JANUARY-A NEW YEAR A NEW ME?

To start I will wish you all a Happy New Year I know I did this at the end of last year but this is the start I hope, of a better year for me as the treatment I have bean having is helping a lot.

Even when I was ill with bronchitis and a throat infection I did not suffer as much as I have in the past. I know there is not a cure for RSD, but this is helping me. Just as it did with Wietse.

So why is the National Health so against physio and acupuncture long term? They will pay out money for tablets that cause no end of side affects and pain but not for physio treatment. WHY?  Also for the obese  people who  get help, with gyms and personal trainers FREE - the cost  being covered by the National health. I have to pay for my treatment and my tablets. I think some times, certain types of people get forgotten about just because we don't fit the criteria. Well that's me done for now.

All the family.

1st January

After all the Christmas and New year activities I feel quite drained. Pain levels are up,  so a bit of extra MORPHINE was needed. Also a bad head ache that does not want to go. When I bend down it feels like my head is going to drop off.

Paul and I have bean to an auction, I used to go to a lot of these when I was younger with my parents. I enjoyed it a lot, guessing what things would make, most of the time way out. We did not buy any thing as this was an antique one.  We hope to go to a more general one soon.

3rd

In town today but hips are bad very painful in fact most of my joints hurt. I  think this is the damp cold weather we are having. I have got thermals on and thick socks.

At the moment we have a lodger (Tracy), so at nights we have bean doing 3D puzzles, these are built up in layers so different to a flat one, more of a challenge We both enjoyed doing them.

Late night early morning, my feet were so cold they were blue and red I could not get them warm, also a weird thing tooth ache at the same time. This has happened before I think its the RSD  nerves playing up. I have had my teeth checked and they are alright. The pain seems to come when I have bad RSD pain. Have I had not got enough pain all ready without the teeth having to get in on the act too.

4th

The common where we go for our walks is like a muddy, wet, car racing track. Summer just goes in all the puddles and mud she can find. She had to have another bath. We are going to keep off the common for a while till things improve. We are lucky as there are plenty of places to go for walks near by. Hopefully Summer will keep cleaner.

5th

Took the Christmas decorations and tree down down today, it looks so bare now. In the afternoon I did the gardening there was a lot of dead bits to cut off and pull up. Looks nice now. All the spring bulbs are coming up as well. Still cold feet and the dreaded headache.

7th

Spasms in the night legs and feet. My toes on my left foot hurt a lot and are very stiff and tight. My balance that was good,  has now deteriorated a little. My temperature changes have bean all over the place, cold then hot and then both together. This could be from no physio since last year. First session is on the 10th. Very cold here as well I think it will snow soon. I like snow and so does Summer the RSD does not but there is not much it does like is there?

9th

First pilates session of the year. Even though in a bit of pain and still that damn headache. I did quite  good some of the new moves I could not do. One where it would have caused a lot of pain and spasms. Jo gave me an alternative one to do which seems just as affective. It was a good session and the first one of many I hope.  

10th

Physio - Three of the team and Martin this week - the team has split up as they are in great demand. The usual pulse and tongue observations taken. They have asked me to keep a food diary to see if certain food may be affecting me. I don't think so but I am willing to give it a go.

They asked how I thought the treatment was going I said well. I told them about my balance being better then not as good when the physio stopped over Christmas they were pleased with that result.  As I said be for they will not cure RSD but anything that will make my life a little better I will take with open arms. Ear pins in left ear they hurt a lot. The pain is like having your ears pierced with the same burning sensation. Martin then said some thing new for you today. He went on to say to the team put a towel under neath in case some thing drops off!!! What? all the time with Wietse I said, nothing ever dropped off.
He explained this was called MOXA STICK to help with my cold feet and circulation. This looked like a fat cigar that was lit and got hot. (The towel was to catch any ash that fell off. Not any of my bits. This was held close to lower leg and moved slowly around in small circles. I could feel the warmth. Martin asked if any thing was happening to my fingers. I looked and they were very red, plump and warm. Very strange. On the way to physio I had a bad raynards attack so my fingers had only just  recovered. Later on both feet felt warm.

11th

Very tired today I ache a lot still this head ache is hanging on.  This does not go away for long even with pain killers. Pity there is no RSD killers. I think a lot of this is from the after affect of the infection and bronchitis. Most people with RSD take longer to recover from even the slightest illness.

