did not. Good Luck in everything you do Sally you have worked hard for this.

12th

Knee tight and pain full today more I think its more to do with the RSD  (I am certain that's it has spread now) than the operation. Someone asked me how I knew I said because fifteen years of it that's how. I am still using one crutch tried without but hurts too much. Hopefully it will ease a bit, I hope so. When I had the operation there was a chance that the RSD would have a go. I had no choice but to go ahead as my knee was getting so bad I found it painful to walk and it gave way a lot. This pain was telling me something was wrong now and needed putting tight. But that's RSD  just doing what it does best making lives hell. I had to give up Pilate's for now as well. I don't  regret having the operation done but RSD you could have bean a bit kinder. I can see Mr Joby John earlier than December, but I don't think there is any point because I think he will agree with me about the RSD. I have bean fighting it fifteen years so it will not stop now.

13th

Not a good day, legs swollen and very hot, even feels hot to touch today like severe sun burn, I have not even bean sitting in the sun since 25th July when Lindsay and Jamie-Lee came round and we had a day in the garden. At least the mosquito bites are less trouble, but I have got a few new ones. Shoulders are complaining about the use of the crutch too. As soon as I can it will be gone I did not expect to be on them so long---- Operation May 1st.

15th

Shorter night than usual - skin very itchy and uncomfortable again. I could almost rip it all off. Whole body/mind not doing too well at all. RSD is having a great time, I am not, would it hurt you too much just to back off a bit???

17th

Skin a bit better today and not as hot so that's one thing less. On own all day as Paul's at football.

Washing and cleaning up. Spent a long time in the green house watering and taking leaves off and side shooting them all doing well. Every thing now takes so much longer.

Finally got the little cardigan right I am knitting, bean struggling with pattern and counting. Not even a hard pattern four rows but I kept going wrong. I worked it out in the end. RSD is not just pain and spasms, it affects the brain too, making simple things that I used to do very easy, now hard

18th


Sunny windy day so Summer gets a bath after her walk. I think she knew as she went in all the muddy puddles she could find. Did a lot of the walk on one crutch, hurt when I got back. I need to walk with out them, because I am getting a lot of shoulder pain.

Summer got her bath and looks very white and clean but not for long with going on the common.


 
 
Very pretty.


Suffered later with a lot of knee pain, by not using the crutch. I will just have to use it a bit longer.

20th

 Tired- well more exhausted.

Summer walk was good, lovely on the common. I managed to keep her clean at least for today. 
As we got nearer the gate coming back I saw the horses around it. Summer did not see them till a lot later as the grass is long and we were in a dip. They were across the gate and across the path to the other gate so there was no way to avoid them unless I doubled back, but that was a long way round. I walked slowly hoping they would more at least from this gate. Summer saw them, panicked, and started to go the other way, then she saw the others there are only twelve I think, but it looked like a lot more, specially to her. I put her on the lead I hoped they would soon move or it meant a lot more walking. Anyway they did move a bit so we took our chance. As we got nearer to the gate I slipped Summer off her lead and said run. She did not need telling twice. I just walked slowly and they just looked at me. Summer was wagging her tail on the other side. I was pleased she did not get upset.

23nd

Lindsay was around yesterday with Jamie-Lee. Jamie was dressing up in some dress up clothes that are kept here, she did look pretty. At the moment she does not like her picture taken so I could not get one of her.
 
Not the best today a lot of pain in my face and neck OPTICAL NEURALGIA I take tablets but the pain still breaks through a lot. Makes me feel very unsteady and sick feeling. Most of the time I am able to cope, able but not today.

24th

Feeling about the same in the morning, by afternoon a bit better, pain backed off a bit from face and neck, but hip pain now. As one gives up another takes its place.

Lindsay and Jamie-Lee came round, Jamie was in the paddling pool a lot of the time. Lindsay not too good so while she rested Jamie and I played. You can have a good conversation with her very grown up ones better than some adults. She sat with Andrew in the shed and was talking about taking the shower gels and bits from a hotel. Jamie-Lee said but not the mirrors though, Andrew did laugh.

26th

BBQ in the garden with family, very hot too. Lindsay doing the cooking. Everything went well and the food was very tasty. Everyone I think had a good afternoon. Temperature was 31-32C so a hot one and that was away from the BBQ so Lindsay was cooking burgers and almost herself.
The beach tent was up so a bit cooler in there. Later cloud came over and it cooler down.

Would have bean my Mums Birthday if she had bean here too. Remembering you- not just today but every day.

27th

Not feeling too good shaky not good on my feet dropping things. I get these sort of black out where I just pass out for a few seconds or minutes. Looks like I am a sleep then I come round not aware of blacking out.

I have some nasty bites on my arm and leg and behind my knee.

Arm.

 Leg.
 Behind the knee.


Leg is the operation one as well so not good for it. Very hot and swollen. These were not too bad in the morning but by mid afternoon they had got worse. No chance of seeing a Doctor today though unless I am just about dieing.

I went across to the chemist and the pharmacist had a look and said I need to see a Doctor. No way today I said. Well then take your Temperature and if it rises above 39C go to A and E. I did ring the Doctors, but unless I was having EMERGENCY they would not see me, ring up tomorrow. This I can not do as Hospital appointment middle of morning. When I get back it will be too late. Oh well it will be alright I have had similar bites like this be for. 

I kept taking my temp and the highest it got to was 37.7C so it was up a bit. If it does not improve I will get in touch with the Doctors again. This will not be till Friday as I have Jamie-Lee on Thursday. Lindsay has an appointment for very painful pain blocks to the bottom of her head/neck. These will leave her in a lot of pain for quite a few days. If they fully work this will help with her extreme head pain. Last time one side worked the other did not.

