February. Birthday York Trip.


February 1st

Fair night not as much sweating, but my joints hurt a lot..
Very cold on the common bits of snow falling at times. Quite day today not doing too much.

2nd

Saw Doctor Mehta he is pleased with me, he said he can't do too much to help the sweating or the joint pain could be arthritis. He could put me on yet more tablets but neither of us are keen on that. Also they don't always work. So I just have to put up with it. Other wise I feel quite good I have a bruise on my right foot near the toes. I went over on it earlier today while on the common. At least this time I have injured it. Guess what it would have hurt just as much if I had done the other foot. RSD is weird!!! Joints hurt as usual.

3rd

Quite a bit of snow fell in the night Summer had fun rolling around in it. I have bean taking IBRUES for the last few days, they just top up the other stronger stuff I take and help a bit with the pain

4th

A better night, not much pain or sweating I feel like I have actuality slept. A very cold day and showers of snow the wind is like ice cutting though my face.

Pilate's went well and managed most of the moves apart from the foot ones and lifting arms over my head. I can lift them sometimes but they spasms up and are very painful I just do it my way. Some of the sitting down ones are harder to do than the standing version. I feel they are working the muscles well. Very tired in the afternoon so I had a lay down and went to sleep.

5th

Bit of a rough night, legs and arms jumping a lot, spasms as well. I ached when I got up, very stiff as well tingling in shoulders again. I loosened up after cleaning up down stairs. I know I am a lot better if I keep moving but I can't do that all day can I.

6th

I feel quite tired as not a good night. My legs were jumping and my body spasming up a lot of the time. Keep moving, I said to myself it will help. Its hard to keep going when I am so tired all the time. I do envy people who sleep all night. I have a friend who needs and gets at least ten hours of sleep a night.
I went into town to get a few things I needed. In the afternoon I had a lay down as we (Paul and I) are out tonight for a meal with friends.  I managed a sleep so I did feel a bit better all round.  The meal was good, nice to be out for a change.

7th

Up about 9-30am after a very rough night. massive spasms though out my body. Real bad sweating as well. I ache everywhere. Even my eyes seem to be out of focus. Lindsay here with the family later so I hope I improve a bit. A good afternoon with the children and Lindsay. Very tired after they had gone.

8th

My friend John's Birthday today I took him a card and made him a cake he likes cake a lot, especially a home made one. Happy Birthday John.

My legs feel like they did a run on there own last night. I just wish I could shake off this feeling.

9th

At last I have something that I hope will help me- acupuncture at the college.  21 needles in all-- 12 in my legs 6 in each, 1 in the top of my head, 1 in each shoulder, 1 each side of my neck, 1 in each arm and 1 in each hand. Hopefully this will help with the pain and sweating. Katie was treating me and Bel took notes. I have seen them both before and get on well with them.

10th

Today is a day I have not bean looking forward to, its the funeral of a good friend Sonia the lady who I made good friends with in hospital while I was in for six weeks. The funeral was nice as funerals go.
I was very upset most of the time. I did not expect her to die yet. Her partner Tony gave me a hug and said, what am I going to do? They had pictures of her but I was not strong enough to look at them. We will go back at a later date.
I had a sleep when we got back, when I woke I did not feel right. Bad head and a bit wobbly on my feet my hands were not gripping things either. As the night went on I got worse wrenching and not able to stand and a terrible headache. We spent the night downstairs, me in the recliner chair and Paul on the settee, very unsettled over night. I hope I am alright for my Birthday on Friday I messed up a few Birthdays last year with being in hospital.

11th

I did not make it to Pilate's, I could not even stand up. Two seizures in the afternoon. I had arranged for Lyn my friend to visit, she still came as I did not have anything catching. She brought me daffodils and tulips plus a present for my Birthday. Thank you Lyn. I just rested all day. I think there was a seizure building up and unfortunately there was - but I did feel a lot better after it and towards the end of the day.

13th

Happy Birthday to me 60 today. A lot of surprises a decorated rooms with balloons and banners.



 

 


Paul had booked a few days in York at a hotel for both of us for Sunday. Also a table for two at the Spice House Indian Restaurant where we went for Paul's late Birthday meal in November. Lots of cards and presents, loads of wishes on facebook I have not even got a facebook account everyone put their greetings on Paul's. John my friend came in the afternoon and bought me a card and luxury chocolates. Thank you John.

