July.

July all ready the year is going so fast.

July 2nd

A windy but warm day. Summer has had a bath and looks very white, soft and fluffy. She needs a hair cut, in fact we both do mine has not bean cut since April so getting long again.

I was flipping through a magazine and it said where's the pause button--- I would like to know, where's the START button.

The Children are back from their holidays with their Dad. All had a good time. When they got back to the Airport, the car would not start. This was early hours of the morning. Dad in the car with three children very tired and wanting to go home. The worst one moaning was the oldest Jay-Jay. Tommy-Lee and Jamie-Lee just played games and napped a bit. In the end they were towed back to Lincoln an expensive end to an holiday. Both Tommy-Lee and Jamie-Lee enjoyed there extra add on. They were all safe that's the main thing, but very tired.

I think I am getting a cold as sore throat and a weird headache. More tired than normal too. I know all the weird pain I get and people have said to me it must be hard to distinguish between them. No because you just know-- hard to explain though.

4th

Quite a nice day again warm on the common with a cool breeze.
I went in the fridge and thought I could smell gas I know very weird!!! Turned out to be some cooked cauliflower that had bean there too long one of Andrews cooking left overs.

Going to Jamie-Lee's sports day at her school. Getting picked up but walking from Lindsay's house to her school close bye. This is the first proper outing since having my knee done.
The day was very good, all outside- I love seeing the children running around and having fun a very nice day for everyone taking part. When the prizes were given (This was in side the hall.) there were some parents that did not know when to shut up, and I think spoiled it for quite a few people that could not hear the Head Teacher talking. I think they need to go back to School themselves. VERY RUDE. The children were very good.
This affected me, as too many sounds from different sources made my head hurt and I felt shaky. Just as I was going to say to Lindsay I have to get out it was finished.

5th

Another warm but dull day. Summer's walk on the common I did with just one crutch. So I was very pleased hurt a lot later. This whole recovery thing is taking far too long for me and I don't like it one bit. I thought by now I would be back doing everything I did before the operation after all it was not a big one. I know the RSD is messing things up BUT----- I will just have to wait a bit longer. I feel very far away may be I should just stay there if its better than here.

6th

Whoa- knee very painful, so is left hip and lower back. Dam that walk yesterday I thought I was ready to ditch one crutch shows it's not yet time, back to two tomorrow I think. I think the cold has a lot to it plus the RSD of course. Did some more of Lion rug only 17 more rows to go. Fingers are not good so I am finding it hard at the moment. In fact a lot of things are getting harder to do.

7th

Went to B and Q and got some bedding plants, loads very cheap end of line about a third off. Putting them in tomorrow. Rained a bit so that will help them perk up a bit, they are still very nice plants and at that price too even better.

Tomatoes and cucumber have grown a lot--this warm cloudy weather is helping them along.
 
 
 Toms doing well.
 The little ones on either side have just bean put in.
 
 Runner beans doing really well.

 
Looking after smudge Andy's cat, for a few days I reached for a fork off the draining board and knocked a dish off--- smash on the floor. I had only bean there five minutes. I did do the washing up and cleaned the sink for him, to say sorry. All the time I have bean feeding the cats I have never damaged anything. I was mad with myself.

8th

Worked out where the plants were going, most in planters and a few to fill up the hanging baskets.
They look good even better soon when settled in. Six planters in all and four tubs. Pleased with myself.

 
 
 
Hanging baskets the snails had a go at these, before I put down the pellets. They will be alright though. They will recover in time.

I still feel not well if its a cold its taking the long way round. Very sore throat and a bit of a cough now. Such a bad head too, the sort that if you bend forward it feels like your head will fall off. Any way time to sit down, bath later that will help. After my bath cold started more-- runny nose and now gunky throat, eye sockets hurt, ears blocked and painful as well and cheeks hurt, maybe a sinus infection? YUCK.

Some more pictures from my garden.
                    Fuchsia was just a tiny one- and has grown a lot bigger than any of the others.

 This rose was also a tiny plant and just grown like the fuchsia.
This rose has a bud in side- not seen one like this before- strange.

10th

Not a good day for me cold really getting to me.  Not very steady on my feet. Hit my head on the door frame got a bump now. Hot cold sweating shaking at times. Ears not as blocked, left one cleared with a blast of pain, right one still blocked. The RSD is really making everything worse as you would expect it to do as its EVIL. 

Very heavy air as well which does not help anything, well at least things can only get better give it more time I am always being told, well time I have plenty of. Was hoping to be back doing every thing by now but my plans never go as I would like.

12th

Now back and left hip has joined in with the pain might as well there is not much left that does not hurt at the moment. Coughing up gunk still runny nose, not as runny eyes. Cold sore in nose now.

Anyway better stuff Happy Birthday Lindsay. They are all coming round tonight for tea-- nine or ten in all. Chinese, not cooking I would not be able to do it now.  

Summer is having her hair cut so she will look very sweet or should I say sweeter. Twenty Seven pounds now plus tip. Worth it as Summer feels very at ease with Maxine. More than she should as she still falls asleep before the end.
 
All got too much for her.


Lindsay came round with her tribe and in the end there was nine of us for tea. Paul bought the Chinese and it was very good. Got Lindsay a few bits and I am going to take her shopping when we both can. She is not well herself with her brain bleed still not sorted out and gives her a lot of problems.

13th

Fifteen years of HELL today. Had RSD for fifteen years now. Separate blog already published.

16th

Nice walk on the common not too warm and a breeze. Summer did not have her ball so just a little walk round at her pace.

Haircut for me today,  not the cost of Summer's though. Ten pound with tip, comes to the house, which is a lot better for me. I at least look better now even if I don't feel it. 

Finished off doing the bedrooms I started yesterday, washed bedding and it dried well- sunny and windy perfect.

17th

Woke around five thirty to a violent headache. Went down and got some tablets and try to sleep a bit. Paul was already up as he had a hospital appointment.

Not feeling good either, voice very croaky I sound like Kermit the Frog. Hands are very shaky keep jumping pain as well. Resting this morning to see if that will help at all.

Lindsay came round later with Jamie-Lee as I said I would have her while she went to a meeting.
I said you will have to be good as I am feeling well, I will she said and she was, ate all her tea with enough gravy for three people. She said my hair looked good.

We made swords this time, for her and friends, plus one for her dog Suey, why she wants a sword I don't know. 

Lindsay came back later and picked her up by now she was tired. I had a bath then relaxed a bit.

18th

Summer's walk was a bit longer than usual as the horses were near the gate when we wanted to head home. So lucky for us there are a lot of ways off the common. We went through the fair ground common. I was a bit worried that the horses would go that way and get to the gate before us as we  were higher and could not see them. Lucky for us they stayed where they were. Summer is very scared of the horses.

Tied up the toms and cues which are growing at a fast rate which is good as they were late going in. Even the outdoor toms are doing well too. Quite warm in the green house 110F I need to put up the shade- its an old window blind which does the job very well.

Started knitting a baby cardigan for my friend, a pretty pink one as she is having a girl. Not done much knitting for a while as hands not bean very good.

19th

Dull start to the day bit of rain too. Very heavy air, storm later I do hope so I love a good storm, thunder, lighting all of it I enjoy.

I think my cold at last is letting go after nearly three weeks, still a lot of tightness in my chest and throat is clogged up still coughing a lot but not as powerful.

Andrew is away this weekend at Brighton so I hope he has a good time.

21st

Andrew back but very tired he bought me a bath bomb.

Did the ironing. Tied up the toms again and side shooted them. A snail had got within inches of the younger cue plant. Put down more snail pellets, was going to spray planters and green house with garlic, but I read that on succulent plants its not good and can kill them- so its keep putting down the pellets.

22nd

Only used one crutch today but the pain later was so bad. I will try again tomorrow as I need to get back to how I was before the operation. I knew it would take a bit longer, but I never thought it would take this long.


23rd

Saw the swan and all her babies, there were two adult swans this time as last time (3rd June) only the Mum I would say, as its usually the Mum that looks after them more. Used one crutch will see later how it affects the knee for pain later.

Cleaned up down stairs, hot but I don't think as hot as yesterday.

Later watered the garden. Summer as usual was there waiting for her turn with the hose pipe. I leave it on the grass for a few minutes so she can play with it. I moved it for her and she picked it up in her mouth and sprayed me from top to toe. Quite nice but very cold I have to be careful as if I start shaking I know whats coming next-- the dreaded SEIZURES. Later on she did the same to Andrew but he did get quite as wet. She has fun and cools off a bit so its good. Could rain later but it will not matter as the ground drys up very fast.

I watched a program about a MENISCAL TEAR operation all went well, but afterwards the man started violently shaking. I remember shaking after the operation-- so that and the pain I think brought on the SEIZURES.

Pain around knee was not as bad as yesterday so may be I am making progress.

24th

Yes there was a storm but it did not last long around 5am just as I was going to bed, I did not see any lighting (told later there was) but there was plenty of thunder and lots of rain. A lot of people are struggling with night time heat and of course the day time heat as well- could hit 100F/38C tomorrow then back to more normal British weather. People want the hot Summer heat, but then they can not cope with it. When I was younger I worked in green houses that would be 100%F in the winter, so maybe I am used to it. I have always bean a cooler person than hot any way.