28th

Today is the day I hopefully see one of my favourite Doctors at Lincoln hospital. I saw him a lot when I was very ill with the SEIZURES. They told me at both the Kingmills and Lincoln that I had EPILEPSY plus the non EPILEPSY SEIZURES so see what he thinks. I had loads of tests some not too nice, when I was in before. So I think it has bean covered. Unless they can come on at a later stage.

I did see Doctor Solines and he talked about the SEIZURES also the black outs I have. He thinks one thing it could be is- a very low heart beat at times, too low for my brain to keep going hence the black outs. Maybe but I have not had problems like this before. I might have to wear a monitor to record my heart beat for 24 hours. Like the one I had for testing my blood pressure. He will also contact Kingmill and Lincoln hospital to see what they have to add. 

Paul is to record any events if he can but that will not happen much as we are rarely in the same room.
Had a sandwich and cup of tea in the cafe at the hospital.

On to my Brother and Sister in laws-- Its Pam's Birthday and I aways if I can I like to go. She was very ill a few years ago and given 5% chance of surviving so she is a special person to me.
A very Happy day to you Pam.

Tonight Paul, Lindsay, and the children are going to see Lincoln City play so excitement all round.
They are all here for tea first then going from here to the match, about 5-10 minutes away.

Pup and I will have a nice sit down and cuddle as I am about done in, leg bites are very sore and redness has spread.

29th

Jamie-Lee and Lindsay arrived soon after 8am, Paul picked them up. Lindsay going for her pain injection. After Paul took her home so she can rest. Jamie-Lee is going to Tracy's for two nights from here.

Arm and behind the knee bites, swelling has gone down, but leg one is more swollen and redness has spread down the leg to the ankle.

 
 As you can see a lot worse now and more painful..


What a busy day Jamie-Lee and I had. Washing and putting out the clothes. We had to sort out the beach tent we used on Monday as it had got wet as rain over night.. Soon dried in the sun and wind.
put that away for another time.

Hide and seek bear with Jamie-Lee night time teddy - I spy- getting the cobwebs from the ceiling down stairs- playing ball with Summer- made 23 cup cakes and iced decorated them mini eggs and loads of sprinkles, plus Christmas serviettes-


 I think they look very good too tasted better.

Jamie-Lee then wanted to look in all my display cabinets, pictures have bean on here before. This took awhile as talking about the  crystals, glass and trinkets where they came from and who got me them. Some are the Children's Christening things and Nat West money boxes.

A go on the laptop then Tracy was here to pick her up to go shopping and for the next two days. Hopefully I have tired her out and she will sleep for you.

Took Summer for her walk as Jamie-Lee did not want a walk while she was here. Summer was pleased as it was soon tea time after. Just let her treat biscuits settle first. (she aways has two small bone biscuits after her walk.)

30th

Phoned Jay-Jay to see how Lindsay was? He said she had bean sleeping and had some food.

Paul got me some flowers when he went shopping. Thank you Paul. 

The Nurse Practitioner looked at my leg and straight away said infection. Not too sure if it was a mosquito bite, could have bean a tic she said. Took my temperature which was slightly raised she said but OK. I was given DOXYCYCLINE 100mg 2 a day quite strong to get on top of the infection. Hopefully this will kill it, and not me- and all will be well. If not I go back Monday if any problems. If major problems like temp up- feeling strange- leg getting worse- I have to go to A and E. She is not too worried but concerned.

On the way back I had my Ipod on listening to Radio 1, one of my ear buds fell out and two ducks on the river started dancing moving there heads up and down in sync very funny. As soon as I put the bud back in they stopped.

Along the river they are rebuilding the banks as they are collapsing. The machine they are using goes in the water and crawls up the bank very unique.

My leg is very tight as the calf muscle is affected. My shoulders hurt a lot as soon as this leg is better I will try again without my crutch.

Sat down for a bit then started tea, for Paul anyway. I felt a bit sick as I had taken my first tablet so was going to wait a bit. Took a MINTEC these work very well to settle the stomach. After around an hour, all was well again. Paul had a fry up, I settled for fish pie that Lindsay got us last week from Aldi very nice. Not really a fan of fish pie but it was good and settled well.

Update of flower planters and greenhouse plus out door tomatoes. All doing very well.

 
 Planters very colourful now.
 Cucumber have done very as they had a late start.
  
 Tomatoes getting ripe.
 
 Last 3 pictures in greenhouse.
Outdoor tomatoes.




Right you can see quite a lot going on this month. Took me ages to type out.
Hope every one is doing as well as they can-- All the very best to you all love Gill.








   







 


July.

July all ready the year is going so fast.

July 2nd

A windy but warm day. Summer has had a bath and looks very white, soft and fluffy. She needs a hair cut, in fact we both do mine has not bean cut since April so getting long again.

I was flipping through a magazine and it said where's the pause button--- I would like to know, where's the START button.

The Children are back from their holidays with their Dad. All had a good time. When they got back to the Airport, the car would not start. This was early hours of the morning. Dad in the car with three children very tired and wanting to go home. The worst one moaning was the oldest Jay-Jay. Tommy-Lee and Jamie-Lee just played games and napped a bit. In the end they were towed back to Lincoln an expensive end to an holiday. Both Tommy-Lee and Jamie-Lee enjoyed there extra add on. They were all safe that's the main thing, but very tired.

I think I am getting a cold as sore throat and a weird headache. More tired than normal too. I know all the weird pain I get and people have said to me it must be hard to distinguish between them. No because you just know-- hard to explain though.

4th

Quite a nice day again warm on the common with a cool breeze.
I went in the fridge and thought I could smell gas I know very weird!!! Turned out to be some cooked cauliflower that had bean there too long one of Andrews cooking left overs.

