SANDY 15TH AND IMPROVEMENTS

MARCH 28TH

My little dog is 15 years old today, she is still very active and alert, she has cataracts on both eyes but still sees most things also she is a bit deaf. For her birthday she got a new basket. Sandy loves it when Tommy lee and Jay-Jay come round she joins in the playing especially football - which she is still very good at. When they have gone she falls into a deep sleep.

29TH

Went to watch Lincoln 10KM race there were more people taking part this year than any other it was a bright spring day. I only wish I was running a long side them all.

30TH

Blood test today to check things are doing as they should.
I dropped my ramp on my bad foot the pain was terrible then later on I ran over my good foot with my scooter more pain even my bad foot joined in. Not a good day.

2ND APRIL

Physio today Wietse put needles in ears and neck (electric for neck ). He did not do anything to my foot. My stomach is swollen and painful, it might be the iron tablets, or IBS who knows, not me.

6TH

The RSD pain has settled a bit at the moment, could be the warmer weather or the RSD just felt like it. The spasm's seem to be a bit worse more in my right shoulder, which is very stiff. My legs and of course my foot are tight and painful. Body temperature changes have bean all over the place one minute hot sweating full body the next shaking with the cold.

7TH

Physio again Wietse did usual needles also asked him to massage my neck and shoulders. The pain was so bad he had to keep stopping, he did the massage in 3 stages my foot started hurting as well as not to be left out. I have noticed that pain else where in my body and the foot usually joins in.

8TH

My shoulder and neck feel like I have bean beaten up.
I got bitten on my hand by a dog it was not his fault as I reached out to him after looking at the Lady's baby, he was only protecting her, and I should not have put my hand near him. The bites were very deep 3 in total 1 of them really deep Paul said I should go to the hospital but I did not.
My hand did not stop bleeding for about 10 hours it slowed down then started again.

11TH

My hand is swollen and very sore. rest of me not too bad pain is under control, temperature and spasm's are not.

16TH

Physio again, Wietse did usual acue, he asked me about my hand and said it looked infected. he went on to bathe it a lot of pus and black bits came out then he poured salt( he assaulted me) on it to draw any infection out it hurt lots, stinging like mad, he advised me to go to the doctors which I did doctor said it was very infected and put on antibiotics.

18TH

Hand has gone down a bit. A lot of green stuff came out. I feel far away or dreaming most of the time I wish I was.

20TH

In town today to get Tommy Lee and Jay-Jay some new shoes. I was very tired and in some pain more tablets and rest after which I was feeling a lot better.

21ST

Paul and I went to Skegness for the day it was very warm but I walked more than I should have so more pain and lots of spasm's in foot and legs.

23RD

Physio again usual stuff I asked Wietse if I can ride my bike which I have not ridden since October of last year due to blackouts and spasms he said not yet wait till it gets a bit warmer and I get stronger. Something to look foreward to. Went to doctors hand still infected he put me on more antibiotic's. I am to keep on morphine as he thinks it is helping with pain. I am to keep on iron as blood tests are back, iron has gone up a bit but not enough yet, also my vitamin B12 has risen slightly. Every thing else is all right.

24TH

I did some gardening not too much but I still ached, sweating and body temperature still remains the same. Getting feelings like electric shocks in my shoulder.

27TH

Not good for the sweating but good for the pain, the last week pain levels have bean down, about 3-4 on the mcgill pain scale (normally 6+). Wietse and I both think it has something to do with the weather being warmer and the extra morphine, but its still good I hope it keeps up.

29TH

Physio again, Wietse put needles in ears and neck, the neck ones hurt a lot, he wired me up for the electrics. He set it going it hurt a lot also. When he left the room my phone rang as I answered it I pulled the neddles and electrics out . When they come out they send little shocks on your skin it really hurts. When Wietse came back he put the needles back in and set the electrics going again. A bit later a sharp pain in my foot made me move again and the needles shot out yet again, because it was nearly time he stopped it there. He took out the rest of the needles. No massage of the foot today.

