October 1st
Today I had my last monthly B12 injection now I can now go a whole three months between them and this one did not hurt too much. I have a lot of pain thought out my body today and bad spasms. I have taken far too many extra tablets, but still the pain does not seem to want to go.
2nd
Physio Wietse massaged my shoulders and neck he had to keep stopping because of the pain. Usual needles. After the session had finished I had to lay down for a while as I felt dizzy and light headed with the pain. After a rest I was able to leave. The bus journey was very bumpy causing yet more pain. On arriving home I had a lay down, but did not feel much better. Bed about 4am just as I was dossing off to sleep a house alarm went off, it kept stopping and starting the rest of the night I got less sleep than normal.
5th
The pain has lessened a bit but still far too much. I feel very drained my hip is bad, so is my foot sending a shooting pain from my toes up my leg every time I put it to the floor. Also my ear is playing up high pitched squeal and pain, dizzy on standing. Just about had it with all this pain but what can I do?
9th
Physio again Wietse said my neck and shoulders were very tight he massaged them it was very painful yet again. He reminded me about the breathing try to breathe the pain away I said it was not easy to do sometimes, he said I know, but try to keep smiling.
10th
Today is the running clubs annual race, The Ducks and Drakes, ten mile off road. I went by bus as Paul had gone earlier to help with the car parking. I realised after a while I was stood in the wrong place to catch it and had to walk quite a distance to get the right bus stop. Once there I had a few words with a few running mates then I went on the banks to watch. Later I gave out the memento bags for finishing the race. This lasted till after dinner then I went to a meeting about herbalism and reflexology. It was a very interesting talk which was recommended to me by my Pilates instructor. I bought some sleepy time tea, well you never know. Later on I was in a lot of extra pain I think I had done too much and as usual paid the price. Lucky I got a lift home and rested for the rest of the day.
12th
Early hours of the morning I took my sock off and my foot and leg were wet through with sweat even though my foot and leg were ice cold this is the first time this has happened.
Doctors appointment he has increased my morphine(OXYCONTIN) to double what it was (20mg to 40mg a day) we both think this is for the best as I am taking too far too many extra tablets and will have bad side affects from them as well. I was disappointed as I did not want to go higher but I think it makes sense for now. My CLONADINE all so has bean stopped to see if I can cope with out it as temps swings are improving.
13th
Pilates I had a lot of trouble trying to cope with the exercises I could not get my body to do what I wanted it to do. A lot of pain and creaking of my joints - not a good class tonight.
The relaxation did not go well either it made me feel very down, a lot of the others actually go to sleep I have never got anywhere close to doing that.
15th
A lot of hot red skin, I feel so itchy, its the extra morphine I think. Pain is bad it went down but is now back to its full evil. Hope the extra morphine will help.
16th
Physio I talked to Wietse and Michelle about how I felt he thinks the weather has a lot to do with the pain I am experiencing now. He said try to stay positive I said it was hard to do a few tears and a lot of talking, I felt a bit better. They are both a big help as I have no one really I can talk too. Usual needles and massage.
17th
Went to a birthday party a hog roast and Céilí (Irish social dance) it was very good and funny to watch the dancing I wish I could have joined in a bit but it was too fast. The vibrations from the speakers and tiredness caused a lot of very bad pain and sensitive body I cried out in pain when anyone touched me. I lasted the evening out at a cost I was in agony now getting full body spasms, the ride home was a killer. Very painful night.
20th
On the whole, pain is down to a more manageable level, not as much as I hoped when I started taking the extra morphine. But one I can just about cope with, still a lot of pain in wrists. I am dropping a lot of things, they just slide though my fingers. Had a small bump, fell towards the door leading in to kitchen, grazing my face same side as before (MAY accident fall) so very sore bit swollen.