Going to Jamie-Lee's sports day at her school. Getting picked up but walking from Lindsay's house to her school close bye. This is the first proper outing since having my knee done.
The day was very good, all outside- I love seeing the children running around and having fun a very nice day for everyone taking part. When the prizes were given (This was in side the hall.) there were some parents that did not know when to shut up, and I think spoiled it for quite a few people that could not hear the Head Teacher talking. I think they need to go back to School themselves. VERY RUDE. The children were very good.
This affected me, as too many sounds from different sources made my head hurt and I felt shaky. Just as I was going to say to Lindsay I have to get out it was finished.

5th

Another warm but dull day. Summer's walk on the common I did with just one crutch. So I was very pleased hurt a lot later. This whole recovery thing is taking far too long for me and I don't like it one bit. I thought by now I would be back doing everything I did before the operation after all it was not a big one. I know the RSD is messing things up BUT----- I will just have to wait a bit longer. I feel very far away may be I should just stay there if its better than here.

6th

Whoa- knee very painful, so is left hip and lower back. Dam that walk yesterday I thought I was ready to ditch one crutch shows it's not yet time, back to two tomorrow I think. I think the cold has a lot to it plus the RSD of course. Did some more of Lion rug only 17 more rows to go. Fingers are not good so I am finding it hard at the moment. In fact a lot of things are getting harder to do.

7th

Went to B and Q and got some bedding plants, loads very cheap end of line about a third off. Putting them in tomorrow. Rained a bit so that will help them perk up a bit, they are still very nice plants and at that price too even better.

Tomatoes and cucumber have grown a lot--this warm cloudy weather is helping them along.
 
 
 Toms doing well.
 The little ones on either side have just bean put in.
 
 Runner beans doing really well.

 
Looking after smudge Andy's cat, for a few days I reached for a fork off the draining board and knocked a dish off--- smash on the floor. I had only bean there five minutes. I did do the washing up and cleaned the sink for him, to say sorry. All the time I have bean feeding the cats I have never damaged anything. I was mad with myself.

8th

Worked out where the plants were going, most in planters and a few to fill up the hanging baskets.
They look good even better soon when settled in. Six planters in all and four tubs. Pleased with myself.

 
 
 
Hanging baskets the snails had a go at these, before I put down the pellets. They will be alright though. They will recover in time.

I still feel not well if its a cold its taking the long way round. Very sore throat and a bit of a cough now. Such a bad head too, the sort that if you bend forward it feels like your head will fall off. Any way time to sit down, bath later that will help. After my bath cold started more-- runny nose and now gunky throat, eye sockets hurt, ears blocked and painful as well and cheeks hurt, maybe a sinus infection? YUCK.

Some more pictures from my garden.
                    Fuchsia was just a tiny one- and has grown a lot bigger than any of the others.

 This rose was also a tiny plant and just grown like the fuchsia.
This rose has a bud in side- not seen one like this before- strange.

10th

Not a good day for me cold really getting to me.  Not very steady on my feet. Hit my head on the door frame got a bump now. Hot cold sweating shaking at times. Ears not as blocked, left one cleared with a blast of pain, right one still blocked. The RSD is really making everything worse as you would expect it to do as its EVIL. 

Very heavy air as well which does not help anything, well at least things can only get better give it more time I am always being told, well time I have plenty of. Was hoping to be back doing every thing by now but my plans never go as I would like.

12th

Now back and left hip has joined in with the pain might as well there is not much left that does not hurt at the moment. Coughing up gunk still runny nose, not as runny eyes. Cold sore in nose now.

Anyway better stuff Happy Birthday Lindsay. They are all coming round tonight for tea-- nine or ten in all. Chinese, not cooking I would not be able to do it now.  

Summer is having her hair cut so she will look very sweet or should I say sweeter. Twenty Seven pounds now plus tip. Worth it as Summer feels very at ease with Maxine. More than she should as she still falls asleep before the end.
 
All got too much for her.


Lindsay came round with her tribe and in the end there was nine of us for tea. Paul bought the Chinese and it was very good. Got Lindsay a few bits and I am going to take her shopping when we both can. She is not well herself with her brain bleed still not sorted out and gives her a lot of problems.

13th

Fifteen years of HELL today. Had RSD for fifteen years now. Separate blog already published.

16th

Nice walk on the common not too warm and a breeze. Summer did not have her ball so just a little walk round at her pace.

Haircut for me today,  not the cost of Summer's though. Ten pound with tip, comes to the house, which is a lot better for me. I at least look better now even if I don't feel it. 

Finished off doing the bedrooms I started yesterday, washed bedding and it dried well- sunny and windy perfect.

17th

Woke around five thirty to a violent headache. Went down and got some tablets and try to sleep a bit. Paul was already up as he had a hospital appointment.

Not feeling good either, voice very croaky I sound like Kermit the Frog. Hands are very shaky keep jumping pain as well. Resting this morning to see if that will help at all.

Lindsay came round later with Jamie-Lee as I said I would have her while she went to a meeting.
I said you will have to be good as I am feeling well, I will she said and she was, ate all her tea with enough gravy for three people. She said my hair looked good.

We made swords this time, for her and friends, plus one for her dog Suey, why she wants a sword I don't know. 

Lindsay came back later and picked her up by now she was tired. I had a bath then relaxed a bit.

18th

Summer's walk was a bit longer than usual as the horses were near the gate when we wanted to head home. So lucky for us there are a lot of ways off the common. We went through the fair ground common. I was a bit worried that the horses would go that way and get to the gate before us as we  were higher and could not see them. Lucky for us they stayed where they were. Summer is very scared of the horses.

Tied up the toms and cues which are growing at a fast rate which is good as they were late going in. Even the outdoor toms are doing well too. Quite warm in the green house 110F I need to put up the shade- its an old window blind which does the job very well.

Started knitting a baby cardigan for my friend, a pretty pink one as she is having a girl. Not done much knitting for a while as hands not bean very good.

