Splish Splash Crash.

August 1st

Today we Paul, Wayne, me and Summer are heading off to Hopton Holiday village for a few days holiday. We were there last year so we know the place. This year they have upgraded the inside pool, so I am looking forward to seeing it. We left Lincoln around 12-00 noon.
 
 
  Summer on her way with Wayne.


One stop on the way and we were here by 4-00pm. Pain levels pretty good very tired though. Lindsay and family have bean here since Friday and having a good time. Summer went crazy when she saw the children. I often wonder what she thinks when we take her places or Wayne and Andrew come for a visit then go again.

The Caravan is very nice and we have bean given a three bedroom one instead of the two we booked. So Wayne has a choice of two rooms to sleep in. Last year our van was better than Lindsay this year theirs is better than ours. Jay-Jay did say our TV is bigger though. I brought my Blu-ray player so I could watch Prison Break in the early morning after everyone had gone to bed. Well that was the plan but I forgot the remote for it. Don't work without, never mind I have books with me, well my Kindle.

We had a walk round to Lindsay's van very nice it is too. Onto the arcades, too noisy in there for me so I sat outside with summer, who was getting lots of attention. Home to rest. The beds were made up this year, we bring our own bedding but said we would give theirs a try this time as it looked like it was all new this year. Usually its not that good and can be very old, bobbly and itchy.

2nd

Beds were good not too bad night sleep, well my night anyway. Wayne and Paul slept well too.
Took Summer for her walk along the beach top. Warm and sunny. She had plenty of new smells to sniff as well.
 

 
 
 
Me and Summer along the cliff top.


Lindsay is not too good today still bad head and being sick. She is going to rest this morning and see how the day goes. I took the boys swimming and Tracy took Jamie-Lee to see Anxious the elephant.
We left Summer with Lindsay so she was not on her own. She would just lay with Lindsay.

In the outdoor pool and a bit inside too. Bit hot and loud for me inside but its a lot warmer in the  pool itself..

Good time swimming Paul came in too and so did Wayne. When we went back to get Summer Lindsay said she barked and cried a lot. So much for Lindsay having a rest.

I took Summer for another walk with Wayne, still warm nearly dark when we got back.

3rd

Another sunny day, swimming again Lindsay here today but sat on the side so I have little Miss Jamie-Lee with me swimming again. She loves the water and we have a job to get her out.


The outside pool.
 Wayne.
 Lindsay.

Tommy-Lee had trouble putting up his deck chair so he decided not to bother.
 
 Wayne and Lindsay relaxing by the pool.
 Jay-Jay too.


Jay-Jay and Wayne Looking good.

 Jay-Jay looking after his sister.
Jamie and Jay having fun.
Tom.
Around the outside pool.
 She is tired now but not for long.
 
Jay-Jay.  


 Jay-Jay, Tommy-Lee and me.
 
   The children Paul and me.
 
 
 
 Me.

We went inside and while we were in the pool, there was an accident some one pooed in the pool, so it had to be closed while it was cleaned. The boys are confident swimmers and enjoy their time in the pool. I can float but have trouble going to the bottom and stopping there. They have taught me to do a hand stand in the pool something I am quite proud of. BBQ for tea. Good too. Another walk later still warm and nice.


Closed for poo!!.
 
 Handsome lot.

Going out for a meal at sizzlers.

I am hungry Mum.
 Faces.
 
 Waiting for their meal.

Tracy.
 Aah.
 Jamie-Lee eating again.
 Going swimming later needs to build up strength..
 Jamie getting some sun.
 Jump Tom.

I can jump too.
 Go Mum GO.
 
 I can ride one as well.
Go faster Mum.
    
 No where to hide Tom.
 
 Tom.

4th

Bit fresher day but still warm.  Bit of headache and weird tum probably the BBQ, too much meat always upsets me. Last full day here so heading to the pool then golf and other bits later. Tonight we are all going for a meal out at Sizzlers. So a full last day. Outdoor pool was a bit colder than yesterday. Jamie in with me again. Pulling me in and saying its not too cold. Lindsay not good still, so just resting by the pool with Tracy. Wayne came in but not for long. We got out and I told Jamie we would go back in after dinner inside. Everyone else had some chips. I did not have any as going in pool again.

 I want one of these please Nan.
No-- its all mine says Tom.
Where's that ice cream gone?
 
 Tracy and Tom.
 
 The three little rascals.
Lindsay And Jay-Jay.
 The three monkeys.
 Lindsay and Tracy.
 
 Jamie-Lee all alone.
 Jay-Jay looking fit.
 Two ponies from the grab machine that Tracy got her.
 Cuddle time.
 
 Tracy trying to get a tan like Lindsay's.
One of Lindsay better days.
Jamie-Lee found a friend..


Pictures taken sitting on the decking near the pool.

 Me a few minutes before the seizures.
 Lindsay plus me.
 Jamie-Lee.
 Wayne.
 Jay-Jay.
Tommy-Lee.
Tracy.
 Paul.