22nd
Physio again Wietse put needles in ears,neck,shoulders and right hand to try to ease the pain in wrist. The one that went in my right hand felt like electric shocks that made my fingers tingle. He only left them in a short time. They were very painful. The ones in my neck and shoulders were left in longer. I asked him about the high pitched noise in my left ear and dizziness, he thinks it might be tinnitus and to mention it to my doctor. He took out the rest of the needles, then massaged my neck and shoulders. The pain shot down my right arm to my fingers the same pain I had got in my hand when the needles were in. He said my muscles were not as tight as last week. I left in quite a bit of pain, with strict orders to rest. The journey home was very painful and I did as I was told and had a lay down. Later that day the pain levels were higher than normal 6-7 spiking to 8 at times. My foot was about at its normal pain level.
24th
Bad day, head really pounding, slurred speech, double vision, sensitive in most places and very wobbly on my feet, not a good day. My right ear is swollen from the needles. Lindsay and the boys came round which did not really help but I love seeing them. Slept for just over an hour in bed.
26th
On the whole I feel a lot better but have a sick feeling in my stomach. A sudden sharp pain made me have a quick dash to the bathroom, where I renched for a few minutes but was not really sick. After about 20 minutes I felt a lot better, may be I have picked up a virus or something. Skin still feels itchy body temperature up and down.
28th
Good night sleep for a change I slept from 4am to 8am without waking up. My son Andrew and I went into town to do a bit of shopping. We manged to get every thing we wanted, it was a very enjoyable day, but as usual the RSD is not far away, pain and intense tiredness took over. On returning home I had a good lay down. On the whole a lot better day all round.
30th
Physio Wietse did usual needles they did not hurt as much this time. No massage today.
This last month has bean very much up and down. The RSD seems to have to go to the full pain level to almost as to remind me its still there, not that I need much reminding, to calm down again to a more sociable level. The weather I know can very much affect it. I am not really looking forward to the cold much. I used to love winter.
Well thats October gone - another year all most gone.
I hope you are all in good health and have not got too much pain.
Lots of love Gill.
SEPTEMBER SPASMS
Well here we are in September already nearly another year gone, most of it to pain and let downs.
September 1st
Today I have more left hip hip pain than usual. Both my wrists are bad the right one especially things seem to just drop through my fingers - I have dropped a lot of things today. I went into town so I am more tired than usual, where have the days gone where I could just keep going and not really be tired? Pilate's later on was good though, and made me feel more relaxed I am getting most of the exercises right and enjoying it a lot.
2ND
Paul and I are going to Twycross zoo today with my daughter Lindsay and my grandsons, Tommy Lee and Jay Jay.
The journey was not too bad even thought it seemed a long way. There was lot to see. The monkeys were very funny and kept chasing each other and kept putting a hat on.
We saw a baby elephant that no one else had seen (well almost) only a few days old it was very sweet and was being fed with a bottle. Tommy and Jay Jay really liked this. As we walked my body got tighter and stiffer. We stopped for dinner and had a rest while the boys played on the play park.
I took extra pain tablets and used BIOFREEZE to stop the pain from getting worse. After we were all full we carried on, seeing giraffes and other animals. By now I was in a lot of pain, every step was torture and more painful than the last. Pain level of 10 plus or more. I put on a brave face as not to spoil it for any body else but it was so hard. I took more tablets, it did not seem to have any affect on the pain. All too soon it was time to go (not too soon for the pain - I'd had enough). The journey home was very painful, I felt every bump. On arriving home about 5 pm, I took yet more tablets, I rested as much as the pain would allow, it just would not go. It had gone to the point of no return. I finally went to bed at 4.30 after taking a total of 16 extra tablets the pain now was bearable. I did not have a good night but that not unusual.
3rd
Physio today Wietse did the same I told him about yesterday he asked how I felt now I said very stiff and achey. He hoped the pain would calm down soon he had a bad cold so did not feel too good himself. After physio I came home to rest. A few more extra tablets so the pain did not get out of hand
4Th
I feel so stiff today my whole body is trying to spasm up. One good thing I have noticed that the temperature changes have been much improved more cold than hot, so that's one thing that better at least. At the end of the day my whole body aches and feels very weak, a good nights sleep would help if only I could.