12th

A nice sunny day for a change but cold, snow getting closer I think. Lindsay and the boys here. I looked after them while she went shopping taking Jamie-Lee with her. Jamie was a bit grumpy, but she did  had a three injections on Wednesday.

I managed to bash my elbow on a cupboard also I hit my my knee on my strider. More pain added to the rest. Headache is not as bad today or it was not, till the boys got here. No there are not too bad but can get very noisy at times. A fair day in all. When I went out side about 3am it was snowing not a lot but a few flakes.

13th

A fair nights sleep I slept from about 4am to 8.30am. No spasms and not too much pain. Just a fine covering of snow in places. When I went out with Summer it was sunny then thick fog. Where can you get so many different types of weather in shush a short time but Britain and may be Holland (where my youngest son lives). A steady day so not doing too much. Head ache still  hanging on. Not as bad so hopefully its going.

My  left leg has bean hurting when I looked there was a lump just a few inches below my knee. I think this might be some thing to do with my veins. If it still there in a few days I will get it checked out at the Doctors.

Early morning about 2am I went out side and there was about an inch of snow all white and bright lovely. Summer was playing in it, rolling around and jumping  and she  did not want to come in.

14th

Woke to severe spasms in left leg, same spot as lump. I still have some cream from when I had vein trouble be for so I am using that. My leg is hot and swollen it hurts when I put weight on it. I am trying to avoid a trip to the Doctors as I spend too much time there it is. I never know how much pain I am really in because of the pain medication I am on covering it up. So is it serious or not?. Pain from your body is there as warning that some thing is wrong.

Hair cut and coloured tonight I hope, so long as the snow is not too deep. Helen arrived with Chris to do my hair. Chinese for tea - it was very good. My hair looks good as well.

15th

My friend Bev is here today. We exchanged Christmas presents (we did not see each other at Christmas as we were both ill). I got a mug, a lavender wheat bag and a pot of jam - which was very nice. I made her a hat and scarf mitts set. I did not have them finished at Christmas so the few extra days were good I finished them for when she came here. She was very pleased as well. A nice day catching up. I walked down to the train station with her with Summer so an extra walk. Very cold too. I was so tired when we got home  right shoulder burning. My shoulder still burns and is painful after walking. More so than my legs.

16th

Pilates - This went very well no problems with the moves at all. Some I don't do quite the same but I do it my way. Jo is quite happy with that. The hall was cold but I was alright as I was near the heater again. I think that is my spot now, as everyone else gets too hot there. I think its nice- cosy.

Went on to see Lindsay, my Daughter and Jamie-Lee. She has grown a lot and weighs about 13lb I think now. She is 18 weeks old still small but quite noisy when she wants to be. She is talking in her own way as well and shakes her head as if to say no. Very sweet. She was a bit chesty though.

17th

Physio - Usual talk and pulse and tongue checking. Gave them my food diary for them to discuss. Today treatment was ear pins in right ear. Plus two needles, one in each ankle. I was a little concerned about the RSD ankle as I know it can go into a strop and cause a lot of pain and spasms. I agreed saying if any problems the needle could come out straight away.

My foot stayed in spasm most of the time but was not too painful. I was pleased. The team were saying how much better I look since I first  started going there. I said yes its because ACUPUNCTURE suits RSD and me. Also my B12 has taken affect. This I had on the 8th of this month. These are two months apart now. Depending on the next blood test they might be a month apart.

I will be all ways grateful for being recommend by Bev for this physio treatment.

19th

A lot more snow has fallen. Summer is still rolling in it at least she keeps cleaner. I have taken a few pictures from mine and Summers walk, and in the garden.

 

 

 Wheres all this white stuff come from?

 

 

 Where's my legs gone?

 

 Summer looks more like a white lion than a dog.

 Summers boyfriend Bertie, in the red coat.

The snow makes every thing look bright and clean. I love the snow some thing magical for me. I know RSD and cold don't go together but a few layers and keep moving and most of the time I am alright. Not such a good night spasms and pain in legs. Walking in the snow makes my back and legs hurt a lot.