After dinner, into the warm inside pool. Bit different here. Warm but loud again as a lot more in today. Swimming and playing with Jamie-Lee having a good time. Paul came in and he took Jamie-Lee for a while so I could have a swim. Bit crowded to do much.

I got kicked on the leg by a man playing ball with some others, quite hard. This caused me quite a bit of discomfort and pain. I carried on swimming but the pain got too much so I stood to the side still in the pools deeper end. That's the last thing I remember clearly.

I remember little bits like Jay-jay coming to me while I was on the floor with the Ambulance men PAIN feeling sore and not sure what was going on. Big faces all around me.

The hospital of what I remember, was very efficient and soon made me comfortable. taken to resus. I had a drip and DIAZAPAM. Over Thirty seizures later. When I came round enough I was able to leave. But they really wanted me to stay over night. I even had another seizure while in the wheelchair going to the car. Lindsay had a job holding me in. The Nurse who had looking after me came out to make sure I was alright. I said I am not going back in the Hospital. I did not need to, just a few hours sleep.


"Paul's Story". 
I hate this because as soon as Gill's regular readers see "Paul's Story" they know that Gills been poorly again and again yes she has..................

As Gill stated I was looking after Jamie while she had a swim. I saw Gill in the middle of the pool and when I looked again she was at the pool edge towards the deeper end. I looked again and she just had a blank expression, I instantly knew there was a problem, so I got to her as quick as I could. I held her up out of the water just as she collapsed, I asked a lady to call for the lifeguards urgently as Gill started with her first seizure. The lifeguards arrived very quickly as did a policeman who was on holiday on the site and he of course had medical training. We all managed to get her out the pool as more seizures started. They made her as comfortable as possible laying her on kids life jackets and also wet towels. This then gave me the chance to run back to the others with Jamie and to inform them what happened. By all accounts our eldest son thought it was funny seeing me running as he hadn't seen me run that fast as I'm 16 stone 10 pounds and not very fit. Wayne and Tracy looked after the kids as Lindsay and I went back to Gill. It was decided that half the pool be closed off for Gills privacy, which it was. After Gill had had around 12 seizures I decided that it was time to call for an ambulance. One of the lifeguard staff did this for me and was asking me a number of questions about Gill before the ambulance crew arrived. I decided that it was too hot in the pool area and it would be better to get Gill outside as it was very hot and still very noisy. The lifeguards arranged to get a mattress from one of the nearby holiday show homes for her to lay on outside. The whole of the indoor pool area was evacuated while a number of the other lifeguards carried her outside. Three ambulance crew arrived and examined Gill who was still having seizures. They administered oxygen after putting in a nasal breathing tube and also gave her a total of 5mg of Diazapam over 2 separate periods. I then ran back to the caravan too get her medication while they prepared her for the trip to A and E in the James Paget Hospital in Gorleston. Having had seizures in the ambulance they arrived after me at about 4-30pm. Seizures to date about 22. She was seen immediately by a male resus nurse called Andrew and an A and E Consultant, by 5-00pm she had had another 3 seizures. She had blood and urine tests, later both coming back clear, she was put on oxygen and also had 5mg Diazapam given rectally. At one stage another Doctor popped her head round the corner as Gill was seizing and she hit the emergency button and within seconds doctors and nurses appeared from nowhere, it was basically for assistance so Gill didn't hurt herself. At about 9-00pm she was moved from  to Bed 6 in Bay 2 of the Clinical Assessment Ward also situated within the A and E Department. Gill then slept for a while but at 11-25pm she had 3 more seizures in a row and was complaining of severe headache so I was allowed to give her 800mg of Ibuprofen out of her own medicine box and she also had what Gill calls Oxygent (she is funny). She then settled and at 2-30am it was decided that she could go back to the caravan, but she was given 3 x 5mg Diazapam tablet to take with her to help with the long journey back to Lincoln later that day. Lindsay wheeled Gill to the car as I went to unlock it but Gill had another seizure in the chair with Lindsay struggling to keep her in the chair, I went back into A and E to get help. Her nurse came out and checked her over and we decided that the seizure this time was probably caused by the temperature change from a very warm A and E Department to the very damp and cold outside atmosphere at 2-45 in the morning. We arrived back at the caravan about 3-00am. I would like to add that I think the Hospital A and E was far better for Gill all round than the Lincoln County Hospital and the Doctors and nursing staff were far more caring and considerate and more helpful than at our Lincoln Hospital. Lindsay and I got Gill straight into bed with Summer going stupid, as usual, at seeing her mum. The last of the 30 seizures were over and the damage at the time too Gill didn't look too bad but unfortunately it did a day or two later. Wayne then escorted Lindsay home. Gill was still in bed at 9-00am and we were having to vacate the caravan by 10-00am so I contacted reception at the Hopton Holiday Village and without hesitation they gave us an extra 2 hours, so many thanks also to them. Thank you also to Lindsay for being with me and to Wayne and Tracy for looking after and keeping the 3 kids amused while their "Nan" was poorly. Besides that we had a really good few days away.

Me in A & E.