I rested as much as I could and had a sleep in the afternoon. We walked to the Spice House and sat down at the table. People starting singing, Happy Birthday I turned round and my family were all there, Lindsay, Tracy, Wayne, (he told me he could not get this weekend and was coming next week) my brother David and Bev his wife,  Paul had planned it all. What a surprise, more cards and presents. A lovely meal and even better company. What more could I ask for? Even the waiter joined in and took some pictures for us turning in to a right David Bailey. A lovely end to a lovely day Thank you everybody- especially Paul.xxx


 Bev (Sister in Law) and Brother David.
 Tracy and Lindsay.
 Wayne.
All my family together.


14th

My Birthday is still not over as Lindsay and the boys are taking us all to McDonald's for dinner. Tracy is not feeling well so not joining us this time. Get well soon Tracy. I enjoyed this just as much as last night. Everyone ate well, Jamie-Lee was fascinated by a worker making balloon animal's. After we had all had our fill we went back to our house. We had Birthday cake as well.


 This cake was very heavy, but very tasty.

 Jamie-Lee looking and thinking WOW. Jay-Jays eyes say it all.

Lindsay brought another cake from Cheryl, a Birthday present. 
 Jamie-Lee trying to pull the stars off.
 Not a very happy Jamie-Lee she wanted the cake.
 
The children played and I sat down, after all I have to take it easy now I am sixty years old. I do feel a lot better now, not quite right but very much improved.

Michelle and Pete, Paul's sister and husband came to see me also in the afternoon bringing me more flowers. My house looks like a flower shop now, all very nice and very much appreciated  I would like to thank everyone who sent me cards, flowers and presents, also greetings on facebook. Paul, Lindsay, Jay-Jay and Tommy-Lee for the McDonald's meal.


 These of some of the flowers I received.



  These were from Helen (my hairdresser) and Mond her boyfriend.

 Balloons I received at the Spice house from Family.


15th
 
I have rung or emailed everyone who got me cards or presents. Paul has thanked the people who sent me facebook messages.
We are on our way to York to stay at the Elmbank Hotel for three nights. It's a Birthday present from Paul, along with Wayne and of course Paul. No problems driving up there. We stopped at services and Wayne put a message on facebook that he was " looking after the elderly" cheeky monkey. Some one said we should of left him there.

We looked around York for a bit after Wayne had treated us to dinner. I had roast beef, Paul had roast chicken and Wayne had scampi. Very nice it was too. Soon it was time for Wayne to get the train back home to Halifax. We walked him to the station and said our goodbyes and he was off on his way home back to Timmy cat.

We walked back to the Hotel to check in, as earlier the room was not ready. We are in a great room with a FOUR POSTER BED-- and loads of room, more like a suite than a room very nice and a bath too, and quiet as well. What more could I ask for? A few days of good behaviour from the RSD that's what.



 What a room.


Night time we went for a walk into the town again, the wind was very icy and I was so cold.
Once back at the hotel I soon warmed up had a bath and watched a few bits on the television. Paul went to bed and I went a bit later after watching a scary film, Drag me to Hell. I have seen it before, but its a good film. Well worth a second viewing.


16th

Not a bad nights sleep, the bed was just right for me very much the same as our own bed, quite stiff this morning though.

 
 I look lost in this bed.
  

Soon we are heading out to the Railway Museum, we are told its very good. At the moment its raining, hopefully the sun will come out later and warm up a bit. We watched Fringe on my laptop.
The sun did not come out to play but at least it stopped raining so we headed out.

 We decided to have an early dinner, so it would leave more time to look around. We headed for the Railway Museum-- There is not a charge to see the collection, but a donation of three pounds is suggested. Most people give something. Wow there was so much to see, Old trains, the Royal ones too and the fastest train was there too, the Mallard train-the fastest train of its time. Everything to do with trains as well. A brilliant time and all free if you want it to be, donations were asked for.  I highly recommend, the amount of children there was high as its half term and they all seemed to be enjoying there time. One little boy was crying because he did not want to leave.  nrm.org.uk is the website check it out.

 
  Paul.
 Me.






 Me again looking down at all the trains.

 Chunell train.



 Something to do with changing tracks I think.
 An ornate gate that was part of a railway station.



 The fastest train of its time.

 Wheres Harry Potter?

We carried on looking around York, it's a very nice old City. A street called Little Shambles is where these pictures were taken.