19th

Dull start to the day bit of rain too. Very heavy air, storm later I do hope so I love a good storm, thunder, lighting all of it I enjoy.

I think my cold at last is letting go after nearly three weeks, still a lot of tightness in my chest and throat is clogged up still coughing a lot but not as powerful.

Andrew is away this weekend at Brighton so I hope he has a good time.

21st

Andrew back but very tired he bought me a bath bomb.

Did the ironing. Tied up the toms again and side shooted them. A snail had got within inches of the younger cue plant. Put down more snail pellets, was going to spray planters and green house with garlic, but I read that on succulent plants its not good and can kill them- so its keep putting down the pellets.

22nd

Only used one crutch today but the pain later was so bad. I will try again tomorrow as I need to get back to how I was before the operation. I knew it would take a bit longer, but I never thought it would take this long.


23rd

Saw the swan and all her babies, there were two adult swans this time as last time (3rd June) only the Mum I would say, as its usually the Mum that looks after them more. Used one crutch will see later how it affects the knee for pain later.

Cleaned up down stairs, hot but I don't think as hot as yesterday.

Later watered the garden. Summer as usual was there waiting for her turn with the hose pipe. I leave it on the grass for a few minutes so she can play with it. I moved it for her and she picked it up in her mouth and sprayed me from top to toe. Quite nice but very cold I have to be careful as if I start shaking I know whats coming next-- the dreaded SEIZURES. Later on she did the same to Andrew but he did get quite as wet. She has fun and cools off a bit so its good. Could rain later but it will not matter as the ground drys up very fast.

I watched a program about a MENISCAL TEAR operation all went well, but afterwards the man started violently shaking. I remember shaking after the operation-- so that and the pain I think brought on the SEIZURES.

Pain around knee was not as bad as yesterday so may be I am making progress.

24th

Yes there was a storm but it did not last long around 5am just as I was going to bed, I did not see any lighting (told later there was) but there was plenty of thunder and lots of rain. A lot of people are struggling with night time heat and of course the day time heat as well- could hit 100F/38C tomorrow then back to more normal British weather. People want the hot Summer heat, but then they can not cope with it. When I was younger I worked in green houses that would be 100%F in the winter, so maybe I am used to it. I have always bean a cooler person than hot any way.

Went into the green house and it was 120F/50C--- dropped a bit after I took it from the greenhouse.
 
 

 I think this is the hottest its bean in there, and that's with a shade I put up a few days ago.

The plants were wilting so had to water again. Going to fill up the paddling pool for Jamie-Lee as she and Lindsay are coming round. They got here before I could start. I put up a beach shelter and was very surprised how cool it was sitting in it.

Had a very nice day with Lindsay and Jamie-Lee she spent most of the day in the pool playing with dolls and anything else we could find that poured or floated. She had the garden parasol over her a lot of the time, so she did not get too hot or burnt. She did have sun lotion on of course.


 Very hot--- weather not me.


 A very nice day for every one I think. I enjoyed it a lot but very hot in our garden South facing,

I had a shower whats wrong with that you might ask? Well I don't usually have showers as the spray hurts most of the time. Even changing the flow and pressure has no affect as my skin is HYPERSENSITIVE. This time it was good luke warm and very soft spray. Another time I would not get away with it.

Later that night I used the pool water for the plants took longer but at least it was not wasted. Also put up the hanging baskets they have recovered now and looking good, so is the garden and planters, a bit of rain soon makes things shoot up.

26th

A very humid day even though the temperature has dropped, to me it feels worse. Thunder storm heavy air I have ear ache and a bad head.

Put out washing, rained, brought it in sunshine- put out again- rain in- sunshine. You get the picture I think well after three times I gave up and put in on the aires. Well at least the weather has bean very good in the past, so I can't say a lot..

27th

A very wet start to begin a lot of people will be pleased (or may be not) as I know a lot struggled with the heat now they can moan about the wet.!!

Looking after Tabby cat for the week not Mustard (Hamster) as he has gone to a friends. I called him and he came running from the garden (Ness has the biggest garden in the street) he purrs and sound like he says hello to me. Gave him his food then left him in for a while, he will have a sleep and be in the same place I left him. I will see him later, I go round three times a day at least, stopping at night to stroke him and sit with him. When he is ready I let him out for the night some two hours later usually. I just sit with him no TV (not sure how to work it anyway when go round to look after Ben and Emmie its always on) Night Tabby see you tomorrow.


28th

Tabby's doing fine, brushed him today, he is malting a lot, and a bit unsteady on his feet. So I don't have to brush him too hard or he will fall over. He is getting an old now boy now. I think he's round 14/15. So he is doing very well, still has a lovely coat, and I think he is a pretty cat.. Cord jeans and a malting cat--- don't go too well together they get covered in hair.

 
Resting after his tea.






30th

Happy Birthday Wayne. Sorry we can not be there with you today. Hopefully I will go with Paul on Sunday. This depends how I feel, and if I think I can cope with the journey. He lives in Halifax around two hours away at least.  

I went to Jenny's today last time we sat in the garden as carpets had bean cleaned. She has a lovely home a mixture of new and old very nice. Lots of orchid plants as well, which I love I have just one.

Bob her husband showed me his model trains. A big track and scenery. Some of the scenery is so tiny. A lot he makes himself, some bought. A very nice hobby for him and I love train sets too. I think this stems from having three brothers and being the only girl.

31st

Lindsay and Jamie-Lee are here for a while, she is doing work on the computer for her football season starting this soon.

Jamie and I played with the dolls house most of the time. I took her to see Tabby and she was stroking him, and he loved it, purring like a train. We went back a second time to see him, again more fuss and purring. A lot of hair coming off him on to Jamie-Lee. She said I don't mind Nanny I love him and gave him kisses. 