Went into the green house and it was 120F/50C--- dropped a bit after I took it from the greenhouse.
 
 

 I think this is the hottest its bean in there, and that's with a shade I put up a few days ago.

The plants were wilting so had to water again. Going to fill up the paddling pool for Jamie-Lee as she and Lindsay are coming round. They got here before I could start. I put up a beach shelter and was very surprised how cool it was sitting in it.

Had a very nice day with Lindsay and Jamie-Lee she spent most of the day in the pool playing with dolls and anything else we could find that poured or floated. She had the garden parasol over her a lot of the time, so she did not get too hot or burnt. She did have sun lotion on of course.


 Very hot--- weather not me.


 A very nice day for every one I think. I enjoyed it a lot but very hot in our garden South facing,

I had a shower whats wrong with that you might ask? Well I don't usually have showers as the spray hurts most of the time. Even changing the flow and pressure has no affect as my skin is HYPERSENSITIVE. This time it was good luke warm and very soft spray. Another time I would not get away with it.

Later that night I used the pool water for the plants took longer but at least it was not wasted. Also put up the hanging baskets they have recovered now and looking good, so is the garden and planters, a bit of rain soon makes things shoot up.

26th

A very humid day even though the temperature has dropped, to me it feels worse. Thunder storm heavy air I have ear ache and a bad head.

Put out washing, rained, brought it in sunshine- put out again- rain in- sunshine. You get the picture I think well after three times I gave up and put in on the aires. Well at least the weather has bean very good in the past, so I can't say a lot..

27th

A very wet start to begin a lot of people will be pleased (or may be not) as I know a lot struggled with the heat now they can moan about the wet.!!

Looking after Tabby cat for the week not Mustard (Hamster) as he has gone to a friends. I called him and he came running from the garden (Ness has the biggest garden in the street) he purrs and sound like he says hello to me. Gave him his food then left him in for a while, he will have a sleep and be in the same place I left him. I will see him later, I go round three times a day at least, stopping at night to stroke him and sit with him. When he is ready I let him out for the night some two hours later usually. I just sit with him no TV (not sure how to work it anyway when go round to look after Ben and Emmie its always on) Night Tabby see you tomorrow.


28th

Tabby's doing fine, brushed him today, he is malting a lot, and a bit unsteady on his feet. So I don't have to brush him too hard or he will fall over. He is getting an old now boy now. I think he's round 14/15. So he is doing very well, still has a lovely coat, and I think he is a pretty cat.. Cord jeans and a malting cat--- don't go too well together they get covered in hair.

 
Resting after his tea.






30th

Happy Birthday Wayne. Sorry we can not be there with you today. Hopefully I will go with Paul on Sunday. This depends how I feel, and if I think I can cope with the journey. He lives in Halifax around two hours away at least.  

I went to Jenny's today last time we sat in the garden as carpets had bean cleaned. She has a lovely home a mixture of new and old very nice. Lots of orchid plants as well, which I love I have just one.

Bob her husband showed me his model trains. A big track and scenery. Some of the scenery is so tiny. A lot he makes himself, some bought. A very nice hobby for him and I love train sets too. I think this stems from having three brothers and being the only girl.

31st

Lindsay and Jamie-Lee are here for a while, she is doing work on the computer for her football season starting this soon.

Jamie and I played with the dolls house most of the time. I took her to see Tabby and she was stroking him, and he loved it, purring like a train. We went back a second time to see him, again more fuss and purring. A lot of hair coming off him on to Jamie-Lee. She said I don't mind Nanny I love him and gave him kisses. 

B12 injection in the afternoon (2-40pm) this did not hurt to start with but just after it did a lot, very painful too. This lasted the rest of the day.

My friend John came round later and stayed quite a while. Nice to have different conversation with Lindsay being there. He has not bean well, So it was nice to see him looking good again. He enjoys his time here.


Well what can I say about this month then?--- not the best and more painful than many. I think I am on the up now. My knee is improving slowly. So hopefully next month will see a big difference.

Hope thing are going a bit better with you all. I would like any comments from you about the Blog or yourself. Just leave me a message and I will reply. Just click on the comment or emails bit at the end of the Blog . All the best to you all, love Gill.




Fifteen years today-July 13th.


Well, fifteen years has gone by since this RSD plus all its friends invaded my life making it "Hell on Earth". I think back to when it happened. If I did not go running that night or had not doubled back for a friend. Would things have bean different? (I had already passed the bit where I fell, it was the second time round, that caused me to fall).. But there are not, so its up to me to make the best of it. Most people can not cope and end up in a wheelchair at some time because of the pain and the sheer pressure of it all. WHY am I not? I am no different to them, am I? I think I am a strong person and that helps a lot in this case. I did not want to be anywhere near a wheelchair just the thought of it scared me s**tless. I did need to use one for a while though when I was not able to walk the first few years because of the severe pain. I still do if things get really bad, plus my scooter. This I did not get for two years but pleased I did because it got me out more.

RSD is like nothing else--- to start with hardly anyone has heard of it-- even most Doctors, mine did do some research to treat me with more understanding. I have never yet met anyone with it apart from online. So you have no one to discuss your problems with, NO specialist- again, you are lucky if someone has even heard of it. When I have bean in hospital-- its the Pain Team I have to deal with. I am no a big fan of them. They always make things worse for me or is it I just do not want them. When I have SEIZURES, I have to stay put as I am not safe otherwise. No walking or moving around, mostly sedated. All this time the RSD is winning and gaining more control. Once that happens that's it, game over. That is not going to happen, that's if I can keep things together. In some references RSD is called the DEVIL CURSE not without reason. RSD is similar to MS in some ways but can be more painful.

I have had very bad dark days after the SEIZURES or illness-- when I think it would be so much easier to just lay down and give up. I have on many occasions looked back at my life that was perfect to me, well-- may be not that good, but a lot better than now. I could run, walk, have fun, go out when I wanted to, sleep, and have a life with friends.

Since the RSD this has all changed. Now I can not stand loud noises, vibrations, car journeys of more than say an hour, even then I have pain and are more like a ZOMBIE when I arrive because of extra tablets. Going on the bus can cause be to scream inside with pain. Ten minute journeys that's all I am talking about, that's all. Because of the vibrations, not everytime, but most and if I have bad pain this will be worse after for sure. This restricts me a lot-- no parties, crowds, pictures. I have bean a few times but had to pick a very good day. Even then the flashing lights and then noise from the speakers, its not good. but its the best I can do. A lot of times I have to shut my eyes. Angela thought a few times I was a sleep.

When watching Glastonbury there were loads of flashing (images). (Even that sort as well) this can make me feel very unwell. This is partly to do with the SEIZURES. Colds, knocks, normal every day things that do not bother non RSD person will make my life hell. I have a heavy cold at the moment. I have given up a lot but still have things I can do. I am still able to walk just some days, still on crutches from the knee operation but hopefully soon that will be changed. Bean a longer journey than I thought it would be. Knitting on good days, sewing when I can, puzzles, (but not with fire hopefully.) I can take Summer for her morning walk most of the time. Housework a bit hit and miss.  Looking after the Grandchildren, plus the children two doors away, and cat sitting. Typing this, my fingers are not good the feeling has gone and my brain keeps fogging up. I make a lot of mistakes so everything takes a lot longer. Things like this you all take for granted and just get on with it. For me very frustrating. People ask me out and are disappointed if I say no and after a while don't bother asking I try to explain but its not easy.  I have got fifteen years experience and still don't under stand it. Just wanting a big hug some days, but knowing this will hurt. Disability is another thing. PIPs say I am not disabled, an ongoing case at this moment. This is very frustrating

Running is what I miss the most just the sheer pleasure of it. If you have never run you will not really understand. Just think waking one day and everything you did the day before, work, pleasure, every thing just like that gone.Then add the PAIN and how would you feel???

In the beginning I had Wietse he was an Angel in disguise. He helped me so much and without him I know I would not be as good as I am now. He used to say it was me that was doing all the hard work not him. He showed me the right path for sure. A shoulder to cry on and someone who knew what RSD was. Thank you Weitse for all you did for me. (get in touch please)
I have had some treatments that helped somethings but made others worse. I think the cure if there is one, is a long way off so all I can do is just get on with it and keep moving.

Thank you all for reading this all the best love Gill. 






June.

June 1st

Had one of then phone calls today, the sort that tell you your computer has virus or is about to shut down. I humoured the Indian lady, they are mostly foreign in an Indian call centre.
She said your computer is at very high risk, as it was down loading viruses. We need us to sort it out and get to the source of the problem. I asked her who our Internet provider was? She ignored me and carried on talking. Again I said who is our provider- again she did not stop but carried on talking what she/we needed to do. Referring to a sheet in front of her no doubt. I started talking and asked her again about the provider not stopping this time, and said you are a con call swooping on vulnerable people. There is nothing wrong with this computer at all. I put the phone down and checked out the phone number on the Internet. Lots of stories from people everywhere. Some would have bean taken in by it all and worried that the computer will become unless. They get in by logging onto the computer by an invite from you, after a lot more questions to scare you. Sort out a few non problems that you don't have, then charge you around £170.00 for the privilege to get your computer back. Hopefully they will be soon shut down, but as one gets shut another one takes over.