 The houses almost meet in the middle.
NO.....I did not even go in.

  
 
  Just for you Wayne-(top-shelf) as my little figures woke him up while he stayed at our house at Christmas.

 We walked a long way and I was in a lot of pain despite tablets.






 These were taken on the way back by Paul.


We headed for the hotel painfully for me but I am not going to let it spoil these few days. I made it back and after a cup of tea had a lay down and went to sleep. I hurt everywhere this will ease soon I hope. Staying in for the rest of the day.

17th

We walked into the centre, Paul had his breakfast I had a hot chocolate.

 Tongue licking good.

We  then walked along the city wall where we could, Some of the wall has now disappeared due to war or building regeneration. I still hurt but not as much so far. The view is lovely as you can see so much more.




  
 After we walked as far as we could we went on a river cruise. 
These pictures were taken while on the boat.

 


 This man was in the water testing the level and waved to us.



 The boat we went on. This was good very relaxing as well.

This building looked a bit higgledy piggledy.

  After this we decided to go to York Castle Museum. This was excellent place, so much to see.


 
 
 



 Paul's Brother's Panda.







Beatles.

 Ginge the cat gets every where.



This picture was taken out of a window in the Museum.

 If you are ever in York this is very good place to visit.


We walked some more looking at things that we had missed the previous day. I am in quite a bit of pain took OXYNORM. This did not do a lot to help. Paul bought me a Swarovski  necklace very pretty.


The one Paul bought me is on the right, the other necklace Andrew got me for my Birthday- its a silver sixpence with my birth year on it and engraved on the back. The bracelet was a Birthday present from my Brother and Sister in law. All very nice.  


Spasms and pain walking back to the hotel was not good. We walked back very slowly as every step hurt. Spasms shooting from my hip into my back. Taking it slow helped.
Once back at the hotel I had a lay down and more tablets, I managed a few minutes sleep. Paul said I started shaking like I was going to have a seizure.

We are out tonight at a Indian Restaurant so looking forward to that. The meal was very good, as good as our own Indian.
 

 What a lot of food we had .

Back to the Hotel for the last night. Very tired but the pain has settled a bit.



 The fire was a bit warm.

  Pictures taken in the lounge.


18th

A fair sleep, legs going a bit. A thick sore raspy throat. Into the centre for Paul's breakfast. We decided not to stop in York or go anywhere else today. Just home James- All packed up and ready to go we checked out and said our good byes to the staff. We took a few pictures and we were off.


Me outside the Hotel.
and Paul.
This is just outside our room.


One stop on the way home, good going for traffic and pain. We called at Lindsay's to pick Summer up, Jamie Lee was not very keen on letting her go. I think Summer had a good time as usual. Also Jamie-Lee kept calling her Autumn, said that was her new name.

Home unpacked, a bit of toast then a lay down. I went to sleep for a while as well. Still raspy throat.
Chinese for tea, had a bath, bit of television then bed about one.

19th

Fair night, awake a few times, up about 8-30am. Still raspy and coughing up a bit of stuff if no better a doctors visit will be needed. I will see how this goes. Going out with Summer on the common raining a bit, I know she will enjoy this. Lindsay and children did take her out as well. I know how much she loves the common and so do I.

21st

Not really done much over the past few days just bean resting and a bit of knitting. I have bean having a sleep in the afternoons as well. Chest a bit better still coughing up gunk and raspy voice. A bit of pain in my chest. I think I can get away without a Doctors appointment.

Lindsay and family are here later for the day. They have all bean ill as well, colds, virus I think they have had the lot. 

23rd

Acupuncture today- I saw Bel this time. He more or less did the same treatment as last appointment. Twenty two needles in all. Five in each leg, two in each arm, one in each hand, two needles in each side of my neck/head and finally one in top of my head and one in forehead. These hopefully will carry on helping the sweating and the joint pain. Also help my chest get rid of some of the congestion. Hopefully have a calming affect on me.

A bit of shopping then home. Very cold icy wind has given me a head ache.

24th

The last two nights have bean bad for sleep, just not bean able to settle, not really that much pain or discomfort. I feel very tired all the time.  Headache for the past two days.
Went into town with Paul to take a lot of things to the Charity Shop. We had dinner in town and did a bit of shopping. Cold in town and still the icy wind.  I was quite pleased to get home.