B12 injection in the afternoon (2-40pm) this did not hurt to start with but just after it did a lot, very painful too. This lasted the rest of the day.

My friend John came round later and stayed quite a while. Nice to have different conversation with Lindsay being there. He has not bean well, So it was nice to see him looking good again. He enjoys his time here.


Well what can I say about this month then?--- not the best and more painful than many. I think I am on the up now. My knee is improving slowly. So hopefully next month will see a big difference.

Hope thing are going a bit better with you all. I would like any comments from you about the Blog or yourself. Just leave me a message and I will reply. Just click on the comment or emails bit at the end of the Blog . All the best to you all, love Gill.




Fifteen years today-July 13th.


Well, fifteen years has gone by since this RSD plus all its friends invaded my life making it "Hell on Earth". I think back to when it happened. If I did not go running that night or had not doubled back for a friend. Would things have bean different? (I had already passed the bit where I fell, it was the second time round, that caused me to fall).. But there are not, so its up to me to make the best of it. Most people can not cope and end up in a wheelchair at some time because of the pain and the sheer pressure of it all. WHY am I not? I am no different to them, am I? I think I am a strong person and that helps a lot in this case. I did not want to be anywhere near a wheelchair just the thought of it scared me s**tless. I did need to use one for a while though when I was not able to walk the first few years because of the severe pain. I still do if things get really bad, plus my scooter. This I did not get for two years but pleased I did because it got me out more.

RSD is like nothing else--- to start with hardly anyone has heard of it-- even most Doctors, mine did do some research to treat me with more understanding. I have never yet met anyone with it apart from online. So you have no one to discuss your problems with, NO specialist- again, you are lucky if someone has even heard of it. When I have bean in hospital-- its the Pain Team I have to deal with. I am no a big fan of them. They always make things worse for me or is it I just do not want them. When I have SEIZURES, I have to stay put as I am not safe otherwise. No walking or moving around, mostly sedated. All this time the RSD is winning and gaining more control. Once that happens that's it, game over. That is not going to happen, that's if I can keep things together. In some references RSD is called the DEVIL CURSE not without reason. RSD is similar to MS in some ways but can be more painful.

I have had very bad dark days after the SEIZURES or illness-- when I think it would be so much easier to just lay down and give up. I have on many occasions looked back at my life that was perfect to me, well-- may be not that good, but a lot better than now. I could run, walk, have fun, go out when I wanted to, sleep, and have a life with friends.

Since the RSD this has all changed. Now I can not stand loud noises, vibrations, car journeys of more than say an hour, even then I have pain and are more like a ZOMBIE when I arrive because of extra tablets. Going on the bus can cause be to scream inside with pain. Ten minute journeys that's all I am talking about, that's all. Because of the vibrations, not everytime, but most and if I have bad pain this will be worse after for sure. This restricts me a lot-- no parties, crowds, pictures. I have bean a few times but had to pick a very good day. Even then the flashing lights and then noise from the speakers, its not good. but its the best I can do. A lot of times I have to shut my eyes. Angela thought a few times I was a sleep.

When watching Glastonbury there were loads of flashing (images). (Even that sort as well) this can make me feel very unwell. This is partly to do with the SEIZURES. Colds, knocks, normal every day things that do not bother non RSD person will make my life hell. I have a heavy cold at the moment. I have given up a lot but still have things I can do. I am still able to walk just some days, still on crutches from the knee operation but hopefully soon that will be changed. Bean a longer journey than I thought it would be. Knitting on good days, sewing when I can, puzzles, (but not with fire hopefully.) I can take Summer for her morning walk most of the time. Housework a bit hit and miss.  Looking after the Grandchildren, plus the children two doors away, and cat sitting. Typing this, my fingers are not good the feeling has gone and my brain keeps fogging up. I make a lot of mistakes so everything takes a lot longer. Things like this you all take for granted and just get on with it. For me very frustrating. People ask me out and are disappointed if I say no and after a while don't bother asking I try to explain but its not easy.  I have got fifteen years experience and still don't under stand it. Just wanting a big hug some days, but knowing this will hurt. Disability is another thing. PIPs say I am not disabled, an ongoing case at this moment. This is very frustrating

Running is what I miss the most just the sheer pleasure of it. If you have never run you will not really understand. Just think waking one day and everything you did the day before, work, pleasure, every thing just like that gone.Then add the PAIN and how would you feel???

In the beginning I had Wietse he was an Angel in disguise. He helped me so much and without him I know I would not be as good as I am now. He used to say it was me that was doing all the hard work not him. He showed me the right path for sure. A shoulder to cry on and someone who knew what RSD was. Thank you Weitse for all you did for me. (get in touch please)
I have had some treatments that helped somethings but made others worse. I think the cure if there is one, is a long way off so all I can do is just get on with it and keep moving.

Thank you all for reading this all the best love Gill. 






June.

June 1st

Had one of then phone calls today, the sort that tell you your computer has virus or is about to shut down. I humoured the Indian lady, they are mostly foreign in an Indian call centre.
She said your computer is at very high risk, as it was down loading viruses. We need us to sort it out and get to the source of the problem. I asked her who our Internet provider was? She ignored me and carried on talking. Again I said who is our provider- again she did not stop but carried on talking what she/we needed to do. Referring to a sheet in front of her no doubt. I started talking and asked her again about the provider not stopping this time, and said you are a con call swooping on vulnerable people. There is nothing wrong with this computer at all. I put the phone down and checked out the phone number on the Internet. Lots of stories from people everywhere. Some would have bean taken in by it all and worried that the computer will become unless. They get in by logging onto the computer by an invite from you, after a lot more questions to scare you. Sort out a few non problems that you don't have, then charge you around £170.00 for the privilege to get your computer back. Hopefully they will be soon shut down, but as one gets shut another one takes over.