8Th
Pilate's again we did some different moves my joints creaked like an old lady. Still very stiff and a deep bone pain. Later that night my right foot swelled up all along the heel to the toes they looked like fat sausages, it was very painful to walk.
10Th
Doctor today I told him all about my pain, he thinks it could be the OSTEOPOROSIS playing up he said the pain will come and go it does from a 3 on the pain scale right up to a 10 very suddenly. He said I can reduce the COLNIDINE to 1 morning 1 night half the dose to try, also my IRON can be stopped to see how things go. I was pleased about that one as it has a bad affect on the the stomach. I told him about all the bloating I have he said try CHARCOAL BISCUITS. it should help. I will have blood tests later on in the year. Body still stiff and painful but not as bad.
11Th
No physio today; Wietse not too good, Went into town instead on my bike thought it might help to release my stiff joints. I could not get CHARCOAL BISCUITS. I order from a catalog for vitamin's so will get some tablets from there. I feel a bit down today thinking about the past, mum and dad the accident, and how it should have bean.
13Th
I watched part of a film about running it was called the LONG RUN its about a girl being trained to run a marathon, by a man, who usually trained boys, in the time when girls were not considered to run very much this man did not give up. During the race I became her, my heart was pounding and I was shaking, when she nearly gave up I shouted at her to carry on. She ran the race and won, a complete outsider. 2005 I was hopping to run my first full marathon it did not happen and I felt cheated, I seam to get all the shit while others get all the good stuff. Life can be so unfair. I miss running so so much you would have to be a runner to under stand this. I have bean thinking about my Mum and Dad I miss them so much it hurts, bit of a down time.
15TH
My body feels like it has bean hit with a baseball bat I don't think there is much of me that does not hurt. My foot and shoulders are burning hot, but ice cold to touch. Electric shocks shoot across my shoulders and neck making it very stiff. I feel very tired but can not settle to sleep. Lot more spasms than usual. I have taken far too many tablets for the pain but it still continues striking back what more can I do. Most people would be out for the count with strength and amount but it seems to work opposite by keeping me awake.
17TH
At last a better day a lot of the really bad pain has gone and I am left with the usual every day pain which I can cope with better.
18TH
Physio Wietse did usual acue He gently held my foot and massaged it did not like it one bit and straight away went into spasms. He asked me about my knee which had bean too bad, he squeezed it and to my surprise it really hurt. He continued to massage it, while I was talking to Michelle he made a surprise attack pressing hard I said that was a bit mean he said it was a bit grinning. My son Wayne is here for the weekend so that will make a nice change. I have now started taking CHARCOAL TABLETS two a day as advised by my doctor hope they help.
20TH
Today its the turn of my joints to hurt my left hip creaks like an old lady's my knee keeps sending a shooting pain though it and both my wrists hurt. I decided to go with Paul to take Wayne back to Halifax. I don't usually go as it can be too painful traveling. I had not seen his new room since it had bean decorated and also wanted to see his cat, Timmy. The journey was not too bad till Paul had to stop quickly making me shoot forward, almost like whiplash. My neck shoulders really hurt after that and got stiffer and more painful as we went along. At last we arrived time for a rest and cup of tea, a play with Timmy and look round his room, which looked a lot bigger and a lot nicer.
We all went for a meal a Toby Carvery, where you help your self, by this time I felt quite hungry as I had not eaten much over the last few days because of all the extra pain, it was very nice. On getting back in the car I put my bad foot down too hard and caused excruciating pain to shoot up my leg. Pain scale 10 ++++. I could not speak because of the pain and kept breathing deeply to try to take the pain away. After what seemed a very long time the pain did die down. Not such a good journey I remembered why I don't usually go.
22ND
Foot still a bit sore all most as it has had something drop on it but better than it was. My wrists have bean playing up a lot recently and I have gone back to wearing the night time splints. The pain seems to be worse in the morning and last thing at night.