25th

No Pilate's today as Jo is ill, sounds like the same thing I had. Cleaning up the bedrooms and changing the beds.
I watched the Brit Awards at night I picked out my winners and was right everytime. Madonna fell off the stage, she was unhurt though. It looked like she was pulled by her cape. When I watching it, she seemed to have trouble unfastening it. I wondered if it was supposed to be pulled off by one of the dancers. but because it was not unfasten- she got pulled as well. She carried on though like the true professional she is. I enjoy the pop scene. I still listen to Radio 1.

My throat is better than it was but still very sticky and a cough, but I am fighting back.

26th

A better night for me but I still feel not right. Heavy head and tender cheeks. A wet walk today as the rain fell down. Summer had her coat on. This keeps her back dry but she gets very wet on her legs and belly. We both enjoy the walks wet or dry.

27th

Awoke about six thirty to a terrible headache. Top of head and forehead and behind the eyes. Took some IBUES and tried to get back to sleep. When I awoke the pain was still there. hopefully a walk will sort it out. Not this time the wind was cold and made it worse.

Decided to have a lay down. Things did not get any better, the next time I came downstairs was Sunday night.

28th

Most of today I was asleep. I think I have got another virus!!!  Everwhere hurts and my head feels like someone is sticking a knife in. I am very hot and sweating buckets. Night time I woke and was too hot. I tried to pull the quilt off me but I could not move my arms. I tried moving my legs but they would not move either. I could move my head only. I shouted Paul and after a while he came and moved my limbs. He thinks they had gone into spasm because I was dehydrated. Very scary.

1st March

Much the same as yesterday. Still dreaded head ache. I had a seizure later in the afternoon but not a bad one. Later I tried to get up and walk but was too dizzy. Went back to bed and slept. Later I managed to walk and go downstairs with three stops. Summer was there to meet me. I still feel very wobbly but a little better than I was.
I had a bath later with the help of Paul I really did STINK even Summer turned her nose up at me.


Well not the best of months for me but the only way now is UP. Paul said there is always another virus waiting round the corner to strike the weak. I hope you enjoyed the pictures and things are a bit better for you      Love Gill.



JANUARY- BETTER TIMES AHEAD?


January 1st

Happy New Year to everyone and I hope this is a better year for me.

2nd

Woke up with a violent headache. I have had a bad head for a few days but nothing like this. This is like someone squeezing my head. Paul took Summer on her walk. After some IBRUES I went back to bed. About 10-00am I got up, still a head ache but not as bad. Things got better as the day went on. I know there are a lot of virus's going round. So I hope I don't get one of them. Could be the tablets even. I have stopped BACLOFEN today. I was only taking one in the morning.

4th

Not a good night again pain and spasms.Very cold today a very sharp frost looked like snow first  thing. A lot of pain in my hip and right shoulder. Today I am sorting out the tiny baby clothes that Jamie-Lee wore when she was born. She is having them for a doll I have got her (Baby Anabelle) when she is a bit older.


 So tiny.
 That's a new born baby grow next to her she in tiny baby up to 5LB.
  Jamie-Lee a few days old tiny.

Now look at her, this was taken four days be for her second Birthday.

Bed late tonight well about 3am, I was watching a program- Katie Hopkins My Fat Story, a fit sun journalist who was under weight who ate herself stupid, to gain weight to prove if you eat more you get fat. Bigger people usually say they can't loose weight no matter how hard they try. The aim then was to loose it all again, in the same time it took to gain it. She nearly did it as well just a few pounds short. The weight she kept on everyone said she looked better than be for.

Lindsay has got Jamie-Lee a new bed, Lindsay thinks she wakes herself up by knocking her legs and arms on the sides of her cot. She is sleeping in it tonight hopefully she will sleep better it will help Lindsay so much as she doesn't get much sleep at the moment.

5th

I now weigh eight stone, just, in my pjs. Early December 2013 I weighed eight stone twelve pounds more or less.
Jamie Lee slept well and only woke up once briefly - keep it up Jamie-Lee.

 Jamie-Lee fast a sleep.


I slept quite well too, only a short night but I feel rested. I feel different to what I did a few weeks ago too. I hope this means the seizures have stopped for good, I hope so but no one knows.

In the afternoon I went into town for a few bits. First time on my own as well. On the way back I timed it right for my appointment with Dr Mehta, He is pleased with me and said I looked well. I told him I felt better too. I bought him up to date on the tablets and he said I can stop the DIAZAPAM too. I was taking just one at night, as between us we have bean knocking them down one by one. This one makes me feel heavy headed in the mornings, back to see him in a month.