21st

Yet more snow about three plus inches. Still quite a lot of pain, balance off a bit as well. I did wonder if the ear pins had slipped or just a few off days. With RSD I can never be sure. Temperature changes are bad. I have taken quite a few extra IBRUES over the last few days. Also a bit of OROMORPTH.

22nd 

Had a bad neck spasm while in bed I just lifted my head and the pain shot down my arm and back .. I could not move at all. A bit scary . Martin has explained about this be for but I am going to ask him on Thursday again.


23rd

Pilates  went well even managed to do a few moves that I can't usually  do. My joints all hurt not too sure this is RSD or   FIBOMYALGER or just  mixed. Gave in and took MORPHINE the other tablets hardly touched the pain.

Jamie-Lee at Christmas.

Poor little Jamie-Lee is ill she has got bronchiolitis - inflamed linings of the lung and the openings and if no improvement she will need to stay in hospital. She is quite poorly. Still smiling though. The afternoon was spent hemming and altering table cloths for a friend.

24th

Physio-Still in a lot of pain so took some more MORPHINE before the session.
The team and Martin did the usual pulse taking and tongue looking. A few questions as well. The team said over all my diet is fairly good. Probably a little too much eaten late night. I don't need energy then, so could keep me awake.
Pins put in left ear apart from one spot that I asked for one not to be put in  as still sore from last time.That's the only negative thing about the ear pins they can make my ears very sore and painful. A good massage of back and shoulders so nice and calming.

I asked Martin about my neck. This is what he said, the vertebrae are not in line so when I lift or move my neck the one out of enlightenment stays still until the last moment then sort of jumps trapping or pinching the nerve hence the pain and numbness and paralysing on some occasions 

Message from my daughter, Jamie-Lee has gone into the hospital. I was there at night when the Doctor came round and he said there is a lot of  bronchiolitis    around in babies and young children. He thinks she is over the worst as it has peaked and on the way back down she does not need any special care or oxygen and would be safer at home away from the nasty bugs that hospitals have.. She was monitored while there. The bronchiolitis will last about two weeks or more. Also as she is getting  better on her own this will build up her immunity.

I don't feel that good my self a lot of pain still in joints. I gave in and took some more extra MORPHINE. I have bought a scarf with heat pads so it keeps the neck warm and pockets for the hands.Trouble is the weather as turned warmer. This is UK so it will be cold soon so I can properly try it out.

27th

Not a good night I could not get pain free every position hurt. I have got the feeling of the base ball bat hitting each joint in turn. My knees are quite swollen and red . Very painful.  Awake a lot of my short night.

Over night we have had a lot of rain and just about all the snow has gone.A  bit of shock to someone you saw the snow at yesterdays  tea time and did not go out again till this morning.

The common is very wet again at least with the snow Summer kept cleaner. She did pick up all the snow on her belly and paws. Most days she  had to have a  shallow bath or the hair dryer used on her to get the snow to melt.  She loves the hair dryer and goes all daft and playful.

Jamie-Lee is improving a  little but like I said this will take time.

28th

Still a lot of pain in joints but I am keeping moving. Cleaning up, I dropped a tin of polish on my RSD foot. The pain was unexplainable. I just about passed out, trying to control  breathing  while laid on the floor. Not a good thing to do.
When I looked later my foot just had a small mark on it where the tin hit it. Quite a few tablets taken plus a bit of extra MORPHINE JUST. On a good note my lump in my left leg has just about gone.


30th

A very windy sunny day I all most got blown away on the common. A bit shorter walk as my physio session is at 10am instead of 1.30pm. Very windy going there.

Usual pulse etc. Ear pins in right ear. Told them about my joint pain that has got no better. Also had a nose bled most days this week some bad ones. I thought this had come to an end but I was wrong. Two needles one in each foot. My right foot (RSD one) always spasms up when touched. Today it did just that. My right  leg is very shiny, RSD symptom.When touched my foot is still sore from the polish tin drop.

Next came the best bit, a back and shoulder massage by one of the team very soothing but painful as well. She pressed around my spine and found a lot of tender places.

I walked back home took Summer for an extra walk she was excited as most days we have just one walk now since it gets darker earlier. Not back long and Lindsay and the boys arrived. Noise explosion.

As you can see not the best start to the new year but probably not the worst either. Things can only get better. I do hope so.

All the best to you all. Love Gill.