Palates I have not bean for two weeks as not too well last week. My joints were a bit stiff and kept going into spasms, but still very enjoyable. I am sure Pilate's has helped me with my balance as a lot of people have told me I am walking better.
25TH
Physio again, I asked Wietse why he has not done electric acue for a while he said it would up set the nerves at the moment he will just keep on with what he is doing. He massaged the foot again it did not complain as much this time but still went into bad tight spasm's.
Much of the pain still persists but I suppose that's life with RSD. Wietse said little steps, one day at a time see you next week be good.
26TH
Pauls birthday we are going for a family meal later tonight. Russ came round, he helped me to put together a chest to keep the Wii games and controllers in, well he really did it on his own but I passed the screws and kept looking at the instructions to make sure it was right. I had planned to do it on my own but it came in more pieces that I imagined. He made a good job of it. The meal out was very good two lots of pudding plus ice cream. I deserved it who told me so, I did.
28TH
In town with Paul I walked too much and paid for it later my shoulders are so tight and painful. More extra tablets. My foot feels like it is on fire but apart from that I am not too bad. The splints seam to be working at night. I wish I could have a magic spell to make me sleep. I feel so drained all the time. The nights are so very long and lonely but it is sleep time for most people, may be one day it will happen. The more it goes on the more I think it will never be a normal night ever again. The pain seems to be in more different places plus the usual ones. Not a good month for pain.
29TH
Cleaned all down stairs, and painted the Wii chest, no not painted - varnished ( Paul said) but you use a paint brush. Any way whatever its called it looked good, did it all on my own this time, unless you include Sandy (my dog). I am having a lot more temperature changes than normal hope its temporary.
30Th
Was woken very abruptly by extreme spasms in my left leg; the good leg. I shot out of bed at lighting speed trying to stretch out my leg as fast as it released it spasmed up again with trying to release that leg the other one joined in. What a start to the day things can only get better cant they?! The spasms finally loosen leaving both legs very stiff and painful to walk, When I took Sandy for your walk I looked like a drunk as both legs did not seem to know what to do. TIGER BALM has helped a lot so have IBRUES.
Well another month gone and probably summer as well but we have bean having a lot of warm days. Maybe next one will be better for me. It could be a lot worse though.
Hope you are doing better and pain is less. Bye till next time and thanks for the emails, I always reply.
Love Gill.
September 1st
Today I have more left hip hip pain than usual. Both my wrists are bad the right one especially things seem to just drop through my fingers - I have dropped a lot of things today. I went into town so I am more tired than usual, where have the days gone where I could just keep going and not really be tired? Pilate's later on was good though, and made me feel more relaxed I am getting most of the exercises right and enjoying it a lot.
2ND
Paul and I are going to Twycross zoo today with my daughter Lindsay and my grandsons, Tommy Lee and Jay Jay.
The journey was not too bad even thought it seemed a long way. There was lot to see. The monkeys were very funny and kept chasing each other and kept putting a hat on.
We saw a baby elephant that no one else had seen (well almost) only a few days old it was very sweet and was being fed with a bottle. Tommy and Jay Jay really liked this. As we walked my body got tighter and stiffer. We stopped for dinner and had a rest while the boys played on the play park.
I took extra pain tablets and used BIOFREEZE to stop the pain from getting worse. After we were all full we carried on, seeing giraffes and other animals. By now I was in a lot of pain, every step was torture and more painful than the last. Pain level of 10 plus or more. I put on a brave face as not to spoil it for any body else but it was so hard. I took more tablets, it did not seem to have any affect on the pain. All too soon it was time to go (not too soon for the pain - I'd had enough). The journey home was very painful, I felt every bump. On arriving home about 5 pm, I took yet more tablets, I rested as much as the pain would allow, it just would not go. It had gone to the point of no return. I finally went to bed at 4.30 after taking a total of 16 extra tablets the pain now was bearable. I did not have a good night but that not unusual.
