9th March

Today I went back to the MS centre where I used to go to have my treatments in the Hyprobaric Chamber. I stopped going because it gave me terrible head aches and my body could not cope with the different pressure/temperature changes. Some sessions putting me in hospital as it affected my RSD badly. I was hoping to go back at a latter date as I think it was helping but at a cost, but was advised by my Doctor and Physio not to do so.

I met a few people I used to see when I was going regularly. There was a pilates session for the MS people so I stopped and joined in, it was different than the one I am used to as this one was more about balance than any thing else. Never the less it was enjoyable. When it was time to go home I waited for my bus, I paced up and down trying to keep warm as it was very cold. Typically I had just missed one. After half an hour the bus came. I was so cold I could not think straight. I did not get warm all night feeling quite ill at times the day had taken it out of me.I was in a lot of pain with all my joints hurting and my shoulders really tight. A few hours of enjoyment often leads to a few hours of non enjoyment. A lot of tablets later (too many) the pain began to ease but I still felt ice cold. My legs feel like there is sand running through them.


I went back to pilates most people asked how I was after my recent chest and eye infection. I found the class quite hard, some of the moves were new to me but on the whole I coped alright, it was nice to be part of the group again.


Physio Wietse did the usual needles. We talked about how I felt he said I should try to take it a bit easier as any exercise including pilates will exhaust me and my body will not cope. I don't think its coping very well now. My temperature changes have bean extreme again, if I go out in to the cold I shake like a jelly and the next moment am sweating buckets. It is so tiring just on its own with out everything else. Sleep is no better the tablets (NATRASLEEP) do not seam to work. My legs feel like they are on fire but ice cold at the same time. I think RSD must win the prize for the most stupid symptoms.


Mothers day

I got cards and a plant, Andrew is buying me a domain name( .com etc) for my blog. I had a relaxing day not doing too much.


Really bad night pains and burning in my legs, right one the worst, I woke with a bad head ache probably from less sleep than normal. Went on my scooter as I had made two Birthday cakes so went to deliver them. Got to a point on my route where the path just stopped then started again but very high. It was too high to get my scooter up without breaking it so I had to lift it up and over, on to the high kerb. I pulled my shoulder and wrist doing so, it is quite pain full. Still got bad head ache.


Pilates again I did a lot better tonight but my foot kept going into spasms so I had to keep stopping. My eye has bean quite sore and red it feels like there is something in it. Later on that night well, early morning my eye got worse and was very sore. I flushed it out with the drops I got for my eye infection, and out came a sequin! It had bean there for two days as it came off a heart shaped decoration that I got with some flowers, which I took to the crematorium to put in a planter for my Mum and Dad.


Today I went to watch the Lincoln 10km road race. The weather was ideal. I saw a lot of runners from the club taking part. How I wish I was as well. Quite a few runners were in fancy dress ranging from Spiderman to fairies, plus one man in a tea shirt and thong pants. He was getting plenty of cheers and loving every minute. They were a lot of people running, the biggest entry to date. I kept getting squashed and was worried I was going to get knocked over. I forgot to take my camera but I don't think I would have got any good pictures as it was so packed. After walking around for too long, the pain started in my foot and shoulder so I decided to have a sit down and have an ice cream. I also bought one for a homeless man, who was very pleased.
The day was a nice change from my usual one, so was enjoyable if not painful. First the good then the bad follows as usual with RSD. Later that night I had a lot of pain in the two biggest toes on my RSD foot very painful my heel is also sore


Today I feel very stiff, and my foot is swollen and the right heel is still very sore. After all yesterdays walking, I did not think I have got off too badly. My legs feel like I have actually bean running. I am very tired but that's to be expected.

Today I am getting the greenhouse sorted out for the seeds for the bedding plants. I had to put the benches together. I got most of it done so I was pleased.


Today is the day to take Sandy to the vets. He is pleased with her as she seams to have picked up a bit, She has tumors in her womb and in her mammary glands. At the moment she is happy enough. I am to keep an close eye on her and to go back if any thing changes.

Happier Sandy

Hope you all are enjoying our Spring like weather.
Keep smiling.
Love Gill

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