DOWNHILL DECEMBER

1st December

Today started with a bad headache. My ears are burning from the ear pins. Two have dropped out, Three are left. I think the RSD is reacting to them.

 

Three of my ear pins.

On the common while walking Summer I slipped, I tried to stop my self from falling and pulled my back. I now have shooting pain down my legs with a lump in the center of my back.

5th

Pilates- A lot of the moves were painful because of the pulled back but I did feel better later in the day. My daughter came with Paul to pick me up and had Jamie-Lee with her. Every one liked her. As usual she was hungry so a bit grisly. Another pin fell out so only one left. Bed late 6.30 am because I fell asleep for a while.

6th

Up about 8.30 I feel quite stiff back hurts this got better as the day went on. Physio - The usual questions and pulse taking. I think the team are interested in my RSD as they go on this Blog. Speaking to them I said what was done last week was a bit too much for me. (massage ear pins and acupuncture). They agreed.
Martin asked about the ear pins. I said its hard to say as every day is different. I did say my balance was a lot improved. Pain levels are a bit up and down. Also its very cold now. As most of you will know cold is not the RSD’s friend.  No snow here as yet but other places have some.

 This week Martin put pins in the other ear (left one) the ear went very red.

The pins covered with plasters.

 This made me feel very light headed and hot. I soon recovered though. They were very pleased as they did not want a repeat of last week when I had a blackout. A massage from one of the team, it was very soothing. She said I did not feel as tight in my back and neck muscles.  Later on I had a sick feeling and weird taste in my mouth. My ear felt very tender when touched.

7th

Not a bad night for me slept from 6am to 9am. I feel quite stiff but not too much pain. Ear a bit sore on pin at the bottom. I have a sick feeling still a lot of the time as well. Not sure if this from the treatment or something else.
My hip hurts today but I have bean doing a lot of walking. Took Summer on the common at the moment its very wet and muddy. She loves it and slides on her belly in the mud and water. One very mucky dog came home.

9^th

Today I had about the same sort of day as the previous ones. I think I am getting a cold or some thing as my throat is sore and I feel very cold a lot of the time but also very hot at times as well. I hope I am wrong.

11th

Not had a good night, spasms along with hot and cold sweating as well. I need to go into town today as well. Got too much shopping and just managed to get it home. I suffered for it pain everywhere - spasms, as well as shooting pains all over.
After sitting down for a while for a rest and cup of tea I got a violent headache and my nose started to pour with blood. This went on for a while.  I took some IBRUES   and this helped a little. My headache calmed down only to return more powerful later in the night. Not a good day.

12th

Pilates, even though my shoulder was very tight, it  went quite well. I was near the heater this week and warm . I kept saying it was like Bermuda. I was in the middle of the hall last week so was colder. My throat is sore but I don't feel not too bad.  Went to a party with the Breath Easy group, a health charity, my neighbour has emphysema and belongs to this. The party was not the best but we had an afternoon out.

Late night early morning I had a hot cold session. I could not stand, freezing cold to touch shaking so cold. My throat felt very sore and I had tight chest, so I went to bed feeling very strange. I think I have a bad virus or something.

 

13th

Got up a bit later. Throat like razors blades. I feel quite ill. Hot cold. I am at Physio today. I am still going as this session is the last one this year. Paul is taking me and bringing  me back. I will ask Martin if this session is ok with him. Martin was also bad with a sore throat and cold symptoms.

I am pleased to say the session went ahead. A needle in each hand  Fire Cupping, like jam jars that are lit and placed on my back, they form a suction the fire goes out and stays warm. This felt very nice and warming to my back like  a hot water bottle. Martin said this will help to warm me up. He said I felt very cold to touch my RSD side a lot colder.

After a few minutes break, Martin and the team put in some more ear pins, 5 again this time the right ear. Some hurt a lot and again made my ear hot and red.
After the session I croaked good bye and wished them all a good Christmas.

I had got a Doctors appointment straight after. I was surprised to learn I had bronchitis.I used to get this a long time ago.  Also a throat infection virus thing. I received a weeks worth of antibiotics EYRTHROMYCIN 250mg, 4 a day. Later that night I coughed and coughed, bringing up a lot of gunk and hard lumps. Looked a lot like the contents of Jamie -Lees nappy. Not good for a very sore throat.