Well that's my rant for the day, I hate it when people get hurt like this and it's happening more and more.

2nd

We will be having new neighbours soon as they have got the keys to Ben's house next door, a few things need to be done first. Quite a bit of noise for the next few weeks, they said but as one family will be moving in soon, another will be moving out a few doors away. Shame to see them go too but I wish them all the best in their new home. So two new residents to the street soon. We have bean here forty three years and have seen a lot of changes and people coming and going.

My left leg, knee and foot operation side are very swollen and sore. I have bean taking a lot of extra tablets. I would have thought by now things would be back to normal, but no I am still on the crutches outside the house. Because the RSD is having a field day now, with both sides now being attacked with pain. I have bean quite restricted to what I can do. Not being able to go out with Summer on my own walking, longer car journeys are out too. You all know what I mean, every day things that non RSD people do without thinking about it is so frustrating at times. As I have said many times I am not an indoor person. Hopefully my knee will soon start improving and I can get on with my life. I do have my scooter but it is difficult to get it out on my own. So unless someone is here to help me, its a no go, but I am home a lone Summer is here but not too much help.

Jamie-Lee biked around four miles on her little bike to see her friend Tracy today, with Lindsay of course. She loves her bike and goes on it whenever she can. Well done both of you.

3rd

Colder start to the day where has the Summer gone? On the river we saw a swan and seven very young signets but no Dad. I know Swans mate for life so I hope he is alright may be having a lie in!!

4th

Full PAIN everywhere today- really getting to me now. I have had a headache since my SEIZURES.  Some of this could be because I am in more, but its very annoying. At least we have a garden so I can do a bit there. I sprayed the garden for green fly. This has needed doing for a while but either rained or bean too windy which has held it up. Soon after finishing though it did rain but not for long, any way job done.

Angela has gone to Wales for a few days with her brother to get fully fit after her operation. Hope it does not rain all the time.

My friend phoned up and said she is having a baby after a long wait with many problems. A few baby things I think to make soon, when she finds out the sex. I hope things go well for them all.

5th

Visit from Joy today- always nice to see someone. She is still not good with her back pain, but had a scan so hopefully that will show something up. A good chat and catch up with all her news and mine too which is not a lot at the moment.

7th

Andrew out with Pup and I today as Paul is out most of the day. Summer enjoyed her walk very much  chasing after her ball. So tired when we got back so was I. I have bean walking a bit outside without the crutches. PAIN is still here, knee tight and sore if moved wrongly, which seems to be every way at the moment. Five weeks now and still not right. I feel very light headed and very tired almost like I am getting a virus or something. Could be tiredness or the RSD striking back.

8th

Got Jamie-Lee for the day as Tommy-Lee, her brother is in a knock out football tournament. Raining heavy too so a wet match for everyone. Jamie-Lee arrived at nine. This could be a long day as Lindsay said she was tired. Hopefully I can keep her happy. She was a bit moody before dinner but after two sausages, chips and gravy she was very happy. Played with all sorts today plus she bought her Ipad, always a standby for when she is tired.

Lindsay phoned up and said the boys were in the semi final of tournament so they were doing very well. A bit later Lindsay came home with the great news they had come runners up in the final. So very well done to all the team and Ben their Manager. Big cheers all round. I gave Tommy-Lee a lolly as a reward not much I know but I think he was so happy at how far they got, so it did not matter to him. He stood there beaming with his medal around his neck.
 Tommy-Lee.
The team- Ben on the left- Garry in the middle.
They manage the team between them.

.
They soon all went home and I was able to relax a bit myself.

Angela back from Wales now, a nice change she said but a lot of rain fell I said it has here too.

9th

Hey rain stopped and washing out blowing well. Helping Paul clean up. Andrew at work and Summer thought she was going with him for some reason. She looked very sad when he said goodbye to her. He will not be long today Summer as its Sunday 10.30am until 4.30pm. She still waits for him in the passage laying down around ten minutes before he comes home, how does she know. The ice cream van that came down the street last year, playing the music she disliked so much. Well it still coming but no music. she still grumbles and barks. She knows the engine sound of the van, plus other various car sounds like Paul's and knows when someone is coming here, very clever I think.

10th

A wet start again so Summer's walk was a very mucky one as she got very wet playing with her ball. She was happy and that's all that matters.

My fingers have bean getting very bruised from burst blood vessels. Just from holding a knife, door handle, even just turning on the tap stupid things.They hurt but do not last long usually. I still have one on my thumb from Age UK from the till, this was a big one though. My fingers on my right hand RSD side go white a lot of the time and have not a lot of feeling to them which makes doing things a lot more difficult.

11th

Rained all night. I heard a lot of it, very heavy at times more like a monsoon. Summer decide to go down Sincil Bank today instead of the common. We thought it would be drier but no it was flooded. The drain holes from the road to the river get bunged up with leaves and rubbish. People also deliberately put cans and bottles in them thus blocking them up..

12th

Not a good day, so much pain whats going on? I have taken four- 400mg IBRUES so far and its only dinner (1-00pm) this is on top of all my prescribed ones. Some days I am taking eight and still I am in pain. I am a bit worried that I did something to my knee when I had the SEIZURES, or is it just the slow healing. Anyway I go to the Kingsmill on Wednesday the 19th So I will soon know. My shoulders are bitterly complaining so are my wrists. If I don't use the crutches out the house I can not go very far. Wietse did say not to use them at all but it will not be much longer I hope. So when off them for good hopefully the shoulder and other stress pain will go..

The weather is cold again, my hands turned white today and my face was red. I think that's what they mean by Flaming June I think, as its certainly not the weather. I got earache too with the cold wind.

I wrote in my diary today-- WHATS A LIFE- IF YOU CAN NOT LIVE IT. That's how I feel trapped within my own pain.

13th

Woke to ice cold feet and legs spasms in both legs. Managed to get them calm again wrapped my legs in the quilt and went back to sleep only for it to happen again twenty minutes later. This time they did not release so I got up, even though I had only bean in bed a shot time. Spasms and pain most of the day.

The river is high after all the rain we have had, I have seen it higher though. Around Lincolnshire there has bean flooding and people bean moved to a safer place. We are higher up so not much chance of street getting flooded. Sincil Bank on the other hand is close by and the football courts near the ground are under water.

14th

Angela came round for a chat and we watched some programs she had missed when she was in hospital.

Our computer has gone wrong big time hopefully it can be fixed. Wayne and Andrew both know what they are doing.

Looking after Ben and Emmie from Seven tonight. Emmie knows I will not be able to go up and down the stairs like I usually do. Emmie did some dancing and played on her Ipad. Tabby came in for a while and I was stroking him. Squidge came home around twelve thirty so not late. When I came home everyone was in bed. Me and Pup again as usual. Watched a bit of television then bed a few hours later.

At last I have finished Shawn Sheep made for a relative. Also a pair of gloves for me plus Munchkin.



Munchkin


15th

Paul out first off so Summer was later for her walk. She did not mind, the common is very wet in places, and she loves running through the puddles. Well there are some big ones and she always seemed to love going through them.

My pain levels are very high and still taking a lot of IBRUES. Knee spasms are bad - OK in the house but walking a distance it tightens up and is very painful. Fibromyalgia  is playing up as well big time.
Andrew has got me a CDB oil vape, not sure if its helping or not but I will keep trying it. I have nothing to loose have I ?

My poor big cactus had died big time- when I repotted it last month I noticed it was a bit soft. I thought it was from the rain as we had a down pour and I did not get it in the house in time. Poor thing but it was old.  


Poor thing this rotted more later and smelt terrible.

16th

Fathers Day. Lindsay came round in the afternoon on her own for a change. She got Paul a mug, pen and a teddy. Wayne sent a bottle of Whisky and Andrew got him beer and is going to pay for the Chinese we had for tea.

So much pain later- what is it?  RSD or the knee recovering, I will soon have answers hopefully as I see Mr Joby John on Wednesday. Not sure what I want to hear from him as if its the RSD playing up it could go on for a while. On the other hand if the operation has not done the job whats next? Any way I soon will know.

17th

Took Summer out on my own today and she was very good. Bit awkward but when we get on the common its easier. She loved it today still quite a bit of water around but its drying up.

Normal day- cleaning up and washing a lovely warm windy day so the clothes dried very quick.

Still struggling with the various pains but sitting down makes it no better so might as well just carry on as much as I can.

19th

Kingsmill Hospital today for the follow up appointment to see Mr Joby John about my knee-- what will he make of it all.
We (Paul and I) got to Kingsmill early so went for a cup of tea and a sandwich. Not there in clinic  very long and we went in. Mr John thinks my knee is still healing and will just take more time. He assured me that even with having the seizures the mend he did, will not fail. He showed me on a drawing he had done. I felt better after him saying this. He suggested a steroid injection like I had last time would help. This did not help last time because the knee needed repairing but now it should. I agreed and went into the treatment room and waited for him. He also said try one crutch when you can and then none. I am to go back in six months.