5th

Bit battered and bruised not looking forward to the journey home. I have taken DIAZAPAM so that should help.
Jamie-Lee brought me round a yellow emoticon toy from everyone, to make me better.
 


Dozed a bit I think. Every bump seemed to be aimed at me. My breast bone is so sore from the Ambulance men pressing on it to see what level of unconscious I was. Right hip sore also all down my right leg and shoulder. Arrived home at last, sure it was twice as far home as when we went. Nice bath later with BADASS ( Badedas) in it this always helps. After I got out the warmth of the water had made my leg go very red and sore. My injures usually take a few days to show.

 
I had a good holiday. Pleased my Mum is doing good because I don't like it when she goes away.


6th

Tired but pleased to be home. Trouble with these seizures I never know how many or how bad they are going to be. Life is like living on a knifes edge. Paul says he worries when he gets a call from my phone or just when I go out. I CAN NOT LIVE MY LIFE ALWAYS INSIDE-- I NEED MY SPACE. Yes I worry too, but I am still here.

Paul is taking Wayne back to Halifax, so Tracy is here to keep an eye on me. We did a 3D puzzle the ones where you build up flat looks good. The Beatles, this was Tracy's from a while ago so I said take it with you. We were very proud of it. Tracy did most of the working out I just placed the pieces. A nice afternoon.

My sores and grazes.

9th

Lot of pain and discomfort today. Leg sores are weeping and bleeding. My leg is swollen too.
Saw the nurse today I had an appointment for my B12 so that was lucky. She dressed my sores with special dressing and silver lint like dressings. Hopefully this will help to keep the infection out she said. I think there is already infection there. Back on Thursday to check them.




My sores are getting worse.
 

 All patched up.

Got Jamie a scooter for her Birthday but gave her it today. She can get more use out it while the weathers fine. I said its for your Birthday (8th Sept). Oh she said what will I get for my Birthday then, I said nothing she said OK. Riding off on it she said its great Nannie.

She did not want her picture took.



Doing puzzles with her later she is very good at them. 50 and 100 piece ones

10th

No Pilate's today. Age UK called when I was walking Summer, to see if I would go in today no chance Paul said. Joy is calling round later.  This will be nice I have not known her long either. She brought me a little plant. Thank you Joy.

Lindsay and children here later for tea. Tommy-Lee was helping me with Yorkshire puds. I do it in a milk shake tub with a lid with a wire ball to help more air get in and it makes a smoother mix. The lid is tight and I told Tommy to shake it up as hard as he could. Won't the lid come off Nan, NO I said, its tight. Well not sure what happened, but the lid flew off, covering poor Tommy in batter. In his mouth to, he was nearly sick. So funny poor Tommy. No pictures as laughing so much, Tommy too. He had to wear bigger shorts and a "t" shirt (mine) till his was dry after me washing them.  

Lindsay brought the chicken so a roast chicken dinner it was. The children enjoyed it very much so did the adults. A long day as still feeling the effects of the seizures.

11th

Back to the Nurse to check dressings. They are all good apart from one on my lower leg that is still oozing and wet. Dressings changed and off home but back on Monday again. I have bean given more dressing so they can be replaced if needed. Popped into town for a few things. This was more to test out how I felt while doing things as I hope to go to Age UK tomorrow. I felt very tired when I got back. Maybe I will sleep better, but I doubt it.

12th

I did go to Age UK and it was alright quite busy but I was able to cope with the help of extra pills. Joy kept an eye on me. A lot of people asked me what had happen, had I had an accident? Some I told others I just said yes something like that.

My RSD is really bad, nerve pain hot cold all over the place. No doubt bean upset by the seizures.
I was talking to a man about seizures he has them himself. He said he could sympathise with me and hope I remain seizure free for a while. Good to have a conversation with someone. I know he has not got RSD. I still have not met any with it yet in UK.

When I got home my face and right eye was swollen and and was only partly open. This felt quite sore.

Face and around eye more swollen.


14th

Wow-- eye and face swollen, eye about shut, extremely sore cheek dripping and wet. This can only mean one thing INFECTION.

We are having a BBQ with Lindsay and family so will be outside most of afternoon. When they arrived Jamie-Lee looked at me and went, OH poor Nannie. I put a hat on and sunglasses but still it was painful. Doctors tomorrow so its good I can get it checked out.

15th

My legs have healed well still the lower leg one, a bit to go yet till properly healed. I am now to put cream on to moisturise my skin as it's like sandpaper in places. I took a lot of the dressings off last night after my bath. The nurse says my eye is infected. I need to come back later to see a Doctor or Nurse Practitioner. She can not write a prescription. Good job it not too far away. My balance is a bit off today.

Later when I was seen I was told no question I have an eye and cheek infection. Bean given  CLARITHROMYCIN ANTIBIOTICS 500mg 2 a day 1000 in total. Quite a strong dose, hope it works. I am to go back in 48 hours if no change.

Rest of the day just cleaning up. My eye is still bad, not as sore as yesterday, but still not good. Yesterday it felt like I had a razor blade in it. Today its not as bad but more closed.