30TH

As I was putting my boot on a severe pain shot though my foot it made me drop to the floor the pain was horrendous it did not last long thank goodness. I think because my pain levels have dropped I have not bean quite so careful with my foot and I think it was a sharp reminder from the RSD as if to say I am still here.

1ST MAY

I had a instant fall asleep today, I was sat reading on the floor of the bedroom when I just fell asleep falling back wards hitting my head on the door frame or the floor I am not sure if it knocked me out but it caused a large lump on the side of my head . I know I was tired but that has not happen for a while. My hand is still infected green stuff still using out.

3RD

I did some green house work today pricking out my bedding plants . Today is colder than it has bean for a while but still a nice if not a fresh day. My foot went into a real strop when walking Sandy it just went into a full 10 pain level it stopped me in my tracks for a while till the pain went about 10 minutes there were no more pain on that level for the rest of the day thank goodness.

RSD is like a roller coaster ride its terrifying and you cannot get off until it has finished, with RSD

probably never. Well thats about it for now hope the RSD has bean kind to you.

love Gill.

LINCOLN 10KM

LINCOLN 10KM

I would just like to say well done to all the runners who took part in the race yesterday, what a day to be running, perfect weather.I watched and saw a few faces I recognised. I just wish I could have bean running with you all, how I wish. May be I will see some of you soon, A gain well done to you all. Happy running.

Love Gill

PART 1 MUCH THE SAME ---- PART 2 FRIDAY 13TH

MUCH THE SAME




3RD MARCH


Eczema is back on wrists and hands, also on face but not as bad as last time though. Pain levels have bean high 7/8 a lot of the time, may be because of no physio (Wietse is away).


4TH

Bad spasm in my neck could not straighten it, my head was on my shoulder the pain was going down my arm, with a lot of massaging I managed to release it after about 10 minutes. The pain was so bad - I nearly took morphine. Yes, I know I am not on it any more but I did not get rid of it why? ...I think it was a safety net in case I could not cope, its nearly bean a year. The last lot I took was on 13Th of May 2008.


5TH

Physio at last. Wietse put needles in my neck and just held my foot as it is very painful and sensitive. After he took out the needles he massaged my neck, it really hurt, he used some warming oil on it and told me to put some heat on it when I got home (wheaty bag). We talked about what had bean going on.

Had a rough night awake every few minutes with bad spasm and legs jumping. I feel like shit today my body feels like cotton wool, when I put my feet down it feels like they belong to some one else. I feel far away and spaced out ( I have not taken enough tablets to do that) feeling quite dizzy as well. I look very pale, ill looking. Body is very hot/ sweating in parts and ice cold in others - mostly legs and arms are cold. I am getting burning pain and ice cold pain at the same time, my foot can be burning like a fire and legs can be ice cold. What can I do to help that?

When I was in town I saw a lady who I spoke, to she said my energy was draining away and was to look for the positives in life not the negatives. I said there were not many for me at the moment.
She explained she was a psychic medium - really weird.


8TH

Neck has improved I have used a lot of BIO FREEZE and WHITE TIGER BALM, anything to help the pain. I think I might be heading for a cold or something as I feel a bit different.
The last few days I have bean seeing things that are not there, like people stood next to me when I turn my head, when I am sat in my chair its as some one is sat with me. I see A cat laid on the floor. I saw my mum as well. Its not frightening but a strange feeling.


9TH

Doctor today I talked to him about the pain. I am going back on a low dose MORPHINE -OXCONTIN just for a month to see if it helps. I cannot carry on like this. Blood tests next week
Sleep has got no better .


11TH


Physio today Wietse did usual to neck, he also put needles in ears and forehead. He tryed to massage foot but it was too painful he had to stop, so he just held it gently to warm it up.



FRIDAY THE 13TH

As I was going to bed (4.30) I heard water running near the the front door I though it was raining fast, but a pipe had burst it was a good job I heard it because if it was left the floor would have bean soaked. Paul turned the mains off. Paul went back to bed after a minute so did I.


Going to see Pam today as I feel a little bit better, tired buts whats new, pain levels down a bit.
On the bus going I actually went to sleep and nearly hit my head on the seat in front.