Well that's my rant for the day, I hate it when people get hurt like this and it's happening more and more.

2nd

We will be having new neighbours soon as they have got the keys to Ben's house next door, a few things need to be done first. Quite a bit of noise for the next few weeks, they said but as one family will be moving in soon, another will be moving out a few doors away. Shame to see them go too but I wish them all the best in their new home. So two new residents to the street soon. We have bean here forty three years and have seen a lot of changes and people coming and going.

My left leg, knee and foot operation side are very swollen and sore. I have bean taking a lot of extra tablets. I would have thought by now things would be back to normal, but no I am still on the crutches outside the house. Because the RSD is having a field day now, with both sides now being attacked with pain. I have bean quite restricted to what I can do. Not being able to go out with Summer on my own walking, longer car journeys are out too. You all know what I mean, every day things that non RSD people do without thinking about it is so frustrating at times. As I have said many times I am not an indoor person. Hopefully my knee will soon start improving and I can get on with my life. I do have my scooter but it is difficult to get it out on my own. So unless someone is here to help me, its a no go, but I am home a lone Summer is here but not too much help.

Jamie-Lee biked around four miles on her little bike to see her friend Tracy today, with Lindsay of course. She loves her bike and goes on it whenever she can. Well done both of you.

3rd

Colder start to the day where has the Summer gone? On the river we saw a swan and seven very young signets but no Dad. I know Swans mate for life so I hope he is alright may be having a lie in!!

4th

Full PAIN everywhere today- really getting to me now. I have had a headache since my SEIZURES.  Some of this could be because I am in more, but its very annoying. At least we have a garden so I can do a bit there. I sprayed the garden for green fly. This has needed doing for a while but either rained or bean too windy which has held it up. Soon after finishing though it did rain but not for long, any way job done.

Angela has gone to Wales for a few days with her brother to get fully fit after her operation. Hope it does not rain all the time.

My friend phoned up and said she is having a baby after a long wait with many problems. A few baby things I think to make soon, when she finds out the sex. I hope things go well for them all.

5th

Visit from Joy today- always nice to see someone. She is still not good with her back pain, but had a scan so hopefully that will show something up. A good chat and catch up with all her news and mine too which is not a lot at the moment.

7th

Andrew out with Pup and I today as Paul is out most of the day. Summer enjoyed her walk very much  chasing after her ball. So tired when we got back so was I. I have bean walking a bit outside without the crutches. PAIN is still here, knee tight and sore if moved wrongly, which seems to be every way at the moment. Five weeks now and still not right. I feel very light headed and very tired almost like I am getting a virus or something. Could be tiredness or the RSD striking back.

8th

Got Jamie-Lee for the day as Tommy-Lee, her brother is in a knock out football tournament. Raining heavy too so a wet match for everyone. Jamie-Lee arrived at nine. This could be a long day as Lindsay said she was tired. Hopefully I can keep her happy. She was a bit moody before dinner but after two sausages, chips and gravy she was very happy. Played with all sorts today plus she bought her Ipad, always a standby for when she is tired.

Lindsay phoned up and said the boys were in the semi final of tournament so they were doing very well. A bit later Lindsay came home with the great news they had come runners up in the final. So very well done to all the team and Ben their Manager. Big cheers all round. I gave Tommy-Lee a lolly as a reward not much I know but I think he was so happy at how far they got, so it did not matter to him. He stood there beaming with his medal around his neck.
 Tommy-Lee.
The team- Ben on the left- Garry in the middle.
They manage the team between them.

.
They soon all went home and I was able to relax a bit myself.

Angela back from Wales now, a nice change she said but a lot of rain fell I said it has here too.

9th

Hey rain stopped and washing out blowing well. Helping Paul clean up. Andrew at work and Summer thought she was going with him for some reason. She looked very sad when he said goodbye to her. He will not be long today Summer as its Sunday 10.30am until 4.30pm. She still waits for him in the passage laying down around ten minutes before he comes home, how does she know. The ice cream van that came down the street last year, playing the music she disliked so much. Well it still coming but no music. she still grumbles and barks. She knows the engine sound of the van, plus other various car sounds like Paul's and knows when someone is coming here, very clever I think.

10th

A wet start again so Summer's walk was a very mucky one as she got very wet playing with her ball. She was happy and that's all that matters.

My fingers have bean getting very bruised from burst blood vessels. Just from holding a knife, door handle, even just turning on the tap stupid things.They hurt but do not last long usually. I still have one on my thumb from Age UK from the till, this was a big one though. My fingers on my right hand RSD side go white a lot of the time and have not a lot of feeling to them which makes doing things a lot more difficult.

11th

Rained all night. I heard a lot of it, very heavy at times more like a monsoon. Summer decide to go down Sincil Bank today instead of the common. We thought it would be drier but no it was flooded. The drain holes from the road to the river get bunged up with leaves and rubbish. People also deliberately put cans and bottles in them thus blocking them up..

12th

Not a good day, so much pain whats going on? I have taken four- 400mg IBRUES so far and its only dinner (1-00pm) this is on top of all my prescribed ones. Some days I am taking eight and still I am in pain. I am a bit worried that I did something to my knee when I had the SEIZURES, or is it just the slow healing. Anyway I go to the Kingsmill on Wednesday the 19th So I will soon know. My shoulders are bitterly complaining so are my wrists. If I don't use the crutches out the house I can not go very far. Wietse did say not to use them at all but it will not be much longer I hope. So when off them for good hopefully the shoulder and other stress pain will go..

The weather is cold again, my hands turned white today and my face was red. I think that's what they mean by Flaming June I think, as its certainly not the weather. I got earache too with the cold wind.