16th


Today was a special day for me as I had a visit from a friend Billy and his wife Sarah and son Riley  plus Sarah's Dad. He used to live in the street when he was a child. He was Lindsay' friend really, but he came round here a lot. When the children were younger the house was called "THE CAFE" so many young ones came round here. In fact when he came today, he made the tea, while I got Riley some toys.
He now lives in Spain and the special bit, I have mentioned be for he has RSD. He is the only person I have met with it. His started after a bad car accident. He broke his ankle in quite a few places. After many procedures he thinks they have got it right. I just hope the RSD improves, at least a little bit.
Riley had a nice time playing with the box of figures and cars plus other bits. Some of the toys Billy remembered from coming round to see Lindsay. A lot of them were Andrew's, passed down from Wayne and Lindsay over the years. A lovely  morning good to talk to some one who knows how I feel. They are going back to Spain on Thursday. Nice he found time to come and see me.

17th

Even though my eye is sore, ANTIBIOTICS are working. I am still going to Pilates. Joy is coming with us as well. Jeff is taking it today as Jo is away. I think quite a good session despite head and face hurting. My battle sores are doing good now most have healed or nearly anyway. I am to moisturise now as skin is very dry. I tried DIPROBASE but this did not suit me itchy and sore. CRAPOLEAN is good for me also just a simple cheap moistener does the job well. I think I will soon be healed up enough to start running I have got the route already worked out on the common. "Happy Days".

18th

Early this morning I had a lot of pain and discomfort around my right eye, the infected one. A bit like a batman mask area. Sight not too good very blurred. I went to bed but the pain was not getting any better, despite taking two IBRUES and two DIHYDROCODEINE. The RSD was going wild, My whole body was on fire or it felt like it.  Paul woke up about six and I asked him to get more tablets even though it had bean only two hours since the last ones. I got out of bed for a wee and could not see much at all out my right eye it was not focusing at all. Bit worried but may be a side affect of the ANTIBIOTIC'S or extra tablets or something. I went to sleep.

Morning came very quickly, I opened  my eyes still the same? NO, worse, hardly any vision at all. Still the mask pain as well. I thought I will wait till dinner time to see if anything improves. Who am I trying to kid, of course it did not improve at all. I tried the LIQUIFILM lubricant I use but, they did not work at all, worse I think.

I phoned my Doctor in the afternoon and got an appointment. Everything is pale and bleached like, though my right eye, vision very bad, a bit scary. The Lady Doctor who I saw was good, doing lots of checks and asking questions. She phoned up the Hospital while I was there. I need to go as she says something is very wrong.

19th


Right eye the same, looks like I do need this appointment  I was hoping the eye would be alright, I have said before, things like that don't happen to me I get all the shit stuff. Paul took me and came in with me to see the Doctor. A lot of questions and some answers. A few painful tests later and we have a verdict. I have damaged my eye quite badly. My eye has got a lot of scratches on it, plus inflammation and infection at the back and around the eye. I think this would have bean caused by my seizures on Holiday. The eye infection first then this. My seizures are very violent similar to GRAND MALL ones.

PAINFUL I think is the word. I have bean given tablets ACICLOVIR 800mg,  five times a day and three lots of cream. CHLORAMPHENICOL four times a day - DEXAMRTHASONE four times also a day- plus GEL TEARS to keep my eye moist to use when ever.

I am to go back next week Wednesday, before if no better after the weekend. Hopefully by then my sight will be a lot better. Home now, pleased, I feel sore and battered and very tired. I can only see out one eye.

Angela and Joy both phoned up to see how I was. Joy went to Bridlington but she said it rained most of the day what a pity. Nice of them to ring up.

20th

Eye sore but I suppose that's to be expected. RSD has joined in as well, my right foot and left hip very painful at times. Spoke to Andrew he is doing well. The weather in Amsterdam is much like here at the moment so he is enjoying sunshine too.

The children are staying over night arriving about six pm. I am going just to rest till they get here.
Easier said than done with me, I can't do much anyway-- no sewing, knitting, reading or  Blog.

The children arrived on time. They have come from their Dads. They had had their tea so that was good, so they wouldn't be hungry for a few hours.

Playing and just talking to them, They decide they were hungry again so toast and ravioli, for Tom. toast plus other bits for Jay-Jay and Jamie-Lee. Soon it was bed time for Jamie in fact past it. She soon settled. Jay-Jay, Tommy-Lee and I just talked about things. Right bed for you two and then I can relax a bit in my Radox bath. The same as Jamie they soon settled down and went to sleep.

I had my bath and watched a bit of television a bit blurred though.

21st

The children had a good sleep. Tommy is at football later. Jay-Jay came with me to take Summer, taking advantage of the open space of the common and had a run.

He went home soon after playing with Jamie, and Tommy went for his football match. He hurt his ankle Lindsay said later on in the day, but I think he is alright. This just left the Little Miss to play with. Ponies, these had all their tails and manes done, brushed and plaited. This took about an hour or more. Lego, and Dora played with as well.. We had a good time and Summer joined in too as usual.