The injection does hurt but there is an anaesthetic in there to help with the pain. Right here goes, the injection was going in and the pain was crazy, burning like larva and hurting way more than last time. All done just lay there for a while he said, the nurse will come in and tell you when you can go. After he left I felt very strange, pain off the scale and far away feeling. Hot and heart pounding in my chest. The nurse came back and said right get up slowly. I started to and felt like I was not even in my body. She shouted lay back down you look terrible and I felt it- just stay there and you will be OK soon she said. I lay there like I was floating very hot and knee on fire. My body was also getting hotter and painful. She came back in and still said I did not look right. I think we will take your observations. She started with temperature and pulse both were raised. Next blood pressure, this was well high. 210 over 100 plus. No wonder I felt so bad. she asked me what I took for blood pressure I said nothing I don't have high blood pressure. She said we will check it again soon. The nurse came in about ten minutes later, she did the checks again, still very high. The nurses looking after me were Jenny and Lesley- they were very concerned. A more senior Nurse was called Susie came to see me. Paul was asked to sit with me. Two more blood pressures were taken still very high--204- 186 over 100 plus.
Paul went to get a wheel chair but the nurse said stay there I will get one for you. They did not want me walking to the car or walking anywhere. I was getting worried now. The blood pressure was taken again and still the readings were high. They were so concerned that they said I should go to there A and E. Mr Joby John had bean in a few times to check on me as well.

Susie and Jenny I think it was, took me straight there in the wheelchair . I was seen within five minutes. Blood pressure still 186 over 100 plus. They said that I was just below the level to be admitted. Very much at risk from a stroke or heart attack. I was more worried now as I did not feel that good as it was, now worse. Any chest pain or just something different get straight to Lincoln A and E.

I would like to say a big thank you to the Nurses, Jenny, Lesley, and Susie plus Mr Joby John for looking after me so well. Also the Kingmill A and E department. 

Nice to be seen so quick but it does get you a bit worried.
Any way it was the injection. I was fine this morning so I will be tomorrow. I will see my own Doctor or anyone I can tomorrow. If I feel worse chest pains, or any thing different I will go to Lincoln A and E.
The drive home was not good, pain had built up everywhere and my knee was on fire and I was still so hot too.

20th

Saw a Doctor James and he took my blood pressure and it was still very high. 188/114. He wanted me to start taking tablets for it. I said NO leave it a few days and see what happens. I am still sure its a reaction to the STEROID INJECTION and the RSD doing its thing. He said I was very much at risk from heart attack or a stroke They do say some nice things to reassure you!!!. I know it was for my own good but I have never had problems before this apart from illness of course. He has said I will be fitted with a blood pressure monitor soon and that will be arranged by the nurse next week. He will see me in a weeks time. Go home and rest- any chest pains or lack of functions go straight to A and E department.

21st

Happy Birthday Andrew- his day off so that good.

Spent most of my day doing the beds, washing and ironing quite a busy day. Still feel very hot and not right but sitting down is no better so might as well get on with it.

22nd

Lindsay came round and said STEROIDS can make your blood pressure go up. I looked it up and it can. RSD makes it worse. When I had one last time before I had my knee done it was alright though. This one did not hurt nowhere as much as this time. May be that the RSD was being kind to me.

Having Jamie Lee over night, hope she is good as I do not feel my best  today. This was arranged a while a go so I could not really say no to her. She will be fine, if not lock her in the shed. We had a game of Monopoly before Lindsay went home, Jamie-Lee won.
Andrews here to play with her as well. Good rest of the day and she went to bed fine but a bit late.

23rd

Jamie-Lee slept very well and came with Summer and I on the common which was good. She kicked the ball for Summer and she has got a powerful and controlled kick. Summer loved it and was tired when we came back.

Lindsay picked up Jamie-Lee late afternoon and the rest of the day was pretty calm and quite. She liked Munchkin so much I let her take him.

Went outside and startled a bird and it flew over my head. I felt it hit my hair, good job I did not see it as I don't like birds close. Andrew was in the shed and saw it fly over.

25th

Humid day like yesterday I can feel it, headache again not like before though. That I am sure was the high blood pressure.

Joy is here for a visit. I was going to meet her in town but did not feel up to it. I have not been into town since before I had my knee done (1st May)
Angela was here yesterday, she is doing very well and just about back to normal now.

Pain wise not too bad knee feels very tight but not as swollen as it was.

26th

Colder to day- wheres summer gone? Here Mum not you duckie (Summer dog)

Nurse to day to have Blood pressure monitor put on. She took my blood pressure and it was 125/80 so not high and I had just walked here.. This monitor will take the readings every 25 minutes till midnight then hourly until the 24 hours is up at around 11.45am tomorrow When I go back tomorrow the nurse will access the reading and I will see the Doctor later on to discuss the results. The cuff is very tight and I can feel my arm going numb and it feels sore.

27th

The nurse took off the monitor cuff, my arm was very red .She looked at the reading. She was surprised as the highest blood pressure was only 162/84 that was when I was going to the Doctors. I am still using the crutches as my knee soon hurts if I don't. So its quite hard work and the weather has bean very warm/hot. The lowest was 91/58, this was when I was asleep at 4am. These are normal readings. The nurse was quite surprised at the results, I was not. I did not even have to see the Doctor. I was pleased I did not have the tablets as the Doctor suggested. I knew it was the steroid injection. Another thing I am going to have to be careful about. How many more things are there going to be.


28th

Paul is away for a few days till Monday so just mostly me and Pup. My arm is bruised where the cuff has bean
Hopefully I am going to sort out the greenhouse and put in the tomatoes. First I need to take out the Fuchsias cuttings that have bean growing over the last six months, most of these are to Wayne's for his garden the rest are going in two hanging baskets with some self set Lobilia.

Got the fuchsias out and in a tray for Paul to take. After he had gone I dug and watered the green house. Mixed in some compost and left it a while. Very hot in there 115F-- at one point I felt very dizzy and not quite sure what was going on. A bit of heat stroke I think, had a drink and a long sit down then I felt better. A few hours later they are all in.

 


Cucumber plant is a bit small so will go in later. I have seeded another four just in case the snails get this one or something else.

I am now very tired so the rest of the day/night  is sit down time. Had a nice bath- Andrew was close in the shed so he listened out for me. Makes it a bit hard now, as I have to have someone here so I can have a bath. (SEIZURE in the bath) No more early morning ones like I used to have.Later Andrew and I had a Chinese for tea/super. Not one of the best but was hungry so ate it. Knee is very painful, in fact I hurt every where I think the RSD is angry.

29th

Cleaned up all downstairs. Very hot so sweating a lot and more sit downs needed. Knee is very painful and going into spasm. The rest of body seems to be in sync with it. I have taken extra pain tablets again today.
Jenny asked me go to her house for a few hours, so that will be very nice. She picked me up. We sat in the garden, which is lovely and tidy and organised. Her husband Bob was there too. He loves trains, Hornby model type ones and has one set up. I also like trains so watched it going round. A very nice afternoon just relaxing and talking. Thank you Jenny and Bob. Jenny took me home and got there just before Andrew came home from work.

Lindsay and Ben called in. Lindsay did not look too good. She was more concerned about me- as she said I looked tired and pale. When its hot I do not eat too much and she was bother about that.

Very heavy air later and a few spits of rain but no storm. I hoped there would be.

30th

Today doing the bedrooms- not as hot today but very windy, so that will help cool things down. Just finished and put the vacuum away when a plant got knocked off the table by the wind, the soil went all over the floor in the dining room. Managed to clean it up with the dustpan and brush. 

Lindsay called in with two homemade chicken curries- a korma and a madras one for me and both home made. Had one later very nice too.

Not a straight forward month-- but at least my knee is not going to be an extra problem, it just needs more time to heal. I was very worried that the SEIZURES had done some damage. I was reassured by Mr Joby John. RSD takes every chance it can to cause trouble- but I am still walking and doing things, so it has not won this fight yet and never will.

Hope things are good with you all and you have bean able to enjoy some of this very warm weather.
All the best to you and see you next time Love Gill.


At least Summer's chilling out with the hot weather.

May 2

May 7th

I feel a bit more with it now, stomach still a bit sore though. I think I might have pulled a few muscles, but that will soon pass hopefully.
I had two cream crackers for dinner and this is the first meal I have had without wrenching and feeling sick.
Knee pain is either terrible or mild. Not too sure how much of that pain is from the RSD. My other knee the side, the RSD started, has bean hurting a lot more too. I know RSD can mirror so it could be that but I think that's usually from the RSD side to the good side. At the moment I have no good side. That will soon change though. I prefer to be outside when I can with Summer when possible. I have said before I feel like a caged animal when I have to stay in.

