I thought I would start this blog with the blossom and the trees that are coming into bloom after the winter. They look so pretty I think spring is here at last
I think spring has affected Summer as well, she was going crazy on the common.
Everything that hurt over the last few days has now returned back to my normal. My legs feel very heavy and hurt around the calves like when I cross my legs. My mouth took a long time to return back to its usual state. This still aches like I've bean hit. So nice not to have a hole in my tooth. Very strange to start with after all the filling came out Christmas time.
Right what else is happening-- Physio today same treatment as last week plus two more in my hands (19 needles in all) these are to help my neck, yes strange, ones in your hand help it, but they do I have had this before with Martin early on in my treatment and it helped a lot. The needle is put in and I turn my head and it gets easier. Trouble is it does not last. Wietse did something very similar when he treated me.
Nicola said the RSD is fighting back at every chance it gets. You would think it wants to get better but No it wants all the power.
The treatment itself went very well. When Nicola left me to relax with all the needles in I think I did zone out a bit as she said it was longer than normal time to be left. Usually about fifteen to twenty minutes this time it was about thirty plus minutes.
Walking home I felt very light headed and quite cold. Neck not as stiff.
Pilate's-- This went very well, I was able to do all the moves that I usually did before my ribs were cracked. I was pleased, I even managed the diamond press move. (Laid on stomach and lifting upper body. I could not do this last week.
Mouth back to normal now. I wish the rest of my body was. Shoulders hurt, legs heavy and I am having trouble with my left hand. Dropping things and pain. Carpel Tunnel I think.
My chest was very tight in the afternoon. I put that down to Pilate's.
I went to see Paul's Nana, She said she had not bean too good. Feeling faint and hot with a pounding heart. Not good at her age (97) or any age really. I hope next time I see her she will feel a bit better.
Knitting again and resting later. I felt quite tired. If only that would turn into a good amount of sleep.
Poor Nana was taken into hospital early morning with pneumonia and kidney problems. I wish her all my very best.
Lindsay and the gang here. Grand National day, this is a big horse race run every year.
Jamie-Lee was watching it and decided Summer would make a good horse. She almost squashed her flat. Her dog Suey is a lot bigger.
A good day, Lindsay and Jay-Jay won a little bit of money on a horse bet.
Gardening today putting in plants weeding and bug spraying. My sprayer broke as well so a new one is required. Another good day apart from this pain. Up to now most of the time the tablets keep it down to a purr and me being active stops it from getting to me. But lately its being taking over.
I don't really want to increase the MORPHINE but might have to. Hopefully its just a spike, after all my body has bean through a lot lately.
Not a good night, sweating and pain. Pairwise let me see, my neck is a lot better, hand hurts and is swollen around the wrist. Shoulder nerve pain and rash. My legs feel very heavy again I have to keep moving them around and the pain goes, it comes back again though. I have had this pain quite a few times. I think it's a build up of lactic acid. I used to get it a bit when I ran long distances. Sometimes there is an over build up, so pain. This is why you should always cool down after exercise. I getting it a lot more now though, not too sure why but it seems quite common in RSD..
Physio-- fifteen needles in all slightly different places from last week. Hopefully these will help with the sweating at night. No neck or shoulder ones this week as they are not too bad. One needle that was placed in my foot gave me a strange feeling, like a whoosh of heat travelling up from my foot to my face, very weird then very cold. This caused a sharp pain in my head. This lasted for the rest of the day. Nicola showed me how to massage my head to help. Last week when left to relax I actually zoned out. Not this time in fact I felt very unsettled and uncomfortable
Walking home I was light headed. Did a bit of shopping in town then home. After my bath I felt very light headed and dizzy I had to lay on the floor much to Summers delight, she licked me a lot.
Woke to sweating again and a headache.
Pilate's this week was not so good. A lot of spasms and shaking. I still was able to do the one leg stand at the end even though I was not still.
Came home and sat down for a while. I then started getting the greenhouse ready for the seeds. I have not started them off yet as last year was so cold. I put together the benches and Karol from next door helped me put them in position. Dug over the ground so its ready for anything now.
My pain was less at the end of the day and less shaking too. I did ache from all the work.
Night time more knitting. I am making a jacket for a birthday present for Emmie, Ben's sister. I have now finished the one for Jamie-Lee and also the one for Lauren my friend Bev's, granddaughter
Great no sweating when I woke up today.
Went to see Nana in hospital with Lindsay. She has improved a lot. She was asleep when we got there. When she woke she said we should go as she wanted to sleep. Typical Nana. She is in the same ward as I was when I first went in after Christmas. This made me feel very shaky, there are lot of things I still have no memory of. Also while there we went to see Cilia who is also in hospital, she was taken in earlier in the day. A busy day for visiting.
I now ache a lot, legs are killing more than after a race.
Paul is away for the weekend so I am on my own.
What a day for saving ducks!! Yes ducks- while coming back from the common a family of mother duck and about ten chicks were down the middle of the busy main road. All the cars were stopping. One I did not think was going to, I said to Summer don't look! she did not really know what was going on but the car did stop at the last minute. The duck went into one of my dog walker friends garden. We managed to get them back down Sincil Bank with a bit of help from a few passers by. The mother duck jumped up the wall to get back to the river but it was too steep for the chicks. So while I looked after the four dogs, three people caught and lifted them up on to the bank. Not an easy feat they run very fast. One little chick had Linford Christies legs and ran off straight towards the mouth of a the waiting dog. But it was alright he left it alone. With the last chick caught and back with the delighted mother duck. She was quacking very loud. Everyone went on there way. This was nice as people just helped with no question.