I wrote in my diary today-- WHATS A LIFE- IF YOU CAN NOT LIVE IT. That's how I feel trapped within my own pain.

13th

Woke to ice cold feet and legs spasms in both legs. Managed to get them calm again wrapped my legs in the quilt and went back to sleep only for it to happen again twenty minutes later. This time they did not release so I got up, even though I had only bean in bed a shot time. Spasms and pain most of the day.

The river is high after all the rain we have had, I have seen it higher though. Around Lincolnshire there has bean flooding and people bean moved to a safer place. We are higher up so not much chance of street getting flooded. Sincil Bank on the other hand is close by and the football courts near the ground are under water.

14th

Angela came round for a chat and we watched some programs she had missed when she was in hospital.

Our computer has gone wrong big time hopefully it can be fixed. Wayne and Andrew both know what they are doing.

Looking after Ben and Emmie from Seven tonight. Emmie knows I will not be able to go up and down the stairs like I usually do. Emmie did some dancing and played on her Ipad. Tabby came in for a while and I was stroking him. Squidge came home around twelve thirty so not late. When I came home everyone was in bed. Me and Pup again as usual. Watched a bit of television then bed a few hours later.

At last I have finished Shawn Sheep made for a relative. Also a pair of gloves for me plus Munchkin.



Munchkin


15th

Paul out first off so Summer was later for her walk. She did not mind, the common is very wet in places, and she loves running through the puddles. Well there are some big ones and she always seemed to love going through them.

My pain levels are very high and still taking a lot of IBRUES. Knee spasms are bad - OK in the house but walking a distance it tightens up and is very painful. Fibromyalgia  is playing up as well big time.
Andrew has got me a CDB oil vape, not sure if its helping or not but I will keep trying it. I have nothing to loose have I ?

My poor big cactus had died big time- when I repotted it last month I noticed it was a bit soft. I thought it was from the rain as we had a down pour and I did not get it in the house in time. Poor thing but it was old.  


Poor thing this rotted more later and smelt terrible.

16th

Fathers Day. Lindsay came round in the afternoon on her own for a change. She got Paul a mug, pen and a teddy. Wayne sent a bottle of Whisky and Andrew got him beer and is going to pay for the Chinese we had for tea.

So much pain later- what is it?  RSD or the knee recovering, I will soon have answers hopefully as I see Mr Joby John on Wednesday. Not sure what I want to hear from him as if its the RSD playing up it could go on for a while. On the other hand if the operation has not done the job whats next? Any way I soon will know.

17th

Took Summer out on my own today and she was very good. Bit awkward but when we get on the common its easier. She loved it today still quite a bit of water around but its drying up.

Normal day- cleaning up and washing a lovely warm windy day so the clothes dried very quick.

Still struggling with the various pains but sitting down makes it no better so might as well just carry on as much as I can.

19th

Kingsmill Hospital today for the follow up appointment to see Mr Joby John about my knee-- what will he make of it all.
We (Paul and I) got to Kingsmill early so went for a cup of tea and a sandwich. Not there in clinic  very long and we went in. Mr John thinks my knee is still healing and will just take more time. He assured me that even with having the seizures the mend he did, will not fail. He showed me on a drawing he had done. I felt better after him saying this. He suggested a steroid injection like I had last time would help. This did not help last time because the knee needed repairing but now it should. I agreed and went into the treatment room and waited for him. He also said try one crutch when you can and then none. I am to go back in six months.

The injection does hurt but there is an anaesthetic in there to help with the pain. Right here goes, the injection was going in and the pain was crazy, burning like larva and hurting way more than last time. All done just lay there for a while he said, the nurse will come in and tell you when you can go. After he left I felt very strange, pain off the scale and far away feeling. Hot and heart pounding in my chest. The nurse came back and said right get up slowly. I started to and felt like I was not even in my body. She shouted lay back down you look terrible and I felt it- just stay there and you will be OK soon she said. I lay there like I was floating very hot and knee on fire. My body was also getting hotter and painful. She came back in and still said I did not look right. I think we will take your observations. She started with temperature and pulse both were raised. Next blood pressure, this was well high. 210 over 100 plus. No wonder I felt so bad. she asked me what I took for blood pressure I said nothing I don't have high blood pressure. She said we will check it again soon. The nurse came in about ten minutes later, she did the checks again, still very high. The nurses looking after me were Jenny and Lesley- they were very concerned. A more senior Nurse was called Susie came to see me. Paul was asked to sit with me. Two more blood pressures were taken still very high--204- 186 over 100 plus.
Paul went to get a wheel chair but the nurse said stay there I will get one for you. They did not want me walking to the car or walking anywhere. I was getting worried now. The blood pressure was taken again and still the readings were high. They were so concerned that they said I should go to there A and E. Mr Joby John had bean in a few times to check on me as well.

Susie and Jenny I think it was, took me straight there in the wheelchair . I was seen within five minutes. Blood pressure still 186 over 100 plus. They said that I was just below the level to be admitted. Very much at risk from a stroke or heart attack. I was more worried now as I did not feel that good as it was, now worse. Any chest pain or just something different get straight to Lincoln A and E.

I would like to say a big thank you to the Nurses, Jenny, Lesley, and Susie plus Mr Joby John for looking after me so well. Also the Kingmill A and E department. 

Nice to be seen so quick but it does get you a bit worried.
Any way it was the injection. I was fine this morning so I will be tomorrow. I will see my own Doctor or anyone I can tomorrow. If I feel worse chest pains, or any thing different I will go to Lincoln A and E.
The drive home was not good, pain had built up everywhere and my knee was on fire and I was still so hot too.