7th

Today I am going back to Pilate's, the arm chair one as I call it. Some I do standing up though. I  enjoyed it and I did feel better and looser after it. We did some moves I have not done before and used a disc. We sat on it, and stood on it- its a bit like a balance ball feeling even though you are only a few inches off the floor its quite hard to balance its makes you use your core muscles of which mine are very strong.


HOME GYM AEROBIC FITNESS EXERCISE YOGA PILATES CORE CARDIO BALANCE WORKOUT DISK

I still would like to get back to my own class. I hope after five weeks at this one I can. Just rested in the afternoon a bit of a shock to the body after Pilate's and not doing them for a while. I have done a bit at home but its never quite the same.

8th

Not a good night, in fact the worst for a while. I went over on my foot just before going to bed. This hurt a bit but not enough to take anything extra. After about half an hour in bed the pain was extreme. I thought here we go again RSD making a mountain out of a mole hill again. The pain got worse and spread to every limb, and my head was spinning like a top. I took OXINORM, this did little to help I was having very strong spasms as well. A bit later I took two 400mg IBRUES this helped as well  along with the OXINORM. This made me itch as I have not taken too much since my stay in hospital. I settled to sleep about four thirty after Paul had made me a cup of tea.

Haircut at teatime at Helen's new flat. A lot better and bigger than the old place. We all had Chinese, nice but not as good as our local one.

9th

A better  night, I thought it could not have bean much worse but of course it could have bean. I did not end up in hospital this time.

A sad day today one of my friends died, Lindsay and I are going to his funeral. He used to work at the Cathedral and his son still works there, so it was held there. This was quite hard for me as it brings back my parents funerals. I did all right though the coffin was covered, apart from when it was blessed and being carried out, I shut my eyes and kept my head down. As funerals go a nice send off he would have liked it.


A quite afternoon watching the first series of Fringe even Paul watched some. He says some of the stuff I watch is crap but he enjoyed this. He got me this for Christmas, six seasons 101 episodes.


10th

A very windy day, we have weather warning in place with gales up to 100 miles an hour and also rain. Very rough on the common with Summer. Nice at the same time, cold to my face.

Lindsay and family are here later. The boys were mostly upstairs on the computer, Jamie-Lee played with Summer and Suey. She played with her pram as well and liked the new covers I had made for her. She said her baby liked them too.

Jamie-Lee's little pram and cover set I made.


11th

Not a good night, pressure headache again. My full body aches today. Very cold on the common I think snow is on the way again.

My brother and sister in law are are here for tea. Paul has got everything ready and I will be doing the washing up etc. We all enjoyed the tea and each others company.
When I had a bath later I noticed my knees were very swollen no wonder they hurt. I am often asked why they swell up, the answer because they can. RSD does not take pity on anything in fact it kicks you when you are down.

13th

Another rough night my legs and body jumping a lot, even when they stopped it still felt like they were still jumping. Not much sleep either. I have bean thinking about my sleep pattern or lack of it.
When I was in the hospital I was very drugged up and this knocked me out quite a bit. Now the drugs have worn off completely I think my body has returned to how it was be for the extra drugs.

I have knitted a little baby goat it only took a few hours to do.

Baby goat seen here with the other goat I made. These are for Sally.


14th

A very cold morning with a sharp frost, the common looked very pretty.


Pilate's again I enjoyed this session even though it made me hurt, I hurt for a reason and I did feel looser later. I still hope to go back to my original class next term. Did the ironing in the afternoon.

I have started taking MELATONIN again to see if it will help me to get into a pattern of better sleep and stop asleep most of the night.

15th

I am going to see Lindsay at her house for a change. When I got there Jamie-Lee said where's Summer. Suey was here Saturday so I think she thought Summer would come with me. Funny thing was I nearly took her. She was playing with some of her Christmas things. So for the next few hours we played with the babies, (her dolls) with her castle and more things as well. She showed me her new bed. She said I could sleep there and she could sleep in Mummy's bed. I did fit in as well. Lindsay's bed is very bouncy and she jumps on it when she can. Her favourite film at the moment is Frozen as with many girls and boys. We were singing the song Let It Go and laughing as well. She does not usually have a day time sleep now, so no rest. Lindsay said now you know how I feel, she is like this every day, full of fun and chatter. I said just the same as you were.