While putting the washing out I heard quacking and looked down into garage car park and there was a mother duck even though we could not see her, she was hidden by the ivy, with one or two chicks. A mechanic came out of the garage with another chick that was running around the workshop. I think he wanted to be a mechanic. We left them to it as the river is right next to the garage. I carried on putting the washing out. I heard a thud and the mother duck appeared on the floor followed by at least ten more chicks. They fell like lemmings from the ivy one by one, plop plop. I wish I had a video camera. They all toddled off in the way of the water. What a day for ducks.
Just as the family disappeared Ginge the cat appeared, if he had bean a minute earlier most of the chicks would have bean dead. What a close shave
Spoke to my friend Billy in Spain on Skype, who has RSD. He is having trouble with his legs too. He got RSD through a bad car accident. Other than the legs he is not doing too bad.
Nice to talk to a fellow RSDer.
Not a good night a lot of pain.
I finished off Jamie-Lee's Mr Tumbles top. She liked it and recognised him straight away. Also I gave her the teddy jacket. I got Jay-Jay and Tommy-Lee a tee shirt each so they were happy.
A quite night knitting and a bit of TV, spoke to Andrew my son I speak to him most nights on Skype. For those who don't know he lives in Amsterdam.
Finished off Jamie-Lees Aikido suit.
Not a good night, heard yesterday that Cilia is not well, she has pneumonia. Thinking about her a lot.
Good, Bev coming today so a better day for me we plan to go walking and have a meal somewhere. A small cafe has opened up at the Adult Day Care Centre just across the road. All the food is home made so we might go there. I am sure Bev would like that.
Bad new about Cilia, she has passed away.
I am so pleased Lindsay and I saw her on Thursday and she was in good spirits. I will always remember her that way.
A day out today at THE WOODSIDE FALCONERY AND WILDLIFE PARK. The boys loved it so did Jamie.
A picnic dinner was good but the chickens kept coming to get me. Some had escaped. I don't like feathered things. I think they know this as well.
The weather was a bit cold but it did not stop us enjoying our selves.
Everyone enjoyed themselves and were tired coming home.
In town today but getting a lot of pain in my shoulders and neck burning type. My legs are very heavy and my feet burning
After town I went to see Nana again she is not too bad. I saw a nurse that remembered me when I was in there. She said I was very poorly and looked a lot better now.
Wayne arrived about 7-00pm he is here till Monday so catching up and chilling out.
A home made chicken curry for tea very good it was too.
Lindsay and gang here. The day was warm so we sat outside and the children played.
Later the boys put on there Aikido suits and Jamie-Lee put on hers they did not know I had made one. They were shocked and did there moves to show Wayne.
Jay-Jay as mentioned before has got his blue belt. They said why has Jamie-Lee got a black belt?
Usually this pain stays in the back ground and is controllable but lately has bean a lot stronger. Those of you with RSD will know the pain I mean the one that does not go away. Watched a bit of TV then bed about 5am. I know some of my tiredness and pain is from lack of sleep but unless I drug myself I wake up after a short time with pain, spasms, cold, hot, etc. I cannot control RSD..... .
I did not get up till after nine not really a lay as I did not go to bed till five am. Even then not asleep all the time.
Lindsay here for tea with Tracy plus Wayne and Paul. We are having a huge turkey with all the trimming. No children either so very quite. Tea went very well everything tasted so good.
Very tired later and PAIN creeping up all the time.
Wayne's staying at Helen and Chris's tonight so a quite one for me.
Wayne's sorting out a few things on the computer and the laptop for me.
Tea was turkey and chips with salad. It was a big one so plenty left. Summer has got a lot for her tea as well. Made a few sponge cakes they did not turn out too good but tasted nice.
Wayne left to go home about 6-45pm, Paul took him to Newark to get his train. Home to Timmy cat. A good weekend with him here.
Not a good night a lot of pain and spasms, little sleep.
Making a cake for Ben and one for us a fruit cake, the type you put butter on- Ben's favourite.
The burning has gone from my shoulders and feet so that's good. One pain stops another one starts.
My hands are not too good either, dropping things a lot. This is a lot to do with the CARPEL TUNNEL but I think the RSD is playing its part as well.
she was awake but drowsy, I wonder if they woke her up while I wasn't there. We left hospital about 2-15am and Gill was still very drowsy. On arriving home I managed to get her into her electric chair in the dining/sitting room and made her comfy, still very drowsy she went to sleep. She awoke about 7-00am. She was very unsettled thoughtout the morning.
About 4-00pm she was transfered to cubicle 8 a children decorated room, she did settle a bit but still had a few seizures and all her obs were fine. Thoughout the rest of the day she was having seizures and they fitted pillars to both sides, the top and bottom of her bed for her own safety because her arms, legs, head and body are flying all over the place during the seizures.
The Staff nurse said she was settled and had had a good night sleep Gill said she had had seizures in the morning and also early afternoon. Gill was very upset and crying at visiting this afternoon, after about 45 minutes she started to calm down abit and my mum and dad arrived. This I think came at the right moment, I went to the loo and when I got back Gill seemed more relaxed.
During the evening visiting time Gill was very surprised when her brother David and sister in law Bev arrived followed by about 10 minutes later Lindsay, Tracy and our 3 grandchildren, Jay Jay, Tommy Lee and Jamie Lee, that reall brightened her up and put smiles on her face. About 15 minutes after they left Gill started with her seizures which lasted about 30 minutes. She settled a bit after that and the staff nurse said she was going to give her some Lorazapan.
Gill has asked me to add this at the end of this months blog
Well my bad luck continues this month and I hope May will be the start of a better year for me.
I hope you are all well