14th

A very restless night chest tight and throat like it bean cut. I have not eaten since the Party. Even Water is hard to swallow. My back still feels warm from the cupping. The RSD has picked up on the pain and making my day very painful . I feel so very cold even in bed my whole body shakes because of it. Apart from my back that is. I was told I might have some redness or bruising. I was not affected by this.

I had a tiny bit of tea, mashed potatoes and carrots and mince. This was very hard to swallow even with sips of water. I had some at least.  I had some Collagen, a high calorie drink, to build me up so I don't loose too much weight. Later in the night I felt very warm I don't know if this is the infection or the cupping which ever it was, it's nice to feel warm for a change.

15th

Another bad restless night  awake most of it. Still coughing and bring up more gunk. A good note a lot of people I know are saying how good my balance at the moment. No more falling into door way or into people. I think this could be the ear pins. But with RSD I never really know.

18th


Got up and had a bath just doing this tired me out completely. I had to sit down for a while. I feel a little better I think the pills are helping. Later on I made the Christmas cake, with a little help, although I think I may have been the helper.
The cake turned out nice, brandy was added. Actually quite a bit of brandy was added. The smell is lovely.

19th

Today I feel quite a bit better but quite week. I have lost 4lb in weight and still not eating much. Everytime I am ill my appetite just goes and takes a while to get back. I should have bean at Tommy-Lee's play. I even gave up pilates to go and then I was ill.  I also missed Jay-Jay's play as well. This made me feel very sad.

Summer had a bath as she was so mucky... 

 

 Before the bath.

 

Just look at the water.

 

 All clean.

The common is all wet big puddles churned up by the horses and vehicles. With her being small and white she will not be clean for long. My hairdresser and her  husband (they got married only recently so I keep forgetting and saying boyfriend) are here for tea. We had a Chinese which was very good but I did not eat much. Everyone had a good meal and enjoyed it very much.

21st

A couple of friends called to day. So that was nice. Caught up on all they had bean up to. Sorting out Christmas presents the rest of the day. Finished off the monkeys for Jay-Jay and Tommy-Lee. Jay-Jays was made and ready to be stuffed then  I realized that I had forgotten the ears so a quick adjustment and finished. They even got a scarf each, very smart monkeys. The last day of my Antibiotics I hope they have done there magic.

23nd

Up about 9am. Baking a Welsh Tea Loaf for a Christmas present. Went onto the common to watch the club cross country. Saw a few people that I used to run with. I came away be for the awards were given out. This still hurts as they are doing what I want to. Out taking Christmas presents later,  so a long day.

Early hours of the morning I felt very strange and started to sweat. I think the infection is still got a hold of me. I felt like I had not taken my MORPHINE but I had and was going into with drawl. The day had bean long and tiring one though.

25th

Christmas Day.

No snow as we thought we would have a few weeks ago. Andrew here as well. Lots of presents. Lindsay and the boys here for dinner. Another good day but very tiring. I still have 5 ear pins in but they need to come out very soon. As two weeks is about all Martin tends to leave them.

28th

Wayne is on his way from Halifax to stay for a few days. So the whole family together the first time for about 9 months. Wayne arrived safe and Will is here too. They are going to one of his relations for tea but they will be back later.

Nearly the end of another year what will the next one bring?
My year has bean very mixed, good and bad. Some things have improved though. I know with RSD there is not really any help so its up to me to find any thing that will help.

All the best for the new year!
I hope you all continue to improve or at least not get any worse.
Gill.   

MAD NOVEMBER

November 1st

Physio today. Usual catch up talk with Martin and the students. Martin had a look at my back and discovered my spine is not straight. I have one vertebrae at the top and one at the bottom out. I was quite surprised as this had not bean picked up before. I have know since my early twenties I had a slight curve to my back. Nothing more than that. When he pressed it it felt very sore. He thinks this is adding to my problems especially the neck pain that affects my shoulder and shooting pain down my arm and also the blackouts I get.

He went on to explain that the top vertebrae controls the neck, top back and shoulders. The bottom one my hips. This makes a lot of sense probably the only sense since getting RSD. Hopefully acupuncture and massage will help this.  He said there are no guarantees.

On we went with the treatment six needles this week ears, hands and feet and a very good back massage by one of the students.