20th

Saw a Doctor James and he took my blood pressure and it was still very high. 188/114. He wanted me to start taking tablets for it. I said NO leave it a few days and see what happens. I am still sure its a reaction to the STEROID INJECTION and the RSD doing its thing. He said I was very much at risk from heart attack or a stroke They do say some nice things to reassure you!!!. I know it was for my own good but I have never had problems before this apart from illness of course. He has said I will be fitted with a blood pressure monitor soon and that will be arranged by the nurse next week. He will see me in a weeks time. Go home and rest- any chest pains or lack of functions go straight to A and E department.

21st

Happy Birthday Andrew- his day off so that good.

Spent most of my day doing the beds, washing and ironing quite a busy day. Still feel very hot and not right but sitting down is no better so might as well get on with it.

22nd

Lindsay came round and said STEROIDS can make your blood pressure go up. I looked it up and it can. RSD makes it worse. When I had one last time before I had my knee done it was alright though. This one did not hurt nowhere as much as this time. May be that the RSD was being kind to me.

Having Jamie Lee over night, hope she is good as I do not feel my best  today. This was arranged a while a go so I could not really say no to her. She will be fine, if not lock her in the shed. We had a game of Monopoly before Lindsay went home, Jamie-Lee won.
Andrews here to play with her as well. Good rest of the day and she went to bed fine but a bit late.

23rd

Jamie-Lee slept very well and came with Summer and I on the common which was good. She kicked the ball for Summer and she has got a powerful and controlled kick. Summer loved it and was tired when we came back.

Lindsay picked up Jamie-Lee late afternoon and the rest of the day was pretty calm and quite. She liked Munchkin so much I let her take him.

Went outside and startled a bird and it flew over my head. I felt it hit my hair, good job I did not see it as I don't like birds close. Andrew was in the shed and saw it fly over.

25th

Humid day like yesterday I can feel it, headache again not like before though. That I am sure was the high blood pressure.

Joy is here for a visit. I was going to meet her in town but did not feel up to it. I have not been into town since before I had my knee done (1st May)
Angela was here yesterday, she is doing very well and just about back to normal now.

Pain wise not too bad knee feels very tight but not as swollen as it was.

26th

Colder to day- wheres summer gone? Here Mum not you duckie (Summer dog)

Nurse to day to have Blood pressure monitor put on. She took my blood pressure and it was 125/80 so not high and I had just walked here.. This monitor will take the readings every 25 minutes till midnight then hourly until the 24 hours is up at around 11.45am tomorrow When I go back tomorrow the nurse will access the reading and I will see the Doctor later on to discuss the results. The cuff is very tight and I can feel my arm going numb and it feels sore.

27th

The nurse took off the monitor cuff, my arm was very red .She looked at the reading. She was surprised as the highest blood pressure was only 162/84 that was when I was going to the Doctors. I am still using the crutches as my knee soon hurts if I don't. So its quite hard work and the weather has bean very warm/hot. The lowest was 91/58, this was when I was asleep at 4am. These are normal readings. The nurse was quite surprised at the results, I was not. I did not even have to see the Doctor. I was pleased I did not have the tablets as the Doctor suggested. I knew it was the steroid injection. Another thing I am going to have to be careful about. How many more things are there going to be.


28th

Paul is away for a few days till Monday so just mostly me and Pup. My arm is bruised where the cuff has bean
Hopefully I am going to sort out the greenhouse and put in the tomatoes. First I need to take out the Fuchsias cuttings that have bean growing over the last six months, most of these are to Wayne's for his garden the rest are going in two hanging baskets with some self set Lobilia.

Got the fuchsias out and in a tray for Paul to take. After he had gone I dug and watered the green house. Mixed in some compost and left it a while. Very hot in there 115F-- at one point I felt very dizzy and not quite sure what was going on. A bit of heat stroke I think, had a drink and a long sit down then I felt better. A few hours later they are all in.

 


Cucumber plant is a bit small so will go in later. I have seeded another four just in case the snails get this one or something else.

I am now very tired so the rest of the day/night  is sit down time. Had a nice bath- Andrew was close in the shed so he listened out for me. Makes it a bit hard now, as I have to have someone here so I can have a bath. (SEIZURE in the bath) No more early morning ones like I used to have.Later Andrew and I had a Chinese for tea/super. Not one of the best but was hungry so ate it. Knee is very painful, in fact I hurt every where I think the RSD is angry.

29th

Cleaned up all downstairs. Very hot so sweating a lot and more sit downs needed. Knee is very painful and going into spasm. The rest of body seems to be in sync with it. I have taken extra pain tablets again today.
Jenny asked me go to her house for a few hours, so that will be very nice. She picked me up. We sat in the garden, which is lovely and tidy and organised. Her husband Bob was there too. He loves trains, Hornby model type ones and has one set up. I also like trains so watched it going round. A very nice afternoon just relaxing and talking. Thank you Jenny and Bob. Jenny took me home and got there just before Andrew came home from work.

Lindsay and Ben called in. Lindsay did not look too good. She was more concerned about me- as she said I looked tired and pale. When its hot I do not eat too much and she was bother about that.

Very heavy air later and a few spits of rain but no storm. I hoped there would be.

30th

Today doing the bedrooms- not as hot today but very windy, so that will help cool things down. Just finished and put the vacuum away when a plant got knocked off the table by the wind, the soil went all over the floor in the dining room. Managed to clean it up with the dustpan and brush. 

Lindsay called in with two homemade chicken curries- a korma and a madras one for me and both home made. Had one later very nice too.

Not a straight forward month-- but at least my knee is not going to be an extra problem, it just needs more time to heal. I was very worried that the SEIZURES had done some damage. I was reassured by Mr Joby John. RSD takes every chance it can to cause trouble- but I am still walking and doing things, so it has not won this fight yet and never will.

Hope things are good with you all and you have bean able to enjoy some of this very warm weather.
All the best to you and see you next time Love Gill.


At least Summer's chilling out with the hot weather.

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