I am having to go to bed when Paul does first time in years ( INSOMNIA) I listen to my ipod for  around two hours till I felt like I could sleep. I was hoping this OPERATION would help the INSOMNIA like resetting the clock, but no--- its still the same long nights and short days. You do get used to very little sleep though, and it becomes my way of life. Margaret Thatcher did it

8th

Paul out for his dinner as usual. Lindsay here to keep an eye on me. Hands and arm bruising fading now. The RSD cold thing, feeling any little change of temperature for instance like the outside door opening or just someone going past you. This is going crazy--my legs are so cold, arms too. People have got on shorts and summer tops, I am in two long sleeved ones. Hopefully this will pass when I can move around more and get out. Most people get this in early stages of RSD. I still do but not quite as bad as this usually.

10th

Knee a bit sorer today and feels tight might be the stitches pulling it. Not too swollen, less than I thought. Stitches come out 14th so not too long then I can have a bath filled nearly to the top with bubbles and stop in as long as I can. This is usually not very long as my legs complain with pain. I will post a picture of my knee after stitches are out.

My friend is having her stomach operation today so all the best to her, she is very scared I have tried to reassure her and so has her brother. He rang later and she is fine and awake, chatting to everyone.

Watched two episodes of Star trek Discovery with Andrew the second one was very good edge of seat stuff.

12th

Went to see Angela she looks very well, you would never know that she had a big operation. She said she ate all her Sunday roast dinner plus pudding. I have still to get my appetite back.

Paul did roast beef for tea and I managed a small plateful the most I have eaten in nearly two weeks.


14th

Summer had a weird do last night, she was very unsettled when we went to bed, not wanting to go in her basket and a bit shaky. She is very scared of certain beeps and if the smoke alarm beeps to say the battery needs changing, she freaks out. Also certain ring tones on the television. 24 hours in A and E gets her very upset so does GP's behind closed doors.  I watched these with sub titles for a while then gave up, as I don't like them at all. The cat two doors away is Summers friend, he cries out a lot as he is old, probably got dementia. The cry is like he is in great pain. So Summer gets very upset and wants to get out to help him. I think this might have happened last night. She had scratched the bathroom door and cupboard door too. Her claws are very sharp and strong so she made quite a mess. She did this same thing a while back.

 Cupboard door.
Bathroom door.

Went out on my scooter with Paul and Summer, nice the first time I have bean anywhere. The scooter is not easy to get out and impossible for me to do at the moment, hard at the best of times. We are hoping to get the door way and step altered so it will be easier.

My friend Jenny came to see me and bought me some flowers, that was so good of her. Nice to see someone and have a chat. Told me about what had bean going on at Age UK.




The Nurse took out the stitches from my knee, two on each side hardly anything to look at. I have had a lot worse injuries with my seizures. Bath here I come water wings at the ready.




Bath was good I washed my hair but did not stay in long as both legs hurt a lot but it was very nice.

Going to leave the radio on for Summer as back ground noise, hope it will help a bit.

16th

My friend John came round to see me and we had a good catch up chat he has not bean too good him self so it was nice to see him well again.

Summer has bean good over the last two nights so the radio will stay on for a while, whether it helps is any bodies guess. She might even be having a disco!!

Knee very painful today very numb on left side and along the shin same side. RSD not helping but when does it ever??

Chinese for tea, very good it was, small portions for me though.

Had a bath but did not feel too good so got out. I was light headed and dizzy sat on the floor for a while with everything going round and fuzzy fuzzy. I passed out briefly then Paul came in and helped me.
I sat on my chair very clammy and sweating a lot, cold and hot at the same time. After a drink and sit down I felt a bit better. Still not quite right though and I had a bath too I feel like I need another on now after all the sweating. Paul thinks I have the bath water too hot but I don't think so. I know a lot of the time I can't feel hot or cold the same as I used too be for RSD.


18th

Dull start after a few quite nice days. On my own most of day again as Paul is out at a BBQ I could have gone, but its a bit cold for me to sit out side as my temperature levels still not right. All the talk would be football anyway. So me and Summer looked after each other as usual.

19th

Not a good night awake most of it I think its going to bed at a earlier time. My bed time before was later but it suited me and I did sleep a few hours. But last night, ages to get to sleep after listening to the Ipod for two hours. Asleep a bit, awake a lot, this went on till 6-00am then I slept till 8-00am. Soon after I got up. Headache and feeling very tired and wobbly on my feet, and more pain than usual knee very stiff.

20th

Not feeling the best today-- need to get out the house more and back to my normal or near normal self.
My back and shoulders are hurting from the crutches but I still need them for a while yet. Ok in the house but outside it gives me more support.

I did three loads of washing and put it out then ironed later (not a lot though) I have probably said before I sit on the table to iron. That way there is no pressure on my legs.
Not a good day pain wise, just about every where hurts. I thought if I just moved about more this would help but not at all. I don't think it made it any worse just the  RSD being a total dick.

21st

Ness from two doors away came round to see me. She and Squidge work so I don't see her very often. They are all going to Norfolk for a few days. I am looking after Tabby cat and Ben's Hamster Mustard.

Potted up the chilli plants into big pots so they will not need to be potted again. hopefully we will have a few chillies soon.

Went to bed later than Paul tonight, I am now going up and down the stairs on my own now so it makes it a bit easier for me. I am still not too good on the stairs but safe enough. I was not that good before I had my knee done though. Knee pain not too bad but more than I thought it would be by now.

22nd

Went in the cupboard where we keep the bread and biscuits.The cream crackers packet was torn. Weird I thought then I saw that the biscuits were nibbled. Oh no we have a mouse. I took everything out and threw away the nibbled things. Washed out the cupboard and left two bits of cheese to see if it was still here. Early hours I looked in the cupboard and staring back at me, was not a mouse but a shrew. A tiny weeny one, looking straight at me, not scared at all, even coming towards me, more like a pet. I shut the door and got a bowl hoping he would jump into it. No he had other ideas he jumped down and ran under the fridge and kept peeking out like it was a game. He then ran out again, around the bin and back under the fridge. I did not want him in the dining room as there are loads of places to hide. He then peeked out from under the fridge again and headed for the open back door. Summer was on the grass before she went to bed. The shrew then started to go more towards the back door, please head out thought. I then thought of Summer coming in, but she did not. He paused on the frame as to say goodbye and off he went into the drain outside the door. I threw the cheese I had left in the cupboard and a few bits of biscuits and shut the door. When I opened it again he had gone. so had the cheese and biscuits Summer was still on the grass. I think he came in the door, no more than two days ago, so its right he should leave by it. By now it was 4-00am so I settled Summer and went to bed. Happy the shrew had gone with out getting hurt. I left some bits in the cupboard just in case he had a mate.

23rd

No more sign of more shrew mates so it looks like he was on his own. As I said I think he came in through the door and went under the kick board where there is a gap. I have Christened him Sly as he was was very sly. I just wish I could have got a picture of him, but my camera was upstairs and I did not want to take my eyes off him.

I pricked out my tomato plants and put them in the mini green house its a bit warmer than the big one. I have more than enough so if a few don't make it all will be fine.

Went to see Angela she is doing well but not quite ready yet to come home. Her brother has gone back home to Wales and will come back again soon.

23rd

Went on the common with Paul and Summer as I am still on the crutches. I can not go on my own because of Summers lead. Used the finger less gloves (bike gloves) from when I was on crutches before. They stop my hands from getting very sore. Shoulders and arms hurt though and there's no magic cure for them. I use them only when I have to so that helps. Soon hopefully I will not need them. Nice to be out again  and on the common, Summer thought so too.

24th

Went round to feed Tabby (real name Chubby, we have always called him Tabby.) and Mustard, fed them both and stopped awhile stroking Tabby. I played with Mustard for a while but did not take him away from his home. I was a bit afraid I would drop him.



 
 Mustard. He is a beautiful colour.
 
Tabby cat (Chubby)

26th

Helped Paul clean up, well-I only did the bathroom but its a start. Sorted out Tabby and Mustard. Tabby is an old cat and quite vocal at times. I shouted him and he comes down the garden wowing at the top of his voice. Very pleased to see me. Took Mustard some cauliflower leaves to munch on, he liked them very much.

My knee is quite painful today and a bit more swollen. Taken a lot more tablets than usual.

27th

Not good news my big cactus has started to go rotten, the one on last months blog. Going to re pot it in some different compost. It did get quite wet last time so that could be it (down pour just after I re potted it) but it was quite soft at the bottom before I started. Hope I can save it. 

28th

I heard Tabby crying around  6pm I went to see what was wrong he cries a lot but this was a bit different. He was wet through and cold so I dried him off fed him and left him in for a while to get warm and dry. When I went back later he was still on the settee, he had a bit more food then went out again.The rain had stopped. Sorted Mustard out so he was happy.

I lost a few tomatoes today because I did not open the greenhouse when the sun came out, it was cold earlier but soon warmed up. Good job I have quite a few.

29th

Ness and family are back later today so last time for Tabby and Mustard. Today is also Emmie's Birthday. Lindsay left Jamie-Lee here while she went to see a friend that went to A and E. She was ok in the end so came back here for a while. Jamie-Lee went with me to feed Tabby and Mustard. Bit nervous of Mustard but she knows Tabby well. He was purring a lot while she stroked him.

Back home again and playing with the cooking set, Duplo, and Buckaroo. We managed to get all the pieces on the mule and he did not kick them off.