 Jamie-Lee.
 Jamie, Jay-Jay and Summer.
Jay-Jay.
 
 Summer has found a nice soft cushion.
 All the ponies groomed. 
 
 
Giving Summer a cuddle

 Lindsay picked them up, time to rest as pain around my eye is bad. The vision has improved slightly and I can see colours now.

Cooking tea with Paul's help, roast beef with all the bits. Funny while eating it my eyes saw four Yorkshires instead of the two I had. I will be pleased when everything is back to normal,whatever that is. So long since things were anywhere near normal.


22nd

I feel very drained today and tired-- may be the extra tablet and drops. Paul has made a chart as there are so many extras to take now we set the minute minder timer. so I don't miss any.
Eye is improving but not quick enough for me. I hate just sitting and doing nothing.

Angela came round after dinner. She is well and seemed quite happy. A good afternoon always good to see her.
After my bath Paul took these pictures--- as you can see all the sores about gone now. Some more scars to add the growing collection.



23rd

Catching up on this Blog, as not bean able to do it because of not being able to focus. I was pleased I did some last week before my eye was bad..

Bit of work in the garden today quite grown up. A nice sunny day able to stand the light a lot more now but still had on my sun glasses.
I dug up my potatoes,  I planted about six, the ones that go soft at the end of a bag. What a surprise loads of them some big ones too. I weighed them in at nine pound five ounces.
 
 My surprise tatties.
 This is the little spot I grew them in quite a lot I think for the small space.
 Cucumbers getting big I grew these from seed this is the second lot, the snails got all the rest..But they died for it..
 Cucumber plant.
 My tomatoes from seed.
 
 Still a bit to go yet.
 Tomatoes ready, these I bought as plants.


24th

Back at the Hospital this afternoon. Bit of good news my  CORNEAL ABRASIONS  have healed up a bit. The Inflammation is called ANTERIOR UVEITIS I am to carry on with drops as prescribed tapering them off. The cream now just at night time and tablets till finished. Back in four weeks. There is not much improvement with the ANTERIOR UVEITIS. Mine has inflamed the back of the eye as well. Also I need to make an eye test appointment as my eyes will have bean affected. I know they have because my reading glasses don't help much, and I can see better without my distance glasses. So that will be made very soon. Tomorrow I think. I am pleased there is some improvement at least. This has bean very painful for me.

Taken from website.

Anterior uveitis includes iridocyclitis and iritis. Iritis is the inflammation of the anterior chamber and Iris. Iridocyclitis presents the same symptoms as iritis, but also includes inflammation in the ciliary body Anywhere from two-thirds to 90% of uveitis cases are anterior in location. This condition can occur as a single episode and subside with proper treatment or may take on a recurrent or chronic nature.

25th

Up earlier today about seven thirty, stomach pains. Toilet six times before 11am this is more than I usually go in a week. Might be a good thing though as a clean out. I went to bed about three. The weather has bean very hot and humid and I have bean feeling very tired. I know some of it is the tablets.
Just thinking, my eyes over the last years have actually got better. The only thing that the RSD has not much affected, is now bought down by this, something else. I have not eaten much today as when I do I get bad pain in my stomach.

26th

Today would have bean my Mums Birthday if she was still here 84. Miss you Mum.

Paul is taking Lindsay or should I say the boys to Mablethorpe. This is the first holiday they have had together. Lindsay and Ben are going with the girls. The car is not big enough for all of them to go together. Six children two adults. Not for the faint hearted.

My stomach is not any better six times on the toilet by 11am. I feel very week and stomach sore.
I had two pieces of toast for dinner and it felt like a banquet meal. The last day of the tablets so hopefully when they have left my system all will be well.

Going with Angela to see one of her friends later if I feel alright. I have not bean out much anywhere since coming back from Holiday, apart from the common with Summer. So nice to be asked. The toast settled after a while and we both enjoyed a good afternoon. We even had fish and chip, from a local chip shop on the Forum North Hykeham might be the wrong thing but I really fancied them. I did not eat them all but they were good, more pain though.  Coming back I asked if her car seats came clean easily just in case. 

27th

Lindsay's caravan is a big one and very nice she said.

 All the gang.
 Six Kids!!!

They are enjoying their time there. Hopefully the weather will keep good. We have rain here as I write this- (Saturday 27th 1-30pm) I just spoke to her and she says its sunny there and warm, good I'm pleased for them all.

My stomach is still bad, I feel week and hot, sweating a lot too. I have lost three pounds in weight. No more tablets now so I hopefully this will be the last painful day. PLEASE.

30th

Bit better night, still pain in stomach and still going to the loo a lot. Slightly better today, hopefully I can eat more as I am loosing more weight.

Went to the Doctors to take prescription for my tablets. Only about a mile in total, but it made me feel very light headed and sick at times. I am not going to Pilates tomorrow as I think it would be to much for me.

Lindsay and Family are back from there holiday now,  and she said it was great.
 