When I got to Pam's ward she was going to the shop with a friend. I said I will just sit down till you get back and have a rest. When they came back I was a sleep. And on waking I felt really strange. Pam has improved a lot and is hoping to go home next week. Malc (Pam's husband) also has improved. Pam's friend said she would give me a lift back as she lives close by.

On getting up I felt very dizzy, legs felt like cotton wool again. We left the ward to walk to the car.Walking down the corridor I felt really dizzy went to the wall to lean on it slid down to help the dizzy spell, I passed out falling backwards hitting the back of my head on the floor, this I do not remember. A doctor and others came out to help, the doctor held me in his arms, that I remember, he was very nice. I was taken to A&E in a wheel chair, I kept falling forward and had to beheld by some one.

At A&E they did some tests and looked at my head which by now really hurt, luckily I had not cut it but had a egg size lump on it. They took some blood and urine to test for the cause of the blackout. They decided to keep me in over night to observe me. My blood is not right. Also there is excess protein in my urine.


14TH

I am in the short stay ward. I really feel bad. At about 10.30 I asked when I would be getting my night time tablets as every one had got theres, the nurse said they have not bean written up yet by the doctor so I would have to wait. I said oh no I am not going through that again and explained what happened in July(tablets withheld) 10 minutes later I got them.


A doctor came to examine me early hours of the morning, and did more tests and asked a lot of questions, he pressed on my stomach and it really hurt.

After a painful sleepless night another doctor came to see me and asked the same questions, they think I have a water infection as there is a lot of protein in urine. Told to rest in bed.


Later in the day I was told I did have a infection and would be given antibiotics.

I have a lot of pain over my bladder area tum is swollen weeing a bit every few minutes I feel really bad, so much for a better day.

There was a lady in bed further down the ward, she did not move and had to be fed also she did not speak only to shout out weird noises. I looked at her and wondered if I would end up like that it was a scary thought but realistic one it really got to me.


Later on in the day after having all the tablets I could and not much pain relief I was given a MORPHINE INJECTION this actually helped the pain but wore off after a while.


15TH

I was able to get out of bed today, I was very wobbly and dizzy, I had to be helped when I walked. I was given my ANTIBIOTIC'S and IRON TABLETS as I am anemic, I feel bad head still hurts big soft bump on it, my foot and shoulder hurt also. I had to have another MORPHINE INJECTION for the pain, good stuff for pain.

The doctor came and said I can go home later on in the afternoon about 7pm after the antibiotics start to work I was well pleased. He was very surprised and shocked that I did not have a consultant for my RSD. Rested most of the day went home pushed in a wheelchair by Paul to the car. Pleased to be home I need to rest and Sandy was very pleased to see me.



17TH


Had 4 hours straight sleep still feel very shaky tum is still swollen ANTIBIOTIC'S are working as not weeing as much, not as painful

Had a weird thing happen, my legs seemed to forget what to do and I nearly fell to the floor. My toes on right foot are like that, due to the RSD. I hope they are not going the same way. I feel a lot better otherwise, but still very pale.


21TH


Bed 3am awake most of night feeling cold. Better day than the last few days. Weird feeling in right calf like electric shocks.



22ND-23RD


Mothers day I got cards and flowers from by daughter a card from my son with a promise of a present my other son took me for a meal chili con carne and a lovely chocolate fudge cake with ice cream, it was really good. I did think about having a second lot as well. We finished off the day by going into town to do a bit of shopping. All in all it was a very nice day.


25TH


Physio today Wietse put needles with electrics in my neck. I think this is helping me. I am feeling bad today very pale, weird eyes, drunken legs - I asked Wietse about my legs he thinks its the RSD spreading or a flare up from the past week. I know I feel very strange not able to think properly or even speak that well. I feel at the moment that I just exist and I am not living a life.

The good part of today is I looked after my little grandson who is two years old he is very good little lad, we played at cooking and he played football, I really enjoyed it.










Well that's all for now, I hope next time its better news.

Love Gill.