Later that night a lot of pain. Shoulders very sore and tender.  Hopefully I will feel the benefits tomorrow.

4th

I ache a lot still very tender on my shoulders and back. I have blisters on the under side of my RSD foot I get these a lot. They are very sore and burn. When they burst it spreads them.

Despite this I went into town to get the Lego toy models, free from the Sun newspaper for Jay-Jay and Tommy-Lee. I know I feel better if I can just keep going. I know this has helped me to beat the RSD and kept me out my wheelchair and scooter. A lot of the time it fights back harder than me.

5th

B12 done today (morning) I now have these at two months intervals not three. This stung a lot and I could still feel it at night time. My balance is not good today I an veering to the side almost like I am drunk. Joints are very painful, the pain if some one just touches me or brushes past is crazy.


7th

Pilates, I managed most of the moves but it was painful. My joints are very sore. I had my hair cut and coloured yesterday very good it looks as well. The washing machine has decided it wants a holiday as its not working right.

Still taking a bit of extra morphine but not as much as I have bean. Too much makes me feel bad not able to fusion, as well. Also a far away feeling. Also I look  drunk or drugged, it does work well most of the time. This drug was never meant for long term use.

8th

Physio

Martin and the team did acupuncture on feet and hands. He went on to look at my back  He was very gentle but I don't need much pressure to start the pain off. Martin said my shoulders were like planks very solid and rigid. When he pressed on my back it sent a shooting pain like an electric shock down my arm to my fingers. Two of the team did a nice but painful massage on my back. They said a lot of knots were present. After all was done I headed off home. I felt very far away and felt people were looking at me. I was also very cold.

Later on a lot of pain and spasms. I did not take MORPHINE but IBRUES instead these helped. Back and forth between cold and hot most of the night.

13th

Every part of me felt very sensitive today. Joints still very tender. I knocked my elbow on the door frame and I think that started it off as the pain levels went to a strong ten. Later in the day I knocked my RSD foot and again intense pain. Hot and cold most of the day. Pale as well, more IBRUES. Another dizzy spell in the bathroom I had to lay on the floor. I was quickly joined by Summer who snuggled up to me.

15th

Physio

Usual questions by the team. Twelve needles in all - two in back, two in each of my feet, legs and hands. Also four in my ears two in each. I asked him about my spine and what could be done. He said he would help all he could with massage and Acupuncture. He said too much pressure like chiropractic or similar would not help at all and cause me more pain. I agreed with him.

The plan was to go straight home but Paul phoned me to get some rubbing wax from town. Wax bought, I headed for the bus. The one I usually get was full so was the next one. Finally on the bus about half an hour had passed. On the bus I was getting flashing lights the same I have had before but worse. Then I realized that it was a sign in a shop window, relieved. Very tired and in some pain arrived home.

After a while, Paul realized I had lost the Wax. The bus had shot forward and that's when it must have fell out the bag.  I was not pleased it cost about nine pound and worse of all I had made a special journey to get it. I rang the bus station it was closed. I will try Monday. I felt that part of the day was a waste.
After my bath later I felt a lot better. A bath always helps pain and muscles. I wish I could stay in longer but the RSD plays up and causes pain. After getting out I felt dizzy again and nearly passed out. I am sure this is some thing to do with my neck cutting off some nerve or other when bending down.

16th

Had a day out at my friends it was her birthday earlier on in the week. A good day it made a change. A lot of joint pain. 5-6 rising to 8 at times. Bad head as well.

Washing machine has now bean fixed and working right.

17th

 Lindsay here with the gang.

 Jamie-Lee.

Summer keeping watch.

 Pictures of Jamie-Lee,  she looks like a little Shepard.

 Jay-Jay  and Tommy-Lee were playing hangman and this is what Tommy-lee did-- Jay-Jay could not get it. Tommy said it was easy.

 

Can you guess what it was?
PUR PIY-- Jay-Jay could not.
 It was Pork pie. Like Tommy-Lee said Easy!!

Tommy-lee loves Pork pie and him and Lindsay often pinch Pauls.

22nd

Eight years today since my dear mum passed away. I never got the chance to say good bye.  She spent most her life looking after other people and there lives. When it came time to look after her own life there was no time left. I was told over the years this would get easier. This is not the case. With the grandchildren here now even more so, they would have loved her and my Dad who passed a few weeks later.  He would have said, they were rum lads.