31st

Well last day of the month, quite pleased to see it go. Stomach much the same, fair bit of pain for the last few days in left kidney area. Just hope this is not an infection also, and just a normal pain. I have rung up Age UK and said I am not able to go in again this week. The seizures started every thing off four weeks ago. Since then things have definitely gone down hill.  The only way is up from now on, that is after I stop going down hill.

My friend Joy came round after pilates and brought me some crystals/stones to help healing. A lovely thought- Thank you Joy.
 She said Lincoln is in worse state now, as the bus station has moved and not running very well. Lets hope things will get better as its there for at least a year and half. A new one is being built on the original site.

Lindsay and family here for tea, she did most of it. I had about as much as a two year old, but a least its a start to eating again.
 Finally managed to get a picture of Jamie-Lee and her scooter. Lindsay got it on her phone.

Is it Jamie-Lee or giraffe.




Well a full month, not a good one though. I feel like the lady that swallowed the fly then the spider song. Things just keep getting worse. This year has not bean the best. I want to do so much--- bike ridding- running!! but things just keep going wrong. There is always next month maybe this will be better. Hope you are all as well as can be, and had some of this sunshine.
All the best Love Gill.











 

July

July

July 1st

Age Uk-- very busy selling out of things, tempers flaring in and out the kitchen. Makes the day that bit different. Not too bad day for me, more pain than normal, popping pills like smarties Sheila said.
Andrew headed off to Brighton, then on to London this is all to do with his work.

4th

Not too good today my neck is playing up. This has bean a major problem for years. I have arthritis (not sure if this is anything to do with it)  there and only have to turn it wrong or lift my head up and the pain is horrible Shooting up and down my back and arm in fact any where it chooses.  Can last for days, weeks, months or just a few minutes.  Goes a way for a while then comes back again. What happens is, I think is, my neck swells up then the nerves get pinched or squashed. Weitse said- that what he thinks, is happening too. I had Physio with him From  February 2005 to November 2011, so I very much trust his judgement.  When put together with the RSD and FIBOMYALGIA it makes me a lot of pain and trouble. Lucky its only one side of my neck.

Andrew is now in London having left Brighton. Every thing is going well for him.  

We picked Jamie up from morning Nursery, she will be here till about five when Tracy will pick her up.

Summer has moulted a lot and now her usual thick white coat is quite thin. I know this will thicken up later in the year. She is still very white though as she was bathed while Jamie-Lee was here. Jamie was not that bothered, preferred to watch Jungle Book instead.


Lindsay is not too good severe head ache again and sick. I do wish they would get her sorted as the worry is not doing any one any good least of all her. Poor Lindsay I think she is scared to go to A and E in case they keep her in. I think they would- she is a ticking time bomb. If she bleeds again, well !!!.

Jamie-Lee  was good and enjoyed her time here. I have told Lindsay when her time comes to go in to Hospital, the children can stay here and NOT their Dads. None of them want to go there.

5th

In town today to get Lindsay's Birthday presents. My knees are on fire and so swollen. Sit down and rest I hear some of you say,---- makes it worse the joints hurt more. Walking is the best for me, my neck is still not good and a rash has come on my right shoulder. All this has happened be for so just put up with it. Still not nice though and too many pills popped.

6th

Pilates today was not good pain in knees shoulders too. During one move my right shoulder totally messed up going into a tight spasm.  Very painful as it locked up, I managed to free it after about ten minutes or more. This made me very cold for some reason to the point of shaking. Feels very sore now but the worst is over for now any way.

Andrew is here again for a few more days, Paul picked him up from Newark.

7th

Body and pain much the same. On a better note I have bean wearing a eye sleep mask to block out the light. Wayne my Son, suggested it. I think this helps a bit as my brain still thinks its dark. When I go to bed the birds are singing and the sun up. Getting back to sleep seems to be easier, sometimes.

9th

Jay-Jay here for the day, if the rain stops we are going into town to get him a few things I took Tommy-Lee a few weeks back and treated him to clothes and shoes. Andrew came too and got shoes and summer vests.

Head is still bad and walking back home was a big effort for me. The air is very stormy here so that does not help me a lot either. Not sure if any of you out there suffer with storm pains or not but I think its quite common in RSD.

10th

Head a bit improved so I hope it stops that way.

Washing, ironing and gardening tidying up the green house as well.
 

 Nice poppy self set.


 Sat in the dining room when Andrew and I heard a crash, Little Ben had put the football though the greenhouse roof. Two panes broke, he was very sorry but he has to be more careful. I have got more glass so that's good.

11th

Picking Jamie-Lee up from Nursery today and having her till tea time. Lindsay is having a day out with Tracy as its her Birthday tomorrow. Raining at the moment so I hope its stops.

I picked Jamie-Lee and she wanted to walk home, its quite a long way for little legs. on the way she decided she wanted to get on the bus. We were nearly home so I said we would go into town by bus. She wanted to get her Mum (Lindsay) a present for her Birthday. A heart she said, and we did manage to get one too-- a T light holder plus a smiley face balloon, this Jamie said was to share. I got the few things I wanted too.