3rd
Physio today Wietse did the same I told him about yesterday he asked how I felt now I said very stiff and achey. He hoped the pain would calm down soon he had a bad cold so did not feel too good himself. After physio I came home to rest. A few more extra tablets so the pain did not get out of hand
4Th
I feel so stiff today my whole body is trying to spasm up. One good thing I have noticed that the temperature changes have been much improved more cold than hot, so that's one thing that better at least. At the end of the day my whole body aches and feels very weak, a good nights sleep would help if only I could.
8Th
Pilate's again we did some different moves my joints creaked like an old lady. Still very stiff and a deep bone pain. Later that night my right foot swelled up all along the heel to the toes they looked like fat sausages, it was very painful to walk.
10Th
Doctor today I told him all about my pain, he thinks it could be the OSTEOPOROSIS playing up he said the pain will come and go it does from a 3 on the pain scale right up to a 10 very suddenly. He said I can reduce the COLNIDINE to 1 morning 1 night half the dose to try, also my IRON can be stopped to see how things go. I was pleased about that one as it has a bad affect on the the stomach. I told him about all the bloating I have he said try CHARCOAL BISCUITS. it should help. I will have blood tests later on in the year. Body still stiff and painful but not as bad.
11Th
No physio today; Wietse not too good, Went into town instead on my bike thought it might help to release my stiff joints. I could not get CHARCOAL BISCUITS. I order from a catalog for vitamin's so will get some tablets from there. I feel a bit down today thinking about the past, mum and dad the accident, and how it should have bean.
13Th
I watched part of a film about running it was called the LONG RUN its about a girl being trained to run a marathon, by a man, who usually trained boys, in the time when girls were not considered to run very much this man did not give up. During the race I became her, my heart was pounding and I was shaking, when she nearly gave up I shouted at her to carry on. She ran the race and won, a complete outsider. 2005 I was hopping to run my first full marathon it did not happen and I felt cheated, I seam to get all the shit while others get all the good stuff. Life can be so unfair. I miss running so so much you would have to be a runner to under stand this. I have bean thinking about my Mum and Dad I miss them so much it hurts, bit of a down time.
15TH
My body feels like it has bean hit with a baseball bat I don't think there is much of me that does not hurt. My foot and shoulders are burning hot, but ice cold to touch. Electric shocks shoot across my shoulders and neck making it very stiff. I feel very tired but can not settle to sleep. Lot more spasms than usual. I have taken far too many tablets for the pain but it still continues striking back what more can I do. Most people would be out for the count with strength and amount but it seems to work opposite by keeping me awake.
17TH
At last a better day a lot of the really bad pain has gone and I am left with the usual every day pain which I can cope with better.
18TH
Physio Wietse did usual acue He gently held my foot and massaged it did not like it one bit and straight away went into spasms. He asked me about my knee which had bean too bad, he squeezed it and to my surprise it really hurt. He continued to massage it, while I was talking to Michelle he made a surprise attack pressing hard I said that was a bit mean he said it was a bit grinning. My son Wayne is here for the weekend so that will make a nice change. I have now started taking CHARCOAL TABLETS two a day as advised by my doctor hope they help.
20TH
Today its the turn of my joints to hurt my left hip creaks like an old lady's my knee keeps sending a shooting pain though it and both my wrists hurt. I decided to go with Paul to take Wayne back to Halifax. I don't usually go as it can be too painful traveling. I had not seen his new room since it had bean decorated and also wanted to see his cat, Timmy. The journey was not too bad till Paul had to stop quickly making me shoot forward, almost like whiplash. My neck shoulders really hurt after that and got stiffer and more painful as we went along. At last we arrived time for a rest and cup of tea, a play with Timmy and look round his room, which looked a lot bigger and a lot nicer.
We all went for a meal a Toby Carvery, where you help your self, by this time I felt quite hungry as I had not eaten much over the last few days because of all the extra pain, it was very nice. On getting back in the car I put my bad foot down too hard and caused excruciating pain to shoot up my leg. Pain scale 10 ++++. I could not speak because of the pain and kept breathing deeply to try to take the pain away. After what seemed a very long time the pain did die down. Not such a good journey I remembered why I don't usually go.