22nd

Took Summer on the common with he ball this does not happen very often, because it causes me a lot of pain throwing and kicking it for her. Summer got very excited. She loved it and got very mucky but she was happy. The common looks very pretty at this time of the year don't you think?

 Summer in the picture.

The common is very wet but so pretty with all the trees golden brown..


Physio

Catch up talk, then needles. Martin again did some light presses on my back . This made me feel very spaced out and dizzy. I saw quite a few Martins. I soon recovered and there was only one Martin. A nice massage from two of the students. I think they are realising they have to be extra gentle as not up upset the RSD and cause me more pain.

Going home the far away feeling again. Knees are very sore on the inside. More joint than muscle.

23rd

A better day than the past few I have bean having. Pain levels 5-6 spiking to 8 at times. My eyes are very dry and sore using a lot of drops (SNOTEARS) they help a lot. Today I have about fifteen naked men in my kitchen...but I'll mention that later.

24th

Fair night. My body feels like one of the Wooden tops (a 1960's childrens program) very stiff, shooting pains through out my body. I have taken a lot of IBRUES too many. BUT I am still in pain.

Lindsay is here with the boys and Jamie-Lee. Jay-Jay and Tommy-Lee are playing up. Jamie-Lee is also unsettled. Not a good day.

Tommy-Lee is playing with the scalectic car set and Summer is chasing the cars. Very funny.

 Tommy-Lee with summer.

 

 Let me get that car.

 

Keep still while I get hold of you. 

 

  Summer Moss is the name, car racing is the game.

26th

My back feels like someone has wrenched it apart and put me on a stretch rack. My head ache has calmed now a bit though.

 Sincil Bank is very high with all the rain (small drain that flows off main river)

 Poor ducks.

Last picture is of the drain be for all the rain taken on the 22nd.

The water levels have just gone up and up because of the rain we have bean getting. We are better off that some areas. Some have lost every thing in the floods.

27th

Not a good day I feel very down. Pain spasms just about every where.  I just wish this pain would go and not come back. People with other things get better even terminal illness. I am left to suffer this. I know other people do as well, but I bet most of them feel the same as I do.

Gave in and took extra  MORPHINE , I know my body craves this. As usual this took some of the pain and spasms away at a cost . Too high to care not able to think properly as the amount I now need to take goes up every time.

Saw Dr Metta later in the day. He has increased my GABBERPENTIN to 3x300mg in the morning 2x300 at dinner 3x300 at night. An extra 900mg a day. He thinks this will help as it will relax my body as well.
The rest of the day a blur not able to function. If this does not help he will increase my 12 hour MORPHINE OXYCONTIN. I hate to be all this stuff but I think its the cold weather that's making me worse.

28th

Pilates-
I did my best quite painful but hopefully it will help loosen up my stiff painful little body. Bad head again. Sore eyes too. Later on a bit looser. I know pilates help, but at the time it can hurt a lot. Jo is very understanding as she recovered from a painful illness her self. She gives me alternative moves when I am struggling.

29th

Physio again this soon comes round. Today Martin did the usual needles and had some thing new for me to try. Auricular acupuncture ear needling. Little pins that stop in my ears five in all. They look like ear studs type you used to get with pierced ears. The hurt a bit going in but no more than the acupuncture itself. My ear felt very hot and looked red.
 

These are the needles that were in my ears. Two have come out. I did not get a picture when all five were in. I know Martin did. I might still be able to show you.

 

 Picture that Martin took, with three ear needles in. Two more went in after. I have found out that a lot of celebritys for various reasons use them,  pain, addictions plus various others things.  


 

Later when having my massage I blacked out, bad head and away with the fairies. I have taken very little extra MORPHINE today so that is not the cause. The team and Martin looked after me very well it must be a little scary for them having some one black out. Martin said it would best if Paul picked me up. I was very unsteady on my feet and very white and cold.

After a sit down I felt a little better. I think these black out are getting more frequent. Late pm early am I felt a lot better but very tired. Had a bath and went to bed about 5.30.


That's the blog for this month. As you can see a bit mixed. Hope you are all having a good spell. For those who were thinking, the men in the kitchen were Action men figures.

Love Gill.