There-- everything on.


Lindsay was not feeling her best today and had a sleep while we played.

Popped round to give Emmie her present, a dog hand bag, a bit like Summer she liked it and took it to bed. They were all tired so I did not stay many minutes.

30th

Opened the greenhouse door this morning and the snails have had a few more tomatoes, this happened last year with the cucumbers. Put snail killing pellets all around.
 
  My little green house.

The cucumbers are still inside the house till they are bigger so they are safe.

I have put the cactus outside hoping it will dry out and start growing again and recover.

Knee not as good as I thought it would be by now, still need the crutches outside the house. May be the RSD is holding it back. I am at the Doctors tomorrow so I will ask her, not seeing my own Doctor this time. If I wanted to see him I think the next appointment would be around the end of July. Stupid or what, taken on too many people with too few Doctors.

I made a very nice chicken curry for tea with rice. Summer had just plain chicken with her biscuits she was pleased as well.

31st

Summer now has a new ball her old one does not even look like a ball now. She accepted the new one better than other times I wrapped the old ball round the new one in my pocket so I think that helped.

Spot the new one.

I now have my appointments to see Mr Joby John at Kingsmill 19th June, and one to see Doctor Solinas for my seizures on July 24th.

Appointment with Doctor Patterson-- She was running late by over twenty minutes. I went in and she asked what she could do for me? I said I have a few things I need to ask you about. She said only one thing as I am running late!!!!! I started to go through my list not being put off by what she said. This appointment was made over two weeks ago then changed so I was going to make the full use of it what ever she said. Paul was in the waiting room and said I was in there no more then ten minutes half the time I had waited to be seen..

Lindsay and Jamie-Lee came round on their bikes. Jamie-Lee had biked from her house around a mile and half.

We made a picture frame, also some wood puzzles that you take apart, then some how get them back together again. She did very well getting two back again. Lindsay helped her with the last one.



They left around four pm.By the end of the day- Jamie-Lee had biked around four miles. Lindsay thought she would be tired No she wanted to walk Suey their dog.

Well for me its bean a very long hard month with extra pain and not bean able to get out and do what I usually do. Very frustrating to say the least, fine if you like TV or just lounging around. Not for me though. Hopefully that will improve more than it has. I thought after a month I would be nearly back to full mobility. As I said before I am not a patient patient.

Hope things are going well for you all-- the days are warmer and lighter now so that usually helps RSD pain and mood. All the very best to you all Love gill.



















May.

May 1st Wednesday.

Well operation day--  THE KINGSMILL IN SUTTON IN ASHFIELD there for 11.30. Operation on my knee a MENISCUS TEAR KEY HOLE SURGERY- DAY JOB. The hospital is about hour and half away on a good run. I waited in the day room and was told I would be second going down.
Talking to a very nice junior doctor, he was very interested in my RSD. I gave him my blog details he said he would have a look. A nurse came up to me and said change of plan, you are now going down first, because I have an allergy to latex they did not want to risk anything. She said the air would have to be cleaned or something not too sure what this meant, and this takes twenty minutes to clean. Get ready, ten minutes later I was on my way, very calm, almost looking forward to this as it will be one less pain hopefully.

Arrived in the anaesthetic room (1.30pm) and saw Mr Joby John the surgeon. The theatre nurse said looking at him you need a mask I said no he is operating how will he see. She said the mask is for you laughing. She then said to Mr Joby John here are your  drugs "WHAT"  I said DRUGS. The drugs are for you she said, for him to give you during the operation. Everyone laughed, the nurse said you are very calm. The cannula went in, mask on, injected. The last thing I remember was the theatre doors. I thought to myself, I have never seen live in the theatre, I still did not, I was gone.

This is where things went a bit wrong. I started to have SEIZURES after the operation in recovery forty five minutes in all, one going in to another. (I found out later) I was in the recovery room a long time. Paul rang up and they said I was still in there five or six hours later. I was not going home today. I was taken to a ward and had another set of SEIZURES. The next thing I remember clearly was Thursday morning in pain and the usual feeling of having SEIZURES. Not sure where I was. A lady said I got to the ward around 8-00pm.

2nd

I was told a bit what happen, on drips, SALINE and PLASMA not feeling too good, exhausted. Big bandage on my knee more for protection than the wound.


Bandage on my knee with dressing under neath.
(This was redressed as it slipped down when I got home.)


The physios came to see if I could walk on my crutches, these were give to me before the operation in the day room. I could not walk, shaking like a jelly and in terrible pain everywhere. I was given ORAMORPH. I could have this if I wanted every one or two hours. Physios would come back tomorrow. Sat out of bed for a while but felt terrible and started shaking. I was put back to bed  They were a bit concerned that the SEIZURES would start again, something no one wanted specially me.
Paul came in the afternoon he was a bit shocked.

3rd

On, off, sleep, last night, Feeling a bit better but still feel very weak. The physios came again and I tried again to walk. This time very shaky still but not as much as yesterday still pain.They asked if I could do the stairs. I managed but I just about shook the crutches from my hands. I was passed fit to go. The nurse told me what to do exercises and said stitches come out in two weeks. Still not feeling the best but I was going home. Phoned Paul he said he would be here after dinner.

He left home around twelve thirty so here about two pm. Doctors letter and tablets and soon away.
NO an accident held Paul up at Newark roundabout. He got here at four thirty. I decide to go home in hospital gown and dressing gown, returning it at my check up in around six weeks. The journey was very painful and I still felt very weak. Home, Summer went mad to see me and was crying with joy. She sat with me for a lot of day.


4th

Lindsay here as Paul at football for the day. Lindsay cooked chips for dinner and afterwards Jamie-Lee made cakes. Tracy came later. I sat down and just rested most of the time.
After dinner I felt very light headed and sick. Lindsay helped me to the bathroom where I was violently sick. I then tried to lay down on the bathroom floor, not good as it ceramic tiles and cold.
Lindsay and Tracy helped me back to the chair where I continued to be sick. This is just about the last thing I properly remember. Lindsay, Tracy and Jamie-Lee stayed with me till Paul got back. They were getting ready to go home when I started to be ill.

Paul came home around six thirty, and I was slumped in the chair and not very responsive at all. Later in the evening I got worse, still wrenching and was very unresponsive and about 11-15pm he called for an ambulance. I was taken to hospital where I started to have more SEIZURES and still being sick till there was no more to come up, wrenching and in terrible pain like GASTRIC FLU. On oxygen and a drip Paul said the Doctor had a job to get a line in as my veins are very thin and hide when I am ill.  No wonder I have so many bruises where he tried. I had a chest Xray and a CT scan on my head and stomach. I was admitted to a ward around seven thirty am. Everything hurts, stomach terrible pain just about everywhere. The ward is very noisy as it straight from A and E.

5th

Trying to make sense of what has happened. The nurse sat me in a chair later, but I started to shake a lot so back to bed for me.Worried about more seizures, violent headache, the nurse said this is most likely dehydration. Still on a drip (three bags in total)  Lots of blood taken to test for electrolytes as very low (something to do with your blood)  probably because I was so sick. A horrible day and so much pain. Had to wait for pain relief as they were so busy, not good for RSD. That did not help much, not really any sleep either. If I sit up I start wrenching and feeling dizzy. Saw it get light from pitch black not a good night. I want this nightmare to end, but its not a nightmare its so real.

6th


Feeling quite a bit better but still quite shaky, still stomach and chest pain, knee not too bad, at least my head ache has gone.
I also saw the PHYSIO here as well and she had me walking with a zimmer frame.


 



Which I can take home with me and I have my crutches at home too. I got on quite well considering  my chest and stomach hurt so much and how shaky I am. She said I am fit to go.

I saw the Doctor and he said I have got a SOFT HEART MURMUR and my SEIZURES are a mixture of EPILEPTIC and NON EPILEPTIC  SEIZURES .The chest xray and a CT scan on my head and stomach were clear.. The heart thing is not a concern, but I need to see the Neurologist and will be sent an appointment soon. I hope it's Doctor Solinas I see, as he knows me, from the very bad SEIZURES I had before. Anyway home in two hours time, just to make sure I am alright.

A nurse took out my cannula I pressed on it for a while, it was in my arm bend, I then sat and listened to my ipod. A bit later my arm felt wet, I looked down and there was blood dripping out. A big pool on the floor and all over the bed. I shouted the Nurse and she sorted it out. Did you press on it? Yes I said. The more senior Nurse said it can happen. I have at least two pints left he was joking you have around nine to ten. I had lost about half a pint he thought. Good job I did not go to sleep. I said to her you nearly killed me. She looked very scared but I made her laugh by saying I nearly did not go home.

I rang Paul he was surprised as we were told that I needed to see a Neurologist before I went home. Anyway I am not complaining two different hospitals in two days is not good.

Paul picked me up and got all my tablets and second doctors letter and we were off home.
The journey was painful my knee felt every little bump so did my stomach and chest.

Summer again was very pleased to see me and sat with me a long time. Poor Summer she does not know what to think as I keep disappearing.
Phoned up a few people to tell them I was home. I think if you ring up your self, and they have spoken to you, and not a messenger they feel more assured.