22ND
Foot still a bit sore all most as it has had something drop on it but better than it was. My wrists have bean playing up a lot recently and I have gone back to wearing the night time splints. The pain seems to be worse in the morning and last thing at night.
Palates I have not bean for two weeks as not too well last week. My joints were a bit stiff and kept going into spasms, but still very enjoyable. I am sure Pilate's has helped me with my balance as a lot of people have told me I am walking better.
25TH
Physio again, I asked Wietse why he has not done electric acue for a while he said it would up set the nerves at the moment he will just keep on with what he is doing. He massaged the foot again it did not complain as much this time but still went into bad tight spasm's.
Much of the pain still persists but I suppose that's life with RSD. Wietse said little steps, one day at a time see you next week be good.
26TH
Pauls birthday we are going for a family meal later tonight. Russ came round, he helped me to put together a chest to keep the Wii games and controllers in, well he really did it on his own but I passed the screws and kept looking at the instructions to make sure it was right. I had planned to do it on my own but it came in more pieces that I imagined. He made a good job of it. The meal out was very good two lots of pudding plus ice cream. I deserved it who told me so, I did.
28TH
In town with Paul I walked too much and paid for it later my shoulders are so tight and painful. More extra tablets. My foot feels like it is on fire but apart from that I am not too bad. The splints seam to be working at night. I wish I could have a magic spell to make me sleep. I feel so drained all the time. The nights are so very long and lonely but it is sleep time for most people, may be one day it will happen. The more it goes on the more I think it will never be a normal night ever again. The pain seems to be in more different places plus the usual ones. Not a good month for pain.
29TH
Cleaned all down stairs, and painted the Wii chest, no not painted - varnished ( Paul said) but you use a paint brush. Any way whatever its called it looked good, did it all on my own this time, unless you include Sandy (my dog). I am having a lot more temperature changes than normal hope its temporary.
30Th
Was woken very abruptly by extreme spasms in my left leg; the good leg. I shot out of bed at lighting speed trying to stretch out my leg as fast as it released it spasmed up again with trying to release that leg the other one joined in. What a start to the day things can only get better cant they?! The spasms finally loosen leaving both legs very stiff and painful to walk, When I took Sandy for your walk I looked like a drunk as both legs did not seem to know what to do. TIGER BALM has helped a lot so have IBRUES.
Well another month gone and probably summer as well but we have bean having a lot of warm days. Maybe next one will be better for me. It could be a lot worse though.
Hope you are doing better and pain is less. Bye till next time and thanks for the emails, I always reply.
Love Gill.
ONE STEP FORWARD
August 2ND
Sleep seems to be getting worse. I am going to bed even later, maybe its the hour I lay down or its just because its warmer at nights, I don't know. I am going to bed between 4am and 5am, then I don't go to sleep for a while.
3RD
I went into town today I think everyone had the same idea as me - it was packed. I had a few near misses with my scooter, but just about managed to keep the bumper to its self. There were a few people I would have liked to hit though.
Pain levels are quite good about 4+ spiking to 9 but not too much. Temperature changes about the same. When I returned from shopping I had a lay down and actually went to sleep.
4TH
First monthly injection vitamin B12 this one really stung for about an hour the worst yet, It was still sore after two hours. I have bean told they sting because its a vitamin and its a reasonable dose 1ml.
No lay down today as Russ came round had a go on the WII. I won him again at bowling and drew at table tennis.
Pilate's. I am enjoying it very much now and I can now go on my bike. For the last few day I have bean suffering with my IBS, a lot of pain and severe bloating. I thought I would sleep better tonight as no rest earlier but no luck, I slept worse.
6TH
Lot of shooting pain in my right foot. Also pain shooting from my left side of my neck up to my head, they really drains me. I had a weird sort of black out later in the evening, Andrew said I was like asleep with my eyes open and not responsive. When I came out of it I was terrified like waking from a bad dream. Bed 5am I had a rough night with spasms throughout my body.