When the boys came home from school Jamie-Lee and I hid under her blanket to surprise them as they did not know I was coming today. Kisses and cuddles all round. I enjoyed my day with them all.

16th

Today is a big day for Jamie-Lee-- she is going to school as she calls it. Really its pre-school/nursery. Lindsay was not sure how she would be, a few tears and not wanting to go in. No- she was fine straight in and played with the other children. When I spoke to Jamie-Lee she said she decorated a cake, but Suey, there dog, ate it. I am pleased she enjoyed it, she'll go two days a week. I think it will help Lindsay and also Jamie-Lee. Lindsay can get things done and Jamie-Lee will learn to play, and share her toys with others her own age.    
 Jamie-Lee with her cake.


This afternoon I did a few bits in the garden and a general tidy up outside and also prepared the green house for spring planting. Quite a nice day very warm in the sun. I payed for it later as I ached so much.


18th

A very cold night, I woke up a few times cold. My temperature changes have bean quite bad this year so far. I suddenly start sweating just sat still or very cold to the point of goose bumps on my body. Weird RSD really messes up everything. I think as time goes on the pain does get a bit less. Not as violent. On the other hand pain is in more places than it was. A nice walk on the common that will sort me out. Very cold and frosty.. 

Lindsay and family didn't come yesterday, Lindsay was not feeling too good. I did see them all, the day before though.

A bit of snow about 11-00 pm big flakes. I thought they would settle, but not to be this time. Wayne has had snow over the weekend in Halifax.

20th

Lot of left hip pain in the night. 
I'm in town with Lindsay, we're getting Jamie-Lee some shoes. She was very funny in the shoe shop. She was trying on shoes that were too big and saying them nice. She also picked up a back pack and said it was for school.

 Shoes bought.
 Jamie-Lee in her new shoes.
Jamie-Lee with Tommy-Lee and her big doll on the chair.


We went to McDonald's for dinner, when the music came on she started dancing and asked us to dance which we did, she wanted everyone to dance. She fell asleep on the way home sleeping for two hours. Lindsay said she had not had a good night.

Had homemade lasagne for tea very nice it was too. My hips and wrists hurt a lot today. Elbows joined in later.

A bit of snow later.

21st

Average night with pain. Snow has not settled, a bit more fell mid morning while we were out walking. The wind was very cold but Summer never seems to feel the cold though.
Pilate's went well I was quite stiff when I went, after the session I felt a lot looser. I managed most of  the moves apart from the toes one on my right foot.

Wayne rang up and said we have a lot of snow in Halifax even the buses had stopped.

A bit of knitting at night, I am making my brother a pair of gloves. Like me he has a problem with keeping his hands warm. These are made from 80% wool so should do the job..

23rd

Not a good night, pain in hip and leg plus of course the foot. This hurts I think because it can.
When I got up I felt dizzy so I went back to bed for a while. After this extra bit of rest I did feel better. Very cold again on the common I think we will be getting some more snow soon.
A quite day for me today doing the blog and resting. Popped round to see Ben next door he is doing alright. I feel better than I did as well.

24th

A better night at last but still awake at 5am. Pain down left side, quite bad, pain levels have bean up quite a bit this last week. Maybe the cold, doing more or just the RSD or all of them.

We went to see my sister in law Pam, and brother in law Malc, Paul is fixing a new cooker for them.
Pam has really done well as she had a massive stroke and a brain hemorrhage a few years ago. She was in Sheffield hospital for a long time and also in Lincoln as well. She still has no use of her right hand, but regained use of her legs and can walk a short distant.

Lindsay and family not here today, little Jamie-Lee is ill, the same virus that Lindsay and the boys had. Aching limbs and a high temperature not nice at all. Get well soon Jamie-Lee. The boys will look after you like you do when they are ill. I hope they are a little gentler than you though, Little Miss.  

Not too good a day for me pain and more pain. I even went to bed for a few hours in the afternoon, I did not really feel that much better. Sat down the rest of the day. Bed about 1-00am took two 400mg IBRUES before I went up, I hope this will help.