Bed time struggled to get up the stairs but I was looking forward to my own bed and not one that's get you hot and sticky. Home and please no more hospitals for a while.Mr Joby John did say it was a risk with the RSD and SEIZURES. If it makes my knee better it will have bean worth it.




Slowed down but not for long.


I put this short blog up to let you all know how things went with my operation.
All the best to you all and I hope you having a better time than me Love Gill.




April


April 1st

Rung up Doctors a lot later than usual- as CYSTITIS no better and I could not believe it when they offered me an appointment with Doctor Metha (my own Doctor) but not till 4-50pm. I took the last sachet of the stuff I got from the chemists. Hopefully this will help till I get sorted out later.

Cleaned up downstairs but had to sit down more than usual, the pain is quite bad and spending most of my time going to the loo.

Saw Doctor Metha he said it was CYSTITIS and gave me ANTIBIOTICS MacroBID 100MG 2 a day for a week. Also I asked him about my IBS which has bean terrible the last few weeks. He gave me BUSCOPAN this works very well as I was on it before. 8 tablets a day though. I asked about my DEXTA scan I had and he said I need to start ALADRONIC ACID again. The OSTEOPOROSIS is not worse but there is a lot of thinning of my bones so to keep it at this level would be good. Keep going at that rate bones please, then things will be good. One less thing to bother about. More than likely they are strong because of the running and walking I did.

3rd

I feel far away today could be the tablets as I have gone up 10 a day.

Skip here for next door to take away the rest of the household things away Wayne (Ben's stepson) and Julia (Ben's daughter) soon got it filled up. The house now is cold and mostly empty not nice.
Julia said when the new people come in they will make it their own and the house will no longer be  Ben's. I know that's right as that happened with Mr Lambert (who lived on the other side of us) who passed away, then the house was altered and renovated and no longer his. This does not make it any easier though. Julia and I both had a few tears after she showed me a picture of her dad, a lot younger and very handsome too.

Later in the day someone pulled up in a car and chucked a load of plaster, wood,and a plastic sheet on the skip. Some of this dropping off on to the road I shouted at them but they just rode off. This was something Julia was worried about so as the skip is full, its getting picked up tomorrow.

4th

Very cold walk on the common with Summer wind like razor blades. Snow on the way ?

I did a lot more of the Lion rug, going very well I will put up a picture when it's done. Quit a few more weeks yet though.

Tablets are helping the CYSTITIS so that's good, still a lot of pain but not as much urgency to get to the loo now. I wish I could say the same for my knee which is not good, swollen and in pain. May the 1st  can not come soon enough. Locked up later so I could not move it. Wiggled  and rubbed it so it released, very painful.

5th

Age UK-- Jenny not here still not quite right yet hopefully back next week. The day was quite busy .
No weird things today and no awkward ones either. Polly was on the counter with me so helped a lot.
Knee very sore today  No shopping straight home quite tired so could do with a rest.

6th

On my own today Paul is at an away game and Andrew is at work. Easy day for me I did not do too much as tired from yesterdays Age UK. I don't really do too much there but its still makes me very tired. I do walk there and back, usually less painful than the bus. I would sooner walk while I still can any way.

Paul back and we all had Chinese for super/tea very nice too.

7th

On own again as Paul out for his dinner IA meal I did not want to go. Andrew at work. Me and Pup had a girls day I gave her a good brush and put a hair tie in, so she can see as her hair is so long. Hair cut on the 11th so not long. As her hair is so long now, this takes a long time to brush and comb. Something Summer does not really like, so she grumbles and grunts a lot. All she is interested in is the treats (tiny biscuits) she gets during brushing, and the chew after she is finished..


She needs a hair tie now--Hair cut soon.


Angela phoned up she has an hospital appointment on Wednesday. I said I would go with her as she is a bit worried about it. They don't bother me now as I have had so many. Nice to help out a friend and always good to have a second set of ears.

Andrew back from work and Summer thought it was her teatime as he usually comes home at after 6pm, her tea is at six, today is Sunday so around 4pm or earlier.. I told her not yet, she was not pleased.

8th

Not a good day a lot of pain, head, left leg, and hip not sure what is going on but its not nice. I feel very drained as well. Rested today and took extra painkillers. Thinking about it later, and this could be that my B12 is due. A lot of time I feel extra pain and tiredness. I am having it done tomorrow.

9th

I feel a bit more with it today. Still a lot of pain though. B12 hurt when injected but not for too long after.
Did some more of the Lion rug, it's getting very close to the top. I somehow missed out a whole row how I did it I don't know, I had to take out three rows. Not as easy as putting them in. Took a long time to put right. When its done I will put a picture up, as it will look more impressive than showing you it not finished. Did quite a bit of ironing as well later..

10th

Went with Angela to the hospital, she needs to see someone else but he is on holiday but she did find out a few things.

Feeling a bit better today but still pain, worse being my head. Tired but that's my way of life now.

11th

Lindsay and Jamie-Lee here we played with the big red bus. She then did some colouring too. I also did some and she said mine was good. Lindsay looked good today probably the best I have seen her for a while. Andy her ex partner, saw how bad she was last week and has bean helping her out. He is not all bad but sometimes goes about things the wrong way.

Summer is having her hair cut today..

    
 Be for cut.
 On the table ready-- no escape now Summer.
 
Now she looks like a little lamb again.


Speaking to Maxine the groomer she said the kennel cough injection is a bit of a con as there are a lot of different strains of it and they only inject for two. I think I was done a bit


Knee is very tight today and feels very stiff.

12th

Knee not good, woke up early hours with terrible pain in my foot and leg.

Very cold with a wind straight from Siberia.

A fairly steady day at Age UK, this I was pleased about, Jenny was back too which was good. She is not quite right yet but well enough to be here.

Looked after Ben and Emmie for a few hours we played and then she showed me her dance moves. She is very flexible and enjoys dancing and exercise. She hurt a foot not long before her Dad came home and shot up stairs. I went up and she said she was OK. I told Squidge when he came home.
He was home before 11 o'clock, so  I was able to go home and have my bath before Paul went to bed. I have to be supervised since having seizures in the bath last year. Watched TV the rest of night.

13th

Paul at football so another day on my own. Lincoln has gone up into the next division so well done Lincoln.
Sorted out the pots from next door that used to be Marcins who used to live there. They will do just right for the beans that I am going to plant at a later date..

Very sharp frost later when I went to bed.

15th

Very cold again and windy.
Lindsay came with Jamie-Lee a bit later and stayed for dinner. We played with a track and train set. Pop up Pirate and the Big Red Play Bus. Most of the toys were her Brothers and some even Andrews her Uncle, and my son. If you look after them they last for more than one lot of children.
 
17th

In town today I mostly do any shopping after Age UK but this limits me to what I can do. I do not leave there till at least 2pm some times later, so I am tired and usually in pain so put off things till another time. So today I decide to go into town with Paul as he was going out for his dinner. I got most of what I wanted, so pleased. Tired when I got back as knee was very tight. I walked there and back around 2 miles plus around town, I could get the bus but this usually makes my RSD pain. worse. Summer was pleased to see me. She is not left much on her own and usually goes to sleep.

18th

My hands have bean fairly good so I decided to put all the crystals back in the glass cabinet. All went well and no breakages. I breathed a big sigh of relief when I finished.


 
 
 
 
 
 
All back again where they belong.


Two lots of washing and all the ironing done. Arms and shoulders really hurt now.

Summer at vets later she had the rest of her booster and she still cried a bit when he injected her again. I think she knows what it is now. Different vet, different tactics, the other vet which she has usually has, strokes her to reassure her and then injected her. She has never yelped before as I don't think she even knew that she had bean injected.

20th

Family BBQ, well without Andrew as he is working today. Very warm in the garden, Lindsay did all the cooking and it all tasted very good. Even Jay-Jay turned up with his girlfriend and stayed a while. A good afternoon all round.

23rd

A bit cooler than the last few days. Doing a bit in the garden and greenhouse. Staked the rose bush next door as its had a slight lean for the last few months. I usually look after it for them.

Pain most places- its the ache that does not go away and really gets to me. Not able to rest properly or even relax.  Hope it will improve soon.

24th

Saw a lovely sight, a mother duck with 13 little ones mostly dark with yellow bellies. Lincoln people are called the Yellow Bellies so I thought this was quite good. There has not bean many ducklings this year so this was so nice to see.

Later Lindsay, Tracy, and Jamie-Lee called in they are going to the Fair on the common nearby. This time its only here from Wednesday to Saturday not a week as usual. Afterwards they called in, Jamie- Lee said she had a great time. Going on lots of rides the first few nights are always a bit cheaper.

25th

A prickly job today-- re-potting a big cactus, not easy as very sharp prickles. When it was bought around twenty years ago from Wilkinson's it was about two and half ins high. Now it measures 35 inches high. I got load of pickles in my hand despite wearing two pair of gloves and using a thick towel. Hopefully now it will feel better in its new pot and grow even bigger.


The brute.

