November (1)


November 1st

B12 and Health check with nurse, both went well. 9% chance of getting any old age things like blood pressure and heart problems. This is good as both parents suffered with both of these. Plus weight and life style type 2 Diabetus. My waist was good 27.5 " or 70cm as this it what they go by for ahead problems. So all OK I did not think there would be any problems. I have never bean a heavy weight even when pregnant. I weigh now 8stone eleven pounds with shoes and clothes on..

Rang Age UK as I am not going tomorrow they were not very happy but I feel like I need another week. The  seizures really take the stuffing out of me, and leaves me very week and of course more pain. The bruises and black eyes are a lot better now and beginning to go.

2nd

A frosty cold start to the day. Paul's friend  Lynne came round and brought sausage rolls these were very rich and later upset my IBS,

Making Barbie tent or trying to any way. This is out of pink fur and will have sleeping bags. Not going too well at the moment, so starting again. I could not work out how to fold the sleeping bags as they have a liner and are padded. I was told its BRAIN FOG. May be it was or just being a fool. I am going to restart tomorrow.

3rd

Tent going a lot better today. What ever it was yesterday causing the problems is going well today.
I got the tent just about all finished and think it looks pretty good.

4th

Machining today- towels, trousers and the sleeping bags. Worked out how to do them. Got them all done the Barbies will be warm now.


 Inside the tent ready for bed.
Husky will look after us- lights out -night night.

5th

Not a good day temperature wise, it's all over the place, mine that is not the weather. It has not bean this bad for a while. Sweating and cold over and over again so many times though out the day. Weather it's my body readjusting after  the seizures or what. I know its a nuisance, and one that RSD suffers have to put up with. Lot of knee pain as well the last few days. The left one with the tear. Hopefully soon it will be sorted out.

Loads of fireworks going off and Summer is not happy. She is not afraid of them but I think she wants to chase them.


6th
Made Christmas cake no 1, a sherry one this time, 3 to go. Not as many this year I am finding it harder each year to do them.


Had a quick few minutes sleep and woke and was not sure where I was or even if it was day or night as 6-20. I thought I had bean asleep downstairs and it was morning. Took me a few minutes to work it out. Paul was at football so I think that's what threw me as we would have bean having tea or washing up normally. I know it was a weird and unsettling feeling.


7th

Not at Pilate's this week next hopefully. IBS playing up big time first I can't go then I can't stop going. Stomach bloated and sore. Not feeling much like eating either. A lot of this is extra tablets I know. Take the tablets plays up the IBS don't take them extra PAIN. You can't win with RSD.

8th

In town today first time since the seizures. Got a lot of Christmas and Birthday presents. I felt tired but it was nice to be out apart from the common. Angela came round for Paul to sort out trains for her to go to York. This was soon done

9th

Phoned up Newark Hospital as instructed from letter to make sure they had my knee scan. A few minutes later they rung back and said I was booked in to a ANKLE AND FOOT SURGEON NOT A KNEE SURGEON. This is bad as know I have to wait for another appointment 5th Dec. Nothing seems to be going right to get to see someone about my knee, 6 weeks for the scan now this. I now need to go to Nottingham and not Newark this time. Lincoln is not taking on till next year as they are in shush a state. Well hopefully this will be going ahead unless they have booked me into a breast Clinic!!!

Age UK went well we were not crazy busy but steady I was pleased as it gave me chance to have a rest and a bit of a sit down. Everyone was pleased to see me back. Even some of the customers missed me.
A good day but tired when I got home.

Andrew got a free sofa bed for his room and him and Hannah plus Scott (Hannah friend) took it up the two flights of stairs. A lot of shoving and pushing, plus taking down all the video shelves they finally got it there. Well done all of you.  I did not think it would go up. The height of the ceiling used to be more, but we added another flight of stairs above, for 4th bedroom, which made the ceiling a lot lower so less room to move things. When we got a divan bed once it had to come in the bedroom window. Not easy when its the second story.

10th

 Made Christmas cake number 2 today with brandy added. The smell was so good.

12th

Cake number 3 done one more to go.

I tripped over the electric chair cable mid morning and pulled my shoulder and bad knee. I hurt for the rest of the day.

I got a phone call to say my Doctors appointment is now 11th of December instead of the 20th of November. First the Scan took six weeks to be sorted, then the wrong Doctor and clinic for my knee. Now my own Doctor messing me around. I am fed up of it all. Seven weeks from when I first made the Doctors appointment.

13th

Sorted out the greenhouse now the cucumbers and tomatoes have finished. Bean a good crop of cucumbers but not so the tomatoes.
.
Knee not too good today I don't think it will get any better till I get some treatment hopefully very soon.

14th

My friend Lyn here today as it was her Birthday yesterday. She said she would come here instead of me going there. That was very nice of her.

I went to Pilate's, Paul gave me a lift so it did not take too much out of me. I did struggle a bit though as it was. I felt very far away most the time.

Had a good chat with Lyn, I have know her nearly forty years , we met in hospital when having our first sons. She was in the opposite bed and her buzzer did not work so I  pressed mine instead. We have remained friends ever since.

15th

Out today for a change, meeting Jenny and Joy for dinner/lunch. A nice meal and god conversation too. and I enjoyed it. I had soup, home made chicken and veg, very tasty.
16th

Winter is truly here the leaves have nearly all gone making a carpet on the ground. Quite windy today and the leaves were falling like snow. 

 
 
 

 Age UK a  steady day with Polly back, so the kitchen on full force. I am very tired but I do enjoy my time there. Keron was also helping us doing the Cappuccinos and coffee drinks. This meant it did not have to be turned off. No shopping today as I have an eye test tomorrow, so will do it then while in town.

The last few weeks have not bean easy. RSD is like a horror ride with no chance of getting off.


Well I hope things are going better for you all. All the best Love Gill

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