25th

I could not settle extreme pain left side of head above eye brow. My heart was beating that fast it hurt. Painful spasms just about everywhere. I took 10mls of OXYNORM which Paul gave to me.
Hot sweating and not too good at all. I then had a seizure lasting about a minute and half, Paul said a full blown one with arms and legs going. I settled after this and had a cup of tea which Paul made. Awake a lot more the rest of night/morning no more seizures though. I was up about 10.30 still very much feeling the after affects. (Paul's bit...As the seizure started a million and one things were going through my mind, how many seizures do I wait until I dial 999, how long will she be in hospital, and its coming up too her 60th birthday I do hope she isn't in for it as she was mine. But thankfully she took it in her stride, didn't panic and soon got on top of it. Well done Gill)

We both took Summer for her walk I ached but was pleased I went, as sitting around with pain does no one any good--- least of all someone with my problems.
Later in the afternoon I had a lay on the settee and went to sleep for a while. My body is hyper sensitive again and a fair bit of pain as well. I try not to take extra MORPHINE as it messes up the normal dose and the body wants it all the time. I know things will calm down soon so long as I don't have any more seizures.

27th

Better night all round. My friend came round first thing to tell me her mum had died quite suddenly. She went very peacefully in her sleep. So not the best start to the day

We are both out today day at Sally's a bit late setting off, we got stuck behind a tractor as well. Things like this happen when you are running late. We got there and Sally was busy sorting out horse bridles.
We had a cup of tea and I gave her the goats I had made for her, plus Christmas presents.

 

She liked them all. I think the bigger goat is going to be called Dixon after the ward we were both in not sure about the baby one.
After Sally's, we carried on into Mablethrope as its very close by. We had fish and chips too they were very good and the fish was sweet. A look round but not much open as most closed till Easter time. A look at the beach and sea. Quite calm and peaceful, just what I needed after the bad news.

The journey both ways was good as well, a few spasms but lets face it I am not going to be like I was before RSD am I. Not sure if it was the fish and chip or just eating at large dinner as I had a bad stomach pain and bloating for the rest of the night.

28th

I was very stiff this morning and a walk with Summer sorted it out a bit. Joints are very tender. I have Pilate's later so that will help a bit I hope. Everything at Pilate's went well and it did loosen me up as usual. I was hoping to go back to my original class but Jo said its full at the moment.

After Pilate's I went into town. Paul dropped me off. I wanted wool to make Jamie-Lee a cardigan. I got her a doll from Oxfam charity shop for £3.50. This is a big doll and fits Jamie-Lees baby clothes for about three months old. The suit she is wearing was the one Cilla and Ben got her for her first Christmas when she was nearly four months old old. I was pleased as now she always has it to remind me of them.
 
 Perfect fit.
Jamie-Lee in the suit at Christmas.




29th

Today Paul and I are going to see Bev at Beeston near Nottingham. When we left the snow falling in Lincoln.
A good journey a good cup of tea and a chat, I was feeling quite relaxed. Soup and bacon sandwiches for dinner. The snow fell very quick here and soon there was a good covering. We were all saying how much Summer loves the snow so she will be pleased on her walk tomorrow.


Russ had an operation on his knee in the morning. We heard later everything went well and he was able to go home. Get fit again soon Russ.
When we got back to Lincoln there was no snow.
Very tired later I think the seizure I had Sunday took more out of me than I thought.

31st

Not a good night sweating a lot hot and cold. Joints painful today as well.


Lindsay and Tracy are here but are going out for dinner with Selina for her Birthday. Happy Birthday Selina. I have got the children for a few hours. Jamie-Lee is still not too good, a bad cough and runny nose. The boys are not much better. They were all very good. Jamie-Lee loves her doll calling her big girl and not a baby. I think most of the clothes were on/off thoughout the day and at one time had three sets on her. She found out she does not fit in her pram but we have a bigger one for when she is older.
 
 
 A bit too big, said Jamie-Lee.


The boys were mostly upstairs in the chill room. Jay-Jay had brought his laptop and Tommy-Lee his Ipad. Most of the time they were on them or colouring. Dinner was eaten and enjoyed by everyone the boys having seconds chips, sausage and chicken dippers.

Lindsay came back after a nice dinner of pizza and they were pleased to see her. A good day, nice to have the children I have not seen much of them this year- tired but happy and enjoyable day.


A mixed start to the year but a better one than last year. RSD is a hard thing for anyone that has not got it or heard of it to understand. How can you be running around one day and almost crippled the next??? RSD that's how-- when I try to explain I liken it to MS then most people get it.

I hope things are going well for you and the RSD is calm. Love as allways Gill.

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