7TH
I woke to bad pain in my right wrist and arm joints I thought it was the WII at first may be overdoing it, but the pain spread to all my joints as the day wore on I took IBRUS and DIAHYDROCOEDINE. This helped a little.
8TH
Joanne from Pilate's gave a talk on tapping, the alternative to acupuncture.
(for more info: www.emofree.com )
Russ went with me on the bus, it was very bumpy and played havoc with my foot. It was a very interesting talk. Later in the afternoon I began to feel very dizzy and in a lot of pain and spasms though most of my body. Russ made sure I got home OK. I rested, then later on felt a lot better. I think it was the bus journey starting the pain off and tiredness.
10TH
I now feel a lot better, pain back to normal rate. Temperature is all over the place I wish it would calm down. IBS is still playing up.
13TH
Doctors today I asked him about dizzy spells and black outs, he thinks they are side affects of the tablets. The pain is probably the fibro. He took my blood pressure it was a little low so that could account for some of it. I went into town but was in a lot of pain. I came home and had a lay down.
14TH
Physio - Wietse said I looked very pale and I was not too good on my feet. He agreed about the tablets and fibro. On the way home on the bus I had trouble sitting upright my body felt very floppy and I was very unsteady on my feet. I really ached all over. Am I coming down with something? I hope not. On getting home I had a lay down. Later on I did not feel any better and was having trouble talking.
17TH
We are going on a few days holiday to Caistor near Great Yarmouth. My little dog Sandy is coming with us. The journey was alright not too painful. When we arrived it was very sunny.
18TH
Sandy chilling on her holiday, she even had her own room with her basket in.
We went into Great Yarmouth to look round. Its a very hot day. I walked too much and paid the price with a lot of pain. Back at the chalet I had a lay down.
19TH
We went on the beach it was very warm but windy the sand stung the backs of my legs. IBS still playing up. My joints are still painful.
20TH
Today we went on a steam train BURE VALLEY STEAM RAILWAY ( www.bvrw.co.uk ). The train was very small almost like a toy. Two of the carriages were named Annie and Carbelle off Thomas the tank engine. The train chugged along though the country it was most pleasant. We looked round a few shops then got another steam train back. The weather is still very hot but more windy.
Me and Paul in side the train as you can see it was tiny.
21ST
Home today the journey was quite smooth. It rained on the way home the first rain of the holiday. The joint pain still continues.
24TH
Balance is better than it has bean. I think the Pilate's has helped with this. Pain level are on the whole mostly down. Even the temperature changes have bean better the last few days.
27TH
Physio again have not bean for two weeks. Wietse was pleased with the way I look, a vast improvement on the last time I was there. He said the joint pain was more than likely the osteoporosis playing up. I told him I always get worried as every time things look up, I seem to get knocked right down again. He said think positive, one step at a time.
27TH
I walked too far today and have upset my foot. Its Pam's birthday today We got her a Lincoln City hat and scarf. She loved it. The football club gave her a signed football as I told them how ill she had bean. She and Malc go to the home matches now. It was a lovely gesture - she was almost speechless.
I feel this month all though I still have had a lot of pain but things are a lot better than previous ones, no accidents. May be this is the start of better days. I hope things are reasonable with you all and you are enjoying the sunshine while it lasts.
Love Gill
Sleep seems to be getting worse. I am going to bed even later, maybe its the hour I lay down or its just because its warmer at nights, I don't know. I am going to bed between 4am and 5am, then I don't go to sleep for a while.
3RD
I went into town today I think everyone had the same idea as me - it was packed. I had a few near misses with my scooter, but just about managed to keep the bumper to its self. There were a few people I would have liked to hit though.
Pain levels are quite good about 4+ spiking to 9 but not too much. Temperature changes about the same. When I returned from shopping I had a lay down and actually went to sleep.
4TH
First monthly injection vitamin B12 this one really stung for about an hour the worst yet, It was still sore after two hours. I have bean told they sting because its a vitamin and its a reasonable dose 1ml.