A long day today but very nice to have Jamie-Lee here. Tracy picked her up and took her home.

I have had the children quite a lot the last few weeks while Lindsay is not well. I do wish the Hospital would sort her out.

12th

Happy Birthday Lindsay.

Cleaning up down stairs today. Phone call from Lindsay could I get Jamie-Lee from nursery. She is having her hair done and did not realise how long it would take. This is a present from Ben.

Jamie was going to her house to day so I could then see Suey their dog. Jamie would have preferred to could to my house instead. She was tired today, bean at School all day on a trip.

Lindsay came home about an hour later, her hair looked very nice and suited her. After a while I left.
We are all going out tonight for a meal with Lindsay and family.

The meal was at a near by pub, The Plough.  Every one had a good meal, Lindsay liked all the things we got her. Mostly clothes and money, the children were tired as it had bean a warm day at School they still enjoyed it though.

13th

Not a god day hardly any sleep. PAIN every where. During Pilates my whole body was shaking.

Today is the day I fell back in 2004  starting all this RSD off  and every thing else that followed it.
 I take the tablets to  help the pain-- No tablets no life. These do not help my IBS. A vicious circle of pain, tiredness and just HELL a lot of times. I am lucky ( I did work hard through the pain so I did keep mobile) I can still get about quite well. A lot who have had it this long are in wheelchairs now.

15th

Angela called in yesterday after having her hair done it looks very nice.

Age Uk  no accidents today quite busy but not rushed off our feet a new lady was on the till, called Joy, as Shelia was ill.

Pain has calmed down a bit so I am pleased. Right hip is quite sore though. There is always pain some where. The chef here, has a daughter who has FIBROMYALGIA, who suffers a lot  so she knows what I am going through.  

The Air is very heavy and I had a bad head later in the day, this feels like a storm inside there. I have mentioned this in past Blogs.

Bit of shopping then home. there are a lot of good sales on, so shopping is very temping, a specially for the children.

16th

Got all three children today and the night too. Andrew is still here, so sleeping will be a little different this time. The boys usually sleep in the top room but as Andrew is in there they are in the the front room down stairs. With Jamie-Lee in her usual bed. Tom fell asleep on the dinning room floor as Paul was still watching his TV.

17th

Up about eight, none of the children were awake. Every one awake soon after, Summer jumped up to see Jay-Jay on the settee and Tommy  on recline chair. They said they had a comfortable night sleep.

Tommy Jamie and I took Summer on the common for her walk.
In the afternoon we all went on the park to play. The boys played football and Jamie just did her own thing. All picked up about six. I enjoyed the weekend and they did too.

18th

Lindsay and Jamie-Lee came round in the afternoon she was not feeling too good its time the Hospital sorted her out. Bean too long now and things are not getting much better.

Andrew is going back home tomorrow to Amsterdam. I think this is the longest he has bean here, (three weeks on and off) since he left five and half years ago. Wayne is coming with us on Holiday this year too. So that will be good for every one. Looking forward to a few days away. Lindsay and family will be there too.

Andrew and I took Summer for a walk about nine pm the last one for him for a while. Still quite hot as well, a nice cool breeze as well.

19th

Andrew all ready for the off for his fight at one thirty. Good byes said, Paul and him were off to the Airport. We will not see him now till Christmas. A message later from him he is back in his beloved DAM.

20th

Another hot day Summer at last. Pilates went well this week. A lot of the time I felt far away and light headed. Spasms down right shoulder with pins and needles now my arm.

Cleaning up downstairs its hot but it needs doing.

21st

A small seizure in the early morning I just got into bed and my body was started shaking I felt sick and had an instant head ache. This only lasted a few minutes  thankfully. I did my deep breathing, now weather this stopped it going into a bigger seizure I am not too sure.
I felt Ok later.

Physio today-- I have said be for I am not sure if the ACUPUNCTURE is as effective any more. The students suggested CUPPING or to give it the full name GLIDE CUPPING.
These  were placed on my shoulder and move across and down my back. two more were used on my knees. This at times was painful it will be worth it if it helps me. After the CUPS were remove I had a nice massage.  Today the Students were Briney and  Brett. Tutor was Fanyi.
This helps explain it all. 

 




22nd

Fair night for me, a few hours sleep.
Age Uk not too busy today, I was pleased as my shoulder is quite painful, bruising has come out on the right side (worst RSD side) Weird as my body feels a more constant temperature to day.
Tired but feeling good apart from the pain that is. Still taking a lot of extra tablets.

23rd

We are having a BBQ today with Lindsay and family. Hot in our garden got burnt a bit on my shoulders. A good day and every one ate well. I think Tommy-Lee had the most. I don't know where he puts it all.

25th

Legs and knees are really bad pain like I have ran (If only) or walked a long way. My neck and shoulders are definitely better than they were. Still a bit tender in places.

Cleaning up the bedrooms today starting at the top and working down. 

Quite a bit of extra pain today in my legs today, fine when I am walking but when I sit down for more than a few minutes they really hurt.  My right hip is playing up as well. The air is very heavy today this is causing me a lot of pain too.