Looked after Jamie-Lee later while Tommy-Lee played in a football match. She had tea with us and said she could eat ten chicken dippers with chips and of course gravy, she had five and that was about right. We played with all sorts of things,she likes it here as we play a lot of different games and no competition from her brothers either. Andrew did look after her too playing hide and seek with her.  At one point she locked him in the shed with out his phone. He did not mind at all and enjoys playing with her. When her mum came back she said she had not bean here very long, only four hours.
Hopefully we would have tired her out.

26th

Talking to other dog owners on the common about the kennel cough vaccine. Most said more or less the same as Maxine (Summers groomer) that they had not had it for their dog. Never mind he was a good sales man that Vet.

Age UK today after a week off for Good Friday. Very busy, loads of customers most were in a very good mood and telling jokes as well. Very tiring and knee pain as well. This is my last day here for a while as knee operation on 1st May.  Everyone that knew wished me luck and said keep in touch. Hopefully things will go well and it will not be cancelled.

29th

After Summers walk, I had my hair cut by Debbie same as last time as she did a good job, a bit shorter this time. Again looks good. She had just started to cut when there was a phone call from the Kingsmill Hospital where I am having my knee done on Wednesday. OH NO I thought it has bean cancelled. No they were just ringing up to make sure I had no cold, cough, or sore throat. Every thing alright.

Joy my friend called in and we had a good chat,cup of tea and sausage roll.


30th

Well day before my operation---so probably my last day of freedom till I recover. I will be home the same day or the next so not away from my little Pup Summer for long.


Well not too bad a month as they go-- less pain would be nice. What will May bring for this  operation. I am not worried about the operation itself, just the after affects. Hopefully the RSD will not flare up with the extra pain. I do need to have this, so there is no choice really. Anyway all the best to you all hope you are all as good as can be. See you next month. Love Gill.


Summer waiting for Andrew to come home from work.





I have put this little bit on now to update you all.

May 1st Wednesday.

Well operation day--  THE KINGSMILL IN SUTTON IN ASHFIELD there for 11.30. Operation on my knee a MENISCUS TEAR KEY HOLE SURGERY- DAY JOB. The hospital is about hour and half away on a good run. I waited in the day room and was told I would be second going down.
Talking to a very nice junior doctor, he was very interested in my RSD. I gave him my blog details he said he would have a look. A nurse came up to me and said change of plan, you are now going down first, because I have an allergy to latex they did not want to risk anything. She said the air would have to be cleaned or something not too sure what this meant, and this takes twenty minutes to clean. Get ready, ten minutes later I was on my way, very calm, almost looking forward to this as it will be one less pain hopefully.

Arrived in the anaesthetic room (1.30pm)  and saw Mr Joby John the surgeon. The theatre nurse said looking at him you need a mask I said no he is operating how will he see. She said the mask is for you laughing. She then said to Mr Joby John here are your  drugs "WHAT"  I said DRUGS. The drugs are for you she said, for him to give you during the operation. Everyone laughed, the nurse said you are very calm. The cannula went in, mask on, injected. The last thing I remember was the theatre doors. I thought to myself, I have never seen live in the theatre, I still did not, I was gone.

This is where things went a bit wrong. I started to have SEIZURES after the operation in recovery forty five minutes in all, one going in to another. (I found out later) I was in the recovery room a long time. Paul rang up and they said I was still in there five or six hours later. I was not going home today. I was taken to a ward and had another set of SEIZURES. The next thing I remember clearly was Thursday morning in pain and the usual feeling of having SEIZURES. Not sure where I was. A lady said I got to the ward around 8-00pm.

2nd

I was told a bit what happen, on drips, SALINE and PLASMA not feeling too good, exhausted. Big bandage on my knee more for protection than the wound.


Bandage on my knee with dressing under neath.
(This was redressed as it slipped down when I got home.)


The physios came to see if I could walk on my crutches, these were give to me before the operation in the day room. I could not walk, shaking like a jelly and in terrible pain everywhere. I was given ORAMORPH. I could have this if I wanted every one or two hours. Physios would come back tomorrow. Sat out of bed for a while but felt terrible and started shaking. I was put back to bed  They were a bit concerned that the SEIZURES would start again, something no one wanted specially me.
Paul came in the afternoon he was a bit shocked.

3rd

On, off, sleep, last night, Feeling a bit better but still feel very weak. The physios came again and I tried again to walk. This time very shaky still but not as much as yesterday still pain.They asked if I could do the stairs. I managed but I just about shook the crutches from my hands. I was passed fit to go. The nurse told me what to do exercises and said stitches come out in two weeks. Still not feeling the best but I was going home. Phoned Paul he said he would be here after dinner.

He left home around twelve thirty so here about two pm. Doctors letter and tablets and soon away.
NO an accident held Paul up at Newark roundabout. He got here at four thirty. I decide to go home in hospital gown and dressing gown, returning it at my check up in around six weeks. The journey was very painful and I still felt very weak. Home, Summer went mad to see me and was crying with joy. She sat with me for a lot of day.


4th

Lindsay here as Paul at football for the day. Lindsay cooked chips for dinner and afterwards Jamie-Lee made cakes. Tracy came later. I sat down and just rested most of the time.
After dinner I felt very light headed and sick. Lindsay helped me to the bathroom where I was violently sick. I then tried to lay down on the bathroom floor, not good as it ceramic tiles and cold.
Lindsay and Tracy helped me back to the chair where I continued to be sick. This is just about the last thing I properly remember. Lindsay, Tracy and Jamie-Lee stayed with me till Paul got back. They were getting ready to go home when I started to be ill.

Paul came home around six thirty, and I was slumped in the chair and not very responsive at all. Later in the evening I got worse, still wrenching and was very unresponsive and about 11-15pm he called for an ambulance. I was taken to hospital where I started to have more SEIZURES and still being sick till there was no more to come up, wrenching and in terrible pain like GASTRIC FLU. On oxygen and a drip Paul said the Doctor had a job to get a line in as my veins are very thin and hide when I am ill.  No wonder I have so many bruises where he tried. I had a chest Xray and a CT scan on my head and stomach. I was admitted to a ward around seven thirty am. Everything hurts, stomach terrible pain just about everywhere. The ward is very noisy as it straight from A and E.

5th

Trying to make sense of what has happened. The nurse sat me in a chair later, but I started to shake a lot so back to bed for me.Worried about more seizures, violent headache, the nurse said this is most likely dehydration. Still on a drip (three bags in total)  Lots of blood taken to test for electrolytes as very low (something to do with your blood)  probably because I was so sick. A horrible day and so much pain. Had to wait for pain relief as they were so busy, not good for RSD. That did not help much, not really any sleep either. If I sit up I start wrenching and feeling dizzy. Saw it get light from pitch black not a good night. I want this nightmare to end, but its not a nightmare its so real.

6th


Feeling quite a bit better but still quite shaky, still stomach and chest pain, knee not too bad, at least my head ache has gone.
I also saw the PHYSIO here as well and she had me walking with a zimmer frame.


 



Which I can take home with me and I have my crutches at home too. I got on quite well considering  my chest and stomach hurt so much and how shaky I am. She said I am fit to go.

I saw the Doctor and he said I have got a SOFT HEART MURMUR and my SEIZURES are a mixture of EPILEPTIC and NON EPILEPTIC  SEIZURES .The chest xray and a CT scan on my head and stomach were clear.. The heart thing is not a concern, but I need to see the Neurologist and will be sent an appointment soon. I hope it's Doctor Solinas  I see, as he knows me, from the very bad SEIZURES I had before. Anyway home in two hours time, just to make sure I am alright.

A nurse took out my cannula I pressed on it for a while, it was in my arm bend, I then sat and listened to my ipod. A bit later my arm felt wet, I looked down and there was blood dripping out. A big pool on the floor and all over the bed. I shouted the Nurse and she sorted it out. Did you press on it? Yes I said. The more senior Nurse said it can happen. I have at least two pints left he was joking you have around nine to ten. I had lost about half a pint he thought. Good job I did not go to sleep. I said to her you nearly killed me. She looked very scared but I made her laugh by saying I nearly did not go home.

I rang Paul he was surprised as we were told that I needed to see a Neurologist before I went home. Anyway I am not complaining two different hospitals in two days is not good.

Paul picked me up and got all my tablets and second doctors letter and we were off home.
The journey was painful my knee felt every little bump so did my stomach and chest.

Summer again was very pleased to see me and sat with me a long time. Poor Summer she does not know what to think as I keep disappearing.
Phoned up a few people to tell them I was home. I think if you ring up your self, and they have spoken to you, and not a messenger they feel more assured.

Bed time struggled to get up the stairs but I was looking forward to my own bed and not one that's get you hot and sticky. Home and please no more hospitals for a while.Mr Joby John did say it was a risk with the RSD and SEIZURES. If it makes my knee better it will have bean worth it.




Slowed down but not for long.


I put this short blog up to let you all know how things went with my operation.
All the best to you all and I hope you having a better time than me Love Gill.





















Leaving comments...

Some people I am told are having trouble leaving a comment.This should help.

Click on to comment next to envelope, at bottom of each posting, write comment, copy Text in box the same as shown, choose ID, click on anonymous, see preview, publish.

You can always leave your name in the comment if you wish.