No lay down today as Russ came round had a go on the WII. I won him again at bowling and drew at table tennis.
Pilate's. I am enjoying it very much now and I can now go on my bike. For the last few day I have bean suffering with my IBS, a lot of pain and severe bloating. I thought I would sleep better tonight as no rest earlier but no luck, I slept worse.
6TH
Lot of shooting pain in my right foot. Also pain shooting from my left side of my neck up to my head, they really drains me. I had a weird sort of black out later in the evening, Andrew said I was like asleep with my eyes open and not responsive. When I came out of it I was terrified like waking from a bad dream. Bed 5am I had a rough night with spasms throughout my body.
7TH
I woke to bad pain in my right wrist and arm joints I thought it was the WII at first may be overdoing it, but the pain spread to all my joints as the day wore on I took IBRUS and DIAHYDROCOEDINE. This helped a little.
8TH
Joanne from Pilate's gave a talk on tapping, the alternative to acupuncture.
(for more info: www.emofree.com )
Russ went with me on the bus, it was very bumpy and played havoc with my foot. It was a very interesting talk. Later in the afternoon I began to feel very dizzy and in a lot of pain and spasms though most of my body. Russ made sure I got home OK. I rested, then later on felt a lot better. I think it was the bus journey starting the pain off and tiredness.
10TH
I now feel a lot better, pain back to normal rate. Temperature is all over the place I wish it would calm down. IBS is still playing up.
13TH
Doctors today I asked him about dizzy spells and black outs, he thinks they are side affects of the tablets. The pain is probably the fibro. He took my blood pressure it was a little low so that could account for some of it. I went into town but was in a lot of pain. I came home and had a lay down.
14TH
Physio - Wietse said I looked very pale and I was not too good on my feet. He agreed about the tablets and fibro. On the way home on the bus I had trouble sitting upright my body felt very floppy and I was very unsteady on my feet. I really ached all over. Am I coming down with something? I hope not. On getting home I had a lay down. Later on I did not feel any better and was having trouble talking.
17TH
We are going on a few days holiday to Caistor near Great Yarmouth. My little dog Sandy is coming with us. The journey was alright not too painful. When we arrived it was very sunny.
18TH
Sandy chilling on her holiday, she even had her own room with her basket in.We went into Great Yarmouth to look round. Its a very hot day. I walked too much and paid the price with a lot of pain. Back at the chalet I had a lay down.
19TH
We went on the beach it was very warm but windy the sand stung the backs of my legs. IBS still playing up. My joints are still painful.
20TH
Today we went on a steam train BURE VALLEY STEAM RAILWAY ( www.bvrw.co.uk ). The train was very small almost like a toy. Two of the carriages were named Annie and Carbelle off Thomas the tank engine. The train chugged along though the country it was most pleasant. We looked round a few shops then got another steam train back. The weather is still very hot but more windy.
Me and Paul in side the train as you can see it was tiny.21ST
Home today the journey was quite smooth. It rained on the way home the first rain of the holiday. The joint pain still continues.
24TH
Balance is better than it has bean. I think the Pilate's has helped with this. Pain level are on the whole mostly down. Even the temperature changes have bean better the last few days.
27TH
Physio again have not bean for two weeks. Wietse was pleased with the way I look, a vast improvement on the last time I was there. He said the joint pain was more than likely the osteoporosis playing up. I told him I always get worried as every time things look up, I seem to get knocked right down again. He said think positive, one step at a time.
27TH
I walked too far today and have upset my foot. Its Pam's birthday today We got her a Lincoln City hat and scarf. She loved it. The football club gave her a signed football as I told them how ill she had bean. She and Malc go to the home matches now. It was a lovely gesture - she was almost speechless.
I feel this month all though I still have had a lot of pain but things are a lot better than previous ones, no accidents. May be this is the start of better days. I hope things are reasonable with you all and you are enjoying the sunshine while it lasts.
Love Gill
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