Cleaning up the bedrooms Wayne is here for a few days at the weekend. We have sent Andrews box to him. These are things that he left here plus other things.


Angela came round yesterday, I have not seen her for a while. She is well and working now.

His parents came round later. I am altering two skirts for her when I can.

These I started later in the evening, they are quite difficult as the material is very silk like. I got them both the right length and all ready for machining now.

26th

Finished off the bed rooms, this can take a while as there are four, Well three, plus a computer room.
Quite a good day so far. I feel very tired, but most of the time I do any way.

Sent Andrew a parcel of things he could not take with him when he went back to Amsterdam.  Weight soon adds up when filling a case.

Night altering two skirts for Paul's Mum, went quite good a bit tricky as they are like a silky material.
Any way managed to get them tacked ready for machining to morrow.

26th

Poor Summer had a bad time last, well more early morning. I went to bed 5.30am Paul was up at 7.30. The smoke alarm in very top room up two flights of stairs, beeping to say low battery. This for some reason terrifies Summer to the point of shaking panting and scratching doors and curtains. She is very bad.  Paul came down to find she had pooed on the floor and wee'd and clawed the cupboard door. She was in a bad way. Paul calmed her down and she had a sleep. When I got up she was feeling better. She slept a lot though.

Machined the skirts and made a bag for the umbrella. Quite a busy day I think.

27th

Pilates, a friend from Age UK came today as well. She enjoyed it and going on a regular thing. I am pleased she did.

Got the children again today well two of them for now Tommy-Lee and Jamie-Lee Jay-jay will come later. He has a hospital appointment. Tommy went to the park with Ben to play foot ball. Jamie and I played with all different things.


His parents picked up the skirts and was pleased with them. Me being able to do them saves her money. In the local market they charge £10-£12 per skirt. I get sweets or chocolate so suits me fine.


Jay-Jay arrived and headed off to join his Brother and Ben at the park. Be for he went I said zip your pocket up or you will loose your phone. He said you know me Nan, I said yes I do that's why I said it.
We all sat together and had a lovely Chinese for tea very good. Later Jay-Jay wanted to show me something on his phone. He could not find it. Oh no he thinks he lost it at the park. Lindsay is not feeling her best today in fact CRAP. He just woke up from a sleep and heard Jay-Jay say he had lost his phone. All hell broke loose every one up set. Jamie was not helping, saying things like may be the phone will magic back or its in another pocket.

They all went home I felt sick Jay-Jay and Lindsay very mad. His phone is an Iphone 5. I know it cost Lindsay a lot of money for his Birthday in March.

She is not too good today a very bad head and tired too. The children are off School now for about six weeks.

We got a call from Lindsay later that some one had found the phone, Lindsay had bean calling it continually, then some one answer it. The man lived close by so it was picked up straight away.
I told Jay-Jay he was very lucky. A very happy group again. Me too.

28th

All children here again while Lindsay packs for holiday. She is not too good. They are going to Hopton near Great Yarmouth. We will join them next Monday for 4 days. I am looking forward to it.

Bean a very busy few months with Lindsay being ill.  Jay-Jay was talking about when he lost his phone he said he was feeling sick wanted to scream because he had bean so stupid. I said be more careful with it now as he would not get a second chance.

I feel quite good today body seems to be more of a constant temperature, pain is not too bad either.


29th

Age Uk quite busy there at times, dinners start at 11.30 and a lot of people have their meal between 11.30 and 12.00. After that steady till about 2.00pm.  More pain today so a few more pain killers taken.

Bit of shopping in town then home for a rest.

30tth

Happy Birthday Wayne.

Up a bit later today not a good night awake a lot on off, not good when I got to bed about 4.30am.

Summer has had a bath ready for her Holiday on Monday. Wayne is on his way here, he's coming with us on Monday. He said he is looking forward to spending longer with the children, he thinks so any way.  Hope it not too much for him.

Cleaning up and bits in the garden today. Still a nice day here, not as warm as past few days but still good. Lindsay said it nice in Hopton and they are at the pool. She said she is getting head aches but is doing alright.

Paul picked up Wayne from Newark train station. He lives at Halifax so a fair way to come.

Chinese tea   I enjoyed this as it was getting on eight o'clock when we ate, so I was getting very hungry.
Gave Wayne his presents every thing he liked so that's good.

 31st

Cooking a late dinner/tea today roast chicken with all the extra bits. Doing this blog too so I can publish it be for Monday. Dinner was delicious.

We are out tonight at the pictures with Angela to see BFG  (Big Friendly Giant) so looking forward to that.

Pictures was very good and funny-- Angela,Wayne and Paul thought it was good too. An enjoyable night all round.

Tomorrow we set off for Hopton village for a few days Holiday.  Hope the weather is kind to us.



 
Summer- packed, and ready for her Holiday.






Well bean a very mixed month hope the new cupping treatment helps me a bit more with pain.
Also I truly hope Lindsay gets sorted out too.

Well that's all folks, hope you are all as well as you can be and had some of this Summer we are having.






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